Member of the "6 Month Watchful Waiting Club", Unite!
Comments
-
hello,
Just stopping in! I over did exercising and strained my costal junction joints, right side. The fact that I had breast reduction and messed up on right side made me more fragile to this. Tietze syndrome... but mild pain only.
Its still scary to have edema over the sternum area but MRI is clear. Have to do follow up MRI with injection because last time did without and specialist not happy. In two weeks....
this year has been challenging, gall bladder, pre diabetes, Tietze - but we re strong women. Breasts so far have been behaving!!! Tatoos next year!!!
I try to appreciate each day to the fullest!!!
I Ve read your stories and so glad check ups have been ok for you. I pushed mine to Jan, too much stress at the moment!
I really suggest getting lymphatic massage, it keeps the breasts healthy and toxines get drained .
Best
Alicki
0 -
Well, here I am again. Becoming quite a senior member of this club-- it will be 6 years this oJanuary. Mammo coming up on Thursday. I think after all this time I've concluded that it's pretty impossible to be completely confident everything will be clear... as the time grows closer for whatever test is due, I always have a nagging doubt that this will be the time they find something. Ihate feeling like I'm living my life in 6 month intervals.
There it is-- just needed to vent!
0 -
hi,
Even if they do, you ll know that it will have been caught early. That gives me peace of mind for myself.
I need to go in Jan but stressing a little now
Best,
Alicki
0 -
momoscki--- it's over 13 years for me now. I don't stress anymore, it is what it is. I go tomorrow for mammo, hadn't really even thought about it, (since at my sister's wedding all weekend); pray you and I both get clear scans.
anne
0 -
Anne, thanks, 13 years out and no further problems gives me hope. I get frustrated that worry takes over my life for a couple of months a year. Less time than it took up 5 years ago, but I still can't help envisioning dire outcomes. Trying to stay calm(ish). I just moved this past Tuesday, so that's a huge distraction at leadt
0 -
Good luck momo and anne i will pray everything comes back clear for both of you. I know that anxiety it's awful, its definitely a life changing expierience.
😇😇
0 -
So thankful for all of you with clear mammograms and prayers to all of you waiting to have them. Mine is coming up December 2nd. Will be my first since completed radiation. I've been stressing since I've scheduled it
0 -
Among people who have not experienced this directly, there seems to be the assumption that you should "just get over it already", but after 5 1/2 years of this, I've concluded that while the whole cancer-is-lurking-to-get-me issue does fade somewhat into the background over time, it will never disappear. I think I just have to do my best to live with the situation, hope for the best, do everything within my power to ward off the worst, and try to believe that should the worst case scenario present itself, I will deal with it and it doesn't have to ruin my life. But it still scares me. And I swear, walking I to the medical facility 2x year that's marked CANCER in huge letters on its awning drives me into a kind of PTSD induced nauseous panic.
I don't know about the rest of you, but this affects my life in subtle but significant ways that most ofthe people around me are not even aware of. For instance, I find it hard to make plans for things following whatever upcoming scan, because I'm always wondering "what if". Logically I know that there is a very good chance that I will remain fine, but it's hard to hold onto that belief. I feel like I've fallen into this mysterious grey area of "not cancer, but not totally fine" either.
Now I just have to get through Thursday....
0 -
Momo, I understand. I still think of it so often, but I'm only 5 months out from treatment. I don't think I'll ever be the same again. I'm already planning to have all Christmas presents bought before my mammogram on December 2nd, just in case. I think I will never know what it's like not to plan life in six month blocks of time.
0 -
Just an update: mammogram all good. Had a brief freak out when I was called back foran additional shot, but radiologist assured me no changes at all for the past 5+ years. Huge sigh of relief. Wishing all the rest of you good results!
0 -
Dear friends - I've been reading all the recent posts but haven't been able to join in - computer problems, car troubles and bad allergies....momoschki - so very, very happy that all is well. I appreciated very much and took to heart your post of October 18 because it described me, my feelings and my life as a member of the 6th month club. Thank you for giving voice to my/our experiences. I too have been/am traumatized by the process. I also now live life on 6 month increments. My last mammogram was in September and I felt safe for exactly 1 month. Whispers of fear and anxiety are already starting.
Lovinggrouches - life in 6 month increments is so stressful and challenging. I wish you good results on December. We are here for/with you.
Nice to hear from you alicki. How did you make out awb?
Thank you all for continuing to be part of this community.
Frankie
0 -
Yay momo!!!!
0 -
Felt as if I heard the bullet whizzing past my ears.
I was initially a little panicked because the radiologist called me into her office -- usually good news is just delivered in the hallway next to the waiting room, so I assumed that surely the closed door of the office meant something dire was about to come. It's funny how we all put stock in these details that often turn out to be totally meaningless. Anxiety does strange things to the mind. Afterwards I was just completely exhausted, which only proves to me once more how depleting this whole experience is.
0 -
momschki---- Last year, the mammo tech came back out with the radiologist , ended up giving me good news, but it scared me for a moment as that was what happened initially many years ago when I was first diagnosed. I don't think they realize how something like that (appearance of the radiologist ) can really affect the patient. This year, she was "too busy" , tech said they would call if a problem, otherwise would get letter in the mail. That was Tues, haven't heard anything as yet, so I think it's probably all good. It's been so many years, I really don't stress about it anymore. It is what it is, you deal with it as it comes.
Anne
0 -
Back at all you brave women. Sounds like good news all around. I'm very happy for everybody.
I'm stressing now about my Mammogram coming up on 11/7. My friends just do not understand how hard this is. They think they get it because they get anxious too but it's so different when you are watching real and very possible breast cancer.
0 -
Ddw79 - I wrote a reply to you a few days ago but apparently I didn't hit submit. How are you doing with the waiting for your appt? I had a mammogram in September and I felt safe for exactly 1 month - whispers of dreading the countdown to next appt are starting. The testing and waiting doesn't get easier with the repetition of the process. How is your diabetes? I've been on evista since January and I've had no side effects, but this month I have such severe leg cramps that I can only stand up for a few minutes and I can only walk for a few minutes before the cramps become severe. I'm thinking it's a side effect. I am with you as you wait. Stay in touch with us.
Frankie
0 -
thanks for your reply Frankie.
As you well know, the wait is awful and Breast Cancer and Type 1 make the fear that much worse . I simply dread even the thought of managing these horror shows together . No one should have to go there.
The Evista has been ok for me so far. I don't know if it does anything positive but it hasn't worsened the Diabetes which was my biggest fear about it.
What does it say about leg cramps as a SE of the Evista? I know the other drugs can cause that.
Do you have thyroid issues? Those often cause leg cramps and pain. I hate to suggest something else but I want you to feel better.
You have awhile to go now before the next piece of surveillance which is good and it's so good that you did well in September .
Keep us posted on the leg pain and I really appreciate your kindness toward me
0 -
wondering how I could have scheduled this Mammogram for Election Day? I'm extremely tense about everything today
0 -
Dearest Ddw79 - I was thinking about you last night and was going to post and ask how you were doing. I sure do understand extremely tense. Are you taking anything for anxiety? What time of day is your appointment tomorrow?
Frankie
0 -
so grateful Frankie!
Tomorrow at 1:30.
I have Xanax but I'm
Not sure what time to take it. Suggestions most welcome
0 -
ddw, thinking of you and praying for all to be good!
0 -
thanks ladies . Your good wishes mean a lot to me
0 -
Ddw79 - are there instructions on the bottle of xanax? Mine just says "as needed." I take one before I go to sleep. And I take one in the morning when I get up. If I have an afternoon appt I sometimes have to take another one in the waiting room. If I just take one the night before it's not enough - I can't get myself there without one in the morning. I also don't have to drive myself there and that is why I can take another one in the morning. Check in with us in the morning.
Frankie
0 -
thanks Frankie
I have to drive myself there so I better not take anything until I get there at 1:15. I'll go a tad early. I slept well last night but I did take attivan.
I'll check in later after the test. My oncologist said she would be looking for report
0 -
Thanks for checking in. I'll be home all afternoon with access to my computer. Let us know how you are doing.
Frankie
0 -
I'm back Frankie and friends. Birads 1. So relieved 😌. I feel blessed by your support and two Xanax and my friend sitting with me the whole time helped a ton too. Next up MRI but for now just taking a breath of gratitude and wishing everyone else waiting a good result
0 -
Whew! Congratulations-- wonderful news. Take a deep breath and celebrate tonight
0 -
Soo very very happy for you! And very glad you had a friend with you too. Hugs to you. And I wish you a night of very peaceful rest.
Frankie
0 -
whew is right! thanks Frankie. Hoping for more good news tonight . My son called and seemed really happy for me which made me 😊
0 -
yay ddw!!!!!
0
