INSOMNIACS place to talk in the wee hours

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Comments

  • jaymeb
    jaymeb Member Posts: 241
    kathindc

    Thanks for walking me through how to post, although, I haven't mastered it. I'll get my daughter to show me, as I would love to post some great pics of our babies. This is the thread I've seen the most pics on it.

  • jaymeb
    jaymeb Member Posts: 241
    Blubird-De


    I should know this, but what kind of bird is that you posted. What is your favorite animal? Sorry you were having pain last night. Did you get it under control? How are you feeling today? Your husband is right, I think you over did it as well. If it's ok to ask, what are fentanyl patches?
  • TaRenee
    TaRenee Member Posts: 406

    sas- I went to my BS today and everything went well. We talked about SE and what my issues are. She is not a fan of Effexor so we talked about doing something different. I have to slowly come off it since I’ve been on it about 5 weeks now. She wants me to try vitamins. Have you heard of or tried JuicePlus? It’s only available online. I stopped by the Vitamin Shoppe and got the knock off to try until I order it. She said she had a patient on arimidex who was having horrible SE and when she got on this vitamin regime they basically went away. Heck, I’ll try it! At least it won’t have SE to battle too. I hate taking meds in the first place. So... I’ll let you know how it goes

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233

    Have to read --- opps wait a sec --- had to water my pet fake lady bug, it just crawled out of my keycoard looking for the water drop. Anyways................ will rad all this later and use ipad to respond.

    Quick one - the gall bladder is fine, had the contrast CT and the report on there was all clear. The left kidney has a fluid outside and a non-blocking stone inside. And adrenals has cysts or nodes on one side, I think same side as kidney.

    Cleaning - so far I have only done drawers and baskets, no real dust since they are covered as drawers are and my baskets always have a cloth over the inside top. Dog dander would be my first to point at, he needs brushed thoroughly and I just cannot use my arm, it's looking bad and he smells like a goat lately. oh dear.

    But I think the cough is from too cold air in house last week, when it started. Thursday I will request antibiotics from MO, phlegm was greenish this am. Weird is when I don't use right arm/shoulder then not coughing so much. Hubby rubs ankle or hand and I cough. Foot, no. Kisses me on top of head, cough. Kisses me on back of hand, no. We are journaling.

    Gotta get these art supplies narrowed down.

    Want to read everyone's stuff, so will be back later this evening.

    Diane

  • jaymeb
    jaymeb Member Posts: 241
    TaRenee

    Has the snow completely melted where you are? Ours is about gone, and having mild temperatures. I've been ready for spring and summer since November. Just don't like winters. I see you're taking Tamoxifen. I have off and on hot flashes as well. And, I'm getting night sweats. I even have a ceiling fan blowing at full speed over me, and a fan beside me!!!! Ugggg😂😂. I think I'm in menopause. Were you premenopausal at diagnosis? I was. If I'm not mistaken, I think tamoxifen is the only hormone therapy pill for premenopausal women. Might be wrong. I wish I could get off ambien, as I've built some tolerance to it. I've been taking it for 15 years, and some nights I take two!!!
  • shepkitty
    shepkitty Member Posts: 878

    TaRenee,

    Wanted to jump in earlier but new pup has me all discombobulated more than usual. Agh.....

    Effexor did not do a thing for me either - gonna cheat and plagiarize myself from a post a few years back when I was on Tamoxifen and then Femara. Tamoxifen put me in early menopause. I am not on hormone therapy anymore - Xeloda only. Antioxidants can interfere with some chemos, thus I no longer can take Peridin-C. Sure worked swell though; wish I could still take it.

    " I hate hot flashes! When I was on the Tamoxifen I was getting up several times a night to change clothes and-bedding. Ugh. I think it was a year before I learned about Peridin-C. All natural and recommended by the National Cancer Institute. It made a big difference! Bonus....the mega doses of C are supposed inhibit cancer cells and it is really good for your hair. The hot flashes aren't as bad on Femara but I still take the Peridin-C.

    Peridin-C on Amazon.com - best price and good reviews"



  • TaRenee
    TaRenee Member Posts: 406

    Jaymeb yes, the snow is just about gone. Kinda sad looking now. But I was glad to get back to work today. lol ask me tomorrow. We get all new classes for 2nd semester tomorrow then we have testing Thursday and Friday. I’m sure tomorrow I’ll be ready for a new snowstorm!

    I was/am premenopausal at dx (and still am). Funny story. (Not really but it was an Ah-Ha moment for us all). I had been cycling every two weeks. I started every other Monday. It was awful. I got anemic and was having fatigue issues. Went to the doctor. We ALL thought it was an ovary/uterus problem. Nope. US came back normal. Blood work had everything normal. (White blood count was a bit off once but not the next time) I was talking to family about how they cycled as they got to be my age (45 at the time) and we couldn’t figure out anything. Stress. Or family history. Fast forward to last year. Found the lump, had biopsy (which came back clean... thank goodness my BS had a bad feeling about it) then lumpectomy and oh my goodness it IS cancer. Yeah. That was a heck of a way to come out of anesthesia. But I kinda knew somehow. So we do testing. Tumor isn’t 95% or higher for ER/PR. Neg for HER2 Apparently we were looking in the wrong place a few years. (Dx at 47 and am now 48).

    Shep, I may have to look into that. Where would I find it? I teach so anything which helps the immune system is good for me.

    I’m gonna TRY to go to sleep now. I’m tired from the stress of the day. Good night all.

  • kathindc
    kathindc Member Posts: 1,667

    Jaymeb, here's the link to Cats, cats, cats. I think you'll enjoy it.

    https://community.breastcancer.org/forum/156/topics/834322?page=107#idx_3191

    My older laptop takes longer to load photos. Does anybody see a problem with the directions I gave Jaymbebb?

  • jaymeb
    jaymeb Member Posts: 241
    kathindc

    Trust me, it's not you. You explained crystal clear. When it comes to anything with technology, I draw a blank. Here I have a IPhone 7, and an IPad Air 2, and don't know most of what it does!!!!! I should have a flip phone like my 72 year old mom. I just learned to text five years ago at 43!!!! Don't know how to use a GPS. Reece, my daughter, does all of this. She has no patience to show me. Thanks for your help.
  • jaymeb
    jaymeb Member Posts: 241

    kathindc


    Thank's for sending me that link. I'm looking through the cats thread now. On page 5. I want to see all these adorable cats. These are some of the best cat pics I've seen. I see already quite a few ladies in this thread have posted pics. What a fun thread👍👍👍🐈🐈🐈

  • kathindc
    kathindc Member Posts: 1,667

    Jaymeb, my husband doesn't like technology. When I worked I was on both a Mac and a PC in one of the offices I worked in. Now I must say, I'm still on an iPhone 4 and that was because our old carrier was not going to support analog phones anymore 😒. Too cheap to buy a new one but the battery isn't holding a charge so I'm going to have to bite a bullet and get either a new battery or phone. A while back, I got the message to upgrade the phone, so I did. My husband has the same one. Asked DD2 if she thought I should upgrade his knowing full well what her answer would be. Yup I got the eye roll with, "No don't. He won't know what to do with it." I laughed because she knows him too well. The joke with my daughters is that he needs the Jitterbug phone.

    I get frustrated with the car's GPS. Doesn't always like to give the most direct route. So until I'm to the point where I actually need it, it keeps telling me that it's recalculating. I'll probably give it a nervous breakdown. 😃

  • kathindc
    kathindc Member Posts: 1,667

    Junie, I'm shocked that your quilt didn't sell. It's beautiful. Love the colors. You're so talented.

  • junieb
    junieb Member Posts: 945

    Beatmom & Sas - Thank you!

    jaymeb - I didn't start quilting until after I moved to the Northwest in 2006. The quilt pictured was my third one. I had done one for a person I thought was a friend, one crib quilt I sold at a loss and this blue/red one. Until I moved here I didn't think many people quilted anymore either, however here, the mid-west and northeast there are many many quilters, and many different styles of quilting. Next to Kirby, fabric is my greatest weakness. I mostly do purses, diaper bags, other baby items, aprons, and now walker carrier bags. I didn't grow up with any extended family, but my mother made many of mine and her clothes, but never quilting. I just think they are beautiful. It is my hope to be able to make one for my sister now that I know I have one.

    Sas - The weather has taken a major dip in temp here. Our high today was 50 degrees for a short time and we are getting hit with a major soaker tomorrow. But that is better than what they're having in the mid-west. The news said tonight that there is an area in one state (I forget which one) that has 70 miles of snow & ice on their freeways, with many cars abandoned on the roadside. Yikes! I am grateful to be where I am.

    Shep - Sorry, I almost forgot to tell you how beautiful the pic of you & Marty when she was a puppy is. I could see she adored you even then.

    Also, one of my friends DH emailed this pic because they have 2 very spoiled chocolate labs that they adore too. The pic is not one of their dogs though, just a funny pic that I hope you all enjoy.

    image

    Ok, I'll say goodnight for now. I hope you all have a great night.



  • kathindc
    kathindc Member Posts: 1,667

    Shep, you got the pup!!!!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Junie, The tax filing thing probably have to do with the new tax plan.

    Kathindc, so glad your mom gave you the glass. Your aunt probably already had pieces from her mom. What pattern is your Waterford. I agree it's the beauty versus resale. Love it when the table looks elegant. The feel of a fine piece of glass in your hand is very nice. The wexford Anchor Hocking is the everyday stuff. It's tough. Can go through the dishwasher with no worries. But it isn't elegant. When I feel certain way I always find an elegant glass to drink from.

    Not sure why he would say no resale value. I'd comeback at him if he ever says something like that again. There is resale value for anything, it just takes a bit of work. Checkout "First Dibs". Nice stuff I found another site that if it pops up again I will try and send the link. Plus, think Ebay, Etsy, Laurel Farms, replacements.com, classicreplacements.com, countless others. Why auctions, if things have no resale value.

    You could use the example of a car. It loses a significant value when it's driven off the lot. Even when it's a used car. Do you not buy the car? Rare cars increase in value i.e Rolls-Royce, Lamborgini, but who buys those Hahaha.

    Plus, there are different values. Again, the beauty which is an intrinsic value. investment value, tax value, market value etc. If he spends his life only looking at one type of value, he will miss enjoying a lot of things.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    TaRe, ohhh 5 weeks, I thought you said you'd been on it for only a week. Might take another 5 weeks to get off of.

    Two ways to wean, one learned from the ladies on the Hot Flash Forum. Effexor is a capsule with little pellets. Many there counted pellets You were either on the 150 dose or 75 dose. Seems there is a 37.5 dose. At the 37.5 dose is when they started counting pellets.

    Second way, My counselor used this method for his patients. Locate a compounding pharmacy. Medicine Shoppe is a fairly extended compounding pharmacy. They can reduce the dose per doc order. Then when you get to the lowest dose that they can recapsule switch to prozaac. It is available in 5mg increments and can be reduced by 2.5 mg per dose.

    Sounds like a lot of work, but over the long haul, it will allow you to not experience the side effects.

    Let us know how the Vitamin Juice plus works for you. For me, pain is way way better than it used to be.

    I think it was Wren that suggested melatonin or maybe Blue. We had some research here awhile back that showed that it helped with sleep and pain and recurrence of cancer. Of course, I forget where it is now. Sure wish I'd reposted it to Pain and Other Things. (maybe I did and forgot)

    If taken for cancer prevention of recurrence should be in the 10-30 mg range. I'll see if I can find it. My personal experience was 20mg was to much. I take the 10mg dose.


  • 70charger
    70charger Member Posts: 591

    Sas-schatzi what is the name of the old drug that works well after GB removal for pain? Does it work for the spasms as well? My daughter is always doubled over with her pain , pressure & spasms. Completely disabled her for the last 7 years now. thxs Fran

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Kathy here's that link Crystal classics. CC is the web site. This martini glaass happens to be how I found the web site. I thrifted the martini glass for maybe a dollar. I just liked it. Orreforss is the manufacter. The dollar VALUE they place on it is 68$. Probably was a lot less when it was first made.

    Scroll to the bottom. There is a list of elegant glass. Waterford has a section


    https://www.crystalclassics.com/orrefors/martinis.htm?gclid=CjwKCAiA15vTBRAHEiwA7Snfc4hePhbyq7Ltcs-s-pdIAZ7FRwTNS7xHW9-EMEwPoS3bUqV_YKsehBoCv-YQAvD_BwE

  • kathindc
    kathindc Member Posts: 1,667

    Thanks Sas! I’ll have to look into that site.

  • shepkitty
    shepkitty Member Posts: 878

    70charger ~ GB for Gall Bladder? I had mine out 17 years ago. Doc RX'd Robinul Forte to stop the cramping and bloating. I still take it now as needed. Simethicone is available over the counter and is used to relieve painful pressure caused by excess gas in the stomach and intestines. It's crazy low priced on Amazon - 240 gelcaps for $12.20

    Hope your daughter can somehow get some relief; she has suffered so long :(

  • Bluebird-DE
    Bluebird-DE Member Posts: 1,233

    Jaymeb - that is a bluebird. A classic photograph. Here is an antique ceramic? bird in my hutch with a skunk rock gift from a lady at a festival. She painted them. I also have a skunk collection. Of course. : )

    image

    Junie - I love the pale blue in the quilt. My grandmother hand-stitched several quilts in her lifetime. They are treasured. She hand-stitched her own dresses too. I sewing machine sewed grin, a diaper bag and matching wall quilt for my grandaughter when she was born. Vibrant pink floral. The project was about the end of me or the sewing machine, but we got through. Then I lost my sewing machine when we moved, sort of, and wanted to make organic pillows and covers. Then found it in a corner cabinet in the kitchen..... and I ask why??????? did Hubby think it would go there. So I sewed the pillows, just love them. I(n paring down, I think the sewing machine is going to go, just not sure. My friend and I have a joke, lock us u in a room with our sewing machines and see which of us comes out alive. We both dislike the torturous hobby that much but love what we end up with.

    Love the lab pic. whatalabradoddledo. I call Danny Boy 'Doodle.' and Puppy Doodle. I think he finds it embarrassing when we are walking through the farm store.

    Our temps were high 50s and this morning it was cold and thundering and spitting snow in he afternoon but did not stick until an hour ago. Danny Boy keeps asking to go out then looks perplexed and crestfallen, like, "I thought there would be snow." And he turns and wants back inside. I think he smelled it coming. With windstorms he is a bit worried and keeps checking the windows, especially after that Derecho season here. If you haven't read the original Damn Dog story ..... http://www.womens-fiction.com/dense-observations/d...

    image

    Large wooden hand carved swan and loon, also have a few wooden wrens. All my birds have to look real and from this continent. Note two chickadees on right.

    Got the hall and coat closet done. Went through my clothing and made a package to mail to my friend in Canada. She is larger and taller. I had so many clothes I never wear, too baggy for one or cut for a taller person. Thought of her. I told Hubby that when / if I die, she gets all my clothes and coats. Decision made, check.

    Kathindc - your photo posting directions are perfect.

    Jaymeb - Hubby uses a "StarTrek" phone still. He texts about three words a minute on it. Sad sad fate for this man. On the computer he can play chess. That is all.

    TeRenee - cute kitty. He looks like our Snuggles, he lived to like 150 people yrs. He carried in his mouth the live mice and chipmunks to let loose for me.

    image

    I started gifting part of my bird collection to my DGD, last year she received about 15 pieces, seeing what she does with them now tells me if she is ready for the breakable ones or do they need to be held in trust for her to mature more.

    image

    The last gift I gave my mother before she died.

    I wonder if I could / should use that covered tureen for my ash urn.... hmmmm.

    insert wild and crazed laugh. Really none of this bothers me, I love organizing parties and doing project files.

    Hope the photos did not slow down your loading page, tell me if it was a problem, I will move them to different posts.
  • 70charger
    70charger Member Posts: 591

    thanks Shepkitty. I will let her know.

  • TaRenee
    TaRenee Member Posts: 406

    I’m on the 37.5 dose. Doc said start every other day for a week then every two days then every three days. I had no idea this crap was such a pain to get off of. Just don’t quit cold turkey they said. Holy crap! What have I been doing to myself?!?!?

    Someone said somewhere that melatonin study showed it fed ER+ Cancer. Dammit. I just want something to help me sleep. I was up 7 times last night. Not good, I should have slept great with the rain, but nooooooo.

    In other news I had a great day at work today despite being exhausted. New kids in all my classes as we changed to 2nd semester today. They all seem excited to be in my class. I’ll take it

  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Ha Blue-fake lady bug--two dots right. Invasive species. I forget the problem they are causing. But per usual it isn't good.

    Hmmm lots going on with that kidney side------------no clue what it means, but into the wine, deciphering isn't a strong point at the moment.

    Green phlegm, generally , pneumonia, but should be cultured and sensitivity.

    Hand and foot reflexology......Nice. Foot messages with trigger points Oh Vey. I used to always talk DH Greg into rubbing my feet AFTER I rubbed his. Always put me to sleep.

  • jaymeb
    jaymeb Member Posts: 241
    TaRenee

    Do you teach high school? If so, what grade? As far as sleep, I take generic Ambien CR. That seems to be working well, but I never sleep a full 8 hours. I've been on sleeping pills for years, but I would like to try to wean off them. All prescption sleep meds are addictive, I think. My mom was on ambien, and her doctor has her trying trazedone. She's having a hard time getting used to it. Before I had my daughter 15 years ago, I wouldn't even take a pill for a headache. Well, now, I'm on 7 meds.
  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Shep--recently the stupid press said Ivanka plagiarized herself. DUH, you CANNOT plagiarized yourself. You are not plagiarizing yourself, you are reposting or restating a previous statement. ...........Perhaps sorry, I'm just so bothered by MSM that makes so many erroneous statements. Which lead to people even quoting themselves, seem wrong. I know everyone gets nervous when I say anything that comes close to political.

    I started Pain and Other Things b/c I spent time on talking about particular things. Over the years many topics were lost. . Like Melatonin. Haven't looked to see if I saved it to that thread.

    I'm worn out on searching. At least at this point.

  • jaymeb
    jaymeb Member Posts: 241
    Ladies

    Did any of you know that if you take any kind of pain pill, even as low as tramadol, you can't take sleeping pills? Apparently it has to be one or the other. Also, CVS Caremark, which is my prescption insurance, needs my doctor to tell them verbally why I take controlled substances. What the hell???? I was so mad and shocked. I take tramadol, Valium, and Ambien. The tramadol, and Valium are for a short time. Never have had any issues. Even after consent from my doctor, it is up to the insurance company if they will pay for it. There could be a chance I might have to pay out of pocket. I will be soooo upset. My co pays for any generic medicine around one dollar, and some free. Have any of you had any issues with your insurance company regarding meds? Like we don't have enough on our plate. I wonder if this cracking down for medicines is due to all the problems with prescription drug abuse everywhere.
  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Ta re, just read your history of event. Glad your BS was suspicious. Good doc. I have been here since 2009, but didn't really start posting much till 2010. So many stories over the years where the docs blew off concerns of a lump, and the outcome wasn't good.

    It, seriously, hurt to hear those stories.

    What does this mean? " Apparently we were looking in the wrong place a few years. (Dx at 47 and am now 48)."\

    JUnie Hahaha, that dog laying in the water is so much what not just labs do, it's dog thing. So, love dogs.


  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    Oh my 70's Charger, the drug is Belladonna, In a past time it was combined with Opium. It was Belladonna and Opium---B&O. It was delivered as a suppository for bladder spasms.

    I met a gal R. N. from Russia who had post gallbladder removal bile duct spasms. She explained that there could be common bile duct spasms after removal of the gall bladder. It was widely accepted in Russia as a potential post gallbladder removal. The drug was widely used there for a solution to the pain. Belladonna is an antispasmodic for smooth muscle.

    Post gallbladder problems are common. What bothered me when I heard her story was, this is a known problem here, why didn't we research the solution. We have drugs that are antispasmodics like Bentyl. But what is the difference between the work of Belladonna and Bentyl ??????? Dunno, Belladonna is so old.

    So, let me talk about a different class of drugs. A drug classification encompasses drugs within a group that have many of the same characteristics, but have a particular effect within the classification.

    The benzodiapines, first drug in the class was Valium(diazepam). 1960's first invented for it's skeletal muscle affects, then was noted after approval for it's antianxiety affect---became a drug of abuse bc docs prescribed it like candy, It was referred to as "mom's little helper". The next was restoril (temazapam). Sleeping pill. Xanax ( alprazolam) anxiety. Versed (midazolam) used for sedation.

    Each had their key to usuage.

    Back to Belladonna, it's an anticholnergic drug, just as Bentyl is. Why was it more useful in post gallbladder spasm of the common bile duct. Dunno. In severe cases of spasm can B&O help in the case of unusal gallbladder spasm.........You would be hard pressed to find any research on it.

    From the 1960's drugs that had been used for decades, were sent into oblivion. It was the advent of Big Pharma and the negating of previous medicines. Not conspiracy theorist. It's just fact.

    FRAN, would like to review by phone daughters scenario. I'm not a doc, but I am a good detective. & years for her do be doubled over in pain is a travesty. Hmm, I looked to see where you are from. Canada. I know you know that's a major part of the problem. Socialized medicine. Doesn't mean she 's there with you....let's talk.

    I my scrolling down. I saw Shep Kitty's thing on Robinul Forte. Robinul is also an anticholinergic.....relaxes smooth muscle. Same family as Belladonna and Bentyl.


  • sas-schatzi
    sas-schatzi Member Posts: 15,894

    BLUE what the hell frog feathers did this mean? " Hope the photos did not slow down your loading page, tell me if it was a problem, I will move them to different posts.". DUH. not.........

    TaRe remember these words "All drugs have Consequences". Your doc gave you a typical doc weaning schedule. You can do the math, it would hurt my head. Calculate it out to minimum 5 weeks based on the fact you have been on it 5 weeks. Even stretching it a couple weeks longer . Please, look at what the ladies on the Hotflash forum did, or the second recommendation from my counselor... of getting the compounding pharmacy to help by the last couple of weeks with changing to the very low dose of Prozac.......(need doc order)........... As I said in my earliest post to you............messing with serotonin is nasty.