INSOMNIACS place to talk in the wee hours
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Mamma sorry
Mommy condolences
Patty have you been following me on FB?
HI everyone, off to my other world
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sas. Yes
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Hootie hoo, Patty. Glad to see you posting.
Sorry MammaRay.
Mommy, may your aunt rest in peace.
JuneBug, happy to hear you found your blanket. I'm still hunting for my little book I keep my passwords in. That's been a couple of months now, grrr.
Lover, only you could find an orangutan dressed as a Rastafarian.
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Greetings, Owlettes. My apologies for an extended absence, I'm almost caught up reading posts, determined not to miss anything, although there's no guarantee that any given piece of information will be able to hang on in this brain. I'm sure I have an excuse, if I could only find it. I didn't actually intend to take a break, it just sort of happened. But circumstances have brought me back to this safe place. You might note my updated signature.
To be honest, I was not really surprised when the MO told me the spot in the left lung they biopsied is cancer, though I was surprised he called me at 7:30 in the evening to do so. He warned me two years ago that my chances of recurrence or mets would be close to 50% even with aggressive treatment. So in some sense I've been waiting for the other shoe to drop for two years. It's gonna leave a mark.
My friend asked me if I cry when I tell someone about it, I said no, I've already done all that. She wanted to know how I get through it, and I told her, the same way you get through everything in life, you do what you have to do.
In some ways I feel somewhat detached from it all, almost as if I've compartmentalized it – something I've never been good at before. I have a bright spot though, a new kitty who fell into my life and won't let go. You may remember my mentioning my primary care doc and how we discovered our DHs work at the same company and know each other, well since then she's become a really good friend and advocate. She's going to try to find time to sit in on the MO consult a week from Monday (it's just downstairs one floor from her). Well a week and a half ago, she texted me a pic of this kitten that had been abandoned by the clinic. I agreed to at least foster her, since Doc said her hubby would divorce her if she showed up with another cat. She was only 5 weeks old at the time, and we bonded immediately. She's a really sweet kitty as long as she's asleep, when she's awake she's a fireball. She has no sense of personal space or table manners, and her teeth and nails are like needles – and I have torn up arms to prove it. But she has the most lovable face, and she's going to be a long hair like our last cat Rufus (before Sophie). The dogs are warming up to her, she and Rose have begun tentatively to play together. I will post some pics in another thread. I wanted to type this on the laptop before I shut down for the night and the pics are on my phone.
So I'm back, and it looks like it will be permanent this time. I have much to learn, thankful for all the ladies who have lowered the learning curve for me. (Hootie hoo Patty Peppermint!) And always for Sassy who is a gold mine of information with a solid gold heart to match.
Love you all.
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Mags I am very sorry to hear you have progression, healing thoughts to you and your husband
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Hi, I havent shared on this topic before. I had a really emotional day today and I'm up feeling frustrated about how irritated the skin on mu left side feels now. I'm on my second week of radiation and I freaking hate wearing bras now. My other breast is a D cup so I don't feel comfortable not wearing one at all. I do use Aloe gel and it is SO soothing. I put lotion on top. I'm also using lavender oil which helps as well. At night after I put on everything and wear a cotton t-shirt it feels so much better. During the day I put same on my skin but the fabric close to my skin is irritating.
I have four more wks of this. Im not sure how to deal with wearing a bra. If anyone is up still thanks for reading.
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Mags ~ (((hugs))) Glad to see you back, so sad you've joined the "IV Club". :-(
Baby kitties are the best medicine for anything. Looking forward to seeing lots of pics of your little fuzzy.
Sending thoughts of comfort and healing 🌷
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Mags, I have been thinking about you and wondered how you were doing. First it's Hiho and now you. Sigh. I'm glad to see you back, but wish it was under different circumstances. The kitty is so cute. I must admit she does have a lovable face and I am not a cat person. What's is her name?
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Did we scare JudyRN away? ShepK, what did you do?
Welcome Cherey! I didn't have radiation but I think both Jazzy and Ms. Chevy did. I think they will come along to give you advice even if you don't need any. We are good at that here.
Jazzy, I love the quote from Ellen Degeneres. Ok, we are coming to your party.
JunieB, you are one tough cookie. It has not been six week yet and you are out and about. Good for you! It's not easy to find a good church. It should not be that way. Our church is currently going through difficult time. Very sad that even churches have politics.
Sensi, you have some tough decisions to make. I would be in Funky Town too. Hugs
Kath, DH is better now when I am on BCO after we had the discussion. I realized that the little child in him just wanted (and jealous for) my love. He is an affectionate guy and loves to cuddle. I usually get on BCO with my phone before bedtime and can't type when he gets lovey dovey. I would get annoyed and he took it as a rejection. Poor guy. So, I try to be mindful of his needs. Sometimes, I hide in the toilet and pretend I'm on the throne.
ShepK, yay for the much needed rails. I wonder if the symptoms your DS is experiencing is from stress.
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Patty, hooty hoo. So glad to hear that the pain in your hip is better. Hopefully, the back will follow the hip and give you some relief. Praying that Xeloda is tough on those boogers.
Mamma, I am sorry
Mommy, sorry about your aunt
Lori, your post about your GS put a smile on my face. Very sweet.
Forward, I would love to have Barbie's waist too. Mine is heading its way to looking like the Michelin Baby's.
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Thanks all for the condolences. I can take comfort in knowing that she is in a better place.
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MamaRay
cancer=stress. I hope that you can find a bit of tranquility that you can snatch and hold to.Mags so so sorry about recurrence, no words for such news. Best wishes as you make decisions about your treatment.
For your beautiful kitty - well gosh what a cutie. Please do go on the "cats cats cats" thread and post some of your pics to the adoring audience on there!
(cats cats cats is here if you are interested https://community.breastcancer.org/forum/156/topics/834322?page=66#idx_1974)
I am minding my next door neighbour's dog at the moment. My neighbour is dying. Her husband is at ICU with her as she is expected to go home to God today. I am not a dog person, but Molly is a sweet dog. I have been to TOO many cancer funerals. My neighbours recurrence was discovered very late. Girls get out there and live. (I am talking to myself here) I am going to take Molly for a walk now.
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Cherey: not awake but reading in sympathy! I got the short form of radiation (and I think have skin like oxhide?) but can sympathize about the needing to wear a bra! Is it ALL cloth that's irritating your poor aggravated treated breast, or just the bra?
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Mags, sorry to hear about the recurrence. Kitty is cute!
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MammaRay take care of yourself
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Oh Mamma, don't stop posting. It was my failed attempt to make you laugh. I'm sorry.
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MammaRay, wish we could help you. Don't leave us hanging, sweet girl.
Mags, SH*T ! Sorry. I also was told my odds for mets was high. If you have more than 2-3 nodes, your prognoisis is different than none or 1. I just completed 6 infusions of Taxotere. It did knock the liver buggers down, but has spread like dandelions. Had a CAT scan 2 days ago. Another blow, looks like lung mets are brewing. I see a spinal surgeon Monday to fix my spine. I feel like Humpty Dumpy.
Hello to all......have a great weekend.....HOOTIE Hoo.....
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Mags, So sorry to hear about your progression. Your new kitten is absolutely adorable. Aren't they all fireballs when awake at that age? Their energy is amazing.
Mommy, sorry to hear about your aunt.
Sandra, I'm glad Mike will get into a trial at MDA. May it be one of the miracle ones.
Hello to everyone. Can't remember anything, so can't reply to individuals.
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HiO, I had taxoterrible to start with so I can sympathize. We are still waiting on results of hormone receptivity on the mets, if it is the same as primary I'll probably start faslodex the following week. If it works I can stay on it indefinitely, if not, he will probably want to try halovan. Such fun.
I'm drained after talking to my sisters yesterday, and I had a nice chat with Beatmon as well. Feels strange in a way, doesn't really feel like anything has changed. I still haven't said anything to my son, and I think I need to. He lost his adoptive mom to this crap, and now this. My fear is someone will say something on FaceBook. That would not be cool.
Maybe I'm in shock. I don't really want to think or talk about it, but I don't want to not do so either. I have so many regrets in this life and so much stupid crap I've done.
I need something to distract me…
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Sitting down and having a Leinie's right now. Too dang hot to do anything else right now, I was melting while doing laundry and weeding my flower bed.
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Hi everyone! Just checking in. I'm sitting here watching my hubby go round and round on MY lawnmower! Gggrrrr lol
I keep wondering who's job it was to tell the world to stop spinning because I've stopped spinning? No spinning without me! What a rude awakening! I mean really?! Did they not get the memo?
(((Mag))) I'm so sorry to hear about your progression. I'm lost for words. Your little kitty is so cute! I just have my strays that I feed. I'm glad they have other homes to visit as my hubby hasn't put food out for them in a week. I'm glad they still stop by :-)
I've got a lot more ROM today, very diligent on doing my exercises. It was heaven to be able to take my first shower last night! HEAVEN!
Great, I took a pain pill 2 hours ago and it just now kicks in! What's up with that?! I'm off to Lori Lala Land
Love and hugs to all!
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MAGS! WTH? I'm so bummed at your news! We'll all be here for you kiddo.... Sorry!
And MamaRay.... You doing alright? Sheesh! It's hard to kid and fool around with you guys, when you are going through so much!
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lover, you keep the monkey, I'll take the cowboy!
I'm done working in Indianapolis. Tomorrow morning to Omaha to begin play. Yeah! Been hot and humid here. I'll take California heat any day.
Mags, sorry to hear, that just sucks! Wish someone would find something to stop all this sh**t! But your kitty is very cute.
Wench, must of missed your post that the drains came out. Yeah! Still be good! Too soon to go mowing the lawn even in a riding lawn mower!
Hope everybody has a nice weekend.
😎
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You don't like hairy chest? No, that cowboy is taken. Yeah, heat with humidity is worse than dry heat, the only good thing about sticky heat is you don't need lotion because the skin is always wet.
Lori, no spinning!
I have been cleaning the house and looking for things to give away. We are thinking about downsizing. Crazy how much we have accumulated over the years. So hard to part with certain items, but we don't need so many things to survive. Wish I can live like a minimalist. My goal:
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Ok enough day dreaming and back to cleaning.
Feline, will take your advice and go and live life despite the aches and pain in my hips and legs (after I clean the toilets, of course). Ta ta for now.
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MammaRay ~ Keep posting as much as you are able. I can't imagine how difficult it is for you, not being able to get your words out the way you want. Owlettes speak with their hearts; our hearts will always understand one another. Even if all you can type is a single letter, please keep "talking". We all are here for you 💕
And if you don't need to borrow Chevy's cast iron frying pan maybe she'll let me use it 😉
(((hugs)))
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