Life on aromasin
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Halt, tendon problems? I think you just diagnosed me! I have this new pain in one knee. Something I've never felt before. Even lying down I feel a burning, in the knee. Of course it never occurred tome to call the onco. but tendon problems, that just sounds right. It doesn't feel like the joint, it's something else.
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I've always beena ble to tell well a woman goes through menopause. She ages overnight. Her skin loses it's elasticity.
That's what the AI's have done to me. Menopause,natural menopause did a bit of it, but I think the AI's really polished me off.Estrogen is what keeps us young.
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muscle pain is listed in the SEs for Aromasin.
Im thinking of writing the Onc and her NP a letter regarding how I was treated. I have decided not to return, and do follow up and monitoring with a local doc.
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I definitely have tendon problems, muscle, joints, feels like bone pain sometimes, fatigue, emotional swings, insomnia...... But it definitely effects my tendons!
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Ive noticed a lot of muscle pain.....its hard to deferentiate between muscle and join pain sometimes....it all aches. Im a guitar player.....so I notice it alot in my hands/wrists.
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Shayne - now way I could play a guitar now - typing is causing hand spasms and cramps, moving up through my lower arm to my elbow actually.
It's really hard to diffentiate between, maybe because it causes muscle, joint, bone and tendon pain - can we change this to GRRRRRRR.... I hate Aromatase Inhibitors, or as Lago says, those estroge sucking drugs (ESD's).
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Is the tendon problem permanent? Im really hurting.
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It's funny, the arrimidex killed my hands. I have almost no hand pain on aromasin. But there is something going on with my knee. In the back of the left knee, in the center, even in bed, there is a burning. sometimes it radiates down to the ankle and up to the hip. It's really a new feeling. A new ache, just when I thought I'd had them all. I guess I'll have to call the onco. It's hard to walk. It's hard to sleep.
I'm taking a class on the Enlightenment and Rousseau's book, Emile rants about drs. How they kill you with their cures.
I can relate so much! I know in his day they bled people and used leeches and did all kinds of horrible things, but I keep thinking that one or two hundred years from now they will look back at this time as the dark ages too.
Imagine! They used to give sick people poison! Staying well just shouldn't hurt this much!
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I think they are still giving people poison - chemo?
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Shayne LOL it's true--it is poison hahaha--When my dad was a kid (about 10) he used to leech people for a couple of pennies a person--he's catch the leeches and people would actually call him--This was in Italy--he thought nothing of it but said people got better ?????????????
Timbuktu call u'r onc--it's probably nothing to worry about but they should know anyway--there are so many side effects no one can get it if they didn't have all this crap.
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Timbuktu - you should talk to your doctor about the pain, just to be sure. The tendonitis in my hands just disappeared one day, the other places that I feel that I have tendonitis haven't been so lucky, but it seems to come and go - it'll last for a few weeks, or even months, then stop hurting there and find a new place to light for a while. Right now my knees are killing me, not sure why, but can hardly walk, and have a lot of trouble on the stairs. Good luck
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Shayne, that's what I meant, chemo is poison. One day it will seem absurd that they gave us poison to get rid of the cancer. One day soon, I hope!
Yes, I suppose I'll have to call the doctor. Oh, how I hate to call drs.!
Galad to hear that tendon pain can go away at times.
I think the weather may have something to do with all of the pains. I have a fried who really got scared last week when her knees just gave out. She'd had both replaced but had a very long day and just couldn't walk. She iced them and that helped. It helped me a bit too. Maybe it will help all of us? lol
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Timbuktu-----PAIN MEDS----
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I'm going to take some aspirin right now! Thanks for reminding me. ;-)
I try to avoid taking them because my liver is still not back to normal.
The more we take the harder it is on the liver. But I have to get some sleep!
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Timbuktu I hope u wake up this morning feeling better but call the Onc. today. and let us know.
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Timbuktu - I'm with Camille-gal - pain meds. I take oxycodone to help manage the AI pain, and residual pain issues from treatment! It's hard to figure out what causes what pain issues!
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Linda u know what's so funny (to me)--is when something totally different (some kind of infection) enters u'r body u don't know right away and by he ime u o to the dr. it's usually why did u wait this long--wait what--I feel 100 pains a day all over--I'd come in almost everyday if I acted on it. So u don't always know what's going on. ever. LOL
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Camillegal - You are so right. Last month I had a fever off and on for a few days. No other symptoms. Thought maybe the flu bug. I had a flu shot so figured just light flu. Five days later I finally went to doc to discover it was a bladder infection. By that time I was in bed with a 102.5 fever! Why did I wait? How was I to know this was time to get to the doctor as opposed to the usual 'give a few days'?
Right now I'm having some rib pain and of course think mets. Can't remember an injury but maybe I bumped and don't remember? Who knows? So after two sleepness nights, I decided to move my onc appt up a few weeks. By then the pain will either be gone or something to investigate. Don't want to run to the doctor for a bruise but don't want to wait too long. Finally had a talk with myself and decided a compromise would make me happy.
Oh well. What a conundrum.
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Ohio that's the word I could not think of conundrum (sp) hahaha OMG that happened to me 2x so far with a bladder infection except I didn't have a fever, I had pain from my back to around my groin I never had symtoms like that but I had pains thru my whole body LOL--Now my back always hurts so I waited a long time and I hear this can go into u'r kidney and u already hae a bad kidney--so I actually started laughing cuz it was so stupid to me. I saidu want me here eceryday???? And a couple of times I ended up in the hospital for a week at a time ????? U can't win with this beast of a disease. U hate to feel like a hypochondriac but u never know when something hurts for a disease, infection, or SE we're not Drs. no matter how much u read or think u know, and I admit I don't know much.LOL
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I had a massage yesterday, it felt so great...but I am sore and achey in back ang legs and hips, take Advil every night per doctor's advice. I have slept through night better of late.
Feeling gloomy about everything- and the sweater I was timidly knotting totally screwed up. I'm retiring!! I can't knit supposedly for relaxation and get stressed from it. Grrrr.0 -
A massage does sound great and if I wasn't angry at my husband I would ask for one!
As for the gloom...the sun went down for me on Sunday night and still has risen. There is always a reason to be down but this felt different. One moment things were ok, the next I was in the dumps and I still haven't come out. So hard to know what is caused by the pills and what is caused by life. But things suddenly look different. I'm just hoping that the dawn will come up as suddenly as the sun set. Very strange.
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Be careful of massage if you have LE, or are at risk for it. Deep tissue and pressure point massage in the area where you can develop LE, can actually trigger it. So have your massage therapist go easy there! Or try Thai massage!
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I agree - the gloomies are here full force. I'm on Paxil for heaven's sake. It was my happy pill in Nov-Dec-Jan and now I am gloomy, weepy, and can't shake away the gloomy feeling. Could be the gray winter skies - but yesterday was sunny. Could be I'm just done with winter - but that is always my favorite season. Could be I need a vacation but I just had two in Dec. Could be I just a pep talk with myself but I already tried that.
I am NOT going to the doc for another pill - at least until my scheduled appointment. Hmm.... thinking I have chocolate in the house, maybe that is the solution.
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Diane, when in doubt eat chocolate, always!
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Thanks LindaKR for the information regarding massages - They are my favorite thing and have been looking forward to having one when I can afford it again (This year has been a financial disaster). I feel like I've had one more joy dashed (not your fault it would be worse if I ended up with LE). Probably goes with my doom and gloom mood today. Like many of you I woke this morning with a big black cloud over my head and in tears before I could walk from the bed to my chair. My back hurts so bad I can't straighten up (have a referral to pain clinic next week) and my head feels like it's going to explode (is it brain cancer?) Some days antidepresents just aren't enough and I try to hide it so I don't bring my family down.
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oh ohio! I'm with you! I just treated myself to a buffet lunch and bought punchkies for a treat. I know thats not the way you spell them. They are polish donuts sold before lent. I'm Jewish myself but i'm an equal opportunity eater!
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Remember Cottage cheese solves nothing, chocolate solves everything.
Timbuktu--Oh I forgot about the ponskis (sP) There like biger bismarks with different fillings too. Oh Yea Fat Tuesday--Yummy.
I'm sorry everyone is down it could be seasonal too now that all this stuff is going in our bodies.
And as good as a massage feels u have to tell the person u've dealt with cancer most won't give u one unlss they are specially trained in it. I've tried, there are not the regular ones that are trained in doing it for cancer. What Lynda said is good, it done differntly. We are of a different species now LOL So just be causious (sp).
My D is gone I think it stopped now I'm just weaky feeling. It's gloomy here too so I watch my scary movies--that cheers me up hahaha
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Im a massage therapist and have worked on clients post cancer. As long as you are doing light massage towards the heart.....it shouldnt be a problem. If you can find someone who is trained in lymphatic massage, that would be ideal.
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Weaky feeling. Yes. That's it. I got a good night's sleep but Im still exhausted.
Even the punchkies and coffee didn't help. Maybe it's the weather since we're all feeling it.
I don't want to call the dr. He might prescribe ANOTHER pill. Or ANOTHER test. Maybe it will
go away by itself, when the sun comes out. The knee is finally better. It took 2 weeks!
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I went to work out this morning and could hardly move - it hurts. Then I start to feel so bad about not feeling myself. The sun is out and its beautiful, but cold. I made appt with ND and MD to order heart testing and thyroid. Got a good nights sleep too.....but nothing seems to be helping today, not even chocolate.
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