mets to lung
Comments
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Looks like you had a great trip!
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Looks like you had a wonderful trip and the quilt is beautiful. Just like something I would like since I like music and have been singing in our choir for 33 years since our parish was formed. Blessings to you too.
Faith (in the future).
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greeting from australia Raewyn
What a wonderful road trip so much to see sure does gladden the heart. Your boys looked fab and smiles all round
The quilt is superb ..i love history of needlework and quilting and weaving ..i have been a home economics teacher of textiles and design and food technology..now called techn
ology. Have retired and studied for masters of museum studies..now assist with conservation
Warm regards bright
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Bright, what a wonderful thing to be involved in after teaching. I'm assuming that the beautiful pictures are of pieces you have worked on.We love going to museums especially in Italy and while my DH really loves the art work and sculpture, I find I'm more fascinated by the textiles and the period dress from early centuries. If you ever get to Italy, you must visit the Patti Palace in Florence.They have a lot of period fashions in one of their museums. My parents were both tailors in their early years before opening another business and while I can appreciate all of the detail, I'm not very patient when it comes to doing the work.
BTW, we have met quite a few Aussies in our travels and always find them the most friendly people anywhere. Glad to meet you here.
Best regards, Faith (in the future).
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Hi;
how are you all doing? I hope and pray we all feel better and beat this cancer.
After three moHi chicas;nths of abraxane and gemzar I had a CT scan and it showed some improvement and stability. Some of the the lumps I had in my lungs and fluids are gone. tThere is still some fluid in my right lung but the MO was happy. Bone and liver are stable.
I pray that this combo continues work as so many treatments have failed me.
Take care everyone
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Ziz, Stable and improvement is good!
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hi theziz
great news well done...feeling much better im sure
Im all stable with no progression ......so on road camping trip to queensland
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Great news Ziz!
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Hi Everyone,
I am a relative newcomer of the boards, but I have already received sound advice and quiet reassurance through replies and just reading through information shared in all your posts.
I have posted on the Xeloda thread, but wanted to post here as well. I was diagnosed de novo in June with lung mets. Would love to hear from anyone in a similar situation. Multiple nodules on both lungs, all very small at this point. The largest one is 9mm. Would be great to hear any success stories from treatments, both conventional and/or alternative. Tamoxifen did not work, so after 2 months, I moved to Xeloda. Starting my second cycle tomorrow.
Thanks,
Anna
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MissMonty, did they biopsy your lung nodules? Most of us here ended up here because of pleural effusions as the first sign of lung mets. Lung nodules are frequently benign and it seems yours may be too small to biopsy.
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Hi cive,
They did a biopsy on the largest nodule, and confirmed the same pathology as my breast tumour. I was sure hoping they were going to be benign, but no such luck. So far no sign of pleural effusion as seen on my scans. I've had two scans so far. I don't have any breathing issues so far.
Anna
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Hi Anna,
Sorry you find yourself here. Like Civ, I was diagnosed as a result of a pleural effusion in my right chest cavity. It's unclear if there is anything in the lung itself. Mine seemed to be in the pleural lining and a few places in my bone.
I am assuming you are pre-menopausal if they started with Tamoxifen. Is this correct? I had three round of Taxol but it failed so moved to Anastrozole and Ibrance. Ibrance was a bit hard on my blood so now just the AI. So far so good on it but I suspect Xeloda is next if Anastrozole fails.
There are lots of treatment options and many women have done quite well for some time. Lots of encouragement here!
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Hi Sadiesservant,
Yes, it the pits that any of us have to be here. I'm actually from Vancouver. I've only been in Toronto for about a year.
I am still pre-menopausal....(barely)
, so Xeloda and Taxol were my only two options at this point. So far I'm tolerating it well, but I've only completed one cycle. Hopefully the X will get things under control with minimal side effects. I hope the AI continues to be successful for you.Glad we had the opportunity to connect.
Anna
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Anna, if you follow the Zeloda thread you'll see that there are quite a few people for whom Zeloda has worked for years. There are some side effects, primarily hand and foot skin irritation but most find they can control them by controlling the dose. I'm on faslodex and Ibrance after 18 months on letrozole alone before progression, but my MO also mentioned Zeloda, so I followed that thread for awhile.
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Raewyn,
Thanks for sharing the photos. You have a beautiful family. So happy that your previous post was not your last!
Hugs, Susan
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Hi Ladies
Have been reading this thread for the last two weeks...
Sadly i was diagnozed with lung and spine mets two weeks ago . Still trying to get my head around it. I had PE and they drained about three litres of fluid . I am still in hospital as i have some chest infection with high temp so they are giving me antibiotics. Have yet to see the oncologist to learn about the treatment plan.
The problem is that even after draining so much fluid i am still breathless. Can you please advise when your sob improved after the drainage.
Hugs to you all.
Karina
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Hi Karina,
I'm so sorry that you are also facing a recurrence. I was diagnosed with a right PE in December which also turned out to be metastasis after almost 16 years. Like you, I had a lot of fluid with almost three litres drained on more than one occasion. Ultimately they inserted a PleurX Catheter which allowed homecare to drain my lung twice a week. The fluid eventually reduced and I have been without the catheter since July.
I suspect the shortness of breath is from the lung infection at this point. In my case, while I had coughing and lung irritation after the thoracentesis, I did have relief from the SOB afterwards. However, the chest cavity quickly filled up again leading to increasing SOB so the relief was short lived. With regular draining I had much less SOB.
While I did not recognize it at the time, in July I had an infection. Icouldn't understand why my SOB had increased while the amount of fluid had gone down. Eventually, after experiencing fever spikes, we figured out what was going on. Antibiotics took care of the infection (it took a couple of tries to find the right one) and my SOB is almost completely gone. I think there is some residual damage to my lung so I am not sure if it will go completely.
I hope this is helpful. Please feel free to send me a PM if you would like to ask more questions.
Pat
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hi Pat
Many thanks for your reply. I really hope that with clearing the infection my sob will improve. I have also had the talc reatment and pray it will work and the fluid wont come back.
I need to get better to start treatment and staying in hospital with no certain plans is unbearable. I just wish this was a bad dream
Hope you doing ok with treatment and managing to keep the stupid ca stable... Take care x
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hi everyone
I was diagnosed with lung mets today. Have had tight chest, a hard cough and shortness of breath... no PEvtho. Iwill find out treatment and prognosis next week. I'm getting into the community to see what i might learn. I guess we can support each other..
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Emily, we all wish you weren't here, but as a relative newcomer myself, I can't say enough about the unconditional support and great advice you will find here.
Like you, I had tight chest and constant cough for months, initially dx as allergies, asthma, etc. Only after I fired my primary care provider and insisted on a CT did I get proper diagnosis. I'm on letrozole and Ibrance and while my 1st scan had mixed results for bone and other, my lung tumors were smaller. Within days of starting letrozole I felt better - cough was gone, breathing easier, and I could start exercising again.
Good luck next week and know that there is an entire community here for you.
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hi Jaylea. Thanks for replying. It's taken ages to get a diagnosis. I've been unwell since June and have gone through asthma, flu, infection, etc and now definitely bc malignant and I'm in a bit ofa shock bubble. It's Friday and I getting calls from different people booking me in for urgent appointments next week.. this is before seeing the oncologist some time next week for a proper talk prognosis etc. it's a roller coaster.
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Hi Emily,
I understand what you are going through. I was diagnosed in January after many years of thinking I was "cancer free". It came as quite a shock.
In terms of prognosis, there are many lovely women on this site who have done well for quite some time after a lung mets diagnosis. I made the mistake of looking at Dr. Google who was not very encouraging! First the ladies gave me hope and encouragement and then my MO indicated I should do well for quite a while - all good news. Now, I am feeling good, no cough, no shortness of breath and I'm working full time.
I hope your meeting with your oncologist goes well. Sending positive thoughts your way.
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Hi Emily, I was diagnosed with lung Mets two years ago and am doing well. It is very overwhelming and traumatic when first diagnosed with Mets. I was a mess for quite awhile. I just wanted to let you know that you can do well after being diagnosed with lung Mets.
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single mom, what treatment are you on?
Ziz
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Ziz, I am on Letrazole and Ibrance. I see you are on Ibrance also. I hope you are doing well! It looks like this has been your first line of tx since the Mets diagnosis.
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ooops, ibrance, celosa and navelbine have failed me. I’m now on abraxane and gemzar. Scans on Monday.
I have to update my profile.
Zi
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Ziz, I hope this current treatment does what it needs to and that your scans go well. Please let us know.
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Hola chicas;
I hope we are all doing okay, with good scans results, mild SE from the treatment.
My scans show stable disease specially in my liver, some lesions are smaller. in my lung there some improvements as well, still some liquid but very little. The plan is to continue with abraxane and gemzar. The odd thing is my CA15 keeps going up, it never really went back to normal nor close to normal.MO doesn't understand either but doesn't seem concerned as all other number are good and the scans show stable.
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Hola Ziz, scans count! TMs I think are used to avoid scans all the time, and mine while responsive just kept jumping up when I first went on Faslodex and Ibrance, took 7 cycles for them to start coming down. But my last scan showed improvement so I'm good until December on scans. I think that "tumor flare" actually exists which can cause a rise in tumor markers just due to the amount of dying cells when a regime starts working.
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Thanks Cive, it’s good to know
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