Life on aromasin
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kayb- let me know what you think about thr DIM? On some sites it says check with doc first, but so may vits and supple say that. May have to try this if i fail on aromasin!
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OK just so u know It's 1am and I woke up.---ugh---So I'll let it go a little whike and take more meds. I feel so tired too. GRRRRRRRRRRRR
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Hello ladies,
Just came off my 6 week break from arimidex. I took my first aromisin tonight. I could not tolerate that arimidex. Was on it for 18 months. It was worse than chemo and radiation combined, for me. My whole body feels so much better. We'll see how it goes.
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srbl62-I took my first aromasin tonight too. Lets keep eachother posted on how we are tolerating it? Arimidex nearly crippled me, femara caused major depression & pain, same as tamox. Agreed that these AI's have been worse than chemo. Hoping 4th times a charm! Trying to stay positive. Good luck to you.
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23 days - still no SEs.........
have put on about 5lbs - but attribute that to no gym time after LX.......tomorrow Im officially back to my workout routine. Cant wait!
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I sure hope all of u do well on this one--keep everyone posted.
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I went from Arimidex to Aromasin in April so I've been on Aromasin for 3 months now, although I am having joint/bone issues and its worse in the morning and I loosen up as the day goes on. I now have started with numbness in my fingers and it appears to be getting worse, I struggle to do my hair in the a.m. It is soooo annoying
Ginger
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I noticed numbness in my toes about two months after starting Aromasin. I was afraid of neuropathy. My PCP sent me for vitamin d and folate blood tests. I'm waiting for the results, but I hope that is all it is. Hard to believe that with D3 supplements I could still be low.
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I hope that's what it is---I take script vitamins---what's that all about --I always thought what is sold is over the counter was good enough-This to me gets more complicated as it goes on bubbe.
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I'm at month 3.
I am taking 2400mg of fish oil daily which I believe is reducing joint pain. I take it at night and sometimes have a hard time getting to sleep. I feel fatigue during the day, occasional hot flash, dizziness and fatigue. Oh, did I say fatigue two times. Indeed.
HOWEVER, compared to Arimidex, for me this is a walk in the park -- thank goodness.
Hugs,
Kat
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Kat I'm glad this one is easier on u but u forgot to say u do tend to repeat u'rself LOL
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Thanks camillegal --- I have been diagnosed with having severe chemo brain that has left me unable to work and on SSDI. Brain injuries are funny things, they can make you repeat yourself, again, and again and again.
Hugs
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Kat I'm sorry--I have it too, and I stopped working for one of those reasons--so I know how it is really- but I'm so still puzzled by it--why does it do so much to our brains--I'm in a fog most of the time. And not everyone understands it-I don't blame them--I've said before My sister stage IV and I have the strangest converstions neither of us remembers anything.
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I was great on Aromasin after having terrible side affects on Arimidex. April I started Aromasin and felt great until month 3 and BOOM overnight developed carpel tunnel in both Hands and arms numbness and tingling, then inconsinence (what is up with that?) and losing my concentration and vision is blurry at times, I'm only 54 geesh. Was a young 54 and now it's like I'm 80. o my Onc took me off this now for a month, all symptoms improved 90%. Now what I'm running out of options...
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I had pain in my toes within a few months of starting Aromasin. At first I thought it was from wearing high heels at my grandson's college graduation. But even after quitting Aromasin I still have it -off and on--it is not numbness, it is pain in all the toes. I'm afraid it may be permanent.
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Well, clearly I am going to have to discuss with my ONC, because I am at the 3 month mark on Aromasin after switching from Aramidex and the hand issues are just getting worse. Also, the bones in my feet are starting to bother me now too. I can't live 5 years with these issues. Not sure whats next, I'm hoping for another break
My B.S. who I saw the other day said there are others talk to ONC and switch to another. He hears these same side effect issues from many women on AI's.
Ginger
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The way I see it now is, life spam on Al is five years. I did 18 months on Arimidex then a 6 week break. I will try Aromasin to see how this one works. If I have to take another break than so be it. I don't think a few months out of 5 years will make or break it, as long as I keep fighting this disease with every bone in my body.
Be Blessed Ladies
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Okay on Aromasin since July 16th. Starting with the hand joint pain, calf muscle aches, fingers swelling and definitely low spirits.
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I started Aromasin Monday. Starting out every other night to see if I can tolerate it better with the slow start. MO said it was ok. Have any of you ladies started out like this?
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survivornot I didn't start like that. I take it with food in am
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I am dealing with the sleep issues and have been having some low spirits. Don't know if that is from the Aramasin or not - just know I don't feel great. I did have some pretty significant joint pain but that has eased off quite a bit. If I could sleep, I think I would be okay for another four and a half years.
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I did not, I take it after dinner. I know it shouldnt be, but that is my biggest meal of the day. Maybe the more food the less my stomach will be upset. Plus it makes me sleepy and if I hold out a few hours it gives me a better chance of getting a good nights sleep.
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I've found myself low as well. I spoke to my Onc. about it, and what he told me is it's because all the estrogen is being taken out of our bodies. I'm on a low dose anti depressive drug now. When I said something about being glad to go off the stuff when I am able to get off the Aromasin he told me he will need to slowly wean me off the stuff. BC the disease that just keeps on giving.
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Kira - What anti-depressant did he put you on? Or did you have to go to a different specialist? My onc. is saying I may need the same but I am taking a wait and see approach at the moment.
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mybee333, I'm on Escitalopram generic for Lexapro. My GP was the one who put me on it with my Onc's suggestion.
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I started with every other day in the morning (for 2 weeks) then switched to every day. Everything went ok for about 2 months and then all the SEs kicked in.
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3 weeks and counting...........still no SEs.........
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Yay, Shayne! You go girl!
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Shayne keep up the good work.....
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I asked my Doctor today if I could be depressed eventhough I'm taking Prozac -- she said yes, but thought I was low and lethargic due to my meds. I've had fatigue all along but maybe this is really starting to kick in as THE side effect for me on Aromisin.
I have a friend who says if she were in our shoes, she'd take the drugs until they really start to debilitate, then take a break until she felt better, then go back on them again. I like that idea.
Hugs
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