mets to lung
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hi katie
Talk over with gp
Perhaps ask for referral to another specialist for second opinion
All best B
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I haven't posted much here but I do have lung mets that are active but stable. I'm going on my first vacation, flying, since my DX. Sometimes I have SOB but mainly when I climb stairs, etc. Has anyone here taken a long flight,8 hours, and experienced problems breathing or pulmonary embolism? should I wear compression socks?
Just curious, thanks.
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I’ve been advised on long flights to wear compression hose and to get up and move around. If possible, do some seating exercises. In today’s environment you may have to explain to the flight attendants that you need to stand and move about every hour. Are you on any blood thinners?0
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I am not on blood thinners, in fact I just had a VQ last week that was negative. I'm not too worried but my kids worry.💞
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Grannax, I'll be curious to know if you hear any other tips, as I'm flying to Europe this Summer. Like you, lung mets are stable and I''m SOB on occasion. My MO says it's from the meds more than the mets, but I'm not convinced as I was SOB before I was dx.
Regarding wearing a sleeve, is the rule the same that however long the flight is, that's how long you wear the sleeve before and after the flight? So a 10 hour flight is 30 hours of wearing the sleeve?
MaxOtto, good point giving the flight attendants a heads up.
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I am waiting here for follow up of multiple bilateral lung nodules which they have found on my recent pet/ct.
I want to ask a question from all of you.In how much time lung mets causes symptoms.Because it is already a year since they found multiple(numerous) ground glass nodules in both lungs.
They were all under 1 cm and were nodular ground glass opacities that they had found about a year ago on pet/ct.Not able to biopsy because of size.
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The Interventional Radiologist was able to biopsy 1 of the multiple sites I had...it was only 7 mm, too confirm diagnosis.
I had no symptoms, found accidentally looking for implant infection. I have asthma and maybe just a little more wheezy.
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Thnq beatmom but mine are all under 7mm and also ground glass appearance.Biopsy Success rates for ground glass nodules are fairly low i have read somewhere.
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Yes, it was a difficult biopsy technically
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Jaylea My doc said to wear compression socks but not to worry about SOB if it's similar to what I 've been having.💞
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Thanks, Grannax.
Siddhivinayak, I'm not familiar with ground glass nodules, but certainly the small size would make biopsy a challenge, but I think doable. As to symptoms, I developed a light cough, followed a couple of months later by shortness of breath (SOB), tightness in chest and constant heartburn. It took 6 months from first onset to finally get a pulmonary function test that indicated my lungs were operating at 46%. Even at that my primary doctor wouldn't refer me to pulmonology. I fired him, got another doctor, immediately referred to pulmonology and one CT later here I am.
Good luck and let us know how you're doing.
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Had some progression in my lungs on my last scan. One tumor grew and there were more nodules. In the CT scan report, the report writer also noted: "Redemonstrated right lower lobe scarring, traction bronchiectasis and atelectasis." Strange that he/she said "redemonstrated" when none of my previous reports mentions traction bronchiectasis or atelectasis. Does anyone else have these things? Has anyone else gone to see a lung specialist? Years ago, I asked my MO if I should see a lung specialists but she said they wouldn't be able to tell me anything helpful.
Hugs, Susan
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Thnq jaylea.The follow up PET/CT scan is coming on May 14.Everything will be clear after that.I am yet to find anyone who have ground glass nodules and have breast cancer mets to lungs.
On google i have read that it is unusual to get ground glass lung mets from breast cancer.
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I have/had ground glass nodules amid others in my lungs. One solid nodule was biopsied and shown to be metastatic BC in 2011. The areas are still visible on scans, but were subdued early in treatment with Faslodex and have been metabolically inactive for many years.
Tina
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Tina I love reading that! Since 2011!!!
So they are metabolically inactive, but does that mean on a CT they are still visible? Did they change much in size???You've been on Faslodex the entire time?
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Ashlyn,
1. Yes. But they are now mere dead shells of their former selves.
2. Yes, most shrank somewhat. Some vanished.
3. Yes.
I feel very, very lucky!
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Tina2 i have read that ground glass nodules are almost impossible to be associated with lung mets from breast cancer.Ground glass opacities are associated with lymphangitic lung mets but ground glass nodules are found in case of lung cancer mets.
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Tina that is so amazing. Gives us hope
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Siddhivinayak,
You are mistaken. I suggest you not trust Dr. Google so unquestionably. Why don't you discuss the matter with an oncologist?
Tina
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Hmm you are right Tina.My Follow up PET/CT is coming on 14th May.Everything will be cleared after that.I will discuss with my PET/CT report.
Thank you
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Susan, sorry to hear of your progression. I'm not familiar with your dx, but suggest you press your MO to get answers: One, to completely understand the results and the use of the word "redemonstrated" and, Two, if he/she is reviewing your results with a lung specialist or tumor board. Good luck and keep us posted on your progress.
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I have a “sleeper” left that that the Radiologist reads everytime as ground glass appearance. It has not changed since I finished Taxotere over 3 years ago. I’m still on H&P. My Onco said he feels like some of the younger Radiologist are over reading and possibly using some incorrect language. He is not concerned that it is a different type of lung met in my case
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Hello All,
I am a newbie with mets to lungs and interlobular and hilar lymph nodes. I will be starting treatment withFaslodex on Monday and Ibrance too in July. I am so happy to hear that Tina has been on Faslodex since 2011! Thanks for giving us hope. It means a lot.
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Welcome, MyMiracle13. This is a great forum with warm welcoming ladies happy to share their experiences. Another good one is the Ibrance forum. Best of luck to you.
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Thanks for the reply Jaylea. How often do you have blood tests to monitor your WBC counts when on Ibrance?
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MyMiracle13, when I first started I think I was doing labs every 2 weeks, maybe even weekly? Funny how things blur. But once things settled down, within a couple of months, I'm down to labs once a month, right at the end of my 21 day cycle. I've got it timed that the same labs clear me for my Zometa infusion, so only one stick a month. I can only use one arm and the poor veins were shredded from original chemo, so labs are always a challenge. Take care, honey.
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I have looked at a couple other cancer sites and this is the first one I found where there's much conversation about lung Mets. I was diagnosed stage 4 from the start with lung Mets to my left lung in early February 2018. I have 10 to 20 nodes in my left lung the largest being 9mm which was biopsied. I am er, pr+, her2- and on letrozole and ibrance. I just finished my third cycle and I've had issues after the second and third Cycles with low neutrophils. I had to take a second week off. When I start back up I will be starting on a lower dose, 100 mg. I will have my first scan after starting medication next Tuesday. I'm so frightened and depressed by this disease. All I can think about is how much time do I have. When I go online and read I see where women who have bone Mets can live several years but the prognosis for anyone with cancer in their soft tissues is not good. Is there anyone who's lived several years with it in their lung?
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Hi LNF,
I just wanted to let you know that I was diagnosed 9/2015 with lung Mets and I do know other women that have posted who were diagnosed much earlier than that with lung Mets!! There are definitely people who have lived a long time with lung Mets!
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Lnf, we understand how scary it is. You will meet many people here who have had great success with their treatments and managed to live many years. We're glad you found us, and you'll see you are not alone.
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LNF: I feel ya! I felt the exact same back in the Fall when I joined the stage IV forums but you’ll see there are several ladies doing well. I know off hand of 2-3 women who had lung mets from the start who have been facing it more than 5+ years.
It’s so scary. It took me about 6 months after my mets DX not to always be thinking about my inevitable death. Sending hugs and good thoughts for your scan results. (Mine showed improvement after 3 months on the same combo) Xo
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