INSOMNIACS place to talk in the wee hours
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Sassy ~ Gaw! I've got tears coming out of my eyes and I'm half choking from laughing.........
I just read that fantastic, deep, informative and insightful post....scrolled down and then read your proclamation about Hershey's and Triscuits. Have I mentioned lately how much I love you?
Wanted to write more to you and Loverly but am running outta steam. Will pick up again in the morning. Technically morning is now. I don't count it as morning until whatever time it is when I get up.....
You are talking about "sausages" and chocolate. Hoping this means the blues are lifting up to the sky where they belong. Now tuck yourself into bed and think happy thoughts to make happy dreams
Goodnight!
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Hi Sensi, I went through chemo last summer. It is true what they saw about walking being good for you. It's sometimes hard to make it a reality, and I wasn't very good about it, but wish I had been. Best of luck to you with the SE's.
Shep & Loverly, my DD has some yoga stretches she has learned, but I have to be better about getting her to do them. It would be good for both of us! She also wears a knee immobilizer at night, to stretch the muscles. She alternates legs and gets one night off each week. She's really good about wearing it and it makes a difference. In the past she has had botox injections and times (1-3 weeks) of wearing casts on her legs. The casts keep the foot flexed and give the calf a good stretch. DD has a wheelchair, but only uses it for distance, like when we go to the zoo. She may need it this school year, with going to high school..bigger place and more walking. Loverly, yes, they are twins.
They were born at 25 weeks and my DD weighed 1 lb 1 oz and my DS weighed 1lb 13 oz! They are amazing!!! We have spent a lot of time in hospitals and Dr offices, so I'm used to the environment, but it sure it different being the patient. I'm the one that chose to divorce 6 years ago, and it's been hard, but glad I did. Thankfully my ex has been helpful since my Dx and he only lives 10 minutes away. Do you have kids, Loverly? I'm sorry, I'm still trying to put together each persons story with their name, so don't recall if you have mentioned. If we both hang around another few years we can celebrate the big 5-0 together!!Sas, I have dealt with addiction and I'm glad for you that it doesn't seem to have a direct impact on you. Sometimes the atypical relationships are the best!
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BBL
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sensi, I wait half hour between pre meds and the chemo. That helps, and slow drip like you got. The waiting in between is what saved me. And depends are a beautiful thing. I couldn't go out and do what I do without them. Who knows when I will purge. I depend on my depends. Ha h
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jwoo, happy things got moving, and some drains out yeah. Hopefully you are home now and snuggled in bed
Sheps, meltdown mode is all are new " normals".......
Jazzbug, looks like something out of star wars. Praying you don't dislocate again before contraption gets here
Sensi, hope chemo treats you well....if not...I will come and give it a talking too!!!!
Night night...just put Elena down to bed Boy oh boy.....she has an angry mad cry now. What a set of lungs!!!!!!
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That's a good sign, Susan. That means she has swimmer's lungs.
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I see four mischievous eyes in that picture, by the way. Nite
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Aw, WildT, your children are amazing because they have an amazing mom. What are their personalities like? One pound babies....I imagine you could carry them in the palms of your hands. I would be afraid to handle them. I hope you and I get to be around to celebrate our half century mark. And at one time I thought 30 was old. Time does fly. I have two girls. My older DD is 18 and younger DD is 13 going on 18. My older one will be leaving soon for college
Not sure how I will hold up when we drive back from LA next Sunday. We live about 6-8 hrs drive away- 6 if my DH drives and 8 if I am behind the wheel. JunieB, that brace looks sexy. You could look like Lara Croft with the right outfit!
ShepK, did you find that happy place?
So I was really tire the other day and decided to put on some mascara and eye liner before heading out to work. I hardly wear make-up because it is such a hassle. By the end of the day I look like a raccoon from the eye liner smearing. Why is it that people look flawless with make up on and I look either like a raccoon or worse,a drag queen?
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Hmm..I get up early, was up at 5, and no new posts here. I hope that means everyone got a GOOD nights sleep!!
Loverly, Thank you! I did not get to handle my babes much after they were born because they were in the hospital..my DS for 4/12 months and DD for 9 1/2 months. When I did get to hold them early on they were connected to a lot of equipment and I had nurse supervision. They had limited amounts of time they could be out of their isolets and I think they were 2.5 months old the first time I held them together. Both my children also have intellectual disability, so their cognitive level is younger than their actual age. DD is LOVES anything related to Disney Princesses, and DS loves Superheroes. They are both kind, loving and resilient. DD is a mini me and is stubborn at times. DS loves order and routine. Wow...I can't imagine what you are going to be going through dropping your oldest off at college! I would need a shot and a box of tissue for the ride home. How does your youngest DD feel about the change?
A girlfriend of mine is supposed to be coming over for a sleep-over tonight and I'm part excited, part hesitant because she has a history of canceling at the last minute. She only lives about 45 min away, but needs a night away from her family. So, if she comes I'll spend the evening eating, drinking and chatting. (Kids going to their dad's)
Soooo...I have got cleaning to do. A little humor for all of you..I felt it was important to be fairly straightforward about my Dx with my kids and use appropriate language, but my DD has not quite learned boundaries of sharing information. During summer school I found out that one day when someone asked about me she said, "Mom's breasts are growing."
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wildtulip, have fun with your friend.....hope she shows up. Girls night are fun
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Wildtulip- I have friends like that too and try to just suggest things where if they don't show up or not, I won't be majorly inconvenienced. Inviting them to things I am already doing, or knowing if they cancel out, I will be fine just hanging out at home. I will say I don't care for that behavior, some people always seem to either have a crisis or a better offer and usually just see them less often as a result.
That being said, I hope she shows and you can have fun, but if not, maybe created a Plan B to relax and watch a movie or the like and enjoy some "you time!"
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popping in to say hello. Happy Saturday all.0 -
WildT, the one thing I find with most children with physical and mental disabilities is that they have a pure heart. The first few months in school here in the States the teachers didn't know where to place me after they realized that I was lost and wasn't learning, so I ended up in a class with the Special Ed kids. I only knew a few English words- hi, hello, bye, and the phrase " leave me alone" (had to learn this quickly because I was teased a lot by a few kids). The only class I had with the "regular" 5th grade students was math which was easy for me. The children in the Special Ed class were truly special. I felt safe in that class and had a lot of fun learning. They didn't judge me for not speaking English. They didn't care if I looked silly in outfits that was not originally mine. I was sad I didn't get to stay in the class very long as Mrs. Richard was also a special teacher. She was the most loving and compassionate. Have fun with your friend tonight.
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Oh hello there Chance's mom. How are you doing? I forgot to tell you I screen my calls.
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Hi Lover-thanks so much for sending me your number. I've been laying low, but still lurk. Doing fairly well, been extremely lucky so far in terms of SE. I come on here and want to write something to each of you wonderful ladies, for your support and to support you.....my brain is still catching up. Hope everyone knows how much I appreciate feed back, and am sending you all well wishes as I lurk.
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No worries. Ok to lurk. Write when you feel better or if it makes you feel better....if that makes sense. I am just glad that the SEs are not too bad for you.
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Loverly - I know for a fact that I could never pull off the hip brace I'm getting like Lara Croft did her gun belt.
Sensi - So glad your SE's are tolerable. Is Chance giving you a lot of cuddle time?
Was woken up yesterday morning at 5:30 a.m. with excruciating chest/rib pain. Chest has been hurting since my fall, but this was another level altogether. Ended up taking another trip to ER. This is the first time I've every had an chest/rib injury. And Man O Man! does it hurt. I had another chest x-ray which was normal and doctor determined I have a severe intercostal (cartilage & rib muscle) injury that could take several months to heal. It is surprising to me that it took a whole week for the symptoms to flare like that. I was given robaxin (non-drowsy muscle relaxer) & Fentanyl patches for home. Have to be careful with the patches though. I can't allow myself to get over-heated because that will cause an overdose of the narcotic and can kill you. Will see Palliative Care on Wednesday and hopefully I'll get my hip brace by then as well.
Susan - Have you gotten your scan results yet? I haven't.
That is an adorable pic of you and Elena.
Wildtulip - You can always count on a child to be totally honest. I sure hope your friend shows up. Some happy distraction is always helpful.
It is 91 degrees outside right now, so I'm staying inside next to the A/C.
Have a good rest of the day everyone.
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Sensitive- hope you are feeling okay and good to lurk when energy is low.
Loverly- another type of purslane that is doing well this year.
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Jazzy - Very pretty flower pot. Is that a succulent?
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Jazzy- yes, I think so! Loverly and I also have the same type of larger rock purslane that blooms and blooms and blooms these amazing purple flowers.
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Jazzy, I like the color of the flowers. What is its name? I didn't know there are different varieties of purslane. Moss Rose is also a purslane. Love the intense colors. My rock purslane has stopped blooming. Maybe I need to move it to a a different spot.
Susan, how is Marley doing? The problem with dogs with a black face is that from far away you can't tell if they are asleep or awake when they are lying still because their eyes blend in with the black coat. I can't sneak up on Mitzy. You don't know how many times she gave me this ridiculous look that says "why are you walking like that" or " she is moon walking again".
JunieB, how are Robaxin and Fentanyl patch working for you? Yup, no sunbathing, Bikram yoga, or sitting in the sauna for you while you are wearing the patch. Hoping and praying that was your last ER visit this year. I read that humor helps the body deal with pain, but I think in your case it might hurt to laugh so I will refrain from posting silly pictures.
ShepK, I am sorry you still have major technical difficulties with your body. My complaints is trivial when I think about you.
Thinking of you all, including you, Hiho.
May you all living with pain have less pain today.
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Hi ladies,
I hope you're all having a good weekend! Yes, my friend did come over last night and we had a really good time eating, drinking, talking and looking at male Olympics swimmer bodies.
Her DS sent along some fresh veggies from his garden. YUM! Jazzy, ironic what you said, because I did have a plan B in mind! I'm a planner at heart, and with all that I have going on with my kids it's how I've learned to function, so it can be hard on me when others don't commit. Like, I told my friend to come anytime after 2 yesterday, but we never talked a specific time, so I felt like I was waiting around all afternoon. She text updated me, but didn't actually arrive till about 6:30. As far as her history of cancelling, it's always either medical or family related, so I get it. She has more family around her and they are priority, but because of the fact that I love spending time with her, it's disappointing when it doesn't happen. Instead of letting myself be disappointed, I just know that with her last minute things can happen...it's an acceptance, I guess. Kinda what you're saying..knowing you'll be okay with it if they cancel.Along the same lines, it's interesting/hard how relationships can change throughout life, but especially with big things like Dx. People have shown up for me that I didn't know cared, and others have completely left my life (like my father), and some in between. My friend that was here last night has made me hats when I was bald, called, text, sent cards, and really listens when I talk...she SHOWS me that she cares, even without being always physically present. Others that say they care about me on fb or caring bridge, but have not even bothered to attempt to see me. Some people say that it's times like these you find out who your true friends are, but I don't know...now that I'm done with active treatment I have seen a change in people. Although the ones who show up in crisis are needed and helpful, I think true friends are the ones who know how you drink your coffee, and at the end of the day, give a crap if you've had a good day or not.
Okay..enough about me and my ramblings...
Such cool pictures and videos everyone posts. I'll have to figure that out one of these days. I'm not technically inclined!
Loverly, Thank you for the beautiful story about when you first came to the states! Where were you born? I cannot imagine how hard those first years must have been for you.
Sensi, I feel for what you are going through. Hang in there!
Junie, Can you just stay out of the ER for a while already?!
Susan, super cute pic of you and baby from couple days ago!
Shep, what you posted a couple of days ago about being stage IV..it was beautiful and calming. Thanks for sharing!
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Wildtulip - What an excellent idea. Four times in one week is WAY too much. Believe it or not I really do have better things to do. However, right now I am limited most from the pain of my chest trauma.
I woke up this morning and again as I turned over to get up, my hip popped out AGAIN (5 times now). My first thought was "Oh Crap! Here I go again" I made a deliberate choice to move a bit and try to get it back in. Thank GOD it did.
I am so glad you had an excellent time with your friend last night. I am a planner too and it makes me crazy when people won't give me a straight up answer. In the past I've cooked dinners for my church group and needed to know just how many were coming. Never fails that some will say "I'm not sure", "Well maybe, but we have this thing or that thing, etc." It IS NOT that difficult to just say yes or no. I just need to shop for what I need.
Have a great Sunday Afternoon!
BBL
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Good morning friends- I have been on a marathon shopping adventure from everything from the farmers market to Lowes, to Kohls & few other stops. I think I did a whole months worth of errands in 4 hours. Whew!
Will write more in awhile, but here is what today looks like. The guys in the photos are roasting green chili that is being harvested right now. I wish BCO had a smell button, because the smell of roasting chilis is SO good. I know Mags spent some time here in NM so I think she knows what this is all about.
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Wildtulip- glad your friend came over and you had fun. I have friends like that too, they have a lot of family around so they really don't have much time for anyone else. Those are the folks I see infrequently, and usually leave it up to them to tell me when they can get together. Sounds like you had a great time last night and glad she was able to join you!
I read an article when I was going through rads treatment that said there are 4 things no one will tell you when you get a cancer diagnosis. One of them is that your relationships will change, for better or for worse. I told a very small group due to being self employed and feeling it was not in my best interest to let the wider community know. I had two friends where things just changed to the point we are no longer in touch. One woman (who was a friend from my home state) was just not that nice to me, so I just stopped staying in touch. She resurfaced a year or so after treatment thinking I was done seeming to want to reconnect. Another woman who was okay during my dx and treatment seemed to just avoid me after I was done and would never follow through on planned get togethers, so I let that go too. I have not been in touch with either for a year or more and honestly am very okay with it. I had some very good support during my time need and those are the relationships I cultivate now. Not everyone can or will show up. Pay attention to those who do!
My advice for anyone is focus on those that have been there for you. You may still see some of the others as you want that have been more distant, and we are never sure what people have going on and why they don't call, visit, or offer support more. Sometimes they have their own problem going on and don't want to burden us. Saying you care is one thing, showing it is something else. I pay attention to the actions.
Loverly- it does not have a varietal name but know they have them at Lowes. Saw more there today when I made a visit!
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hi everyone ! Still hanging out here just reading. My bone biopsy is on Wednesday . And I have to babysit my four grandkids tomorrow and it's 11:56 and I can't get to sleep !!! I wonder if these nerves are ever going to get any better ???
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On a mission regarding bladder control hope I don't get banned b/c of spamming. Love ya'll
Repost from Warm and Fuzzies. not appropriate to the site , but there were a couple of bladder leaking meme's. But this is a serious story has to do with the funny one about bladder leaking. All the docs will tell you about kegels. WELL, I inadvertently found a solution if you are a swimmer.
There is a swim stroke that I can't find the name for which I learned as a kid. It's meant to be a stroke to reserve energy if lost in the water and have to swim a long distance. I have been using it more frequently b/c I had a shoulder injury and was working the deltoids.
LOANDBEHOLD. The stroke increases bladder control. Takes maybe 2-4 weeks, but dependent I'm thinking on how often you use the stroke. I vary 3 strokes for particular reasons. Then I noticed better bladder control.
It's a back stroke. You bring up the arms from the side to the top. At the same time you bring up the legs in a frog position. Then you snap them down and glide. I kept working the movement harder, to get the work out of the deltoids. Then TADA, head slap moment, I noticed I didn't have the run for the bathroom after the pool or the hitting of the air conditioning. It was AMAZING. I know this isn't a funny on a funny page, but I'm posting this in as many places as I can. So, hahahaha. Leaking is no fun hope it helps, spread the word.
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