INSOMNIACS place to talk in the wee hours
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hi guys. Sorry haven't posted much. I collapse from exhaustion most days. But having fun driving back and forth and playing with Claire and Elena. The energy level isn't keeping up but I don't stop. I have a,ways gas sleeping problems...not anymore.....now I pass out. Bipolar sleeping...lol
Hope everyone is in a happy place
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hi ladies. Feeling a lil better less pain and no nausea. Still exhausted but headed in the right direction. Finally up to responding to some individually. Thank God for notepads cause my memory is horrible.
Mags. - sounds like a tx plan is almost solid. Love the adorable kitten pics. What a great distraction. Although my vote for distraction is definitely the cowboy. I agree about Sas's heart of gold and brain full of important knowledge. She has helped me thru many hard times especially helpful when I am at the hospital
Sas love ya
Loverly. Darn church disputes hurt and run away so many people. Gotta keep reminding ourselves the church is made of regular people. No one is perfect. BTW : love all the views especially the ocean one. Daydreaming......
Feline. sorry to hear about your neighbor. Love your get out and live attitude.
HIO. Not sure I remember your stage IV dx. So sorry. What are they gonna do to fix your spine ? I have had several kyphos to fix fractures and a couple ablations on large umors pressing on spine and ribs.
Chevy. - what???? Don't even think about stopping kidding and foolin around. I personally always look forward to your post. Laughter is awesome !!!! Thought about you today when I went to sonic. Got a chocolate coke. Glad you turned me on to them.
Susan. Aww Elena is adorable love the sunglasses. Super glad you are pushing thru when you can to spend time with them.
Hugs to all. Hootie hoo
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Sure hope the man has some padding under his shirt. Looks like the cat is used to it.
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Hey. Anyone still up ?0 -
What's up Missy?
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hey yea. It's you. Was just looking back at your ocean view again. Ah. Daydreams..... A good book and strawberry daiquiri. Ive been exhausted for s long time but tonght not sleepy. Hoping its a positive change just like my hip pain and nausea going away. Why are you up so late ?
Hootie hoo
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I'm not up late. You are. Haha. It's only 9:47 pm here. You have a boost of energy? Wonderful! How is Xeloda treating you so far? Any nausea?
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DH arrived in Quinto, Ecuador 4:00 am today and had to ride 6 hours to Muisne. Hope the bugs are not too vicious over there. They had two aftershocks the last few days. In April, the same area was hit with a 7.8 earthquake. 650+ people died and over 22,000 injured. DH is there with a group of people from our church for 15 days. Not sure how much they can help
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9:47 is late for me. Haha. Didn't realize where you are. Yes a wonderful boost of energy. X has been great so far. No nausea. I do take a daily probiotoc and probiotoc. Not sure which is stopping the daily nausea but I love it ! What was your high temp today ? We had a vlouduy day with a cool front. I think only like 90° today. Woohoo. Except the darn humidity was still high.
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Patty & Lover....
I have SNL on, must be a old one.
Lover, is your hip pain arthritis? I am sure you have explained this before, but I must of missed it.
Patty, I was dx in early March with innumerable liver mets. It was painful, swollen & scary. Now 4 1/2 months later, liver looks good, but the stinkin Cancer is everywhere. I had a scan last week, think it's in my lungs. Trying to stay positive, just like you & Susan & others here. Full time job when you feel like crap. My fingernails are toast, the Taxotere was brutal on them. They hurt way more then my 2 compression fractures.
Ok, sorry about the rant.....thank goodness I have you all to be honest with.
MommaRay, post whatever. No worries if you can't edit, we do not need perfection. Heck, look at what Lover & Sasafrass posts.......lol....
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LOL. Making fun of me Ay?? I love it! Thank you for your honesty.Yes MammaRay, don't go and delete all your posts.
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hio. Sounds like s hard road. Boo. Sometimes positive is hard to do but its important. So hard when you feel sooo bad. I am thankful for makeup to cover tears. Best face forward, one foot in front of the other , yada yada yada. Keep on keeping on right ???
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Patty, we hit 90 today. Way better than 101 and 100 a few days ago. So glad you don't have to deal with the nausea. I'm also on probiotics to help keep my stool close to normal. It works when I remember to take it regularly.
Hiho, right hip pain is from osteoarthritis. It doesn't help when I try to move to the right and pound on it to return the badminton birdie. Broke my right foot three years ago trying to jump up to spike the bird. That's what I got for trying to look like the professional players. I still play twice a week. It helps me to forget that I am over mid 40s and that my body is slowly betraying me. I sometimes pay for it the next day though. The pain in the nails sounds horrible. I stubbed both of my big toes a few times while playing badminton and had lost the nails on each side at different times.It was painful each time. I can't imagine going through it with all your nails. OUCH.
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Hiho and Patty, I am curious. You both have mets to your bones. Wha is/was your Vitamin D level??
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darn don't remember but do remember it was low and reading many articles about a connection. I take a vitamin d supplement daily and mo test my vit d level regularly. If it's too low we do rx vit d
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Hey you nite owlies!
Loverly~ My vitamin D was normal when my bone mets were found. It did crash about a year after DX. I take 4,000 IU daily now. I am wondering if the D definincy was a result of my increased intake of Fiorect? Fiorect blocks the absorption of D.
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Patty -- did you get any relief from your ablation and kyphoplasty procedures? I had an L2 kyphoplasty last year that needs to be re-done and a now my L5 needs to be fixed too. I've been waiting over a month now for my surgeon to be able to get the equipment for the ablations he wants to do before shooting in the bone cement .
So very happy you are finally get a break from some of your pain! My hip mets are usually fiercely painful. When they settle down it is the most wonderful feeling
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shep. Yes I got much relief from the kyphos and ablations but seems like it didn't take long before something else fractured. I know my hospital only rents out the ablation machine and I usually have a wait also. Must be very expensive machine.
Well it's after 1am and I am still going strong gonna say good night here and start some laundry. Gotta do what i can when I feel good.
Hootie hoo. You owls
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good evening or good morning. Can't sleep either.
Holeinone, sorry about the spread,
I have nodes, rib, Lund and spine. But nothing has progressed to fractures . I guess I am one of the lucky ones. I can still walk 6 miles and bike 17. Occasionally I fall didn't my steps...but fir me, that's better than a bone scan..lol if I didn't break anything , than I guess my bones are still pretty strong. Lungs are print biggest problem . As long as I stray on flat ground I breath fine. Twice up and down steps and I am trying to suck in air.
Pp, my heart gets out to you with your bone Mets and fractures and horrible pain. I pray thing ease up for you. Staying positive has to be hard. I am very impressed with your food delivery. Can't believe that never crossed my mind. Ahhhhh chemo brain.
Hi lover
Hope everyone else is having sweet dreams
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Sleep attack. Bedtime for me soon.
Warning: I might not make sense cuz the sleep fairy has arrived.
Susan, don't stay up too late. Love the picture of Elena.
Patty, you too. Don't want you to pay for it tomorrow or is it later today? Thanks for answering my question about vit d.
Shepk, interesting. Was your D level at low, mid, or high normal? The bultalbital in Fioricet is related to phenobarbital (an inducer of cytochrome P450) which can affect the metabolism of D.
Nite nite
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Patty - awesome the procedures helped you; I feel a bit more hopeful now. Every doctor that sees my spine scans shakes his head and tells me "you got a lot going on"......sounds like that is a phrase you hear a lot too
As long as they can keep glueing us back together, that's the important thing! Don't wear yourself out - get some rest and save some of that energy to spend some fun time with your boys ♥ HiHo - Are you going to the surgeon for a consult or for a fixing Monday? Kyphoplasty ? Yay for the buggers in your liver going down! Chit about the lung mets. Can they be radiated or do you need chemo for them? Wish everything could be an easy fix.
Susan - Elena looks like a little starlet hiding behind those big shades! Always such a cutie. Are you saying you occasionally fall down your steps? Cut that out! Nothing good will come of it! All that walking and bike riding.....you are a tuff one! Hoping your lung mets fade away.
Loverly - I know my Vitamin D was normal, can't remember what range it was thouogh. I've been trying to chart out my meds by phenotype - interesting stuff. That's how I made the Fiorect connection. (yawning) I am nodding off while I am typing......
Wishing everyone a restful night's sleep 🌛🌌
Edited to clarify "Vitamin D was normal" - the other "D" wasn't the topic......don't want to alarm the SASinator ! 💩
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Susan. Amazing all those miles walking and riding. Wow. Keep up thd good work. Surely it's gotta help with energy and depression and do much more. Rock on.
One load laundry done. Not much else tk do since sis went so crazy on the housecleaning before she left.
I finished mg lastinrary book last night :-(. Now they won't. Be open Til Monday. Guess I am turning on the tv snd hope it bores me to sleep
Night all. Hootie hoo
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So, it's after 4am here and to think at around 8pm I wanted to kick my company to the curb and go to bed! I've always been a night owl but it's worse now. I've been having nerve pain radiating down my right arm. An MRI revealed the pesky tumor in my axilla (and arthritis, as well) is the culprit. I started radiation last Thursday, so I've had two out of 10 treatments. Until I get relief, I can only sleep on my back with my head elevated on 3 pillows. And it seems the couch is a better bed than my real bed. I am hoping this radiation garage gives me some relief.......
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Morning all,
well during yesterday's adventure of weeding my flower bed earned me a mild sunburn. Didn't know it until my hubby was giving me a back rub that it had happened. Was wearing a tank top at the time, so only the shoulders and my neck area that got the sunburn. Looks like another hot and humid day on tap for us here. Under orders from hubby to not do much today because I exhausted myself yesterday.
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judy I also find the couch more comfy then the bed. We've bought new mattress twice but still sleep on couch mostly. Jokingly told dh we need to toss bed and out two couches pushed together in our bedroom.
Mommy. Take it easier today.
I finally slept like an hour last night. Running full steam ahead today. Woohoo.
Hootie hoo
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Judy you came back! Good morning to you ☺
Ack, sleeping comfortably shouldn't be a challenge. Resting is supposed to be easy and, well, restful! I have cancer filled nodes in my left armpit and left clavicle as well as the danged shoulder arthritis. The mets in my neck probably aren't helping anything either. I can commiserate with your pain and numbness. I hate it. The numbness is always in my hand and will run the length of my entire arm depending on what position it is in. The pain comes and goes......
I've had rads bunches of times for bone mets. Sometimes I get relief in just a few days, sometimes it takes longer and sometimes there isn't any relief at all. Rads can take up to two months after your last treatment to show results. Frustrating when you need the relief right away. Hopefully you just need a few more visits for the results to show?
I always get nausea from rads and take Zofran before I go. Lots and lots of moisturizer to the treated and surrounding areas will help your skin feel better and offer a bit of protection from damage.
Check back in with us and let us know how you're treatment is going. We share all kindsa stuff here ranging from silly to serious. Good advise and good fun!
Be sure to share any pictures of obese men in their underpants that you may have. LoverofLife will be missing her traveling Hubby and those images would be of great comfort to her 💜
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M0mmy ~ What a sweetie your DH is! Back-rubs...........ahhhhhhh! Vinegar is an excellent sun burn soother. Just add a cup or two in your bath and have a nice soak. The vinegar will draw all the "sting" out of the burn. The vinegar scent will rinse away after you bathe. Milk in the tub works too - just don't use both at the same time.....ewww! I use undiluted vinegar for bug bites and stings. It works almost instantly.
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For Loverly... It's like every time we go to the Grocery Store, these guys are in there shopping.... in groups.... with ALL their clothes on, but you keep thinking... OMG.... OMG....OMG!!!! Because you just KNOW they know what you are thinking, and you are trying not to think it, but they just KNOW!!!
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chevy. 🙌
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