INSOMNIACS place to talk in the wee hours
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Yes, cheMO brain is real. I can't remember names and dates at all anymore. I forget why I walked into a room all the time.
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So I can still claim chemo brain.....I still can look at co-workers, and totally forget their name. It's gotten better, but still feel the affects.
Hope everyone is doing well. I've been busy with work. Still lurk and check in to see how everyone is.
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the worst chemo brain that ever happened to me was when I was meeting Claire at a shopping mall off the expressway between us. I could see it from the expressway but each ramp I took wouldn't get me there. My brain couldn't figure it out. Now I know to just stop, give it awhile and try again. So I pulled over, had my bible in the car, started reading, then after about 15 minutes, tried again, and got there right away. My daughter just waited for me. When my mind can't track, I need to stop. Getting stressed over it makes it worse. I would think she would worry about me watching Elena, but she doesn't. I guess she knows I can handle the brain issues. It's not so frustrating anymore,I guess I am used to it. Now when the neuropathy kicks in and I drop everything and can't open stuff, I get really
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Well not much going on this morning in my corner of the world. Going get near 40 degrees so we will probably get more melting. Supposed to get close to 60 on Saturday here!
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us too with weather. But rain also thi week
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Yesterday was an absolutely gorgeous sunny day. Pretty chilly, 45 with north wind. Today there's a little sun this morning, but will rain by tonight. I just want to store up yesterday in my mind to think of during the rainy week.
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Hi Sensi! So happy to hear you're doing well! When I get that deer in the headlight look, people know I've forgotten their name.
Yesterday here was nice a little windy but I was able to get outside and walk. Today is absolutely beautiful! It's overcast but warm. I enjoyed an hour of feeding and talking to all the fish in our pond. Last years babies may be eating size by the end of the summer.
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Beautiful first day of Spring today!
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my other babies :0 -
Just flying by to say Hello!
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Susan - your fur-babies are so precious. Baily is growing like a weed. How has Shelby adjusted to having a little brother? I can't imagine how much Kirby has grown since he's been gone. ONly 17 days until he comes home. He'll have been gone for 7 weeks by then.
Elena is looking quite adorable as always!
Sensi - The chemo brain is very frustrating. Sometimes when someone is explaining something to me it feels as if I'm in some kind of haze or something. Are you getting your stamina back? How are Chance & Lexi?
Loverly - So glad you don't have any uninvited guest in your brain. Ever since Sheps DX I've been wondering whether I should get a baseline MRI. But not sure if insurance would pay for it.
Hey Wenchie! Again, it is so good to see you're back posting again.
We had a sunny but frigid day on Sunday. Now we're back to rain, rain, rain. The soil is so saturated that there have been numerous landslides around our area.
Lita - You looked like you were enjoying your outing to the wine pairing.
WildT - Sorry I don't remember, but are you having breast reconstruction? A TRAM Flap? or implants.
Poppy - How are you doing? Is the Dam holding up? Are you and Gus safe?
I went to volunteer today and was shocked to learn that the Volunteer Coordinator I've work with for the last 2 years is resigning. Such a bummer. This is the second one to leave since I've been there. Maybe it's time for me to find a different place to volunteer.
Chevy - I am glad to hear that your breathing is improving. How's the weather there? Any sunshine?
Smaarty - Evie is looking quite adorable in her St. Patty's outfit.
I put a beautiful Corned Beef in my slow cooker last Friday and when I got home that evening I was really looking forward to it for dinner. However when I tried it, it was soooo salty I could not eat it. Got it at Costco and called them. Thankfully they are letting me return it.
Okay, I guess that's all for tonight. I am waving to everyone else. Hoping you all sleep well tonight.
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Junie-I'm doing pretty good. Still feel tired, but part of that has to do with me having to work at 5:45 in the am. I hope to start looking for an MA job soon. Was my plan last year before being diagnosed. A lot of my chemo fog is gone, but I still defiantly notice it.
Chance and Lexi are good. Lexi is a ham and Chance hates having his pic taken.
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Sensi - Thanks for sharing the pics. I am looking forward to have my Kirby home and sharing my bed with him. Yeah, an MA position would be more regular hours, plus Mon.-Friday right?
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Sensi, what adorable pups you have!
Molly, in your pocket today!
Hello to everyone else! Waiting to see my MO. I was just told 28 rads instead of 33, waiting to hear it from the boss mans mouth lol
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Hi everyone!
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🎶 It's raining. It's pouring. Nobody's snoring🎶
Spring is here! This was taken yesterday:
Weeping cherry from our front yard. And this photo of the killdeer was from the weekend:
Can you see what are under her? Cute and smart bird. After I got a photo of her, she ran to the side and pretended she was hurt to distract me from her eggs. Amazing how she chooses the rocks to camouflage the eggs.
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Mrs. Cotton Tail has adopted our BB8 timer. She thinks he looks like a deformed little egg in need of special love and care. Little Olaf doesn't mind sharing the kitchen table with new spring friends.
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It's Spring for sure here!
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Susan, every time I see the photos of Elena, I miss the short time I got to hold her. You knoowww...she has mischievous eyes. Can't wait to hear the stories you will be sharing about her.
Lita, that's a lot of wine! No wonder you look so happy!
Ms. Wren, per DD, she also did try reading underneath the blanket a few times, but felt suffocated and couldn't see very well with just the night light on. That brat! When I cleaned her room, I would find books hidden at various places which was not surprising to me. But what surprised me was when I found several tiny purple tablets under her bed. They were flouride tablets she was supposed to chew on before bedtime!
Lori, yay to five less baking! Hope your skin gets a chance to heal before reconstruction.
Talk about recon, Forward, how are you healing?
Sensi, have you checked with Kaiser or UCD to see if they have any opening. Wish you could come to our place. Maybe put your name on the county waiting list? They just opened a pediatric clinic to serve Molina MC and refugee patients. Lexi and Chance get to sleep on your bed? Awww. Mitzy is jealous.
JunieB, you would think they give you a full body scan to make sure they don't miss things. I think unless you have symptoms, they won't do the scan. There has to be a better way of monitoring the whole body. Shep is the second person I know with brain mets whose team only scan from the neck down prior to symptoms of brain mets. Doesn't make sense. Very upsetting!
I only went to my PCP because Shep made me promise her I would have my head checked with headaches I have been having on and off for weeks. Very grateful nothing glowed up. Still have mild headaches here and there. I found a bump on my scalp where it is tender. Maybe I hit my head somewhere and forget, but it's weird that there is no bruise but just a few red spots.
WildT, I wish there is a better way to manage the side effects of the AI. I am sorry your QOL is affected by the meds. It is possible that the combo makes the pain worse. I wonder if there are supplements or diet that you can follow to help minimize the side effects. I know with gouts and rheumatoid arthritis there are foods that you need to avoid to prevent flares, i.e., dairies, night shades (tomato, potato, egg plants, peppers), beef, certain fish and seafood, sweets, organ meat, yeast (in baked goods), and alcohol. If these foods promote inflammation in the body, it makes sense to avoid them if possible. Omega 3 is supposed to help with inflammation. Have you tried it? My dad has gout and anytime he is not careful with what he eats, he will get gouty attack. Wouldn't it be nice if a bowl of your favorite ice cream or dessert take away the pain?
Oh dear, where has the time gone? So many things to do and so little time. Tata for now.
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Loverly, your clever bird is a killdeer. They build their nests right on the ground, often next to a fallen log. We discovered one in a parking lot that had railroad ties around it. They are very protective, and act wounded to distract predators.
Oh, and I love your weeping cherry. DH's dad had one right outside the front door.
Worst back pain since that episode back in December. Pain starts in the hips and shoots up to the base of the skull. Timing wise, I'm pretty sure it's the neulasta. But it's the kind of pain that makes you feel like if you move wrong, all the dominoes will fall. Finally took a dilaudid, I think it is relieving it some, but I'm staying down today.
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My geology class was taking a field trip on Mt. Rainier. A bird did the broken wing act to get us away from her nest. She did a really good job of making it look like she was injured.
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Lover-Did you see the rain coming down today? Major cats and dogs. I normally don't let the dogs up on the bed. Chance has a hard time with his back legs, I have to help him up. Lexi on the other hand, invites herself up often. I was feeling like doggie snuggles that night, so they both got lucky. Plus, I was due to wash bedding.
I've been slowly looking online at jobs. Had wanted to give myself a few months to get use to working again after chemo, let chemo brain subside a bit ect. Comfortable at work right now, but know I'm due for a change. Been at my current place for 13 1/2 years.
Hope everyone is well
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Mags, the nulasta mada my bones and joints ache so badly too.
Lover, beautiful pics! Yes, 5 less is a good thing! My RO for some reason thought I had a lumpectomy not a DBMX. I looked at him and said "I have these perfectly beautiful matching scars that run from one side of my foob to the other and you didn't notice?" He's cute, I forgave him! They do have their count wrong, even with 5 days less I still have 9 more treatments to go. I'm thinking they have the wrong start date as I had to wait an extra day due to malfunction of the machine. I also have to make up the one day they canceled on me. I don't want to cook anymore than absolutely necessary but I do want my full treatment. I'll be bringing my calendar with me tomorrow morning.
Lita, love, love, love your "stuffed family"!
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Wench, I love my stuffed toys, too. I will miss them when I'm gone.
I know I'll see my late dogs over the Rainbow Bridge when I transition, but will my beloved stuffed toys be there, too? DD said maybe their little spirits will come to life on the other side, like Pinocchio.
Goofy I know, but it's a thought.
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JunieB - Yes we are safe, the dam seems to be repaired and spring is making its appearance. Gus gave us a scare last week. Woke up and he was lethargic, sitting in his pee pee. I knew he was sick since he has never had a potty accident, not once. Rushed him to the vet and they were about to run a bunch of tests when we discovered a puncture wound. An antibiotic shot and he was better the next day, thankfully. How much longer till Kirby is home?
WenchLori - Glad you are using the Calendula. I used that also and didnt burn, hope your radiation goes as well as possible.
Sensi - That rain today was unreal! Gus thought it was so interesting, insisted on going outside. Dogs must be smarter wanting to stay in and cuddle.
Loverly - Hope they figure out your headaches. Hooray for a clear MRI and that its over with. Beautiful pictures do you have a weeping cherry at your house?
I've been a little overwhelmed with clearing up my dads estate but couldnt sleep and wanted to check in on all of you. So many great baby and puppy pictures, made me smile. Wishing good days this week for everyone.
I am hoping my life will be less stressful after the estate sale and sorting things out. My parents were the generation of keeping EVERYTHING and I'm not exaggerating! Between this and tax time
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Lita, having your stuffed toys with you on the other side is not goofy, it's comforting. I also have stuffed toys, my fav is Elliot from Pete's dragon. I've had him for 32 years and on nights when I can't sleep I tuck his tail up under my left arm and snuggle up.
Poppy, I'm burnt pretty badly in my left armpit and it's turning black. RO suggested taking pain pills as did my DH. I'm not comfortable with taking anything to strongas I drive myself to and from the radiation clinic. Tylenol or ibuprofen etc won't even come close to relieving the pain. This too shall pass.
Susie, my muscle and bone pain from the nulasta pod lasted about 10 days per pod. Right about the time I started to feel almost normal it was time for the next round of chemo.
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Hey Ya'll!
Had my second and hopefully last Gamma Knife operation Monday. Docs are quite delighted with themselves and seem confident that they zapped all the buggers. Headaches and nausea have gone -woo hoo! Just waiting for my vision to come back. All the swelling and pressure on my optic nerves has got things all mucked up. I am finding my way carefully about by shape and colour. Typing and reading are difficult; thank goodness for touch screens!
The fatigue has been unbelievable! Worse than when I had all the bone rads. The RO claims the Gamma Rays are not intense enough to cause burning where they exit and enter the skull - he says they are only full strength when all lined up together at their assigned treatment spots. Hope this is true 'cuz those burns suck!
Lori! ~ I've been so happy to see you back! Girl, you have been MISSED! Warn us if you are going to take a break from here ever again because we love you and worry. Okay? Are you getting any thing for those radiation burns? Black skin is not good. You may need antibiotics. Silvadene Cream is supposed to work wonders. You will need an RX for it. The cream protects from infection, speeds healing and soothes the pain, Some people like Aqauphor - it can be bought anywhere over the counter. When I had the Rad burns, in places a lady should never have, i used many a tube of Destitin. I used on other areas that burned too. Good old zinc oxide works nice. In my experience, ROs are not the best at pain or burn management. They need some nudging and sometimes a few kicks!
Peppy ~ Oh my! Dams and Damns! I am so sorry your Dad passed away. The sorting of our loved ones things is, well, hard to describe to someone who has yet do so. Overwhelming for sure, Then there are those little glimpses of personality that were before unknown, the happy memories tucked away..... May your bittersweet task have much sweetness waiting for you to find. Poor, poor Gus Gus! Any idea as to what got him? If only they could talk and tell us..... I hope you are giving him lots of chicken and turkey to aide in his recovery. I had a kitty that loved storms too. The louder the thunder, the quicker he'd run to sit in the yard and watch the "show". Silly kitties....
Lita ~ Having just completed my 3rd brain surgery in 4 weeks, I would like to remind you of the intent of this thread as stated in the topic box at the top of this thread.
Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk of things, needs, rants as your mood or thoughts take you. Each person here has a history of helping others. Threads develop pseudo family groups. Fancy way to say we become like family. This family will have all the best a family has to offer, but none of the negatives.
Incessant droning on and on about death, misery, death, misery, death do not a happy place make. There are other threads more appropriate for such discussions.
We are all scared, all the time. No matter what our DX. We come to IT to laugh and escape/hide. We have serious talks here too, and that is okay. We are Sisters sharing our ups and downs; offering genuine love and support to one another. Seeing the pics of "our" precious babies and pups brings such joy. Seeing pictures of women out getting drunk 'cuz their gonna die any minute or pictures of cherished belongings that will be left behind 'cuz the owner is dying any minute.....well that is jarring not joyous.
Cancer is not a contest - who wants to wear the crown of Ms. Cancerous anyway? There is no cure. However, none of us has an expiration date stamped on us. Continually focusing on the negative is not healthy for anyone. We are all here doing the best we can, to live the best lives we can. All while being blessed by the best Sisters.
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Had a phone call last night that I didn't want to get from my mom. She and a neighbor that was with her in the car had just been in an accident. She's fine and a little shook up but the car has some really bad damage from what I understand. One of the cops that responded to the scene has known my family since the 80s. He told her that from the description of the accident that it wasn't her fault. She started getting upset over the car being damaged and I told her that the stupid car can be replaced, but she couldn't. Luckily my parents will be able to get a rental until either the insurance decides what is best to do about the car. The girl that had been with her had been rushed to the hospital by ambulance to check her for any injuries.
Just another thing I didn't need yesterday as I also discovered that when I backed up my music I forgot to back up about ten songs. Got all but one back. Think my hubby may have the song I am missing on a cd and if he doesn't then I will have to get it again next time I buy songs from ITunes. Rassin' frackin' chemobrain!
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Shep! It's good to hear from you as well! I've been pretty worried about you also after I heard about your mets 😮 Your very moving post made me cry. So eloquently put! I will make sure I let everyone know when I take another break. Keeping you in my prayers for a speedy and full recovery. 🙏🙏 My RO thinks my armpit is a lot better today. We think I had some of my nighttime Ointment remaining during my treatment. I've got Eucerin, Aquaphor and Celaphil just in case.
Mommy, I'm glad your Mom is ok! My prayers for your Mom and her friend! I hope they are both ok. Every night I pray I wake up alone in the mornings to find Mr Chemobrain walked out on me during the night. So such luck so far ☹️
My RO had his count wrong for my remaining treatments. He told me yesterday that I have 7 more to go and I'd be done on 3/28. I brought my calendar with me this morning and said 👀! After seeing what I was talking about RO laughed and said I'm right. Last treatment is on 3/30.... only 6 more to go lol
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