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Radiation recovery

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  • RunFree16
    RunFree16 Member Posts: 649
    edited January 2014

    Things I'm eager for:

    1) Kate's tumor to GET GONE!  Then a lovely trip to snowy Chicago, into the warm embrace of beloved family!

    2) Josie to get a fantastic new job where she is appreciated, underworked, and overpaid!

    3) Bunkie to wrap up her MI life and move to sunny California!

    So much to look forward to!

  • rmlulu
    rmlulu Member Posts: 1,501
    edited January 2014

    Hi y'all

    Kate - ah, Paris! Kate strolling with a haughty on arm carrying her bags.  Yummy smells as they are seated at sidewalk cafe...oh my the pocket warriors have arrive in Haute couture  & arm candy oh what a pocket party...cheers:) yippee countdown until that nasty tumor is gone...fingers&toes crossed for your reunion with family in Chicago:)

    SAB - congrats on mamo and book...how cathartic :) and a gift for others:)

    Bunkie - search YouTube for chair yoga...I luv tai chi and Qi gong which is available on YouTube. Praying the big freeze doesn't turn into the big melt...stay warm stay dry...work those stairs.  Sorry that your dx was disappointing, but it sounds like you have a team now :)

    Tae - yippee countdown :) happy dance shoes are ready!  Hydrocortisone and emu oil for months to keep skin happy!  Celebrate when you are done!

    Wyo - ha ha Bart! Great means to get around...far cry from the open range...Kate gets to keep her hair & Brookside her glasses!

    Joan - snow days:) brrr curl up...warm stone massage...ah CA fault lines...biggest relief retired before a major disaster...one thing to send crews to help and another when it's your nightmare...wildfires earthquakes..interesting field trips:)

    Josie - go new job!  Fingers&toes crossed:) got to move on there's a dream job out there!

    GiGil - warm in FL:) you so deserve the vacation...soak it all in:)

    Sending warm thoughts to all you clipper gals!  Stay warm!

    (((Hugs)))

    Cindy

  • katehudson25
    katehudson25 Member Posts: 1,939
    edited January 2014

    Bunkie, Runfree, and Cindy thanks so much for the support.

    I've been in bed all day in screaming abdominal pain and some back pain too.. I didn't go to ER, because I was afraid they would admit me, and I have something very important I must do tomorrow morning. I've been taking Extra Strength Tylenol, Oxycodone and Ativan ( for sleep), but I've barely had any relief. After my appointment in the morning if I am still feeling bad I will go to ER. The pain is so bad I feel I need to be hospatalized. I have an email into doc to see if he will call the surgeon and see if he can move up the surgery. When I was at the surgeon's yesterday he told me that doc called him to move up the surgery, because the tumor is larger, but he said he couldn't. Maybe because I am in extreme pain he will reconsider. Doc only prescribed 5 mg of Oxycodone. I think I am going to call him tonight to see if I can double the dose.

  • rmlulu
    rmlulu Member Posts: 1,501
    edited January 2014

    (((Kate)))  please call your doc tonight!  If he doesn't respond go to ER...your team will have to check in on you Thursday at the hospital and may help to expedite surgery. Plus, ER will have better drugs...

    Hang in there girlie princess...we are in your pockets...sending gentle soothing thoughts&prayers!

  • joan811
    joan811 Member Posts: 1,980
    edited January 2014

    Oh Kate, I wish I could help you.
    That's not a huge amount of drugs for severe pain.  Do you have help/transportation if you need to go to the ER for pain management?  They will call in your doctors and maybe set things in motion.  I know you don't want to be an emergency but you cannot bear this much longer.  Hugs and prayers. 

  • josie123
    josie123 Member Posts: 1,749
    edited January 2014

    OH Kate, please don't put it off if your hurting that bad.I'm so sorry your hurting.

    WYO, yes I am an MA  and yes my job situation has gotten toxic.It is just ridiculous, they are wanting me to find the right code for the bone density by going through the notes of the doctor  and looking at the order which is usually preventative screening gynecological exam, and look into the last billing for any previous bone density bill and possibly use that code.Used to be I would just look at the previous BMD and if it was Osteopenia it would be that code or Osteoporosis or screening if it was normal.But they know the Docs don't use the right codes and really don't seem to care if it's wrong and would use a menopausal code for any and all bone densities.I have no prior training in coding and we really only have one certified coder in the office.


  • SAB
    SAB Member Posts: 1,121
    edited January 2014

    Dear Kate, please go to the ER. You need meds and medical intervention. I know it's an inconvenience, but it will get your doc/surgeon on your case lickity split. Please take care of yourself.

  • wyo
    wyo Member Posts: 165
    edited January 2014

    Hi all

    Cindy- good to see you on the board hope all is well. 

    Joan and Brookside night owls or early risers I guess haha.  I was going to bed when you were getting ready to post. 

    Bunkie- also ask about restorative yoga or call your local "cancer center" or whatever they are calling it in your neck of the woods- even if they have a stretching or flexibility class you will do great.  I love the idea of youtube or maybe a DVD from amazon? 

    josie- what a crock- that is kind of dangerous these days with coding concerns- they should have the person who is trained do final coding/billing and anything you do is just a prelim. Docs don't always know and they sure don't know the modifiers and stuff.  I told my daughter to go learn coding- big shortage and worth their weight in gold.  Keep up that job hunt lots of places are not using nurses and using MAs in clinics, ambulatory surgery you name it!

    Kate- I am worried.  You will do what you will do for sure but don't self-medicate (increase doses) without getting an email or call from your doctor. Watch that tylenol amount too in 24hrs- it adds up. It is often easier to get on the surgery schedule as an inpatient......however yours is a complex surgery with multiple facets- this saturday sounds perfect!! 

  • brooksidevt
    brooksidevt Member Posts: 1,432
    edited January 2014

    Jeez.  If there's a certified coder, Josie, what the heck does she do if all the techs need to do their own coding?   If the docs can't code correctly, how can they expect you to do so without training?  I'm reminded of those old fairy tales where the princess has to empty the ocean with a sieve, or spin straw into gold. 

    Kate, ER.  Not only will they be able to figure out how to help you, but, as Wyo suggested, this might help you jumpscotch the OR schedule. 

    Joan, I have to tell you how surprised I was that you had a snow day.  I totally missed that there was a snowstorm that didn't hit here.  I guess I just assume that snow just considers my house a bullseye.  On the other hand, the cold snap didn't miss us.  My office has a new heating system.  Yesterday it was 50 degrees inside

    SAB, it must be fun to be training new students--those open little minds loooking for a wonderful future with all their hopes and expectations so very achievable.

  • josie123
    josie123 Member Posts: 1,749
    edited January 2014

    Brookside, yes that's exactly what they want me to do..spin straw into gold!!! If only that was possible I would be a very rich woman!!! Sorry I just had to find a little humor.There seems to be no humor in my life lately.I try not to let my kids see the stress but sometimes my daughter will be like" What did Stella do now Mom?" 

    On the bright side I got a message from some employment company that I created a profile on yesterday.I'm going to call her back today.I tried to call her back last night but she was gone already.

    Kate please tell us you went to the ER last night!!

    Brrrrr...it's cold here this morning 3° and a wind chill of -15°.

    Well Im going to the MO today and we shall see what she decides to do with me since the Tamoxofin caused those itchy eye lids.

  • rmlulu
    rmlulu Member Posts: 1,501
    edited January 2014

    Kate - praying you are in the hospital receiving good care, great meds, pain is under control, and your team has got your plan together!  Calling all Warriors...load up the princess warrior coat...twirl we are loaded for fight! 

    Wyo bring the hair, Brookside the glasses, SAB a good book, RunFree the moisturizer, Sew&Janis cakeballs, Josie the secret code, Joan & GiGil the earth mom hugs, Bunkie the snow angles, gang jump in...

  • josie123
    josie123 Member Posts: 1,749
    edited January 2014

    Yes Kate we are all praying for you.

    Well my MO saw me today.She acted like she was totally unaware that I had had this eye allergy thing and that I had been off Tamoxofin.

    Then she forgot to tell me my lab results and that was an ordeal since I didn't realize this till I was checking out.She said there's not much else for me to take besides Lupron shots which would send me into menopause with lots of ugly side effects and Arimidex isn't an potion until menopause.

  • joan811
    joan811 Member Posts: 1,980
    edited January 2014

    Brookside, you don't get ALL the snow...the last two storms were coastal coming up from the south with an arctic blast coming from the NW.   It was a rush hour storm with icy snow covered highways.  We got about 12" at my house and a little less at work.  They closed the college for classes but "staff" had to report.  Well, that's not my union, so I assume faculty had the day off.   

    Josie, I agree that the coding specialist should be responsible for the records.  Speaking with a medical employment agency may not be a bad idea.  Just be careful of the fees and conseequences if you don't stay - somebody has to pay and costs are not trivial. Good luck!
    I can't help you with the tamox dilemma; but there are some threads that address it.  I hope you find answers.  If there is one, it is probably on BCO somewhere. Make an informed decision and then follow it through.  Or get on the phone and call big medical centers and ask the question.  Wow, you have a lot of homework to do....it's complicated.

    Cindy, you make me smile :-D  love your energetic posts!  I hope you are feeling well...

  • rmlulu
    rmlulu Member Posts: 1,501
    edited January 2014

    Hi y'all

    Yippee Ooo who! Today was my BS appt to celebrate 1 yr anniversary!  After a full press squeeze the girl check the dense fibrous edmmna breast...got a smile and thumbs up!  See team after June's MRI to give all clear at 3 o'clock...his intern shadow just stared didn't know where to look...BS is great...BC is his business in good hands lol!

    Snow snow stay north east...suppose to snow tonight in TX...ugh who knew!  Joan, Brookside, RunFree are you blowing ...stop it!

    Josie - new job, new job, no coding!  Fingers&toes crossed...ever consider move to CA or TX now hiring!

    Kate - no news means you found help and are in good hands receiving best care.  PWC is hanging up in your room...even added a few pics of heart throbs...Paris...family...and us! We're blowing some bubbles and clicking our heels...no place like home...and we're home when all together {{{squeeze}}}

    Ok cakeballs, wine, chia latte,...who's reading our bedtime story...got my sparkle Jammie's on with flying piglet slippers...yeah, pigs can fly! Oh and my princess crown and noise maker...party!

    (((Hugs)))

    Cindy

  • josie123
    josie123 Member Posts: 1,749
    edited January 2014

    Cindy, Congrats!!! Glad you got the all clear.


  • RunFree16
    RunFree16 Member Posts: 649
    edited January 2014

    Hope you're feeling better and under good care, Kate!  If I'd seen your post sooner, I would have said that you might not get admitted, but not quite sent home either--there's that "observation" status where you can stay for a couple of days without it being as big a deal.  Anyway you've got quite a team rooting for you today!

    This is the anniversary of my diagnosis.  I was pretty mellow about it for the past week or so, mentioned it offhand to someone today and didn't think about it much.  Then this evening I completed the registration process for a half-marathon, which I'm running on June 1 with a friend.  We are charity runners for David's House, a home for families whose kids are being treated at Dartmouth-Hitchcock.  That's where I was diagnosed and had my surgery, and I know a couple of people whose kids were treated who stayed at David's House and I also know one of the staff.  I posted on Facebook a long thing about how I got that life-changing phone call and promised myself then that in a year I'd run a race, ideally with a friend, and now we're doing it and it's for this cause--and I started to BAWL.  Couldn't stop.  It was a mess because I was fussing with the link to my fundraising page, which didn't work, and trying to post and people were liking my post before I was done editing it, and I was just crying.  Oh, guess it was on my mind after all!  Obviously l wish that phone call had brought different news.  But I am grateful I've met all of you--you add a great deal to my life every day--and for many other things that have happened in the wake of that day.

  • katehudson25
    katehudson25 Member Posts: 1,939
    edited January 2014

    Cindy,Joan,Josie,Sab,WYO,Brookside and Runfree thanks so much for the support

    I called Doc last night and he increased my dose of Oxycodone. I told him if that didn't work i would go to ER. The increased dose of Oxycodone, 100mg of Trasadone, and i mg of Ativan knocked me out. I got to keep my 10 o'clock appointment, but then at 11 I went to bed and got up at 3. I am feeling better today. This is very strange Monday I thought I needed hospitalization, Tuesday I was better, Wed. i was doubled over ih pain, and today I am  better. Unfortunately i don't think the surgery will get moved up. because he is a robotic surgeon, and is so much in demand, and I don't think he is able to do it sooner. If I feel as bad as I did yesterday again I will go to ER. Thanks so much for your concern.

    Cindy I am glad your appointment went well

    Runfree Happy Caniversary. Thank God you are now cancer free

  • MostlySew
    MostlySew Member Posts: 1,311
    edited January 2014

    Cindy...woohoo....the all clean is such a great diagnosis, isn't it.  Here's to many more

    Run free, I'm so happy that you're able to sign up for that marathon....and the cause is just wonderful, good choice.  I'd be bawling too, nothing wrong with that!      

  • brooksidevt
    brooksidevt Member Posts: 1,432
    edited January 2014

    Happy anniversary, RunFree!  What a heck of a year it's been--so many hurdles, so many victories, all conquered (hurdles), and achieved (victories).  And all fading away back there in the rear view mirror.  Celebration time bigtime.  It's a whole new year.

    Cindy, congrats on your one-year followup success.  Happy graduation!  So nice to have all that poking and prodding and sqishing behind you.  I just love your imagery, can just see that poor intern trying to find a comfortable place to look.  Also can just about see you in pj's silly slippers, tiara, and party toys.  Joy!

  • rmlulu
    rmlulu Member Posts: 1,501
    edited January 2014

    (((Kate)))  glad dr called and he is on notice...warn him that we are armed and very dangerous!

    Hope drugs work...rest sleep well and here's to a Good Friday !

  • joan811
    joan811 Member Posts: 1,980
    edited January 2014

    Cindy, a year behind you....that's something to celebrate.  Yay!!!!!!!  It's a great feeling.  
     
    Run, what a great way to mark the one year mark since your diagnosis.  It is emotional, and there are so few to listen ... especially when life looks to be so "normal" to friends and family.   But the party's on here....we're in your pocket for the run...promise we won't bring too much party stuff to weigh you down.  I think you may have some more emotional moments as your cross that finish line.

    Kate, have a better evening...

    Short week - holiday, snow day....and it's almost Friday Happy

  • RunFree16
    RunFree16 Member Posts: 649
    edited January 2014

    Happy anniversary to you too Cindy! Clean is how we like our mammos!

    Kate, what a relief to hear that you are feeling better.  Oxycodone is your friend right now!  

    And thanks all for the support.  It caught me off guard, that's for sure.  I am going to chow down on cake balls after that race and I will share them with all of you!

  • katehudson25
    katehudson25 Member Posts: 1,939
    edited January 2014

    Cindy, Joan and Runfree thanks so much for the support. Oxycodone is my friend right now. About an hour ago I started to experience sharp pains again. Oxycodone took them away and now I am high as a kite WAHOO! I have an appointment with doc tomorrow, and I hope to get a prescription for more drugs. Normally I have a high threshold for pain, and don't like to take drugs, but this pain bites. and the pain pills are working.

    When i am in be doubled over in bed i try and take my mind off of pain, and think about all of the support I have. I am so blessed to have so much support. I am so blessed to have you guys. I don't like to tell my children i am in pain, so i come here to vent, and I always get such marvelous support. i don't know what I would do without you.

  • wyo
    wyo Member Posts: 165
    edited January 2014

    hi team

    Kate- glad you got the go-ahead to up those pain meds and they are controlling things so you can function. Glad you have an appt tomorrow- go into the weekend well-prepared.

    Cindy- yeah!! one squishy boob for mankind- I love hearing that the appt. went well. 

    Runfree- thanks for the heads-up that this will still be in the back of my mind way out into the future.  I have days I feel so normal and others not so much.  I too would have rather not had that phone call but I don't regret meeting every one of you.  Its so true- everyone I work with thinks I look great, back to work, life is just totally normal. Family is hoping that is the truth but more realistic.  Picture daughter with hands on hips saying MO-ther! you should not be carrying those heavy bags haha. 

    Life is a funny thing that happens right now when you were planning aheadSinging

  • new2bc
    new2bc Member Posts: 254
    edited January 2014

    Hi kate,

    I hope you have the pain under control. You probably need to take some prune juice or something else because the pain medication will make you constipated. I hope your surgeon will operate on you sooner. We are all praying for you. 

  • LaurieParr
    LaurieParr Member Posts: 214
    edited January 2014

    Kate-(((((HUGS))))))  My heart is with you.

    Cindy-Hugs to you too with all you are enduring.

  • BUNKIE10
    BUNKIE10 Member Posts: 670
    edited January 2014

    Kate - So glad you are doing better. I thought you were at the ER.

    I started my 3 day double dose of steroid today. I have blurred vision, headaches, shaking, worst vertigo and I am very tired. Lets hope we keep power. I am in bed today and will be there for the 3 days. It is a very cold day outside and wind is blowing like crazy with windchill about -16. This winter is really a bad one.

  • katehudson25
    katehudson25 Member Posts: 1,939
    edited January 2014

    WYO, New2bc and Laurie parr. I am not feeling well again this morning with stomach cramps, and sharp gas pains. My appointment with doc is in three hours. In a way I am glad I am sick for my appointment, so he can see first hand how bad this is getting. He can't force the surgeon to operate sooner. He has already asked him, so he needs to give me some serious drugs, so I can make it like this for 6 more days.

  • katehudson25
    katehudson25 Member Posts: 1,939
    edited January 2014

    Bunkie, Thanks for the support. So sorry you are not doing well and have to be in bed for three days

  • RunFree16
    RunFree16 Member Posts: 649
    edited January 2014

    Kate and Bunkie, you are both going through such hard times!  I am so sorry.  Bunkie, I wish you strength to weather the next few days and the weather itself.  Kate, I wish you strength until your surgery on Thursday.  I hope your appointment went well and your doctor got the message, and you now have the right med for the job.