Survivors who have used only alternative treatments
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Zuvart,
As we continue to work toward mutual respect and civility, let's not revert to name calling. Allopathic practioners are not the "sickest psychopaths" anymore than alt practions are quacks and charlatans. Mine were some of the most compassionate people I ever met. Regardless of which path we choose, all of us will benefit from respect and civility.
Caryn0 -
I wish I had not had the surgery and moreso that I had known how to step up the alternatives sooner. So I will not be able to say I am a survivor who did not use anything except alternatives. But then we have to identify alternatives. Cryoablation? IPT? Hyperthermia? UVB? Sure.
But certainly there are light-weight but effective alternatives to standard dose chemo too, besides the IPT. I would call even that an alternative. What I think is being asked is what gentler, more natural approaches worked for some. And WOM has found her way. I have found mine, so far so good. The packing is wearing me out but, you know, there was a day when I could not shower and dress in the same time frame. eeeeee let alone remember where the dress was, how to put it on right, or what direction to turn for hot water.
I would like to hear about all types of therapies that are not the standard which have their own threads where I can go to read and sit in silence to access what I want for myself. What I don't like on the threads are the death cries, the disrespect. I think we can all reach beyond our stress though, I am trying.
I hope WOM comes back to say what clinic. She mentioned Mountinan and wonder if it is Canada or Mexico, anyone know, I searched Google awhile and did not find.
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Diane. I tried to send you a message but they don't let me! They're saying I sent my limit of messages today. I haven't sent ONE today!
When I can I'll write you and give you my email. We need to find a better support group!
Gotta run to BS now. I'll try to write when I get back. The word is SMOKE? I'm going to smudge with sage when I get back.
LOve You. Sending You strength and peace.
XO
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pm'd you Not,
I'm packing today. Everyone wish my energy!
Away from the fumes and smoke, toward fulll immunity in fresh air and peaceful surroundings.
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not: NED means "no evidence of disease"
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Dr. Block and Dr. Servan-Schreiber both advocate(d) an integrative approach -combining conventional treatments with CAM treatments and diet/lifestyle changes. Neither one is (was) a psychopath. I think that they are really, really smart.
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Hi all!
I am so very busy these days traveling every 10 days to fly for 2 to get treated for one. On my last trip I took video footage of what I had to do just to get my final treatment. I have sat with people who are top members in medical feilds, flown from multiple different countries, a person who ran clinical studies for standard treatments, famous people, you name it. Heard of onclogists that sent their family to my clinic What a journey. My biggest obstacle is $ and ignorance. IPT uses a 10% dose of chemo and the during this process they address each thing they could put at risk.
My story speaks volumes as you see it from begining to end. I had no idea how it would turn out just like any of us. I spent hours researching , factoring in the issues my body has, and speaking with real people. I was bombarded by fear from doctors orginally but when I had time to reaserach I was able to make an informed decission. My clinic worked for me but I can't say it will work for everyone as there are many factors to take into consideration. I eat a raw food diet now and if you can't do that this may not be the choice for you. For me it is a small sacrifice for being here for my kids. I normally perfer to be private but this journey is putting me more and more in the public eye. I will discuss with my family tonight revealing my whole story. I am in the midst of a second interview so it may have to be after that. I can't take all the credt for this as my mom showed me it can work. 14 years NED for CML with no bone marrow, no chemo, no rads. She has used Gleevac. She is one of the first people to get it and the ONLY one alive. She has never increased her dosage which is unheard of. Saddest part is they want to study her until they learn she hasn't done the standard of care. Changes are coming people are sick of the masses dying. I am supported by so many I know a few years back would have thought I was crazy. As real people watch my story unfold they are amazed. I hope to help as many as I can but I am also respectful of peoples rights to choose. I just wish we had that right too. For those who think no insurance coverage can be possible you may want to call a few clinics. If only I could show you the miracles I have now seen. My struggle now is the money so I can keep up the level of treatment I need. Funniest part is it is so much cheaper than if I had done standard treatment.
Once I clear ith with the family I will open the door to my life. So much for keeping to myself. I will stand alone if I have to as long as I stand for what I believe is right. I have seen too many thriving and want my kids as well as everyone else's loved one to have the right to choose their cancer path. I personally won't do the traditional route but respect the right of those who chose it. I just want people to live healthy lives no matter what they choose. I hope this will remain a learning forum and if you are appauld by this idea maybe this isn't the right forum for you to post in. I personally don't care what treatments a person has done just that we respect one anohter and who knows if everyone keeps an open mind we may learn from one anohter
Good health until I can sneak away for a bit again... May need you gals to flood suzzane summers or other shows if I go public 
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ha! found this thread again finally, thanks to new poster? on alternative treatment thread
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Wornoutmom, I'm standing behind you all the way.
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WOM, what clinic are you using?
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wornoutmom, my first 3 biopsies I had only dcis and one idc that wasn't that worrisome. I was surprised this last time I was actually dx with idc with ther her2+...
What concerns me is the biopsy cut into the tumor. I wish now I would had done surgery right after the biopsy even if it didn't then mean immediate reconstruction.
. Every once in awhile it bothers me to think I put myself at risk for a recurrence by getting the biopsy. I put myself at risk for cancer spreading elsewhere. I'm not sure how that works in regard to cancer. I do know the body is brilliant in healing itself. At this point, not having surgery makes me nervous. What does your clinic suggest and why?
What treatments did you have and how did they work for you? Was it a multifocal treatment or was it just a few treatments that got rid of a lot of your tumors?
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WOM where are you getting treatment?
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Gleevec is an oral chemo drug that was approved by the FDA in the 2001 for treating CML. it has since been approved for other cancers such as some gastrointestinal cancers. . It has been extremely successful for CML. Complete remissions and longer life spans. I think there will be more drugs like this for more cancers once specific enzymes etc are identified for each type of cancer. Very happy to hear that your Mom has had success on Gleevec too.
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but what is it??? gleevit doesn't sound like any herb, compound or chemical I ever heard of??
& we all want to know what clinic. burzinski in texas I assume, are there others in the us currently that I;ve not heard of? he;s quite expensive as I checked some years ago when he was within an hr of here, just for curiosity, & he was mostly for brain here, as the cell phone troubles had just begun happening, but I think he was forced to re=locate, the they are very influential here on most subjects
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There are lots of people who are taking Gleevac who are still alive. Erin Zammett Ruddy, who wrote "My So-Called Normal Life," has been taking it for a really long time.
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Gleevac is not an herb. It is imatinib, manufactured by Novartis but available as a generic as well.
Caryn0 -
Gleevec is a targeted cancer therapy and comes under conventional treatment. Gleevec is not alternative treatment.
Targeted cancer therapies include Gleevec, Herceptin and Avastin etc.
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wornoutmom, just curious. Where are you getting treatment?
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WOM has said several times that she'll be ready to tell her whole story soon. She said she needs to clear it with her family. I can't wait to hear the details too. It sounds fantastic.
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what in the world is imatinib???????????????????/
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Disclaimer: I have only used, and will only use, empirically and scientifically based treatment. This means that I am firmly in the traditional medicine camp.
I do believe that people making claims for alternative treatments' effectiveness, if only anecdotally, owe it to the bc community to back up their claims with facts. Seems like the simplest and easiest fact to provide would be one's treatment facility. Why the secrecy? People here post where they're getting treatment all the time.
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OK-I'll bite. I won't ask where you are getting treatment. I can see where you wouldn't want to post that and violate your and your famlily's privacy. This is a public forum after all.
However, I will ask-WHAT treatments are you getting? Seems to me that if they are effective you would want to let the rest of us know what they are.
Mary
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I'm being treated at the University of Kansas. Currently I am taking Aromasin every day and Zometa every three months. I had a lumpectomy and 33 radiation treatment. Two CT scans, most recent one two weeks ago, showed NED.
Edit: I have posted all this on different threads.
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Yorkie Mom-
I wasn't asking you.
I was asking wornoutmom. She's being very evasive, and I think, disingenious.Mary
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Oh, sorry! I'll delete my post.
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joy said she.....was planning to tell all soon...................ancedotal evidence like circumstantial evidence in a trial is often better than ey witness or scientific reviewed studies which are often by those wishing to sell a substance into the billion dollar cancer industry...........I, for instance, have no health isurance, don;t want any, will probably pay the fine in liew if it comes to that, I have no health provider except us, I've never had a good experience with allopaths or allopathy.
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Anecdotal evidence not so good when one's life is on the line. I'll take empiracal every time. Also, applying your legal analogy, I would equate anecdotal evidence more with hearsay than circumstantial evidence.
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Gleevec is a mesylate salt, not an herb and not considered alternative treatment. However, it is not used for bc, in general. As to revealing where one receives tx, or what tx one receives, it would be nice if people were open , but since this is a public forum I respect their right to privacy. Additionally, we have to remember that we are not privy to everything going on in a person's life and there may be personal reasons why they choose not to reveal things. Like it or not, we need to respect this. Caryn
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then we have length of time in use: conventional therapies have been (not) working for a relatively short time. jethro kloss, for instance, in back to eden Has said he's cured hard tumors many times
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Caryn, I certainly respect everyone's right to privacy. But, I will not take seriously any claims which are not backed up by hard evidence.
abigail, people can "say" anything. Where's the proof?
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