Hot Flash Forum!
Comments
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It's not that I'm glad anyone has a bad experience , but what all are describing here is so different than the literature. My intent is to call Freedman tomorrow, but it's Friday --------so many professionals no longer work on Friday.
It was confirmed by my ONC today my Little Bean will be causing me to jump through many doctor visits. I'm guessing by the time they are done I will have surgery. I will push it to Jan. to start the year with a huge deductible -copay and may be I won't have to pay so much in 2012. That may sound whatever. But sense all this started in 2008, I have learned insurance stuff and when to push and when to hold. DUH--------- doesn't that sound like the Gambler by Kenny Rogers?
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sas Sorry that you have to go through this...my thoughts are/will be with you.
P.S. I'm all for Freedman.
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SAS -- then I'm praying for your Little Bean to totally shrivel up by Christmas!
I mean it.
~lulubee
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Anyone use magnesium oxide??? Just started and it seems to be helping!
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Not sure how different magnesium oxide is, so more replying to the JofO article. I use magnesium citrate daily (take it with my daily calcium) one or two 250 mg. tabs. My own anecdote is that it made NO difference whatsoever in my flashes. Although I don't get nausea or altered mental states from hot flashes, I was getting several flashes every waking hour, like maybe 30-40 day; less at night but woke up once or twice because of them. This was while taking daily magnesium. Who knows, maybe I would have had 100 a day without it???
Anyway, I'm not saying magnesium can't help, because I think it depends on the individual. Gabapentin did nothing for me. Effexor helped, but I don't think everyone has the same effect on that either. Magnesium is a cheap easy experiment for those that want to give it a try.
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I truly believe what I eat has a profound effect on my flashes. If I eat a healthy diet my flashes are less severe but if I eat something that I should not then I am gonna pay for it with big time flashing.
If I could live on yogurt...(the kind without the artificial sweetners) I think my flashing would be gone.....but I need more than yogurt....LOL
so try watching the perservatives, sodium, sugar, artifical sweetners, fried foods and most of all restaurant foods which in one meal contains excess of all the above
try this just one day to see if it effects your flashes...I know it helps me
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Caffeine and spicy foods are supposed to set the flashes off too.
I think overeating (and especially the ones Linda54 mentions) causes bad flashes. The harder our body has to work to digest something, our metabolism generates a bit more heat and our hair trigger thermostat can't seem to cope with that slight increase in body temp. Hello hot flash!
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Anyone else wake up at night shivering?
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Omaz Interesting question? Did you have HF's that previously woke you up? Could this mean you are sleeping through the hot flash and only waking up at the chill ending? If any of that be true then what change.
To all-----i had dry flashes for about 2 weeks than went back to wet flashes----------No clue????????-------Had a pitty party kind off. Didn't call Freedman----I will , but it has to be on a really good day------------I know you get that, I'm going to have to sell him on the idea.
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sas - I think I have the hot flash, turn on the fan and fall asleep then wake up shivering. Fan isn't necessarily still on (because it has a timer) but I guess I don't have enough covers. It's weird. I never used to wake up shivering!0
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hillck - Guess its new normal then! sure am glad we have each other!!0
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sometimes I will have a cold flash....not the same as getting chilled after a hot flash but just a deep coldness
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Linda - when wake up shivering I am actually shaking! Never knew that estrogen was so important for temperature regulation.0
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Linda54-I have pretty much given up white processed flour and white sugar. It has been about 9 months. I lost 30 pounds (not just due to that, I had panic disorder and couldn't eat for about a month), and while I sure feel tons better, I can say that it has had no effect on the hot flashes. Through the summer mine were just awful. Now that it is cooler, I have them but not has dramatic.
It was my husband's birthday today, so I had some family over for lunch. My 84 year old mom came, and she always moans about how cold it is in the house. So...we turned the heat on for her. I have been sweltering all day! LOL. I am sitting in bed now, with the window open appreciating the cold.
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When I first moved to Florida , I'd have cold flashes-------I thought that really odd------pre Ovaries out. It was very wierd--------until computer time 1996. I had all the signs and symptoms of someone with Raynauds syndrome. My Dh was always hot, so the control of the thermostat and fan blowing on the bed was an issue. If he were still alive, to see me sleeping with the fan blowing on me, since that was an issue our whole 38years together.
Then now going from hot to, going into a chill in minutes. Fan on , covers off, covers on. Aromasin Is to blame. also, for the Insomnia. WEll grief too. BUT I do firmly believe Aromasin is the culprit.
Linda I get the deep cold-------you put on heavy socks , Long pants and a for me a hood sweatshirt. It may last for hours and then your ripping everything off b/c you have overheated. Then in a unknown amount of time your grabbing for everything to put back on or portions of them depending on what has a chill. this sucks
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I have had some episodes of feeling deeply cold-during the summer no less. It doesn't take longer than 5 minutes after I put on extra clothes to warm up before a HF comes on :>) Is anyone thinking this is somehow related to the meds/HF's? SAS, like you there have been times when I thought I have had Raynauds symptoms (the tips of my fingers get really cold and white), but It has never developed into anything.0
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For you cold flashers, while on Taxol, the only neuropathy I had was a little tingling in the fingertips and FREEZING cold feet at night. My husband would fill two hot water bottels with the water available wrap them in a towel and put them under my feet in bed. Heaven...and it worked...of course five minutes after that I would have a hot flash and have to wait until it passed to cover back up again.
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fluffqueen- how sweet of your husband!
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Just wanted to toss in that taking magnesium does not necessarily mean you are taking magnesium oxide -- and there is a difference in terms of the effects in your body. So if you want to try this, be sure your supplement contains the oxide form.
~lulubee
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So the oxide form is the one that might help?
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here is an example of how food affects my flashes
this morning I had a healthy breakfast then had a dentist appt for some work....was there for 3 hours and when I left it was 1:00 but my mouth was numb so no lunch for me....I did stop at McD's and got one of the yogurt parfaits....easy to eat that. While in town I got groceries then home. Not much to eat today....and guess what???....only 2 very mild flashes. So if I do not eat I will be OK...except I have to eat. LOL
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Omaz, I don't know -- I haven't tried it. I just mentioned it because I noted that someone up the thread (don't recall who right now, sorry) said that magnesium oxide had helped her with hot flashes, and then someone else replied that she takes magnesium and still has flashes... I just wanted to point out that magnesium oxide does stuff other forms of magnesium won't do.
I don't know about taking it for hot flashes, but I do know this-- I had a really nasty six-week battle with interstitial cystitis about ten years ago, and magnesium oxide was specifically recommended for that. I took it religiously for a year, and it worked. I haven't had any bladder issues since then.
~lulubee
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hillck, I had that HF/shiver thing going on for several months after my hyst/ooph and then starting Femara a month later. It was awful! Lately, my hot flashes are just as bad, but I don't have that freezing cold shiver afterward. I have wondered if it was because it's been too stinking hot here this summer for a cold shiver! But it's starting to cool off a bit now, and the shivers aren't returning... yet. We'll see.
So take heart -- maybe it will change for you, too.
It's always something. But at least we're here, right?
~lulubee
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Question -- do any of you sometimes feel a little dizzy before a hot flash hits?
~lulubee
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For me the flash "hits" from the neck up and my face feels flushed (altho I also feel hot all over my body). Also, I am noticing that now that the weather is getting cooler, when I put on my warmer robe, it doesn't take long before I have a hot flash. It's as if my body can't handle having anything heavy on that will keep the heat in.
It's like that with bed covers too. Before tamox, I could be under a pile of blankets and feel cozy; now it just brings on a hot flash!
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This morning when my alarm went off I woke in and was sweating. I am not one to sweat so up until now my Hot flashes have been getting hot and maybe having a touch of moisture in my elbow creese. I as shocked this morning when I woke up wet. Not like this at all. But I too wonder about eating and exercise because my hot flashes had gone away. I am almost done with menapuse according to my blood work. But I have to gain wait for breast reconstruction so my healthy eating is not as healthy and I have cut back in exercise. And now am having hot flashes. This is no fun
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Looking for recommendations. I go to by GYN. doc in 2 weeks for my annual exam. I am asking him about giving me something for these DREADED HOT FLASHES. I can take them NO MORE. They are so bad. My breast cancer was not hormone positive, HOWEVER, I will NOT go on any type of hormone therapy to releive these hot flashes. Can you guys offer me any suggestions that WORK?
Thank you "sisters"
Mary Jo
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I sometimes feel very invisible on the forum, but I will just keep venting away because it makes me feel better. I am SO SICK of hot flashes!!!! People at work and family do NOT understand!! They think it is 'funny' or dismiss it.
Afterall, hot flashes are so common, right?? geeeyah scoff scoff
I haven't had a full night of sleep since ripping my Vivelle patch off about a month ago. I went to my regular doctor today because my blood pressure was elevated -- probably due to the friggin chronic HEADACHE I constantly have. My head was pounding. He said to double my meds for the b/p. Great...what about the hot flashes??!??!?
They suggested Neurontin or Effexor-- yay...sign me up...I really want another damn prescription, NOT.
So, here I am...frustrated, feeling sorry for myself and about ready to rip someone a new one if they cross me the wrong way!! I was so pi$$ed off today...I was on hold for 20 minutes to just get an appointment--they had none available so had to do the walk in clinic. Goody...I got to sit for an hour before I got to see a doctor. And the receptionist was such a biotch.
Yes, I am hot, and grouchy and sleep deprived and stressed.
but I do feel a wee bit better now. thanks for listening. on my gosh, I am sorry...I sound horrid!!
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well I had another good day without severe flashes....another good day of eating the right foods
Luv2knit.....go ahead and vent...there's more room on the outside than inside. There are days when I am totally drained from the hot flashes....I am irritable and just want people to leave me alone....would love to pack a bag and just leave home...of course the HF would just follow me LOL
I tried the effexor and I had constipation for the 8 months I was taking it. I went off cold turkey and had a couple of bad days but got though it. I am now on clonidine (BP meds) for the flashes. I think it helps keep my heart from racing away. Has anyone taken their pulse during a flash? I have and I usually have a higher count during it.
I sleep in a wicking tank and panties..even in the wintertime. I do have my PJ's but they come off before I get in bed. I have been sleeping better since it has cooled off. The past few mornings it has been 68 in my house.
Marjo, I too wish we did not have to start up this HF topic but it is part of life for a woman...well some of us. All I can tell you is to try eating a healthy diet (if you don't already) for a day and see if that helps.
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What kind of foods are you avoiding for your healthy diet? sugars, fats, meats, dairy, all of those?
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