Radiation recovery
Comments
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Hi Mama V, thank you so much for thinking of me. My surgery is this Thursday. I am a little scared because these implants have been causing me a lot of pain, but I am a trooper, so I should be fine. By summer your hair will be long again, and I bet it looks fine, short. Elizabeth please let us know how everything went. I have been praying for you.
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MamaV...always good to hear from you and I am so glad you are doing well. I am heading out to the MO's office in a few minutes. The nurse does think I have LE but with no arm swelling they need to take a look. Guessing it is the Truncal LE. She said of so they will have to find a qualified specialist in this area to treat it. I am upset mostly because of the economics but one day at a time, huh?
Elizabeth you know right where my heart is!
Kate I am sure everythingt will go fine for you Thursday. Being scared is normal, but I am sure you will be fine. I'll be thinking of you.
Have a great afternoon/evening everyone!
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Kate, I will be thinking of you. Best of luck on your surgery.
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Hi everyone, Good news. The call back mammogram revealed no abnormalities. I thought they wanted to redo the left breast where the cancer was found, but it was actually the right breast that needed a second look. They thought they had seen a lump on one of the original views, but the diagnostic mammogram revealed nothing. Now, I can let out a big sigh of relief. Also, I will see my BS in February just for double reassurance. Thank you everyone for all of our care and support. Wishing everyone well with their appointments and tests this week. Like we say, cancer is the gift that keeps on giving, but cancer did not count on the strength we all find when we are together.
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Elizabeth, that is wonderful news!!!! Yeah!!!!!
I saw my MO today. Mentioned that I sort of go out of balance maybe once a day, but was not too worried about it as I see many on this site mention it. He didn't seem overly concerned, but...brain MRI on Friday. One good thing about breast cancer is that they can pretty much order any test and justify it.
I am also starting 100mg B6 at his suggestion to try to hurry along the neuropathy recovery. Can't feel my middle 3 toes on both feet most of the time, which is problematic in winter in Cleveland, Ohio.
I've been on Aromacin for 2 wks now, and am starting calcium plus 4000iu vitamin D3. Oh boy, lots more pills each day.
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I saw my MO's nurse practcioner today. Esther is great and I trust her. She thinks I have a couple issues. She thinks due to the redness is the breast I have cellulitis. This can be treated easily enough with antibiotics, but she thinks the swelling is too much for cellulitis. She is thinking LE. I go back in to see her next and if the swelling is still persistant then we have to find an LE therapist.
Elizabeth so happy for your good news!
shelly fingers crossed for all good news on your MRI.
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Wow, ladies, its so good to hear ( generally) great news! Elizabeth, I'm so excited for you that your recall was all clear.. Huge sigh of relief!
Janis, well cellulitis isn't what one would wish for, but antibiotics are easy enough and I'm glad you caught it in time. Sounds as though. They're taking good care of you though and perhaps the swelling will go down with the meds...we can always hope.
Shelly, whoosh, brain MRI sounds scary, but I'd bet your gut feeling that it's all Ok is probably correct. Fingers crossed on that one. Side story: before my breast cancer I'd had a couple good falls, and my doc told me to take up tai chi. Good advice, but I bet today if I start that again it would be a different story! Let us know the results for sure.
Kate, good luck with your surgery Friday. I hope the house is stocked with comfort food.
Mama V I'm glad you're doing well, and thanks again for your concern. Monday can't come fast enough for me! I've just decided to call this "thing" in my breast my UBO or Unidentified Breast Object. I'll be happy when it's identified. Meanwhile I continue to regain my strength so all is well.
To all the graduates....Hurrah, Hurrah, Hurrah......now let the healing begin!
Be well everyone.....0 -
Mostly Sew how are YOU doing? Is everything okay? I have been thinking of you all day........
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Hey Janis,
I'm getting by. I've decided to convine myself that this is just a false alarm and that it's a good thing to have this Ultra Sound because they can identify all the scar tissue now so that when I gave my 6 month mammo they won't be surpriised. How's that for positive thinking? I'm calling it my UBO as in Unidentified Breast Object, and the humor in that seems strangely comforting. I've also decided (just about) to make a trip to Maui for a few days to help my 93 year old mother get back home from her vacation. The trip over this year was a bit much for her. I'd need to make the reservations now, but what the heck, even if this is something new, I bet the surgeon wouldn't be ready to deal with before Feb15th when I'd be home. What do you think? Good plan?
That's probably more than you truly wanted to know, but I appreciate your asking. How's your back doing, anyway? Is the PT helping? I sure hope so.......0 -
Thank you for the good wishes Ceeztheday,Janis, and mostlysew. Elizabeth that is fantastic news. I am so happy for you.
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Fabulous news, Elizabeth!
Janis, hope the antibiotics kick your infection to the curb.
Kate and Mostly Sew, thinking of you too. A trip to Maui sounds like it would be just right, even if just for a few days. The extra time with your mom might be just what you need.
Best,
Steph
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Thanks, Steph...that's what I thought! How have you been doing? Haven't heard too much from you....hopefully you're just happily becoming what I guess we have to call the new "normal" ( as I'm not sure normal is quite what it used to be).
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Just wanted to thank everyone again for all of your support. I honestly do not know what I would do without our wonderful group here. Shelley2011, good luck with the MRI. I hope it will be normal. MostlySew, good luck with the US. Janis, I hope the antibiotics will work quickly.
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Thank you StephN
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Hi ladies
Please say a little prayer for my best friend Teresa. I went with her yesterday for a biopsy of a mass on her thyroid. I saw it on the ultrasound and it looked to be about an inch. If it is cancer she is in serious trouble. She is a transplant recipient and would most likely not survive chemo.
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Merilee saying prayers for your friend. I can feel your pain. I hate this disease..I hope everyone writes a letter to Washington on Jan. 23. We need changes or better yet a cure... Merilee started this letter writing campaign I hope we can all show our support. You can find all the info under *Lets draft a letter to Washington...* Topic...
Elizabeth that's wonderful news. So glad it turned out well for you.
Shelly and Mostlysew praying for good results on your test. I hope all goes well.
Kate thinking of you Thursday. I will be there in spirit. Your not alone.
Janis your one special Lady. Thank you for always being there....
To all the new Ladies just wanted to say Welcome! . I pray your journey is a peaceful one... I hope I did not leave anyone out. So much is going on for all of us... It is hard to keep up...
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Let's see if I can catch up ...
Kate - I will be in your pocket on Thursday - I hope this is the last surgery for you!
Janis - Let's get those antibiotics to work so we can get that LE taken care of too!
Elizabeth - YEEE HAWWWW! Happy dance!
Shelly - Brain MRI? I understand, just had to have a liver MRI b/c of other issues... came back non cancer - yours will too!
Mostlysew - I've said it before - scares are the worst!!!! But you go girl, Maui! YES!
Merilee - prayers for Teresa!
Have a great day all!
Vicky
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My authoritative rad onc is insisting that I come in for a final skin check, even though my skin has always been fine - it has become an almost comical control game between us - I am so glad rads is over - if you would like to hear more about the battle of wits (not so witty, actually), between my rads office and me, feel free to read my recent posts of yesterday and today on the "What Cheezed Me Off Today" thread. I realize I am making a big deal of something small, but I need to feel that I have some control of my life. This is my first step in taking control, no matter how petty it may seem.
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Irw..thanks for your sweet words. You know what to do........
MostlySew...I know you are as sick as I am of this "one thing after another" crap. I am thinking of you my friend and sending you strength and big hugs.
Merilee so sorry about your friend. Hoping for good news for her. It can happen!
Steph so good to hear from you and sure hope you are doing great.
Thinking of you all! Hugs!
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Thank you Irw and Mamav. Merilee I will pray for your ftiend.
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Merilee, I will say prayers for both you and your friend. No matter what happens, your friend is fortunate to have you in her corner.
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Ananadagram, On the last day of rads my RO said he would see me in six weeks for a re-check even though my skin looked fine. He did go on to explain that he would tell me when to set up my next mammo at that time and the frequency of mammomos thereafter. Almost as an afterthought he asked who my MO was and quickly backed off saying that my MO would follow, set up mammos etc. and that I didn't need to come back unless I had a problem. Could this be was is going on with yours?
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Thanks, ptdreamers - maybe that is what is going on with my RO. He is a tough one to figure-out. He is the one who went on and on to me about how awful his Christmas was - like I really cared....lol
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They seem quick to send you off if certain other docs are on with you. My breast surgeon might have stayed with me, but he said my "two" would be the RO and MO -el ycuko. I like my handsome hero BS!! He cut out the cancer in one swift operation and doesn't plan on doing that ever again.
As far as the "other two", personally I NEVER want to see the inside of RO clinic again (just going there again after 4 weeks made me sick sick sick). And my MO! I know my MO is going to try to work me over on the meds. He has already slyly been trying to do that -telling me I "will" be taking x and x, not even asking my permission. The thing is, I WON'T be takingx and x. He has already done the cozy-up-and-command move on others in my support group (I haven't shared who my MO is there as they seem all very cozy w this same MO even though they are ALL having massive SEs and horrid times with same.)
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Thanks for the invite I have be done with radiation since Oct Is it normal to have your breast feel like leather? Hope all is well .
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lynneia, Are you still using your creams? My nipple is alittle leathery but the breast is fine. 0
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My boost area and incision areas are especially sore, lumpy, and harder, pulling more.
I am keeping up the post-surgery exercises (they REALLY help with the tightening) and creams (better ones though - more vitamin E-ish- and my choice ones, rather than the RAD ones- I REALLY like a very expensive but amazing unscented olive oil eye cream for my incision area I picked up at Whole Foods from Skin Organics) and will be consulting with a ps about fat grafting (for re-softening the radiated area especially and maybe also for a slight filler later) and am going to (a nurse who went through lumpectomy and double mxsmy herself told me to "ask" for this) a PT/OT to help untighten the areas.
I am also drinking a lot of water and sleeping 17+ hours a day...zzzzzzzzzz
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truebff--I hope you'll keep us posted on the fat grafting. I have been doing some reading about using this method as a "fill." The articles I've read suggest that you wait until 2 years after radiation so that effects/changes due to tx are finished. Forgot to ask my bs last time...would love to know what a ps has to say.
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katehudson: I just wanted you to know that I was thinking of you and wishing you well during your surgery tomorrow. Please let us know how you are doing as you as you feel able to type.
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CA, I'll let you know what the doc says. My appt with the ps who does fat grafting both for therapy to the breast as well as for "fills" is mid February.
(BTW, The PS I orignally met with said he did not do this poceedure, he would only do muscle-donor rebulding and, again, only if necessary- though he didn't explain why or why not, so this upcoming apt. will be with another doc in the department -apparently also the head of the dept.- who does. I imagine, since this is a highly regarded practice, that it may have to do with the experience it requires tfor a surgeon to both confidently and successfully perform this proceedure.)
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