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March 2011 chemo-lounge

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Comments

  • fluffqueen01
    fluffqueen01 Member Posts: 1,801

    Stilts and others-I am so glad to read that your docs won't order scans. Mine won't either. Told me to go home, chill out and live life. I told him I would chill out much easier if he would do the scans and show me that everything looks normal. He said the exact same thing that it doesn't appear to matter whether mets are found early or not. Although that seems crazy to me. He did agree to do a blood test at 6  months. Although unless I remind him I am sure he will ignore it. My ps recommends an mri after a year with implants just to check things out and make sure nothing is leaking, but he said it may now be covered. I am putting aside the money to do it anyway as that will give me a little more peace of mind. I am planning a hysterectomy/ooph (ooph for sure and the rest assuming it can be done via laparoscopy as I have fibroids), so I figure I will know more from that, AND I have to have a kidney xray in october to check the kidney stone I have, so I will squeeze a little more info there.

    So, somehow, I feel I should get most of my answers with the exception of brain, liver and lungs and I guess I'll just have to live with that.

    Stilts-My doc and nurse practitioner (who is my best friend) put me on a low dose of toprol, as well as Cymbalta when I was first diagnosed as I was having panic disorder (had every symptom). She picked Toprol as she had read those same studies when helping me research and figured it couldn't hurt. She did say she assumed it might need to be a higher dose but I don't need that. On the Cymbalta, she did it for its pain releiving effects also. The down side is that I am now going to wean off of it because you can't take it with tamoxifen. It reduces the effectiveness. Hopefully I won't need it anymore unless I go into panic disorder over worrying about not having any scans! LOL.

    I took vitamin D all through 'Chemo. Onc was ok with that, unless he forgot. Hope I didn't mess anything up.

    Finally, regarding my party....I had two mojitos and a champagne toast. I think I know the reason for not drinking on the day you get chemo. I was wiped out the next day, which should have been my good day, and barely got out of bed. Slept all day! So worth it though!

  • supersally
    supersally Member Posts: 158

    Hi all, hope everyone is having a good day.  Don't have much to add.  My legs are still jello and I get winded going up a flight of stairs.  When is that going to go away?  5 weeks PFC today, yeah! Have not noticed much new hair growth, but maybe it's there and I just can't see it.  I seem to have more hair on top of my head than on the sides now, that may be because the wig is wearing away (eroding?) the sides.  Now I am obsessed with hair growth, I used to be obsessed with hair removal...My how things change

  • Kay_G
    Kay_G Member Posts: 1,914

    Good luck tomorrow with your surgery Maria.  Glad you're not too nervous, I'm sure it will go perfectly.

    Congrats on being done FluffQueen!  Glad you enjoyed your celebration.

    Kristy, good luck with rads.  I won't be ready for that until Sept.  I'm sure you'll be long done by then and able to give me some advice.

    Silia and anyone else sitting in the chair this week, good luck and wishing you mild SE's.  Not sure this is the perfect sont, but it is a kick a$$ song, so how about Under Pressure by Queen, mostly for that opening beat....Mm ba ba de Un bum ba de Um bu bu bum da de...

    Mm ba ba de
    Um bum ba de
    Um bu bu bum da de
    Pressure pushing down on me
    Pressing down on you no man ask for
    Under pressure - that burns a building down
    Splits a family in two
    Puts people on streets
    Um ba ba be
    Um ba ba be
    De day da
    Ee day da - that's o.k.
    It's the terror of knowing
    What this world is about
    Watching some good friends
    Screaming 'Let me out'
    Pray tomorrow - gets me higher
    Pressure on people - people on streets
    Day day de mm hm
    Da da da ba ba
    O.k.
    Chippin' around - kick my brains around the floor
    These are the days it never rains but it pours
    Ee do ba be
    Ee da ba ba ba
    Um bo bo
    Be lap
    People on streets - ee da de da de
    People on streets - ee da de da de da de da
    It's the terror of knowing
    What this world is about
    Watching some good friends
    Screaming 'Let me out'
    Pray tomorrow - gets me higher high high
    Pressure on people - people on streets
    Turned away from it all like a blind man
    Sat on a fence but it don't work
    Keep coming up with love
    but it's so slashed and torn
    Why - why - why ?
    Love love love love love
    Insanity laughs under pressure we're cracking
    Can't we give ourselves one more chance
    Why can't we give love that one more chance
    Why can't we give love give love give love give love
    give love give love give love give love give love
    'Cause love's such an old fashioned word
    And love dares you to care for
    The people on the edge of the night
    And love dares you to change our way of
    Caring about ourselves
    This is our last dance
    This is ourselves
    Under pressure
    Under pressure
    Pressure

  • supersally
    supersally Member Posts: 158
    Kay - you are a great DJ!  That's a good one, definitely love the opening beatsLaughing
  • mdg
    mdg Member Posts: 1,468

    Kay...great song!  Love it!!!! One of my favorites from the 80's.  I am an eighties gal at heart!!!  Will keep you updated on my surgery and progress.

    Supersally:  My chemo legs went away about 4-5 weeks post chemo.  I don't have it much any more and it's been about 7 weeks since my last chemo.  Hang on...it will go away.  I was LOL at your comment about being obsessed with hair removal before....yes, how things do change!  I am not only obsessed with hair, (I get severe hair envy when I check out other women's beautiful hair...don't even get me started on the teenie boppers at the gym with gorgeous, long locks!) and I am obsessed with foobs and boobs.  I check out every woman's boobs!  I feel like a teenage boy or something.....sick, truly sick.   Oh and as I posted last night...I was excited about shaving my legs.....never thought I would be happy about doing that!  When is your exchange?  Did you mention August?  I hope the cankles stay away...... :)

    Fluffqueen:  My doc won't do scans either.....I so wish I could have one set just to keep me sane.  I was there today for a check up and I have been having pain on my R butt area when I sit for weeks.  I also found a lump on my L hip.  SHe said the lump was a normal lymph node on the Left side and she wants me to wait and see how my hip does when I am not exercsing since I have surgery tomorrow.  I am worried it will just continue to hurt seeing as all I will be doing in the next few weeks is sitting to recover from surgery...ugh! I know I will drive myself crazy with this.  Oh and my med onc had me on 50,000 IU of Vitamin D for a few weeks during chemo.....I am still on 8,000 IU per day now as my number dropped a bit for Vit D.  It's only at 25 and it was at 29.  I hope it goes back up.  Some people said they were not on Vit D during chemo as it effects chemo....gosh I hope that's not true!  I don't know what to believe anymore! I was also told I would get MRI's on my implants to check for leaking and I said to the Doc I was glad because it will give me piece of mind. I was told that type of MRI cannot detect recurrences.....it is different than what is used for breat MRI's for BC or screening.  Bummer!  Ask your doc about that.  I would be curious to hear what other docs say.  Here I thought I would breath a sigh of relief.....nope!  I also use to sell Toprol years ago and it does have a calming effect on people and was always used off label for different things. 

  • maxineo
    maxineo Member Posts: 199

    Hi ladies: I am now six days post last chemo and starting to feel better. I tended to get shortness of breath on the taxol, and that seems to be going away.

    Husker: I was totally unprepared for the RO visit. A few things that you might want to ask include why they recommend XX treatments, do they do "boosts," do you get tattoos or waterproof marks, the effect on implants/tissue expanders (if you have them), and possible ways to minimize lymphedema issues (if you had the axillary dissection). I haven't started yet; will start in mid-July.

    Maria: Good luck with surgery! I hope it goes very smoothly; I am so glad to hear you aren't as stressed.  It's funny how immune we get to major medical procedures with all of our practice.

    I am done with chemo, but am currently losing my eyebrows; I had really hoped they would hang in there!  When I pencil in the holes, lots of hairs come off on the pencil.  I'm hoping that it slows down as the chemo leaves my body.  Not much action on the eyelashes.

    Re: scans: I was also told no scans. Just exams.  I am going to lobby for an annual MRI because the tumor never showed up on the mammogram and my BS never felt it. My enlarged lymph nodes did all the talking.

    supersally: I am obsessed with my hair! I feel my bald head all evening gauging whether the remaining little hairs have grown by a millimeter or not and hoping to find new growth.  My DH just nods and smiles when I try to convince him there is growth!  I never got to stop shaving my legs, just had to do it less frequently during chemo.

  • Kay_G
    Kay_G Member Posts: 1,914

    Maxine, I am obsessed with my hair too.  Especially now that I just lost my eye brows and lashes.  I keep feeling my head.  I showed it to my sister yesterday and asked if she thought it was coming in.  She said yes!  Then I saw her later with my daughter and she told her that and my niece that she just told me that because she didn't want to make me feel bad :(

    I definitley have some new hairs coming in, but they seem so few and far between that I wonder if they're just not a few hair follicles that didn't get killed by the chemo.  But I haven't touch my hair since the middle of April.  If that was the case I would have seen it before now, wouldn't I?   If that's all it is, I'd rather shave it than have a few scraggily hairs coming in, but I don't want to shave it if it is my actual hair coming back.  I guess I will wait it out a while and see what happens.

  • Colodisneylover
    Colodisneylover Member Posts: 183

    Not sure if this is a dumb question, but is birth control necessary when on Tamoxifen? Does it shut everything down or is there a possibility to still get pregnant on it? Totally random but just realized I had never asked my oncologist about it.

  • Kymn
    Kymn Member Posts: 887

    hi girls am also coming up on my last chemo treatment i cant believe im here wow, ok question did anyone get boils i have on on the inside of my leg right at the crotch area, like an ingrown hair but bigger and no head to well you know lol pop. i read that a suppressed imune system can cause them but how do we get rid of them aaarrgggg i hate bc

  • pasmithx2
    pasmithx2 Member Posts: 224

    Kymn--hot compresses: dip a clean cloth in water that's as hot as you can stand and press to the boil. Repeat several times a day. It's supposed to bring the boil to a head. Once it opens, antibiotic ointment/cream.

  • mdg
    mdg Member Posts: 1,468

    Colodisney; you need birth control because you can still ovulate even if you dont have periods. I want DH to get snipped now. I havent told him. He better not say a word after all I have been through. I will.tell him once he sees the new breasts... If he wants to play with them there is a price...snip snip!

  • Kymn
    Kymn Member Posts: 887

    thanks pasmith I will try that, dang it hurts and its red and did I mention big...sigh

  • Silia
    Silia Member Posts: 265

    Maria -  I'm listening to Under Pressure while you're talking about your dh having to get snipped if he wants to get near the new boobs -- too funny!  BEST OF LUCK for a simple, uneventful surgery tomorrow.  Congrats on reaching this point.

    Kymn, good luck with resolving your boils.  I have a couple of huge red bumps on my scalp.  I think they're ingrown hairs but not sure what I should do about them...

    Re: hair, I have some fuzzy white stuff and can't decide whether to buzz it off.  Kinda like an old David Letterman segment called "Is This Anything?"  I can't decide if this is.

    Is there a mojo thread?  I recall others mentioned one and I really need to try to get some mojo back.  Take care everyone!

  • Kymn
    Kymn Member Posts: 887

    I would be up for some MOJO

  • mdg
    mdg Member Posts: 1,468

    Silia:  I am LOL at the Letterman comment..... :)  Yes, there is a Mojo thread...I can't remember where it is though.  Put "mojo" in the search function...I would imagine it would come up.  I still can't find my mojo either....I will have to though now that I am getting new foobs....if DH was into the ugly TE's he will for certain be chasing me around with the new girls.....Lord help me!  I better find some mojo quickly! 

    I have not had a boil but I did notice that I have super dry skin and I do have some small, tiny bumps on my upper arms and such.  I think it is the hair growing back and dry skin.  I do miss my hair free, very smooth skin.....now I have leg stubble after shaving my legs!  I am seriously looking into laser hair removal after being hair free for a few months.....that and laser for all my surgery scars.  Maybe I can get a "group rate" by myself since I need a ton of "lasering" LOL! 

    Maxine:  I lost 3 brow hairs this morning while penciling...I found if you keep the pencil sharp you lose less...when it gets a duller tip it is harder to use.  I don't know if this matters or not.....just sharing.  Also I talked to my holistic MD about hair growth products.  He suggested biotin and silica.  I plan to start both next week...my surgeon won't let me take anything 2 weeks before surgery.  Though I kept my hair it has thinned a bit and I just figured it couldn't hurt to take some things to help it grow better.  Thanks for the good wishes...I do kind of feel like a pro at surgery as I have had quite a few since December....lumpectomy/SNB, BLMX, port in, port out and now exchange.....crazy.   

    Kymn:  So glad you are nearing the end of chemo!  So sorry you have a nasty boil....sounds painful.  I hope it goes away.... :)  You have had almost every side effect possible......poor thing.  I am cheering for you.  We will all be waiting for you to tell us you are FINISHED with chemo after all you have been through!  Good luck!

    Well ladies...I am as ready as ready gets for surgery tomorrow.  I am unbelievably calm...I guess it is because I just want it over with and I have done this too many times by now.  I will post an update after surgery.  Thanks for your support ladies......I am going to put a song on the juke box....Soak Up The Sun by Sheryl Crow.  It makes me think happy thoughts...when that song came out I had a business trip to Oahu and a friend from work and I went out a few days early. We rented a convertible and drove to the North Shore (ironically where the video for this song was shot on the beach) and this song was playing on the radio.  A few days later our company had a private concert for us in Hawaii and guess who was the star???? Sheryl Crow.....now my 4 year old son loves this song and says "Mommy, play the sunshine song for me".  It makes me think of Hawaii and my little sunshine.... I only want happy thoughts right now so enjoy the song! 

  • Stilts
    Stilts Member Posts: 228
    Taxol #5 of 12 in the morning...feels great checking them off my calendar.Laughing Haven't really had much for side effects yet with the weekly Taxol but I was told to expect some neuropathy by at least dose 8 or so...apparently acupuncture is helpful so I'll go back to my sweet little Chinese MD who helped me through the nausea from the AC. Decided to join a local breast cancer support group recommended to me...anyone else out there involved in one ???...just think it will be great to have someone to talk to who really understands (and when I'm worried because I'm NOT having followup scans). Hope you all have a good week !!!
  • PennyCookson
    PennyCookson Member Posts: 356

    Maria - hope they surgery went well - I am sure you'll be gorgeous.  Funny how we all obsess about hair - shows we are still women after all this.

    Kymn - make sure you tell them about the boils - may need antibiotics, wouldn't want to to become a source of infection at this late stage and boils are normally staphylococcal.

    supersally - love the "SE's be few and your WBC be many" We need a new one now for RADS.

    Maxine - I am going to ask for an MRI at 1 year as well.  There is our mental health to think of as well.  

    I am having some problems moving on from this - keep telling myself to live for each moment, but then keep relapsing into thinking about not making it.

    There are some lists of things on the RADS groups for preparing.  I have pasted them below - thanks to the ladies from those groups who have already been through this:

    Radiation Suggestions
    -------------------------------------------
    Soap: Basis, Dove:  Go for free of perfumes and dyes.  Do not use wash cloth and pat dry
    Lotions:  Look for no dyes, no parabens, as pure as possible
    100% Aloe:  Fruit of the Earth, RO Suggested: Aquaphor for later weeks of treatment. Other Suggestions: Glaxal, Baby Aveeno, Miaderm (purchase on Internet) Boiron's Calendula (lotion, cream, gel)
    Always go in clean and lube when you go out.  Lube 3-5 times a day
    Treat  your skin delicately. It's being assaulted!
    Tank tops, Camisole's with shelf bra, Fruit of the Loom front hook athletic bras, Everything Cotton and loose that you can stand.
    Buy a yard of white fleece, and cut to fit inside "bras" so something soft is next to rads area.
    If you are larger breasted, be concerned about underneath your breast and treat with care.
    Absolutely NO lanolin or oil prior to treatment.  Avoid Lanolin during treatment
    Do not wear deodorant or shave the rads underarm.   
    Breathe through the process: Consider counting the timing of the treatments, visualize the "healing" beam.  Ask for music to be played and a warm sheet/towel if available. 
    Consider naming the machine:  Bubba, Sparky, The Accelerator, Trilogy
    If the position you are in for radiation hurts your arms or back consider taking ibuprofen or something prior to your appointment...ask your RO about this for recommendations.
    Enjoy your tattoos if you get them. They little blue dots to add to the constellation of your body!
    Fatigue is real.  Plan for it.  Some can take naps and be better, other's can't.  Try to plan your days so you don't wear yourself out. 
    Drink Lots of Water
    Eat Plenty of Protein to help health skin heal
    Do not take extra anti-oxidants
     

  • timerdog
    timerdog Member Posts: 51

    I just returned from a meeting with my Onc and he said the same thing about Mets. It doesn't matter if they are found earlier or not. He doesn't do any follow up other then routine mammograms. I am really upset even though I know the reality of my cancer and the chances of it coming back somewhere else in my body. He said with my cancer the chances are 1/10 of it returning. I wish to hell there wasn't that 10% chances at all!

    i'm upset :-( 

  • maxineo
    maxineo Member Posts: 199

    Good luck to you, Maria. I hope all goes smoothly.

    Stilts: the acupuncture worked for me. She wasn't around for my last chemo, and I paid the price in sore joints. I am now a believer. 

    Sorry you're feeling down, Penny. Someone just posted in the stage III forum asking how many stage III eventually go on to stage IV, so this is definitely something we all think about.  BC sucks anyway you cut it and I wish it would just go away.  I often find myself pondering over my stats to rate my chances of recurrence/mets (and cursing those lymph nodes!), but it just doesn't work because the BC seems to be so random.

    Sending hugs your way and hoping tomorrow is better.

  • supersally
    supersally Member Posts: 158

    Penny - thanks for the list.  I'm still having dry, dry skin so the lotions and rec to lube 3-5X a day were helpful for me.  I think that's part of it, the fear that comes and goes, anxiety about the future, depression.  I don't really have any good advice, I struggle with that, too.  Just know you are not alone, we are all there with you.

    Maria - been there, done that.  I had laser hair removal done on my underarms and legs years ago, and it might be the greatest thing since sliced bread.  I still have some hairs in both places, or did before chemo, but I shaved maybe once a week and the hairs were fine and blonde (also pre-chemo).  Before laser I looked like a gorilla!  It is kind of an investment, but it is cheaper now than when I used to do it and more readily available.  I'd suggest waiting till fall though.  Between dry chemo lizard skin and that you can't be in the sun after lasering.  It took a long time, too, maybe a couple of years to get to that point.  In a weird way, I kind of like the Brazilian.  It's so much cooler, sorry if TMI, but between the Texas heat and the hot flashes, I'm thinking of maintaining that once it grows back.  DH has hardly seen it, speaking of mojo, so no idea what his opinion is.

    Stilts - I don't have a formal suppport group here.  I feel as if BC.org is good enough.  I do have two good friends here that have been through it though.  I have talked to them about stuff, but they are several years beyond.  I think it's a good idea.  My therapist tells me that you should feel connected.

    Silia and Kymn - I've had red bumps on my scalp and a couple on my legs.  I think (like Maria) it is hair growing in and dry skin.  It seems to be better when I exfoliate (gently) and moisturize (a lot).  If it's to boil status I'd be asking my doc about it though.  You don't want anything to delay your last one, Kymn! Silia - I have 1/8-1/4" long white (or as I prefer, blonde) fuzz, too.  I did shave off whatever I had going on 5 days after my last chemo.  It was still coming out and had grown some, etc.  I'm not shaving it now though.  One of my wigs is my aspiration for the LT.  I had my co-worker/friend seriously measure it!  She thought I was joking :)

  • PennyCookson
    PennyCookson Member Posts: 356

    Sorry for being a whingebag - I had a look yesterday at the forum of the stage 3 people who had made it to 5 years and it made me more positive.  Tomorrow I am going to plant bulbs in my garden - will do it every year in the autumn and be determined to see them flower in the summer.  If I go on like that for the next 20 years all will be well.

  • Colodisneylover
    Colodisneylover Member Posts: 183

    Penny-No need for apologies.  I can completely relate to what you are saying. Planting bulbs sounds like a great idea!

  • Kay_G
    Kay_G Member Posts: 1,914

    No one would ever accuse you of being a whine bag Penny!  I think practically everyone, no matter what stage they are, has those thoughts at times.   You just have to keep it at bay as much as possible IMO.  My DH actually gets angry at me when I do.  Then that makes me mad.  So now I just keep it to myself or maybe write about it here, but don't say anything to him about it.  I am such a chicken I don't even know what stage I am.  I am too chicken to ask the onc.  I would like to know and know what the percentages are for reoccurence, but I just can't bring myself to ask.  I know I have some lymph nodes, but I don't know how many.  I don't even know if the onc knows since I haven't had surgery yet, but I don't know.  I feel like the biggest chicken in the world, and I wonder if the fear may really be worse than knowing.  But at least for now, it's working for me, so that is the way it will stay. 

    I also won't look in any scary forums here.  I have inadvertantly clicked on threads from woman who are posting that they just found out they had reoccurences and it is so upsetting to me.  So now, I only look at the threads I'm familiar with or ones that seem to be innocuous.  I do feel good when I read things about how well some of the women are doing years after treatment.  I'm glad that made you feel better too.  One thing one poster said that has really stayed with me is that the statistics don't really matter to you.  For you, if you have a reoccurence then it doesn't matter that you only had a 5% chance of reoccurence; and if you don't have a reoccurence, it doesn't matter that you had a 50% chance to.   That made me feel better too.  Hugs.

  • Silia
    Silia Member Posts: 265

    Supersally - thx for the hair and follicle insights.



    Maria - anxious to hear from you post-surgery. Hope you are doing well.



    Speaking of stress re stage and chance of recurrence, a neighbor that I informed about a month ago, chatted briefly with me tonight. Asked me how I was doing on chemo then asked what tests they do to figure out if it's working. THEN she said "how do the know if it's metastasizing?". People are unbelievable... Similar to many here, I worry about my stage (not really stated because no surgery yet and nodes haven't been gathered yet). We can only control so much. I have also committed to planting bulbs this year!



    Penny - you are NOT a whiner! Plus the great value of our board is that we trust that we can safely say anything here and still be supported and loved.



    Maxine - I just have to thank you for bringing such lovely energy to our discussions. I always appreciate your input.

  • PennyCookson
    PennyCookson Member Posts: 356

    Thanks for the support ladies, played with my grandson today and felt better. So glad you guys are here to run this stuff past.  Kay - like the poster re %.

    Have decided:

    I will do mostly the right stuff so I don't screw up my chances e.g. by continuing with too much good Aussie red (but I won't give it up altogether)

    After that if its not going to recurr then I will feel pretty silly in 5 years if I have spent them being miserable and worrying.

    If it is going to recurr I am not going to waste the next years being miserable and worrying so all up I might just as well say stuff it and be happy.

  • timerdog
    timerdog Member Posts: 51

    Penny,

    What you are going through is exactly what many people who have just finished chemo. I know I am totally stressed after seeing my Onc yesterday. I'm not liking my odds one tiny bit.

    I am just going to tell myself that today is a gift and live life the best I can.

    Starting with a low carb diet :-) 

  • pasmithx2
    pasmithx2 Member Posts: 224

    pennycookson--ya know, I figure that I can spend the next five years completely focused on fending off a recurrence or I can spend the next five years getting what the heck I want from my life. Either way, I might get hit by a bus in five years time and it no longer matters. I really want a balance between being vigilant and making an effort to avoid a recurrence without that becoming my overarching focus that leaves no room for the important things that make life worth living.



    A bonzer Aussie red is one of things that makes life worth living!

  • Suebee48
    Suebee48 Member Posts: 24

    Well, I am finished chemo!! Very excited to be done with it! Had an ultrasound last week with very good results. When I was diagnosed I was node positive with 2 tomours in my left breast of 3.5cm and 1.9 cm. the ultrasound showed that my nodes are now negative and I am left with 3 little tumours in my breast measuring 2 to 4 mm!! surgeon said those could just be empty shells too!! I'm hoping that this last chemo takes care of the rest.

    I really had to push my docs along though. My chemo doc wanted me to wait to see my surgeon 2 weeks after my last chemo. i did the math on the likelihood of getting a decent surgery date and wasn't happy so I went to see him last week instead. My surgery is scheduled July 27th, 5 weeks after my last chemo. I was hoping for the week earlier but like I figured, things book up fast. Thank God i didn't wait like they wanted. I am still unclear as to what they will be removing. Have an MRI booked before my pre-op to see exactly what's left. There is talk of removing the 3 main nodes just in case. Is this normal? If there is no cancer left in my breast, what will they take out? LOts of unanswered questions, but still happy to be moving on.

    Went to meet my RO on Tuesday(like I said, I got really pushy...wanna get this done!) He wanted to wait til mid-September to start rads! I said end of August will be just fine, thank you. He is talking 20 or 30 treatments depending on my nodes. Is this normal? I had no idea that because my tumour  is on the left, that there could possibly be damage to my heart (and lung)! Isn't that interesting...not!! Lots to process!

    Still losing eyebrows and lashes. It is so hard to put mascara on when one day you have 10 bottom lashes and the next day 3!! very, very messy mornings, I tell you. Not doing so well with the eyebrow pencil either! Went to work with a double-forked eyebrow one day. Thank god I checked my self on the way in!! Can't wait for hair growth!! I have had laser hair removal on armpits, lower legs and "down there" put my esthitician says there are no guarantees with chemo...the hair might grow back...wouldn't that be horrible?? And expensive!!

    Sorry to be so gabby this morning. Steroids in my IV have me awake at 5am even though I went to bed at midnight, while everyone else sleeps to noon (hubby and teenagers) Gotta talk to someone...lol!

  • lilylady
    lilylady Member Posts: 478

    Maria-

      Hoping everything went great yesterday and you have fabulous new "girls". The culmination of a long journey. Can't wait to hear what you think of them.

  • mdg
    mdg Member Posts: 1,468

    Hi lounge ladies!  I am back from surgery.  Surgery went well except for the nausea...I had to stay at the hospital until evening (I got there at 6:30am) and then I got sick twice in the car on the hour drive home...blech!  I headed straight up the stairs to bed right when I walked in.  My little boy (age 4) insisted on walking me up the stairs and I was given many hugs :)  Made my day....  I am a big sore but doing OK on vicodine.  I was able to keep crackers and water down last night and some cereal this morning.  I am popping the stool softeners and laxitives in case after my last surgery experience (no poop for days and a nice enema after.......gross!). 

    Penny:  You are not a whiner...you simply are just putting in writing what we all think about no matter what stage we are at.  I am fighting the same battle and I was only stage 1.  We all "get it".  It helps me to know that others have the same thoughts and fears.  It is too hard to talk with family and friends about this because I spend so much time convincing them I am OK.  They believe I am OK...I just can't talk to them about this stuff.  Some days are better than others...it's up and down for me. Hang in there and vent to us anytime...we "get it"!  Hugs!  Oh and I do feel empowered by what I CAN do to fight recurrence...diet and exercise.  They say exercise can reduce risk by half.  I am following the Anti Cancer book as much as possible that helps you understand which foods fight cancer and which fods fuel it.  That does make me feel like I am doing something....

    Stilts:  You are almost half way there!  That's great!  I hope you feel OK after this round....no SE's I hope!  I have not done a support group yet....I have gotten so much support on here and that has really helped me.  I also have one lady that I talk to that I met at the cancer center that is exactly 1 year ahead of me.  She has been my BC mentor and she's a doll.  We are going to lunch next week....she has helped me so much. 

    Timerdog:  I agree...I wish there were no BC odds and we were all "cured"!

    Supersally:  I will wait til fall to look into laser.  I guess I have gotten spoiled with not having to shave and like it now!  So much smoother than with stubble....

    Silia:  Have you read the thread that is "The Stupidist Things People Have Said to You"?  You should add that comment from your neighbor....nice.   People really are so unaware of how they come accross....just crazy. 

    Kay:  I also stopped wandering around the boards.  I found myself in some scary posts and it freaks me out.  I freak every time I see one of the "angel" posts....last week there were a lot.  I cried.....  I am just staying in my comfort zone with threads that don't freak me out.