Survivors who have used only alternative treatments
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hey!! it's been pretty well :proven" that conventional "treatment" only postpones the trouble for a few years sometimes when perhaps (!) peole are older & less strong because of earlier modalities & less able to endure
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Yorkiemom , Agreed! Respect for privacy ? Yes. Credibility? Not until there is some evidence to back it up.
Abigail, although conventional treatment doesn't cure or maintain disease as a chronic condition for everyone, it certainly has helped many, many people. Childhood leukemia is no longer a death sentence, for example. There will probably never be an approach that works for 100% of the people 100% of the time, conventional or alternative. Caryn0 -
I'll be 75 next month. my parents are dead, my immediate family, 2 sisters & a brother live the other side of the continent & I see them probably for a day or 2 every ten years. my biker has been dead for nearly 5 years. I'd prefer not to be tortured at this point. the children have their lives ahead, I don't.
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Abigail,
Congrats on being 75 years young! Caryn0 -
TX ?? seems like you'r skeptical about alternative therapies but not allopathy, good for your sister, good deal, I'd be skeptical that she even had the trouble. but I do know of three conventional cures: 2 breast cancers, double masectomies at a young age, one lung cancer with alternative therapies then surgery. in Time magazine last year the statistics were 47.5 % success in conventional therapy for women hyounger that 60 with breast cancer. not good enough for me
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I don't want to argue privacy issues but no one has to reveal anything they don't want to. How much or how little we say about ourselves is up to us. Whether to give credibility to vague or unsubstantiated information is another issue entirely. Caryn
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moderate temblor out there yesterday, my people have said thy're okay, did you feel it? & 2 in mexico, 1 in oregon, & now a big one in indonesia
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I'm more comfortable with a treatment that's been through formal trials, but they only seem to save a small percentage of us from progression, and they can only prolong life once we have mets. So why leave a whole raft of possible treatments off the table? I don't believe testimonials are necessarily bad, true or fake. They need investigating. If only three people claim a cure from a treatment that is massive for metastatic cancer and it's criminal to not investigate and research if there are grounds.
What upsets me is to see women with primary cancers trying all sorts of different things while their cancer gets away and progresses. Then it's too late. We need to test these alternatives to either prove them or count them out so we can make educated choices. And sometimes we have to bite the bullet and accept conventional treatment to get past the initial stages, then we can go ahead with whatever alternatives take our fancy knowing we've done everything.
WOM is different as she says she has growths of some sort so she's presumably past the primary stage. At that stage there are only harsh chemo's once hormonals have failed. So the delay while trying alternatives is neither here nor there unless the situation is critical. WOM can tell us if her tumours are progressing or regressing. She can change her mind and take chemo at any time. She's an adult with her own opinion and needs.
WOM is under no obligation to tell us any more than she wants or needs. I'm grateful for any information she tells us and hope if she has success her case can be studied to help us all. We don't need to scare her off again by criticising her. Please take it easy and remember this is first and foremost a support forum.
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I am going to summarize what WOM has said in her last three posts since she returned. This summary is because the essence of this thread is becoming lost again, already, and we need this thread. There are pages 'deleted' because of arguing.
Foremost - please, for all our sakes, this discussion is not about conventional versus alternatives, so I for one wish that was respected.
WOM's point that her mother used Gleevac for CLM. Yes, it is conventional in it's sense, but her mother used that with alternatives from my understanding in reading (revealing her mom's choice to do complementary/integrative) and her mom did not need to take a stronger dose of Gleevac over all these years because of the alternative treatment and/or supplement support. Therefore, WOM has been exposed to the alternatives, which was her point. Just as my adult daughter has been exposed to the alternatives throughout her life too, and now is open to her own choices if she needs to make any for cancer. Thus WOM started her journey into alternatives for her answer, even though she had surgery first, and like me, wish she had waited and found more answers sooner.
WOM has said the following which is so important to realize in alternatives, as I believe also in conventiioal choices.... therefore, it truly does not matter to you and your health just EXACTLY what treatment she is using or if she proves to you that it is working and why. Though the clinic will be wonderful to know soon.
.........her doctor at the clinic said and she comments:::: "'some respond (this reference meaning to mistletoe) and some don't.'..... she said, But if you do respond I hear there are great results. If you study enough treatments you will find this with them all. The biggest problem we have with the cancer war is we want to make it a one protocol cures all. As they learn more receptors etc (that each case is different) that is when we will make progress. My treatment is working amaizngly but that doesn't mean it will work for all"
"I have to travel 3 days for treatment because of our stupid laws."
"Today's Mountinan is tomorrow's testimony!!!"
"IPT uses a 10% dose of chemo and the during this process they address each thing they could put at risk."
she said "I hope this will remain a learning forum and if you are appauld by this idea maybe this isn't the right forum for you to post in. I personally don't care what treatments a person has done just that we respect one anohter and who knows if everyone keeps an open mind we may learn from one anohter."
also WOM said, and I agree, "Thousands of people are dying while the two sides bicker."
In all respect to the opinions of the ones who are conventional, you may be seeking, you may be frightened. You want to learn?....cool. We are here for you. But you don't need to constantly post your opinions and demands of proof. Consider what we are doing as we act as our own guniea pigs for finding our proven alternative choices that will work for each of us individually. If you need proof, then go out there like we are and find your proof too. Come back and tell us what happened for you, we really want to know, but we won't ask you to dump your energy and the precious time in your llife into proving it to us.
In all respect. Please ....
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yes, I'm seriously curious about where she got treatment. i guess I don't really understand the need for keeping that, or her treatments, a secret. it's honestly kind of a bummer to come on a site, tell people you are having fantastic results with a treatment, and then not tell anyone anything about those treatments. what about those of us who want to check out different alt treatments?
Edited to remove something that I said that was decidely less than awesome.
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hillck, I read Steve Jobs biography recently. All his employees through the years joked about his "reality distortion field." This mental sleight of hand on Jobs' part got a lot of stuff done that others felt were impossible. But it also frequently caused him trouble, and in the case of his cancer, possibly a premature death. He just refused to face the facts that he had cancer and needed to get surgery and treatment. Instead he fasted, walked in the woods and sought alternative treatment. This was despite his wife, friends and doctors constantly begging him to deal with the tumor. By the time he woke up to the hard reality of his situation the cancer had spread and it was way too late. I'm finding that a lot of "reality distortion" thinking goes on among many cancer patients.
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why would you question jethro kloss who worked his therapies 80 years ago, prsumably non invasively
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abigail, can you post links verifying this guy's successes? I've never heard of him.
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WOM said... "Thousands of people are dying while the two sides bicker."
That's more like hundreds of thousands dying from cancer around the world every year. We need to stop arguing and just accept WOM's generous offer to keep us informed once she has sorted out whatever she needs to make it OK. What a treasure she is.
Sweetbean, please be patient, WOM has said she will tell all, but we may scare her off if we criticise her.
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I am not a survivor per definition. I also used surgery (not biopsy forst) to have a mass removed, and had one node cancer. Therefore that is not alternative. I wish I had found trhe answers I needed sooner, and not needed surgery. But after surgery, I was better for time, much better. Though before surgery my memory came back when I started alts treatments. Then surgery, memory and focus UP and my voice came back for singing. I did well for a few months thenn realized IT was still there, back to old exhaustion and voice so tight, nails breaking. Lumps were growing on both sides, long story. I started another variation of alternatives. I am still tweaking. Now the lumps are all gone but two small balls, not even like masses now. I have strength and energy I did not know I had, been packing and moving, doing it. My nails are strong, no ridges, no lines. My voice for siinging is better than in two decades, really. I could do opera. My emotions are level enough. My center is strong and food agrees with me, all kinds. My eyesight is not blurry. My urine is not too yellow, bowels great. Most impoortant for bc concerns, the pain lightening pains shooting through my breasts are stopped, thoough there is some weird pain sometimes in the evening, but that could be residual of the Rife machine I have used from the beginning, off and on.
My protocol is on my profile, and portion that I started with and now what I am doing. I tweak it every week. I cover all bases.
My point is my protocol is based on things that have worked for others and that alternative MDs and Chinese medicine people have used that were effective for others. I have perhaps fifty books in my home with the stories of others who regained QOL annd lived longer, some still. But their treatment cannot just be adapted to me, it must be altered to my needs, adapted with other choices too.
Statistically, I have three years left if one looks at statistics for a life expectancy.
I chose DIM over Taamox or the other for postmenopause women.
I chose oral doses of alternative chemo.... chemo is simply chemical therapy that has an adverse effect on cancer cells since they will not die a natural death, so there are other kinds in alternatives, but gentler or not used as strong, just saying, there are options here and I am glad to have more waiting in the sidelines, should I need those too.
I refused rads but I would do ultrasound hyperthermia treatments, if I needed more depth to this protocol.
Sooo....... statistically, with my onco score and weight and age and what I have been exposed to in the last year, I have three years left ----- but my true hope is there are twenty to forty more years and I die of a heart attack swiftly in my sleep after a day of cross country skiing through the state park. Point is, I FEEL like this could happen noow, and one, two, three, five year ago when I started to get sick, I did not think I would last a month at times. It's been a long road.
To me cancer is a catch all for everything that can go wrong so far has and cancer developed to save my butt somehow. Still it needs handled while going after the root cause of it developing. That's in my opinion from what I have learned from reading, talking to so many medical pros and hearing the experiences of those who do complementary or alternatives.
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JLW, if WOM is so delicate she can not come to her own thread to present her evidence, perhaps she can PM or email you with her information and you can pass it on.
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Yorkie mom? Why are you bent on dogging this point? No pun intended, but that said, youd doggie is so cute.
Her evidence is that she is thriving today, she feels wonderful. No one here has anything to prove to you or for the sake of anything. But we are here to help.
Are you asking for help?
Do you know someone who has days to live and this could make a difference? If that were the case, and that were me, I would pm her. I would also tell that loved one to get to Dr. Forsythe or Dr. Bruzinski or into an alternative clinic somewhere that has an open treatment program that is designed for the individual. Don't believe in these doctors, search some out who are like them.... they are mentioned in all the alternative magazines and books. See who resonates with you or the loved one. For instance, in the back of Quillin's book on cancer there are doctors of nutrition. They hold a key to part of the protocol, though probably not all.
We're here to help, ask what you need.
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Sweet bean, I would love to know all those things about WOM's tx too but we do not agree to give up our privacy completely when we post to this site. Everyone has probably done some filtering of the information they reveal. It is not cruel to protect one's privacy, it is her right. We then get to choose how we regard this information or, more accurately ,lack of it. Caryn
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Thanks for the complement about my doggie! She's a little pistol!
My (conventional) treatment is going so well. Just got my second set of clean scans and blood work. Now I will only need to take Aromasin and get mammos twice a year (I think) and CTs once a year. Nope, not looking for any alternative help, but I appreciate the thought!
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I say small dogs should be a part of active treatment! Caryn, " mother of a Pom and a chihuahua/ min pin mix"
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Caryn, I agree! Along with Yorkies, I totally adore Poms, chihuahuas and MinPins! Small dogs rock!! THEY'RE my alternative treatment!
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All natural, too! Only problem is , I have on occasion, called my dd's by the dogs' names and vice a versa, since they're all girls. Caryn
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LOL, I ALWAYS get my dog's and grandsons' names mixed up. Drives them crazy because she is a girl!
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Every night I cuddle my pet skunnk, Lacey. She rest on my heart and chest, snores, stays warm. My heart is warm and happy as I pet her. Yes, I agree, that is also an alternative treatment for me too. There is even a thread about pets for treatment support, cute thread or something.
On to more moving and then to acupuncture and Chinese medicine doctor.
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steve jobs' alternate therapy was macrobiotis. this is a theology more than an alternate therapy. way too much brown rice, not enough herbs & fruits rich in enzymes
& re: "bickering" I would call it debate, & one can learn a lot from debate, surely we're here for that
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The diet Jobs followed is an alternative treatment prescribed by Dr. Dean Ornish. Jobs had a rare, slow growing form of pancreatic cancer. Had he followed the traditional medicine route he would undoubtedly be alive today.
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I don't know dean ornish' protocal, I do know he practiced macrobiotics. & what was his lifestly before the cancer? big macs every day? pizza? don't know...........
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He was kind of crazy regarding diet since his teens. Would go on long fasts, then for weeks on end only eat one kind of fruit. I do think he was into macrobiotics off and on. He and his wife were vegans but that is a far cry from the extreme issues Jobs had with food. I am a vegetarian and have a very healthy diet.
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Hmmm...this is an interesting thread, even with the "debate", or perhaps because of it. I like to hear both sides of it argued by people who are passionate and knowledgable about their treatment decisions. I, too, am following conventional treatment guidelines but am interested in complementing that in any way possible.
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Edited because I was having a bad day and said some more uncool things. Oof.
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