For Older People with Sense
Comments
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I'll be there too, but with my eyes closed. Little claustrophobia here also.
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I was there too, 3 jays! We're waiting for news when you're able to post. Hope it wasn't too nerve wracking. Sorry I didn't know this ahead of time, but I didn't come back to this thread after I posted last night.
I did get some good news today---had the annual mammogram and all is well!
Kathy
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Great news Kathy...it will get to be boring news soon. I NEVER had a normal mammo, right from 21 to 50. I always had call-backs or biopsies!!
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I've barely been on here since I've become a news junkie lately. Really, it just gets me upset but I can't stay away. I so much appreciate your good thoughts and prayers, it really helps.
My son and son-in-law both received emergency call-ups today. My son goes in Sunday and my son-in-law Monday.
Leah
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My father, my husband and myself are all military veterans...I know what this means, Leah...hugs to you
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3jays - Thank you for your kind words. It has been a rough go for me, but I only have 4 more infusions to go. Then on to rads. I think you are right, I never cried. Not when I received my diagnosis. Not when I had surgery or even when I started chemo. But I did cry this week. I think it helped. I'm sorry you are still dealing with a nasty infection. I hope you can shake it off soon. Sorry to hear that the MS has gotten to your brain stem. You are an inspiration to me because you just keep on fighting! Sorry about the MRI, they suck! We are all there with you.
Leah - Sorry your son and son in law were both called up. I'm sure it's nerve wracking. My son is currently deployed and was in the Persian Gulf. Not sure where his ship is now as he cannot tell us. At least he is fairly safe at sea. I pray for you daily, as I do for all in Israel. stay safe!
Barbe - I'm sorry you are having back problems. I know it's awful. I hope you sell your current house soon. The new one is exactly what I would want-minus the stairs. I'm sure you will love it!
Chrissy - I have been MIA for several reasons. I was having a bad week and didn't want to inflict my misery on you here. It seems my SE's have been piling up and wearing me down. My neuropathy has been getting worse it's now in my fingers and my feet. Sometimes my feet go numb and I can't walk without tripping. My fingernails are quite dis colored now and trying to lift off. I still manage to crochet a little when they are feeling a bit better. Fatigue is unreal. Between my RLS and my high resting heart rate (120) I feel like I'm 91, not 61. Haha! DH was gone all week for work and I was feeling sorry for myself. I finally broke down and cried for the first time.
I decided a few nights ago because I couldn't sleep, to go back to the beginning of this thread. I wanted to get to know all of you ladies better. Once I started. I couldn't stop. I laughed and cried! I think it was hearing that We lost Marybe and Isabella that finally set me on my crying jag. Marybe was such a sweet, inspiring soul. And Isabella! What a life! Between her crazy gypsy wedding and all of her animal stories...I wish I could have met her in person. Can you imagine sitting and having a cup of tea with her?
To everyone else - I wish you all a peaceful, pain free week. Hugs, lilyrose
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Oh Leah......prayers for your son and your son in law, may they return to you safe and well. Sending (((((hugs))))) from one mother to another.
Lilyrose, coming here to put into words about how you are feeling is what this thread and these boards are all about.......it's friendship and laughter in good times and love and support when the going is not so good. Never think you are inflicting anything as we have been there and done that and know just what you are feeling so can sympathize and send you loving encouragement when you need it most. Tears are good for the soul and the psyche but unfortunately we as women tend to hang onto them to be strong for others when we really need to let them go in a flood........it actually helps relax and destress us.
Have you thought of using a walking stick as a security when you are walking? It wouldn't stop you from tripping but it will help to stop you from falling. Have you shown your hand to your onc? Hopefully he will have some advice for your nails.........I know they are lifting but once you are done your nails will return but in the meantime, hang in there. Rest when you need even if that need is all day and don''t worry about cleaning or doing the house.......it's not going anywhere and if it gets bad enough get your DH to do what annoys you most. Right now is when you need to be wholly selfish and look after yourself to the exclusion of all else.
Oh my, that resting heartrate is so high! No wonder you are feeling like you are ninety! Is your doc addressing it? I sure hope so as that is really not good.
Remember we are here for you not just when you are feeling so so but when you feel like you can't go on. I love that you are still managing to smile, the above cartoon tells me that in buckets and made me laugh out loud when it finally dawned on me where the lemons went! Loved it....lol!!!
I'm glad you read through the whole thread.........it has gown over the time and we have had some wonderful women visit us. The stories of Marybe and Isabella kept us laughing and wanting more and I for one miss both of them very much. I am thankful that I did actually get to meet and spend time with Marybe and she was as sweet and funny in person as she was on the boards. As we say here in Australia, I think Isabella would have been a real cracker! (ie a person who is such a live wire you never know what they will do next.)
Take care all!
Love n hugs. Chrissy
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Leah, Hugs for you and yours. I hope it's over quickly and you are all safe.
Lilyrose, Chrissy is right. Come here when you're down and need some cheer to get you back on keel. I hope the last 4 sessions go well and you're done soon. Hugs.
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Lily, those months of chemo never seem to end do they....trust that we "get it"..and are wishing you the best. The best part is that all the sudden out of nowhere you feel you can see the light at the end of the tunnel getting closer..I just kept thinking just one step at a time...one day at a time. You have alot of great women pulling you along...or is that pushing you along...lol
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Chrissy, Wren and Lisa, Thank you for your kind words and support. I tend to keep my moments of sadness to myself. I don't like to think that I'm bringing anyone down with me. But I realize that sharing my feelings have taken a burden off my shoulders. But I am learning to live one day at a time.
My DH has been great about doing all of the vacuuming and heavy housework. I still do easy stuff like laundry and unloading the dishwasher and making the bed. I have lived for years with him traveling for work and it never bothered me too much. But since my diagnosis, I have been having a hard time with his being gone so much. It's weird because I always felt so independent. Now I rely heavily on him.
I keep telling myself that this too shall pass! So I will just keep on fighting. My MO always asks how I am feeling not just physically, but mentally. He said depression is common in cancer patients. I have been telling him I'm fine...so I think next week I will be truthful. He isn't too concerned with my nails. He said they should come back normal. However, he is concerned about the neuropathy. We discussed and he said if it gets too bad he would consider ending my chemo early. I said I'd rather live with neuropathy than cancer! He said it's my decision. He is keeping an eye on my heart. He said a high heart rate is not uncommon, as long as my heartbeat is steady. It does go down when I lie down. So I do that a lot. Lol! I am just looking forward to being finished with chemo!
I have NO idea how I posted that funny pic! I was looking at it on another thread and laughing! I must have pasted it on here somehow. I'm glad you found it funny too Chrissy!
Hugs to all! lilyrose
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Lily. I didn't realize just how dependant I had become over the course of the treatments. It was so slow in developing I missed it all together. When it hit me was when I just blurted out to my DH I was going to drive myself to the doctor with out him. Wow I was in shock. At any rate I did it alone from then on. I think he was even taken aback. In the meantime he had retired and was maybe feeling a little bit left out.
Sending hugs. 🌼🌹
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Chrissy. I just came across this photo and thought of you. LOL
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Lilyrose you are not bringing us down by sharing, not at all. I know how you feel about relying on your DH, I am so independent that I forget to ask......lol. Like most of our DH's mine will do anything for me but I have to ask as he doesn't 'see' dirt or dust. If I pick up the broom he will take it from me and continue on with the chore.......the only problem is I have to do it again when he is not around as he misses half the dirt and never moves anything to sweep under. I am learning not to look but be thankful that he attempts. I understand about your DH being away for work, mine traveled for years........he was away every second week and it got that way I actually enjoyed the time on my own but I always looked forward to his arrival home.
So glad your doc is keeping an eye on everything but do be honest with him as he can only do something to help if he is aware and that doesn't happen unless you tell him. Never be upset that you may need a little medication to help get you through....it's quite normal and doesn't need to continue once your treatment is done if you are feeling okay. Dealing with the dx of BC then all the surgery and treatment puts such a burden on us both physically and mentally that all help should be gratefully accepted.
Yes living day by day is a great way to live, not just when going through treatment but all the time.......it has a way of creating a calm within.
Keep coming and chatting and releasing your feelings and emotions........as the old saying goes, 'a problem shared is a problem halved' and if the sharing makes you fell better then it works.
Love n hugs. Chrissy
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lilyrose, when you post of how sad you are it can remind the rest of us how far (or not) we have come. Put that spin on it and you can see that it HELPS us to remember our progress. We are also here to help you through the stages we have already done. This is not a fair-weather thread where you have to be positive, this is reality. Hugs to you, sweetie, and I am glad you finally cried! Let the tears wash some of the angst out.
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Barbe, I have been wondering about your eye. Seems you have appointment soon. Let us know.
Hoping all of you are having a good week and upcoming weekend. I am going to be 70 on Monday, never thought I'd get there! My onc was less than encouraging when I was diagnosed 2 years ago. Fooled them all! Wilsie
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I had the appointment on Tuesday and he has to send me to a sub-specialist!!! I am adjusting to the blurry double vision and get less headaches but that isn`t resolving the problem. Thanks for asking Wilsie and HAPPY early birthday!!!!
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Hey ladies; Thanks so much for the pocket party!!
I wasn
t done with the mri till after midnight last night, if you can imagine!!! I didn't know they'd stay so late!!!
Instead of the normal pre-meds they usually give me; I put together a "cocktail" of the meds I have here. I added nuerontin, which always makes me sleepy, and it worked well for me.
They got good pictures, and we'll see what the nuero says in the next week or so.
I've come to the point with my ms; there's not much now they can do, but watch and hope it slows down the progression by itself.
We're in the middle of a huge lawsuit with the condo: they "thought" they could just change their minds that they approved "service animals " in 2008. It's been a mess, and a lot of stress; but it's federal law here, so we'll win when its' all over.
Good luck to them; they're trying to "disprove " I have ms.. wish it was that easy.. lol
So, life will go on, as it does.
Lilyrose, I'm glad you had a good cry; whatever the reason. It's good for the soul!
This is the place to come with all your "crappiness" with chemo.. we all have done it, or know someone here, that did.
Marybe's nails fell off twice; but when she was here, she had beautiful ones, painted and all!
As far as the hand/foot syndrome, I was a lucky winner with that. (sarcasm) I find lidocaine cream helps with the "tingling" pain; and I take generic neurontin.. A trick one of the drs. taught me ( it works!!) I wear warm gloves always, and socks.. not a great fashion statement, but it really works! Leah, You, and your family, have been in our prayers, so much trouble near you now, is so scary!
Hugz, 3jayselps with that nerve pain..
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3jays.I don't have MS but do have neuropathy. I tried amytripiline and neurontin but they didn't help. Lyrica really helps me but we are all so different in our responses to meds.I also take a vicodin in the early afternoon. I have to get off my feet for a while so I have my siesta. I pay the penalty at night if I deviate from my routine.
I bet you are relieved to have the MRI. over with. I just hate them.
Did anyone else get a heightened since of hearing? I have had that for many years now.
Hugs all around.
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Hi ladies! I am feeling much better today. DH and I went out to dinner...that's been rare these last several months. A good friend stopped over to see me today and brought me some of her homemade zucchini relish. Between that and the wonderful support you have shown me, I feel much brighter!
Barbe, Hugs right back to you! You are so kind. I certainly hope the eye specialist figures out your trouble. It must be difficult dealing with headaches AND blurry vision!
3jays, Glad you made it through your MRI. I get so claustrophobic. What a pain to be dealing a lawsuit with the condo. Stress you sure don't need!!!
Chrissy, I am thinking of getting a walking stick. I think it would be helpful. Thanks for the suggestion!
Wilsie, Wishing you an early Happy Birthday! Keep on having LOTS of birthdays!
Hugs to all, lilyrose
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lilyrose, I used a walking stick for YEARS before I could call it a cane!! In fact, I have to go to our new storage unit to drag out the cane I haven`t used for 9 months as my back has crapped out on me pretty bad. I am back on my Fentanyl patches and still not getting much relief. I know it`s not worth going to a doc, but I think I might have broken myself. I wouldn`t be surprised to find out I have a cracked ______________ bone.
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I love the term, walking stick...
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Let me know if this link works. It`s the virtual tour from our current place:
http://homesite.obeo.com/viewer/unbranded.aspx?tourid=920503
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I can't get it on my phone, Barbe, but that is Operator Trouble...
cactus flowers
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Barbe, That is just a lovely place. It should sell like hotcakes. I see what you meant about the gray in the living room. It looks really nice.
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Finally saw it on my computer
Looks great Barbe
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Thanks, guys! Had our first viewing yesterday. I had to move boxes and lay tile in the basement bathroom by myself before the viewing!! Almost killed me...
Lisa, to me cactus flowers are just fake straw flowers plugged onto cheap little plants in the grocery store!! How novel to see them live! Are all those stamens going to open up like the star ones already open? Stunning!
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Barbe , there's a cactus garden next to the Rose Garden in Balboa Park. Sometimes I stop by and take a look at the end of my time there. It's is not often I see the flowers and I just love them.
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Across the street is the San Diego Zoo
I try to go after Doctor visits at the Navy Hospital there also
I just saw these I took this spring of a Orang Mother and baby
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AHAHHAHAHA A face only a mother could love!!!!
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so here is what Dad does
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