INSOMNIACS place to talk in the wee hours
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hey there. I'm up and have to pack. Leaving at 11. Been fun here but time to go home where it's Warmer!
Patty, hope,the new test is easy, they should give you something, you won't remember what they're doing. Then you get to eat all those goodies. Eat the ice cream, it will feel good on your throat.
Hope everyone has a good day. Who was running away? Have fun.
Bbl
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Oh Blah blah blah----I hope u gals didn't scare TB away--u all have that tendency.
Hole go on that cruise if u can--I hear so many wonderful stories about cruises, well they even made a movie--Titanic--well the ending wasn't good but the sailing was wonderful.
Chevy I think Phyloslut knows her own words for what she is and admits it finally--she must have the ankle bracelet off or she cut it off with the help of Big Alice
Patty I hope u'r going home today and all this crap stops for u, I know u'r having a tough time.
Blondie it's always good to hear from u--we all want u to feel better.
Well I finlly started putting brandy in my black coffee in the morning--it's much better that way--no Chevy it is not in a bag, but it is on my floor next to where I sit. I'm not sharing.
BTW u'r pics were beautiful of the chuwawha stuff--good colors, I of course never heard of this odd thing in nature or whatever it is.
And I love how people in the warmer states like NM and u know who u r (Jazzy) tell us about the bad weather they might be having or how the sun is shining so bright--thank u for sharing u'r troubled nature around u. We in the Midwest and NE just love to hear those stories.now especially. Jazzy--not mentioning any names just feel a little Jazzy this morning.
Watching my scary movies already this morning no not porn scary--well OK u got me, I can not lie
Mammray is it u with a 4 yr old--I get confused here---well I love that age, they say the best things and are so much fun and they can help themselves too. But just sitting and talking to them is hysterical--enjoy.
Hey Chevy I'm getting so good with my cane I could lead a parade and twirl it like a baton, or is it a bitallion--I think I can handle that too with my cane. I don't spin around like I used to or hit the walls--it's kind of pole worthy for my legs too. U know all about the pole and I think Phylotramp knows too.
I'm sorry I'm missing s many but I don't have the knowledge of double screening like some of u and my memory is so like swiss cheese but with more holes, it should just be called swiss holes, but I did read everything and got all caught up.
Oh I loved the pics of Spookie so cute, I want one.
OK I'll be around to pick up Chevy's pieces and I do hope all the newbies come back, there are so many women here who can really help and give u support--I really know nothing about cancer, but I do know i hate it and all the crap that goes with it .
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mammaray, took my hubby and a long time. Lots of me standing up for myself and reality...him wanting to know why I wasn't strong enough to fight this time like I did 15 yrs ago.....dif dx now. Live what I can and move on....it was bad for a long while. I ignored him and hung out with my friends and daughter who understood and wanted to have as much fun with me while we still can. I still remember the day he walked onto the restaurant I was at eating with my cousin and he just sat down. Didn't order anything,but he showed up . Things got better after that. Unfortunately it takes time,time,time. Prayers to you my friend
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Well,Sas just left a little while ago. She/we went to 4 thrift stores, she found some things she needed. We had a blast. We had brunch at a cool little place here in town, that was yummy.
Yes, they are stag horns. They've been living in that tree about 20 years. I can't get a good pic now the sun is wrong.
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you ladies are hilarious!!!
I'm just lurking these days because I don't know how to contribute to all the fun! I don't want to mention the weather, my puppy doesn't send yet emails to anybody or plays with the camera (like other dogs I won't mention, you know who you are spookie). I do love going to thriftshops but I haven't done it in ages so I'm counting on you to do some extra shopping for me
I'm ok with spiders but I'm afraid of heights so that pic gave me goosebumps anyway! So thank you all for posting!Oh and speaking of not mentioning the weather
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Niiiiiiiice
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Well Rosie, we went to that place, because I had called others, and they offered the most.... Found out they will come pick you up if something happens at home.... no need to call the police, hospital.... etc!
I saw another place online, for $800, but it just didn't sound right.... Ha! I mean you called them, and they would come and get you also, and other things were extra..... But cremation through a funeral home are REALLY expensive...
Just didn't want our Daughter's to go through our life insurance, and them figuring out funerals, burials, etc. I heard THAT costs about $10,.000 now!
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So Spookie says "the sun is wrong????" Is she kidding? The sun is never wrong.... I can't believe you guys are in the 70's!
Oh wait.... yes I can.... at least the sun is shining here..... But not warm.....
My Mom used to grow Stag-horn ferns in the Bay Area, on her tree also! And I saw a HUGE one hanging off of a Banion tree on Singer Island on one trip! Do you guys know where Singer Island is?
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Hi Ladies, I am triple negative Stage IV. I have donated my body to the Cleveland Clinic medical school/research department. They will pick me up, run their research and cremate the remains. They will give them to my family, or I can go into the Cleveland Clinic crypt in their Mausoleum at Lake View Cemetery - a very beautiful well know cemetery by Lake Erie. And it is free - no charge.
If this helps find just one thing, helps one person, or cures this horrible disease, I will be at peace for eternity! And I will still be close enough to all my family and friends to haunt them, a bonus! Gallows humor maybe, but all I can do is laugh!
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Ladies- I cannot keep up with you! I love the pics and stories and all the rest.
I went to an awards ceremony this morning and busy working on tax stuff and preparing for another biz meeting tomorrow.
Cami- yes, the sun is shining right now and about 50 degrees. No snow since last week. I sent it all your way!
MammaRay- there are people trained to help you with these difficult conversations. Maybe call your local hospice and ask them if they can refer to you counselors who can help you to talk through this. You guys should not have to figure these things out alone (no one should....)
Patty- I am very sorry to hear you are still in the hospital and with the awful stomach issues. Prayers for healing and to get home soon.
Ibgal- lurk away! I do it often myself.
Hope everyone else is hanging in. Daylight savings in a few more days (yay!)
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beachbum, good to know the fam gets the remains eventually. Didn't know that. My son in law is a doc...he told my daughter....don't know how to tell your mom...but we would love her body after she is gone...lol good to know they can toss my ashes in the forest...shhhhhhhh...after they are done.....thanks for sharing that info
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Hello all...........made great time from Tampa Dunedin----3 hours with an ATM withdrawal for DI, and beer/wine stop. Of course. If someone is looking for a quiet nothing to do >>>>come to Titusville-Cocoa. Want a fun lots of stuff to do great places to eat, but insane traffic go to West coast--Orlando-Tampa-St Pete and all points north and south and west.Patty Hugs sorry for your trouble. EGD esophagealgastroduodenoscopy>>>scope to look at esophagus-stomach-duodenum(first part of the small intestine). I never know what to say and what to leave out. But if the test is normal expect him to say a colonoscopy is needed. It is the usual sequence. All those studies I said they should have done. Hope they have.
All those studies were non-invasive. All non-invasive studies should be done before invasive studies----it's a rule. Ask your doc again and use that phrase..
-------we need as much info as possible to protect us.
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Time for a fantasy break- swimming anyone?
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where is that at....beautiful
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Gastric emptying study / is what they are going to do tomorrow am. Scope down esophagus to tummy didn't show any problems. Hispitalists , infectionist specialist, pain mgmt , and mo have been discussing it but no clear answer. Now they are thinking might be a twist in gastro. Colonoscopy next if no new smderson. Dh stayed home from work to play outside with ds's. Got some neighbor kids over also. I thank god every day for dh.
SAS Thanks for the info to ask my dr sbout. You are awesome. Glad u got home safely.
Not sure who mentioned creamation but wanted to chime in that is dh and mine wishes.
Hootie hoo and hugs to all
Gonna try to post a couple pics of foot playing in the snow
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Snow dart game. Big one is dh. Other two are ds's0 -
Never had thisych snow here in arkansas before. Was pretty - now go away. 0 -
Hey Patty, I hope you are comfortable and resting. I am so sorry to hear about the extended stay. Let's hope that tomorrow will be the answer, and get you home with your family.
I am donating my body to the Cleveland Clinic since I am triple negative. And it is free. So I am very happy to possibly help solve this awful disease, or at least find a part of the puzzle.
Take care, sending lots of hugs! Cheryl
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MostlyMom----love your dropins----HAPPY BIRTHDAY @72 YAY ANOTHER YEAR OLDER.3rd, try again, sometimes so much is flying bye , these gals miss a post. They have memory issues.
Dutchy, glad you are lurking
SPOOKIE Thank you, so much. Great time. No I won't delete those pics LOL They are wonderful. Notice how I'm not in them. That was tricky, but planned. The lunch was perfect, thrifting-------YAY-Did I score or what.----Looking for three patterns--score 100%. the cresent salad plate/bone plate --have eight -want 14, now I have 9. Loved meeting Dh, DD( beautiful), GS's, track meet, all the touring(love touring) great lunch. You are and amazing driver considering all traffic there is mostly a nightmare for me now even though I was used to Detroit and Cleveland/Akron. Happy to be able to now put everything into perspective when we talk.. Pretty successfully visit for 24 hours. Boy -oh boy did we do some visit packing.
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blushing
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TANG YOOHOOoooooooo, thought allot about my last post to you about kicking the worry to the side-------lots--------almost the entire drive time to Tampa . The point of the drive to Tampa was for a bx of the neck. You were with me on the bladder scare and wrote your support. I'm sure you read my reactions after the bladder scare was over. That was the direct scare. The direct scare is over. Now need to deal with the contaminant scare of the urine source. Which is the vulva. Most women can't say vulva. Have to call it hoo-hoo, down there, all kinds o strange things other than vulva. Penis can be mentioned in most cop shows and situation comedies---not vulva. Normal anatomy --two standards. Point is, I know the urine path report was abnormal, did the correct steps to get it ruled in or out. Already made the gyn appointment b/c it was unlikely urine origin---but had to go through the motions to prove/disprove. Still working that one. The abnormal on the neck is being worked at the same time.
After allowing myself to get worked up about the bladder thingy------and everyone here(sorry)--------I listened to what I wrote about cancer after the brain tumor removal. "Don't let cancer be a thief".
What I needed to say to you was, your worry is real. I wasn't trying to discount it. Worry is protective. It causes us to take action. BUT at a given point it is crippling. It bleeds us of life. Never ever saw my Aunt Viola without her wringing her hands. Her sister was less of a worrier---my Mom, but still had to remind her---lets worry about what is real versus the unknown.
You worried and were fearful when you found the new thingy. You took the correct action to get it dx'd. You have been through enough. Say to yourself fuck cancer. Then do whatever makes you most happy........until a diagnosis. Don't let the thief rob you of anymore peace.
If something new happens---we just deal with it.
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I had an Aunt Viola!!! Don't hear that name now!!
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Oh Patty, I would so love to join DH & DS's-------then walk through the looking glass to doors still open with a gentle lovely breeze--a dream. Still savor the skiing days of standing on a hill before going down. Snifting the cold air. Then the descent..........the unknown-- would I ski brilliantly or flail. The risk-------oh so much fun.Patty --Unless they have done all the basics-----don't let them keep going for every test in the books. Gastric emptying is appropriate in certain defined situations. Your presenting problem is diarrhea. Gastric emptying study is not an appropriate study to diarrhea. Gastric emptying is appropriate to vomiting post eating with feelings of severe distention followed by vomiting. Can gastric emptying be associated with diarrhea-------anything's possible. Gastric emptying is looking for the stomach not working right--------is there not a forward movement in the wall of the stomach to cause the contents of the stomach to move forward into the small intestine.
The discussion of all those docs regarding a twist in the gastro-------Stomach twist-----Gi doc would have seen it----or with the scope he could have caused it to flip----he could have seen it or not. When it happens in front of the GI docs eyes during the scope--it's majorly cool and leads to and absolute recommendation for surgical treatment. It's called a Fundiplication. Smarrty would love this. They go in and do a three or four point tack down so the stomach can't twist. A simple sewing maneuver.
But when the stomach twists there is acute abdominal pain. ACUTE---painful. Double over pain. Distress. Haven't heard you describe this. Have had several patients though in the past that had flip-floppy stomachs that didn't present as acute sustained distress. b/c their stomachs were so flip-floppy, they floppy flipped(reversed) before they got into serious trouble.
This does not explain your diarrhea. Where are you on diarrhea?
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Susan- not sure where that is from. Taken off a jazz group on FB called Smoothjazzspot. Try to find it and they post the most amazing pics there as well as great jazz videos.
My guess for that picture is Thailand.
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Spookie- Moms side was>>Joe, Stanislaus(Stance)Francis(frank), Leo.....Girls >>Viola, , Mabel, Gertrude(Gertie), Mary.. Joe married a Mary, Frank married a Mary. So, when we'd talk, we had to say>>Joe's Mary, Franks Mary, and Joe Smith's Mary( she was the sister). Now, I have a Stephen, Dear cousin has a brother Stephen and she has a son Stephen. We are now into defining talk by origin of the Stephens.
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" Can diarrhea be associated with diarrhea-------anything's possible. "
Is this what you meant to say, Sas? Lol
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sassy, thas funny on names. My family collects Chris's. So we have my niece kris, DH's Chris, Julie's Chris, Casey's Chris, sister's Chris, and 1 more I can't think of right now. It will come to me.
Got home fine, it's was 73. Seattle was in the low 60s. Clear but cold. It's suppose to be in 75 by Saturday. Sorry Chevy. I'd send it your way if you send us the snow!
This is mt rainier this morning. A little over cast. (I'm in the plane
. It's seldom you can see the top because it's usually in clouds. Not this trip.
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I think my Tamoxifen might be getting replaced with an AI. My onc wants to look over the SOFT trial results in more depth. She says given My stats she want to give me every little percent that she can. My tumor markers drawn 3/4 look great. I hope that mean something.
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my son and I went out to dinner tonite at a Mongolian barbecue place. Not the best but it's always great to be with him. He's hilarious!
Sassy, glad you made a potentially stressful trip into something fun! Also glad you're home safe.
Patty, sorry you have to go through all of that. Maybe you should eat some M&Ms! I'm using them in my own clinical trial to cure my cancer. No results yet but I'm documenting it all! Disclaimer: I don't have my medical or M&M licenses.
Blondie!! Hello. I've missed you.
Phyllis
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