Life on aromasin
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Kira, congrats!!!!!!! LOVE hearing that great news, just passes on all the hope.. Ginger
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Well, I took myself off the aromasin on Sat morning after my husband and son both voiced their concerns about my personality change and asked me to stop. I was feeling pretty detached from myself but thought I was hiding that just fine. Not so much. I don't know if it was on top of the insomnia and anxiety the aromasin caused, or because of it, but after 72 hrs off of it, I feel like I am back in my own body. I also broke down and took .5mg of xanax and finally slept but I don't want to start down that path of taking more Rx to counteract the SEs of the aromasin. I have a call into the Onc's office and will await his call this afternoon to see if I should try armrimidex or ? I have scoured the web to see if I can find any reasons why I am having such a time of it, and I cannot, everybody's different . I've gotten pretty skinny since this cancer bidness started and I wonder if my lack of body fat has anything to do with this abrupt reaction. This is so frustrating. Stupid cancer.
Camillegal, I am keeping you in my prayers and hoping things are improving with you. Kira, so glad to hear this stuff is being nice to you.
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phxsunshine, So sorry you're having such a bad reaction to it. What you're describing was what I felt while in Femara though that wasn't my final straw, but I sure had those symptoms as well.
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Camilegal Hope you are feeling better today.
Kira1234 Did your doctors explain any difference in aromasin and femara that would cause you to react differently? My doctor said I could change but I am assuming I would respond the same way with all of them. I was thinking it was related to the lack of estrogen.
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Phx Good u'r talking to u'r Drs. about this--I don't know we are all so different--but I feel miserable and think it's in my mind--then other things happen and I blame the aromasin and end up in hospitals and it's not that --well all of that--and I'm not feeling much better yet but that will take a couple of weeks with more new meds OOHH--I started laughing so hard as the dr. is expkaining this one is on an empty stomach, this one take with food, this one tak etc-(it's going to say one the bottle) but I asked do u really think I'm paying any attention to u--I alread tak 18 meds a day and I can only remember this one--so please save u'r time for someone who wants to listen. as I'm laughing my head off (figuretively)
Anyway when I compare what we all take it seems like most of us who have goofy SE have them on anything they take--so again a mystery med.
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Thanks gals, camillegal, you make me laugh. I forgot to say that my short term memory shut off too. Seriously, like on/off BAM. I'd start to worry about it, but then I'd forget about it, and everything else for that matter. I knew enough not to drive. That stuff really screwed with my head. Too bad, because the physical SEs were tolerable. I'm sorry you are feeling so poorly, I'm sending you a big hug on the wind and hope it wraps you up in love for, even, just a minute. I think everybody else joins me in that. You hang tough and keep that laughter going (even if it is in your head).0
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PHX oh that's another thing LOL--my sister, cousin and I (all having stage IV) see each other alot and everyone laughs at our conversations obviously we keep on talking about the same thing and we don't remember it.
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What, you all 3 have stage lV??? How is that fair??! Criminitley. I am the first person in my family to get any kind of cancer, but it's only stage 1 and I hope it stays that way. My love and prayers to you and your family - and keep laughing.
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fondak,
My Dr. seemed to feel is was more different than the others I might react to.Remember my reaction was an allergic reaction he was concerned with, I broke out with eczema over my body, and I know it was eczema because it was tested. That being said he felt the most different and gave me a choice.
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sunshine, I am not stage 1v. I am stage 1a. I hope to stay that way!
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PHX we are a goofy fmily----at Christmas last ur we all gave each other the same gift a scarf wrap for our now chests--(by coincidence) we were laghing so hard cuz our fashion has changed to a lot of scarves hanging instead of jewelry. It's awful bit we all understand each other so that's good for us--Oh and one of my brothers just had an operation to remove his thyroid--cancer--so we all blame each other for carrying it. LOL
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kira1234 Oh, that's right. I forgot you were allergic.
This is so confusing to me. I keep thinking.....I'm going to give something else a try and then I go back to......I don't want to switch around if nothing is going to be better.
I keep hoping I'm going to adjust. I read an article that said for some it takes 6 months to 2 years. What a wide range and what a long time! My doctor told me to give it 6 weeks.
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I was away a few days and did some walking around and let me tell you my legs were solo sore and if I sat down and got up it was horrible. I am off the aromasin now for 3 weeks and in a week or so my onco wants me to resume it and see what happens. My shoulder pain has gone, leg pains decreased overall but worse when getting up. I have been doing some reading and am going to change my diet and see if it helps.
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I was away a few days and did some walking around and let me tell you my legs were solo sore and if I sat down and got up it was horrible. I am off the aromasin now for 3 weeks and in a week or so my onco wants me to resume it and see what happens. My shoulder pain has gone, leg pains decreased overall but worse when getting up. I have been doing some reading and am going to change my diet and see if it helps.
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Rayofsun: What changes are you making to your diet? I need something to help also. As it i now, it's very painful to get going and when I stop to rest, the pain is like I never started moving in the first place.
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OK now here's my question---everyone says walk for excercise and I agree, but it hurts so bad and when I start walking a few minutes I feel like it's an hr. and my back goes out on me too--I really don't know where it goes, but I'm sure it's having a better time than me.---And then my legs swell more and hurt like hell--so how does everyone excercise?
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Day 10 - I thought i had no SEs.....but have noticed some gastro issues, but attributed that to my new diet. My anxiety level has been up a bit the last few days too, but attributed that to cancer, lol. hmmm......
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kira, I hope you stay stage 1 too - or, better, stage "nothing and fuggedaboudit." That's what I wish for all of us. I meant camillegal and her sis and cousin, I think the posts might have lagged there, sorry for the confusion. camillegal, I'm sorry to hear about your brother too. My late brother's girlfriend's sister and brother were both diagnosed within days of each other this Spring and I could not believe it. She's trying to help the both of them as they take the journey.0
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U know cancer is cancer whatever stage and I think it mentally challenges us loads--and we don't know what makes us feel not right--It's confusing to me anyway.
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fondak - I was on Femara last year and had bad knee/joint pain. It was the only SE but very intense. After chemo/rad I went on Aromasin. Doctor said it was supposed to gentler on the joints but did not expound. I have been on Aromasin since April1 and have not noticed any SE's. Don't know why it's different for different people but changing is worth a try if you are miserable on the current meds.
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I think I need to add fatigue to the list - but keep thinking its most likely because i wake up at 4am every morning and dont go back to sleep......
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My problem is, I am so tired I go to sleep around 9 and then wake up at 11 (to pee) again at 2 (same reason) and by 4 I am so awake I just turn on the TV and do some exercises until 5 or so.'
The following night it's the same thing - so tired I can't stay awake after 9.
Any suggestions?
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Ive had insomnia since my 20s. The thing is you need to reboot - staying up as late as possible one night to reset your clock... Once in a blue moon I sleep 7hrs, but thats the tops. Need to find a project that wont wake the family at 4am, but I have been enjoying some amazing arizona sunrises!
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Re-booting sounds like a plan---
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I read that decreasing refined sugars may help the leg pain decrease. Either way I was always active but carried extra weight. I know loosing wOuld be better for my body but it isn't so easy. I am just going to try and eat better.
I had been off the aromasin 3 weeks and am feeling better, shoulder pain seems gone and leg pain less. Now to figure out what to do next.0 -
Rayofsun---are u thinking about being off of everything or going to something else.?
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May be prescribed Aromasin tomorrow at MO visit. Could not tolerate Tamox, Arimidex or Femera. Running out of choices. Any of you ladies start Aromasin everyother day to lessen SE's? Any other tricks for me so I can take an AI with success? Considering not even taking one!
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If you have time......scan thru the previous pages for tips. Two that ive learned here is Vit D, and a gluten free diet. If I have any SEs....I will be seeing my naturopath for diet and supplement help.
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survivornotstatistic ~ I'm in your boat. Could not tolerate Tamox, Femara and Aromasin. My Onc took me off the Aromasin yesterday and I'll see him in a month to see what, if any, my options are at this point. And, like Shayne, I have been working with a Naturopathic Oncologist to help mitigate the SEs, but my body has revolted at some point with each of these drugs. I'll let you know what I find out. Good luck to you.
PS, I married an Iowgian - from a small town NE of Omaha - 32 yrs next month!
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phxsunshine - please keep us posted.....so far have v minimal SEs.....not even sure they are.....but gain so much benefit reading others experience. Good luck - glad u are working with ND, as mine told me there are many ways to keep estrogen levels down with food and supplements.
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