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Survivors who have used only alternative treatments

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  • heatherckc
    heatherckc Member Posts: 5
    edited February 2012

     Athena, thank you for clearing that up... I knew it to be right.. certainly do not want to confuse anyone tho...

    Sweetbean, I am not interested in taking any medication.. but thank you. I am doing very high dose of IV vitamin C which I have faith in.  

  • abigail48
    abigail48 Member Posts: 337
    edited February 2012

    my astrology teacher had lung cancer 30 years ago, treated it with juicing, vitamines , enzymes, veg diet, finally surgery.  and miseltoe.  said that was expensive.  has had no reoccurance in lo! these many many years

  • sweetbean
    sweetbean Member Posts: 433
    edited February 2012

    Yes, mistletoe is supposed to be very effective. 

  • wornoutmom
    wornoutmom Member Posts: 75
    edited April 2012
    I am at a clinic now and my doctor doesn't use miseltoe as he say's some respond and some don't.  But if you do respond I hear there are great results. If you study enough treatments you will find this with them all.  The biggest problem we  have with the cancer war  is we want to make it a one protocol cures all.  As they learn more receptors etc (that each case is different) that is when we will make progress.  My treatment is working amaizngly but that doesn't mean it will work for all.  When you keep doing the  same thing over and over and keep thinking you are going to get a different response they call this insanity.  Well we have rehashed chemos and made more and we are HORRIBLY losing this war.  That is where I think alternatives are ahead of the game.  They recognize we are all not clones and react differently.  They also respect that the body seeks homestasis. They step in before you are sick.  Thousands of people are dying while the two sides bicker.  At what point do we start caring about the people instead of the war??  I have more respect for my doctor as he is an MD but through experience he has looked at both sides and said I respect my hippocratic oath.  I am going to put everything on the table regardless of what side it is from and do what is best for my patients.  He can speak from knowledge not reading an article and assuming they are getting the answer.  I don't have much respect for someone who pays it lip service and never worked with alternatives.  His willingness to put his patients first is why so many are thriving including me.  AND might I ad without suffering.  The only toll I take is having to jump through hoops to be allowed to fight my cancer like I am doing some crime.  Wondering where the freedom went in the USA...lol  Wink  I am just glad that it seems this tread has finally become a productive discussion!!  I just had to check out of curisoity.  Wishing you all good health and success in any treatment you choose!!! 
  • luv_gardening
    luv_gardening Member Posts: 362
    edited April 2012

    Welcome back WOM!

    I was just trying to put my thoughts into words this morning, about how immoral it is that the same health systems that can't cure cancer and the vast majority of illnesses and conditions, can make it illegal for anyone else to attempt to do better using non-standard treatments.  In the future people will look back and see how unethical that is.

  • Kaara
    Kaara Member Posts: 2,101
    edited April 2012

    WOM:  So glad to hear from you!  You name has been mentioned on these threads so many times...the naysayers speaking of your ultimate demise because you embraced alternative tx. I was a newbe to the group when I first began hearing about this, and I prayed that you were finding the right tx choices for your disease.

    Thank you for posting and letting us know that you are doing well! 

  • orange1
    orange1 Member Posts: 92
    edited April 2012

    Hi WOM,

    Welcome back.  I am glad to hear you are doing well. 

    What treatments are you getting?  How are they/you monitoring your progress.  This could be helpful for so many women

    Thanks

  • wornoutmom
    wornoutmom Member Posts: 75
    edited April 2012

    I have learned SOOO much from being in my clinic.  Part of the most eye opening things for me is seeing people high up in the standard of care profession who show up with us =)  I watch "fluke" after fluke.  Wish I had at least visited some before my surgery.  That was my biggest mistake!!!  I have seen the tumors disappear with NO radiation or surgery!  Watching pet scan after pet scan that you can't argue with.  These are people I see come in and walk out clean.  I have to travel 3 days for treatment because of our stupid laws.  I feel awesome and have a full head of hair but most importantly I don't have to worry about the reoccurance from the treatment.  With everything  they do they protect against any side effects and don't sick back and wait until it is too late. Just finished some video footage from my last trip.  I have people in the mainstream offices getting my clinics info and get emails from friends who need help since the have followed my story.  I am doing my best to make a better world for my kids and everyone elses.  Today's Mountinan is tomorrow's testimony!!!  There is a reason for my journey and it is unfolding before me.  I prefer to keep to myself but it seems like I can't do this to much more.  Between interviews, radio staitions, and newspapers there must be a reason for it.  I have since watched 3 family with better prognosisis than mine die from their treatments.   A doctor and nurse (she went to Mayo clinic) and a good friend's dad.  Both men died of a heart attack after treatment.

    One lady came from Sloan and Kettering and they left her bed ridden for 3 weeks and given up.  I came just before she was about to leave and they reversed all of her liver etc (she had small cell lung cancer bare with me on the correct name) and she was site seeing 2 hours away.  I will never forget her husband's face as he beamed and told me her progress.  He said "look at her she's a walking miracle".  What a way to start my treatment!  They have techniques that give range of motion back to patients with lymphodema (sp sorry in a hurry).  I worked out soon after losing 10 nodes and have full range of motion but others have told me how much it helped.  Kids calling gotta watch a air swimmer extreme fly around my house..lol   

  • Kaara
    Kaara Member Posts: 2,101
    edited April 2012

    WOM:  So happy for you!  Keep getting better.  I lost a friend to small cell lung cancer last year..it is deadly and chemo does nothing, but they pumped her full of it until she died from chemo overdose!  It was criminal.  I so wish her family could have been more open minded, but they just laid down and let the doctors steamroll over them.  Never once did they question the tx.

  • not
    not Member Posts: 48
    edited April 2012

     Has anyone tried HYPERTHERMIA?

     http://www.youtube.com/watch?v=VkvOL6-dL_w

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  • Sherryc
    Sherryc Member Posts: 4,503
    edited April 2012

    Kaara my Dad died of nonsmall cell lung cancer.  By the time it had come back and turned into mets there was not much they could do for him.  But he diceded to fight it with chemo and basically he died from the SE of chemo not the cancer.  He was so old school that he would not even listen to anything I had to say about diet.  Even when the PCP tried to talk to him about stopping the chemo so he could have a quality of life he just could not get past it and told me he was not going to sit in his recliner and wait to die.  I was thinking more like quit chemo and enjoy the life you have left because he had no quality of life the last few months of his life.  He did not want to know his progrnosis and made that very clear to the MO which made it hard.  We used the same MO and when I would go to his visit with he and my Mom I knew my MO well enough to read between the lines what he was trying to tell my Dad without telling my Dad what he did not want to hear.  Mom and Dad just never got it.

  • Hindsfeet
    Hindsfeet Member Posts: 675
    edited April 2012

    Wornoutmom...I am so glad you are here, because you did it the alternative way! Cancer patients have to hear your story. I've a lot to learn from you and I've more to learn.

    Because I'm early stage cancer I'm not at the place where I'm fighting for my life. After surgery I'm considered NED. What I'm doing now is preventive medicine. I'm doing herceptin just in case of possible her2+ micro cancer cells and I struggle in continuing this therapy due to heart issues. I don't want to be one of those people who go through threatment and then die of a heart attack. It is so hard to know what to do. What are your thoughts about herceptin?

    There has been a little discussion about surgery. I would like to learn more. I have a hard time with the idea of leaving a cancer tumor in your body. I'm open.

    Today, I had a herceptin infusion. My daughter came with me. She said it reminded her of an old folks home. She went back toward the restroom area and heard a nurse talking to someone...and she heard her say that she wouldn't take chemo because chemo causes cancer. What was your clinic like? What about chemo? I believe you said it was used in smaller doses.

    I want to glean as much as I can from you. :)

  • not
    not Member Posts: 48
    edited April 2012

    I agree with Eve! We need some natural survivors posting in here. [they all must be out enjoying life;-]

    Eve, what's NED?

    XO

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited April 2012
    not - most HER2 patients are sensible enough to take the traditional treatment. AS ofr alternative survivors - not many, if any responded, so I guess they are not around to tell their story - ie they are no longer in the land of living.
  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited April 2012

    Susie - what the?

    Sensible is as sensible does.

    Why are you here? 

    To save us?

    You drop bombs that take away energy, intelligent discussion and HOPE.

    We are not doing nothing.

    We are fighting for our lives.

    So give it up.

    We do not need you to save us.

    Or treat us in such a disparaging manner.

    Smoke.  I have said all I want on that one.  Just smoke.

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited April 2012

    WOM - I think I just found this thread.   I was just wondering how you were and realized you had posted in the last few days.  I would loveto go to a clinic but have been in my land of the living here and doing my own team organizaation and treatments.  All is well.  There were times I panicked but I feel so wonderful at this point.  And I am moving to a vacation home or one year on 80 acres in the middle of 400 acres of classified forests.  Leasing, aahhh well, am so happy because I really wanted a place to heal and peace out, you know.

    I had the surgery to remove tumor burden after four months of alternative therapy.  The tumor was greatly decreased at the end though the size was up and down for time.  The path report said there wa neucrosis and scarring, which I attribute to the Rife.

    Alternative therapies also gave my memory back to me, once I began the ones for cancer back in August, and not Alzheimer's.  Very telling of the 'tumor load' or whatever was going on.

    I know that if I need to, I would choose either IPT chemothereapy, or PolyMVA with low dose chemo.  But it seems that going to the root of this and that the Chinese medicine and acupuncture are what I needed to feel safe in my body.  

    This is such a journey, isn't it.

    And the toll it does take, financially, emotionally.... while insurance pays for hardcore chemo and radiation but will not cover one token of my choices.  That is the most frustrating.  BUt I am committed to doing my best to be healthy and safe, regrdless of the hit I took from this experience.  The spiritual journey is the most rewarding.

    Looking forward  to hearing so much more.

    Please keep writing..

  • not
    not Member Posts: 48
    edited April 2012

    Or they're out living life and don't want to argue with people in here -and get chased off like Wom!

  • not
    not Member Posts: 48
    edited April 2012

    Wow, nice to hear from a sane person Essa!

    Why do people like Susieq come in here to harrass people?

    This is a support group, and the title is  "Survivors who have used only alternative treatments".

    That's why there's no survivors posting in here! Why would you come back and take all this abuse after the fight for your life?

    How do you contact a moderator?

    Peace.... deeeeeeeep breath....... Love to ALL.

    XO

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited April 2012

    My word is SMOKE. 

    So NOT - I do love your ID, this clinic of WOM's?  I was going to look it up.  I fully respect her search and admire that she took her journey, ending up in such a powerful place.  

    WOM, really do.  You said it all....  "One lady came from Sloan and Kettering and they left her bed ridden for 3 weeks and given up. I came just before she was about to leave and they reversed all of her liver etc (she had small cell lung cancer bare with me on the correct name) and she was site seeing 2 hours away. I will never forget her husband's face as he beamed and told me her progress. He said "look at her she's a walking miracle". What a way to start my treatment!"

    Such hope.  i know it is not all about alternatives, but the FACT is that we can come back into balance and feel wonderful, heal gently, if only given the tools.  For those of us who choose to go lightly at this, even if it is chemo, the alternative to full force chemo is the light dose, the IPT, and so many otehr alternatives.  Chemo is after all chemical therapy, and it does not have to mean poison therapy. 

    Sorry to say, the war is not over here or anywhere, but we do not have to participate.

    I am so happy for you, you sound like you are glowing.

    Diane (Essa nickname)

  • luv_gardening
    luv_gardening Member Posts: 362
    edited April 2012

    NED = No Evidence of Disease, affectionately referred to as dancing with the stable boy.  They used to call it remission and it alludes to the fact that no evidence doesn't mean no disease, just that it's not evident if it's there.

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited April 2012
    not - rather convenient you edited your post. I have removed my post - I give up. I am here because I want to help. I am an HER2 patient too and I do understand how agressive it is. I didn't expect to have to have chemo. When I found out it was recommended, I did a lot of research and fully trusted my oncologist and being a very intelligent person, I concluded it was the right thing to do based on his advice and my research. Make your own choices and I hope you don't end up regretting them.
  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233
    edited April 2012

    Susieq - thank you, I have removed my post and edited another.  No sense clogging the thread with such.

    You are here to save yourself too, I get it.  We are on different paths on same journey is all.  I just always hope we will treat each other gently.

    I am so close to HER2 it scares me.  But I keep on to the way that will heal me.   This is like snowflakes, no cancer is alike, no answer is alike.

    Why, but because we are so individual in the spiritual, emotional and physical besides the imbalance tht brought us to this place where we have to back pedal.

    Hugs.

    Diane (Essa) who KNOWS that part of healing is getting the appropriate rest and did not so far tonight.

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited April 2012

    Thanks Diane - when I was doing my research and read about a node negative patient with mets, it scared the hell out of me. We just don't realise just how nasty this cancer is. I am fairly positive that getting extra sunshine or eating more bananas won't protect us from mets. I know there is no guarrantee that conventional treatment will ultimately save my life, but at least it's been studied unlike alternative treamtents that have no factual basis. At least I will be able to look back and know I did everything I could, including any complementary methods I use.

  • sweetbean
    sweetbean Member Posts: 433
    edited April 2012

    WOM, what clinic are you at?

  • sweetbean
    sweetbean Member Posts: 433
    edited April 2012

    Susieq doesn't harass anyone.  I find her viewpoints balanced and supportive.

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited April 2012

    Thankyou Sweetbean - I appreciate your support

    ((((((((((((((HUGS)))))))))))))

  • moderators
    moderators Posts: 8,637
    edited April 2012

    Please remain respectful on this thread. Thank you. 

    The Mods 

  • candygurl
    candygurl Member Posts: 24
    edited April 2012

    This MD uses Insulin Potentiated Therapy, an integrative approach.  His conscience could not allow him to continue practicing allopathic medicine.

    Comprehensive Cancer Care Pt. 1

    www.youtube.com/watch?v=CBIGqocAYsg

    Comprehensive Cancer Care Pt. 2

    www.youtube.com/watch?v=ryaRRrxljvQ

    I wish more MDs had a conscience.  Honestly, I don't know how they sleep at night, knowing that they are thrashing their patients' bodies.  I could never radiate, or inject poison in, someone's body. Only the sickest psychopaths would partake in such activities.  I guess after a while they just become desensitized.

    Not- it would be great if more women who chose the gentler integrative-alternative route came to BCO to share.  But they are too busy enjoying their lives. When you don't have side effects crippling you mentally and physically, there is no need to be constantly worrying and posting from morning to night the way some people do around here.  

    Treatments that involve hacking up, burning, and poisoning our bodies are considered the gold standard on this site. The dangerous part is too many women aggressively push one another to submit their bodies to the conventional medical fraternity, despite all the life threatening side effects that potentially come with doing so.  They're metaphorically holding hands and jumping off a building, without even thinking to explore more humane options. And despite popular belief, many alternative doctors do not favor surgery.  

    Wornoutmom -  Congrats! I wish you continued success on your health journey. I just noticed that you are (or were) HER2+ . Which alternative treatments are you doing? Inquiring minds want to know.  

    ET: typos

  • Ang7
    Ang7 Member Posts: 568
    edited April 2012

    zuvart~

    Those who used conventional treatments did not necessarily make their decision "without even thinking to explore more humane options."  I would think that no matter which type of treatment you chose you would research it first...

    We should all support each other.

  • pickle
    pickle Member Posts: 70
    edited April 2012

    Zuvart there are many MD's that sleep at night knowing they gave their patients the best possible treatment to save or extend their lives. Case in point, my niece was 3 1/2 when she had chemo for leukemia that had the worst prognosis. We just celebrated her 34th birthday. My 10 year brother died of the same disease 45 years ago before they had effective treatment. He was gone in 5 months after becoming paralyzed and dying a terrible death.


    Cancer is not so black and white and I wholeheartedly disagree with yiu that it takes a "psychopathic" MD to treat patients with chemo and/or rads


    Everyone is entitled to choose their own path and civility and support for everyone should be exercised

    on these boards.



    Well wishes to all on this journey

    Beth



    PS: I certainly wouldn't class Dr. Marissa Weiss as a psychopath