Canadians in British Columbia
Comments
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happy christmas shopping & wrapping. I lost my tape so no choice.. have to go out, sick though.. so much nausea. snowing here. Mugga is for the heart right?
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Coming back to this snow... sun and sand seems a lifetime away. See you Lower Mainland ladies are getting it really bad this morning. Snowing here too.
Healing thoughts to all that need them and positive mojo to all.
Had a great trip to Mexico with DH - just what we needed. Feeling very tired. Think all this travelling has finally caught up with me... but hey, I will nap and its was worth it.
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Cher yes muga scan is for the heart. I am scheduled for tomorrow.
Tazzy glad you and DH had a great time in Mexico...
Every one enjoy Thursday!0 -
pands - do you have a port?
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adagio - no i opted to go a la natural...no port unless one is needed later on..in my mind one surgery was enough...and i figured if my mom could do it that way i could pull up my big girl panties and do the same..
right now its 1230 and am having gingerale and fruit ... this chemo #2 has more se than the first one..have a cold....dry cough and leaky nose..temp when i got up half hour ago was 37.8...just high enough to keep an eye on it....also my armpits and groin area feel slightly swollen...fighting an infection maybe..but if feel ok right now..not groggy or anything like that when i talked to nurse about cough forgot to let her now about armpits...will call them on monday when the clinic opens.....
because my mom has cancer also we have both decided not to celebrate christmas this year..put on hold..my sister and mom will have theirs and dh and i will do ours...she is more worried about me than herself...moms always do...and she thinks that my feeling under the weather is because of taking her out grocery /christmas shopping on day 3 after chemo..she knows my wall days are 3 and 4...
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Good Morning ladies. Hope you are waking up to a great day, feeling well and no fever(pands) Thank you all for being there this past year and a half.. It has been rough, but with you guys being there it has been a bit easier.. for this I thank you.. I wish each and every one of you a great Christmas spent with the people who means the most to you. A happy healthy new year with less doctor appointments and normal" life
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well I've been out of hospital since Tuesday. Spent 14 days there on oxygen and everthing else they could do for me.14 days!!!!! I ended up with a pnuemonia in both lungs, but the real cause we don't know. Had a sheduled broncoscopy, got as far as the camera going down in the first stage of proceedure, but they had to stop it due to my oxygen sasts were to low.They are 90% sure tho that the pnuemonia was cased by a drug reaction to the taxetere, but as I couldnt cough anything up and broncoscopy cancelled they treated me with tons of steroids and antibiotics, waterdrugs to try to get the fluid off my lungs.Last Sunday dr. talked to my family and said that another day and they needed to intibate me if I didn't turn around, and lo and behold I started to turn around!!!I had finished my 3rd out of 4 chemos taxetere and cytoxen, I knew I didn't feel that well after 2 days, we called the help line they thought I was dihydrated, but I wasn't feeling any better as the days went on I was so cold I'd have 3-4 hot showers to try to warm up, but had constant headache, I was always taking my temp, and it wasnt high so I'd take tylonol. Well little did I know I had the pneumonia and the tylonal was probably keeping the fever at bay. But after 8 days post chemo I got a fever and was freezing and short of breath. My daughter took me to VGH, I may have died that night had I stayed home. Anyways my oncologist came to see me and decided agaist the last chemo, said he didn't want to kill me (thanks) he said he could change the chemo but decided I had enough. I do go for chest xray and all the blood work on the 31st. Is this what they do to get baseline? I had every other test done over and over in hospital, they could only use my left arm for iv and blood work, they didn't put in a pic or anything, so having Iv's going constantly 8 different ones at the same time blood tests every few hours for 2 weeks, i have no veins arm is totally bruised but I have NEVER been so watched by drs in my life, I guess thats due to the severity of what I had.So I was wondering, if my cancer comes back ,will I be able to do chemo again ? If the infection almost killed me this time will my mo decide not to try again? This petrifies me.Also there was some thing in my cat scan then 2 echocardiagrams,they said that my heart pumps enough blood in but doesn't hold it in as well as it should, but they don't know if it was caused by the chemo, or my high blood pressure and age. They said it won't cause a heart attack, just something to be aware of. Would this prevent my mo from giving me more chemo in the fure if needed? I know I should ask my mo but I won't see him til 31st and just need to hear some positive answers to help me from panicking over this next week!!I'm still weak but getting stronger, a person loses 5% of their energy for every day spent in hospital, and I spent 14 days there so I understand the weakness, but I don't much like the shortness of breath..Anyways Ladies please if you can answer my questions and help relieve my over thinking mind I would be very grateful....Brenda
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Brenda I have been thinking that we had not heard from you and so sorry about what has happened. It sounds as though doctors will be keeping a close watch on you. I for one certainly can't answer any of your questions as it sounds quite complex. Just make sure that if anything at all odd happens that you call the helpline or your doctor right away since you don't see the MO until the 31st.
I think we should all take heed of what happened with your fever. Low grade fevers cause problems. Brenda I had low grade fevers for a few days and ended up in VGH for 3 days but it was due to low hemoglobin and neutrophils - well hard to say but some small infection got going. But this week I had fevers over 38C the magic number and called in to the helpline. After some conferencing with on call doctors, NO tylenol etc., lots of fluids and rest and call if it stays. In other words they want to see what happens without any meds.
I do hope that they got the pneumonia under control at the very least and that you can now rest more easily at home for the holidays. Keep us posted and don't wait to call the helpline!!!! I would add that if the shortness of breath continues that you call too.
I wish you the easiest Christmas with your family.
Marian0 -
anamerty - I cant answer your questions but you might try starting a new thread if you don't get answers here. So sorry you've had such a rough go of it. Wow, all very scary. Here's hoping you have an easy recovery.
Marian - Hope you're feeling better too. I've been immersed in work projects so just catching up now.
Everyone - Hope you have a happy SE-free Christmas!0 -
DH & I are off to see The Hobbitt this afternoon... become a bit of a tradition with us at Christmas to go see a movie on Christmas Eve.
I want to wish each and every one of you and your family, friends a wonderful safe Christmas.
Here's to us and all we have accomplished and the mountains we have climbed - we made it ladies and we did it together.
Thank you all so much for being here - you ladies rock !!
Hugs & love xxxx
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First --- Merry Christmas to you and yours and hoping that you each can celebrate this time the best you can & SE's are minimal.
Brenda so sorry to hear of such a ordeal! thank goodness it sounds like your on the mend. Sorry I don't have answers for you either. Tazzy..love to see the Hobbit too. I'm going back to coast on Friday, staying in Summerland on Thursday. It's been a nice visit with my Dad & celebrated his 79th, which is great after he spent 4mths caring for me.
I sure was alot sicker this time which is the LAST time, nausea/vomiting was insane! Thankfully I started feeling better the day after I arrived. Sure am tired though. all part n parcel. I'm quite grateful it could have all been worse.
Marian hope your doing ok, you watch that darned fever! & again.. I hope everyone has a lovely Christmas
All the Best... Cher
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Merry Christmas all girls
I hope Santa left se in someone elses stockings this morning....
woke up this morning feeling normal (temp under 37) for first time since wed...yes beat the low grade fever..
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Yay, Pands. Here's to feeling normal.
Merry Christmas and the best of the season to my "BC in BC" peeps.
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Hi Ladies..
Hope you all had a great Christmas and new years. Wishing you all great news this year
It is a new year and new beginnings, time to start thinking about us trying to meet in the near future..how/where is everyone in their treatment. what is your finish line dates? She when are you back .... Look forward to putting faces and voices to your names..
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Ossa - my finish time after everthing is done is Jan 2014...sure feels like a long haul..I am going to my 3rd AC treatment on wed and last one will be end of Jan.
Feb/Mar/April will be TTx4 and then the rest of the year will be herceptin x 9 months..with radiation sometimes in Jun x 16 treatments...medical ei runs out mid january but works LTD will kick in until end of May..and might extend that as to how i feel with the rads...thank god my work/customers want me back...haven't been there since Sept...
Hope everyone had a good Christmas/New Years....go go girl power...lets beat this damn cancer...<3
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Happy New Year!
Ossa, it will be months. Go ahead and plan without me and we'll plan another one when I'm back!0 -
Pands... Check out this tread The Canadian connection.... calling all Canadian women... It is an excellent tread with a lot of activity and a lot of knowledge
She.. have a great time where ever in the world you are.. We will deffinately have a get together next tome you are home
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Ossa, my chemo should end around January 30. Then I get a break of 4-6 weeks before mx, axillary dissection and immediate reconstruction with T/E. I will do rads once that is healed then 3-6 month minimum before the exchange.
So it is possible that I will be feeling reasonable by mid Feb.?
Marian0 -
HI & Happy 2013!! I'm hoping & praying for you all still going through treatments & SE's etc... it sure feels good to be past that part of my journey..longest haul I've ever had...now onto the PILL. mixed response from doc's about what SE's I'll have, due to underlying illnesses...it's a crap shoot. At least with the other treatments I had some kind of idea what to expect... feel like I'm going deep sea diving without instruction lol... it'll all be ok I'm sure.. I may whine & complain... but know I"ll get thru whatever
Hey Ps... what's the kinda 'norm' for follow-ups after all treatments/surgery etc.. like 1. 6mths, then what? My GF only had the 6mth & that was 2.5 yrs ago, her Dr's said, oh you know your own body... so if you notice anything odd get it checked out...huh? she also had stage IV & when the other breast taken off just for safety sake, it had cancer in it also.. I find this so odd that there's not a kind of regular follow-ups (she's finally having her implant surgery on Monday after 1yr wait.
thinking of you all ... hang in therel!!
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Cher.. The first year PFC I had a checkup every three months (blood-work every six months) Had my one year checkup( PFC) in Dec. and was told see you in six months.. I had blood-work done in Dec. and will have blood-work done every six months for the next four years ( Remember I am on the Metformin trial sturdy, so that might be why I have blood-work and checkups every six months) Hope your femera side effects are short lived.. My Tamoxifen are manageable.. some headache and of course the sweats..A lot better than when I first started them though
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Need your input ladies
Pick a date and we will plan for the date when most can attend
Jan 26, 27
Feb 2, 3
Feb 9, 10
Feb16, 17
Feb 23, 24
Mar 2, 3
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The dates are fine with me, although I'm not sure I will come. I'm not very good company these days. We lost our dear old cat at Christmas & I'm just not feeling myself. The thought of a 4-6 hour trip each way for lunch just doesn't have much appeal right now.
Also Sneaky was going to let me catch a ride with her out to Langley & she's not feeling very good. Post the date though & I'll see how I'm feeling. GG
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would love to come...but man the way the cocohalla is...dont dare to try that..
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I would love to come but I heading to Dawson Creek the end of Feb, after rads. I need to wait for all this snow to be gone too!..we had a foot last night.
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Pands... just realised you are from Kelowna - I live in Glenrosa
Unfortunately i wont be able to make it either
but hope to see pictures of you all.1st day back at work today - only did 4 and a bit hours and brain is frazzled but good to be working again, and feeling part of life.
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ive been lucky so far ....work for me will start end of may...so will have been off 9 months..now with rads happening in june i could be off 1 more month if insurance will cover that...
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Thanks Ossa for your answer. I go tomorrow to the Onc, so very apprehensive (gotta stop the neg thinking) but I always seem to have to fight or question my health care, seem to fall through cracks. Been a struggle my whole life (like finding dx for things). Yes it probably is the Metformin trial that you have so many BWorks. I'm getting appt for Keary Clinic in NWest, as they specialize in post-mastectomy. I still have so much pain (need morphine at night) & seems the scar tissue is continuing to grow/spread!! My main question will be - 'with all the lumps/bump on my chest, how on earth will I know what is suspicious & what is scar tissue?' Am hopeful that the pt/massage people will be the main ones to know whats going on with it all. Seems my right underarm has lump or is it scar tissue .. damn drives me nuts! (the RT side was the BC) had only 3 nodes removed there.
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Cher - good luck with the PT. I never received a reply from the woman in Squamish about an RMT with experience in breast massage in your neck of the woods. Still plan on asking my RMT, but I don't know when I'll see her next.
As for work, I'm lucky to have a long-term disability plan and awesome employers (the CEO personally delivered a gift card for Safeway when I was hurting for funds and over the Xmas break all my colleagues pitched in to give me a serious bundle of cash so that I could go on a holiday with my daughter when treatment is done). My income is seriously reduced since leaving work, but with a change in lifestyle I've managed to keep paying the bills and I'm not going back to work until I'm ready. This said, the outpouring of support from work has likely made me want to return to them sooner rather than later. I just want to make sure I'm really ready to return and not prolong my recovery by pushing myself. I read of a lot of women working while going through chemo and I have to idea how they do it. Hopefully radiation is gentle on you, Pands, or that you can take more time off if you need it.
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Joanne... guess what I am eating... yum.... thank you sooo much..
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oops.. chemo brain posted on the wrong forum..
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