Ottawa ladies?

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  • dragonfly55
    dragonfly55 Member Posts: 97

    Hello to all,

    I have not been on BC for quite a while, but felt a need to check-in.



    NannaBaby, congrats on reconstruction, so happy for you!



    Red, quite a journey with you with the recon... Sorry to here about all the troubles you've gone through.



    I had pedical tram and reduction immediately after mastectomy, Feb'12. Unfortunately, I ended up needing chemo and radiation, too. I am dealing with fat necrosis, my breasts are hard as rocks and belly issues. I wear a support, like spandex, for stomach. Can't do anything about belly, as muscle on one side gone (type of surgery), fat pocket accumulated on other side(waiting to see if it will get absorbed... hasn't happened yet) due to pain from necrosis, debating whether to get both breasts removed.... Just a note, My one breast is breast fat, the other is belly fat. They grow at different rates... So I have days where on breast is bigger than other (can be either breast, too). Makes me laugh and shake my head.



    My PS is Kristy Boyd. She's wonderful. I had the nicest looking recon breasts.... Before chemo.... then... Once my treatments are all done, we will put my breasts back on the table...



    Reconstruction is such a big step. I would never recommend immediate recon. I was diagnosed with DCIS, path report came back IDC, 1/3 lymph nodes. Therefore, treatment, which could affect reconstruction. Afterall, noone knows final diagnosis.



    Take care.

  • Time4life
    Time4life Member Posts: 46

    The Breast Cancer Dragonboat team in Ottawa is starting up again.

    I am joining for my first time and love it!

    It is called Busting Out and they are a wonderful group of survivors. Check them out through Breast Cancer Action Ottawa. Come join!

  • Neta69
    Neta69 Member Posts: 20

    Hi ladies, just wanted to check in and let anyone who will have surgery with Dr Lorimer know that the RateMD reviews are all wrong! He's an excellent surgeon! He may come across as arrogant to some but I have nothing but praise for him. He took me on when my own surgeon couldn't (he was on leave), called me before the consultation to clarify a few ponts, somehow squeezed me in really soon after my diagnosis (local recurrence after lumpectomy) and again called me the night before surgery to see if I had questions! He grumled a bit about not wanting to remove healthy body parts, understandably, but went along with my wish for a bi lateral mastectomy. He came to see me before surgery, answered my questions and checked on me again after. While I was in recovery he called my husband and told him that the surgery went well and reassured him that I was ok. The incisions are nice and even and so far everything is healing well. He didn't put drains in so if I get fluid build up he will drain it for me. I'm very happy with Dr Lorimer.

  • Marple
    Marple Member Posts: 10,154

    Good news Neta.  It's good to know you are really happy with your surgeon.  I am curious though, no drains for a bilat. mast?  Or did I not understand your post correctly?  May your healing be speedy and uneventful.  Gentle hugs.

  • DorMac
    DorMac Member Posts: 153

    I had Dr. Lorimer for my uni-mast in February 2012 and he was great. I was warned that he doesn't come across as warm and cuddly but he is an excellent surgeon. And I found, like Neta69, that he was good at explaining everything, checking on me before and after surgery, etc. Dr.Lorimer doesn't usually install drains - I had to get drained twice but it was no big deal as there is no feeling there. I was really happy with everything related to my surgery! 

  • micheleboots
    micheleboots Member Posts: 885

    Nata69.  Glad to hear all went well for you...

  • Neta69
    Neta69 Member Posts: 20

    So far, so good ladies. Marple, I don't have drains and so far it's ok. Will probably need to be drained a couple of times but I'd rather have that done than have drains. The biggest struggle right now is in my head trying to come to terms with this recurrence.

  • diane49
    diane49 Member Posts: 17

    I am south of Ottawa do I count

    I had my biopsy and mri done in Ottawa and have a referral for a surgeon at the owbhc on june 11

  • Marple
    Marple Member Posts: 10,154

    Diane, I'm south of Ottawa too.  LMBO, I counted myself in so I'm sure you may do the same.  Smile

  • micheleboots
    micheleboots Member Posts: 885

    Welcome Diane.  Glad to meet you.  Everyone's welcome here.

  • redninrah
    redninrah Member Posts: 366

    Hi ladies, I'm in Kanata, I've had dr Lorimer, dr guay , and Kirsty Boyd. Both breasts are off, and no recon (long story) and I'm really really happy. I am looking forward to July - I will be 3 yrs ned

  • Neta69
    Neta69 Member Posts: 20

    Nice to meet you all! I noticed this thread last year but stuck with the September 2012 chemo group while going through treatment and still very much in touch with the wonderful ladies there. Now faced with a local recurrence I'm back to go again :(

  • Dani18
    Dani18 Member Posts: 6

    Hi everyone this is my first post.  I'm 42 and I live in Orleans with my husband of 21 years and my 16 year old daughter and 11 year old son.  I was diagnosed May 2, 2013 with IDC.  I'm scheduled for a lumpectomy with Dr. Lorimer on June 13, 2013 so thank you Neta69 and DorMac for putting my mind at ease.  Dr. Lorimer is the one who suggested the lumpectomy but said if I gave him a good enough reason for a mastectomy he would consider it.  After going back and forth on it I decided to start with the lumpectomy and wait to see what the pathology is before deciding.  Dr. Lorimer thinks I will have chemo due to my age so I feel that I have that time to decide during that time whether to finish with radiation or then have the mastectomy after discussion with Oncologist.  It just seems like a big decision to make without hormone and node information or or even speaking with an Oncologist.  Dragonfly55 thanks for that advice, I was also thinking if I decide on mastectomy to wait for reconstruction.  Did anybody else struggle with the decision between lumpectomy and mastectomy or did you just know?

  • micheleboots
    micheleboots Member Posts: 885

    Hi Dani18.  I too am ion Orleans.  I hada mastectomy right off teh bat.  That was in 2009.  Now I am dealing with Mets..lucky me.

  • diane49
    diane49 Member Posts: 17

    Thank you all...now if you could just make time go faster that would be great

    Hard to prepare for something if you don't know what that something is

  • Marple
    Marple Member Posts: 10,154

    Diane, the waiting and worrying that goes along with it can be really difficult. 

    Welcome Dani.  For myself, I said mast. and since it was in 06 I can't remember if the Dr. even suggested anything else.  I don't think he did though.

  • Time4life
    Time4life Member Posts: 46

    Micheleboots!? Mets?! I have not been on too often lately, but your post stuck out. Are you okay? Thinking of you.



  • jocanuck1951
    jocanuck1951 Member Posts: 214

    Hi dani18, I'm in Beacon Hill. Welcome! I had a mastectomy in Nov. and came out stage 4, mets to liver. I insisted on a mast at the end with my doc as my breast was so painful. I consulted several medical people, all with different opinions then finally insisted with a mast as my cancer was in several spots (no lumps it was very tiny at first) and I didn't want a half ass lumpectomy then going back in for a mastectomy a week later. For me I made the right decision as lefty was full and she wouldn't have been able to get clean margins. I didn't want radiation. I had that funny feeling it wasn't going to be good and as it turned out I had liver mets, so stage 4 right out the gate. Feel free to send a message if you'd like or to call me. Jo

  • Dani18
    Dani18 Member Posts: 6

    Hi JoCanuck - I grew up in Beacon Hill. Lived there right up until I got married. I had a lumpectomy two weeks ago. Still waiting to meet with Oncologist to discuss chemo and make final decision on mastectomy or radiation. I'm probably just being impatient but I find everything takes so long.



    Take Care

  • micheleboots
    micheleboots Member Posts: 885

    I hope you ladies are having a wonderful peaceful Canada Day.  I am waiting for my CT scan results and stressing a little.  Heck a lot.  Glad to have this holiday, but it just means I have to wait one day longer to find out.  I am going away next weekend with my girlfriends from work.  I only hope I don't get bad news or no news before I go.  I just want a stress free weekend.

  • Marple
    Marple Member Posts: 10,154

    Happy Canada Day every one.  Michele, here's hoping you get good news, TOMORROW and a great weekend with friends.

  • Time4life
    Time4life Member Posts: 46

    Praying for only the best results Michelle!

  • micheleboots
    micheleboots Member Posts: 885

    It's monday.  Let's see what happens.

  • micheleboots
    micheleboots Member Posts: 885

    oops, I ment to say Tuesday.

  • Dani18
    Dani18 Member Posts: 6

    Hi,



    Just wondering if anybody has the names of some great medical oncologists working out of the Cancer Clinic at the Ottawa General Hospital?

  • Marple
    Marple Member Posts: 10,154

    Hi Dani,

    I just sent you a PM.  Good idea to post here too.  Good luck.

    M.

  • micheleboots
    micheleboots Member Posts: 885

    I have Segal and I love her.

  • DorMac
    DorMac Member Posts: 153

    Dr. S. Verma - the best!

    Doreen

  • Time4life
    Time4life Member Posts: 46

    Dr Shal Verma

  • redninrah
    redninrah Member Posts: 366

    I have Dr Segal- I think she is gt. She doesnt do routine testing though..and when I ask her about it, she doesnt seem to think its necessary, but my family GP is gt and I get all my testing done there, ie pelvic and ab ultrasound, bone density., blood work, this time im going to get chest x ray and ask for bone scan too, again, all routine.