Bone Mets Thread
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Dee - Love to read very, very stable! and good to hear no mets in hips!
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Wonderful news, Dee! I love "very, very stable!"
MomATT, did you go to that party?
Boy, it hardly seems like 10 days, Annie, since your daughter was headed off to the Cayman Islands. I know time goes fast -- especially as we get older -- but it seems to intensify with mbc -- maybe b'cuz we're always looking ahead to our next infusion, our next shots or next scan? I don't know. It just seems to go faster than ever now.
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Dee, WOOHOO for stable. It was nice that you got your results so quickly even if it was for the convenience of the RO rather than you.
Annie, I am with Deanna. It seems like your daughter was just getting ready to leave for vacation. Did she have a wonderful time? Cayman Islands sound very appealing to me. I can imagine sitting on the beautiful beach.
Linda, I laughed when I read your account of the elevator incident, but I am sure there was nothing funny about it. I would have been terrified. I am sleeping on a chair that pulls out to make a bed during this hospital time. Towards the end of dh's last visit, I slept on a cot. The cot was less comfortable than the current gadget. My son said he slept on these pullouts when his children were born in this hospital. He did not find it comfortable. I can understand why since he is a foot taller than I am and has much broader shoulders.
Mom, Tell us all about the party. We are all anxious to hear. Was it comfortable for you to be there? Was the music good?
Milaandra, I do not follow a formal diet plan, but my breast surgeon did recommend a lower glycemic diet. That would mean limiting carbohydrates, of course. She feels that breast cancer feeds on many of the same foods that contribute to diabetes and cause inflammation. She recommended logging intake online so I could see how many carbs I consume. She practices it herself. I have reduced my intake, but I have to admit that I give in to temptation sometimes.
Waving to you,mPatty. I hope you are okay.
Cristina, How are you doing?
Best wishes for a good night, everyone.
Lynne
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Hello to all,
I'm so tired, a long day at the cancer center. I had to leave here just after 8 this morning and got home around 3:30. Is it just me or does that dye injection make you feel odd? I had the injection at 10:30 and the bone scan started at 12:30. It was exactly an hour long and the last part involved keeping my arms behind my head for 20 mins. My fingers went numb and my shoulders really hurt!
Dee, I'm so happy to hear very, very stable! I would love to hear those same words. The anxiety has been building since last Monday's CT scan. I'm so happy for you, hope you had fun playing in the dirt.
Deanna and Lynne, yes the 10 days went by so quickly! She left at 3 am on the 31st of January and she got back here last night around 7:30. She had an awesome time, jet skiing, snorkeling, swimming with the sting rays, she went to a turtle pond and I'm so jealous she saw dolphins! She's beautifully tanned and extremely happy she had such an amazing vacation. She said the beaches were amazing and the sunsets were a must see! Lots of really nice pictures. She's back to work this evening and not happy about the cold and snow.
My brain is mush right now, and I'm feeling achy all over. Back on Friday for my infusion and results.
Hugs to all of you, Annie
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Annie, I always feel "funny" after my bone scans & am very tired. I always assumed it was from the long day & the ferry etc, but maybe there's something about the contrast & the scan that causes it. I wouldn't be happy keeping my arms up like that, luckily I am able to keep them down by my sides, but they always tape my feet together in a weird way that makes me want to move them. Hope you're feeling better tomorrow. Good thoughts from me for Friday.
Thanks everyone for your support. DH & I are quietly celebrating "very, very stable"
Cheers, Dee
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Dee-love hearing the word stable Yes!!! And celebrate away!!!!
Annie-hoping your results are good and in the meantime, try to relax from the stress of today.
Babs
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Ok I'll go straight to it. I must say, was a very nice respectful environment.The music was on the soft side, even thou he had a Jamaican musician playing African drums Bob Marley style, I could like that! And food galore, did not eat. Anyway, he was so glad I showed up, he himself said it's good to see "his people" in a different environment. Microphone was passed around, some people gave strengthening words, some made us teary eyed, some made us laugh a bit. They wanna do it EVERY month. About 50 people I'd say. All ages, men and women. Some were like me, showing support, some were volunteers just to give support, husbands, daughters/mothers, my daughter would not hear of it. I don't blame her. It was his wife's birthday, and there he was. Well it's gonna cost him, i told him
- he laughed. Yes, it was good that I went, if nothing more than to show respect. Paid my dues! Thank you everybody!! Annie so happy for you DD IS home! Time did fly (for us). What a relief! Now the nail biting till you know all the results!
Today, I went with my other daughter for her mamo/MRI follow up. They were told to do it, from the age that the older sis got dx. That would be 25. So they started then, and unfortunately by some crazy fluke (according to RO), they found different things on the 2 girls that had to be biopsied, so we follow every 6 mos. This time was just a follow up, we got the results back, and it's all great. She is also feeling not well due to the dye for MRI, she's drinking a lot of water. She went straight to work, we did have to wait a couple of hrs to know the results, but we specially go to this place bcs they give us the results immediately and they are competent. Paying most of it out of pocked, helps! This is our luxury.
Dee great news.OH, very stable. Music!! Love snarky, why not?? We don't have to be nice alllllllll the time. And you are so right. Cannot understand how in this time and age they don't offer Pet/CT as a matter of fact, specially to Stage IV people. It's obviously not the same modality, it compliments one another. Yes, there is radiation, but my thinking always was, IT'S STAGE IV!! Really? I (we)prefer to know if something is there, and try to catch up to it, then BE safe. I hate when the government IS concerned with how WE choose to live our lives. An adult, is gonna make this decision. We could decide, if we want radiation, and if we wanna worry about the results. Another issue that THEY are concerned about! Re-MRIs/biopsies, too many positive/negatives. But if it saves ONE! and it's MY daughter, then....Sorry, but i'm very passionate about it, as you could see. (and of course that some cities might not have the expensive machines, THAT is another story!)
Thank you all for your support.
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Just checking in and want to say I am so happy to read stable DEE!! Made my morning! We are getting an arctic cold blast here -- not looking forward to it. Hugs to all.... XXXX
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Good morning ladies,
Dee- so glad to hear the words stable!! So happy for you and I hope you enjoyed your playing in the dirt!
Momall- Glad you went to the party even if it wasn't exactly your style. You should have eaten though! Free food!
Hi to everyone else and hoping for a pain free day!
Today, I am having a pain that feels like indigestion- you know the feeling you get when you swallow a pill and you still feel like it's there? I've been having that feeling in a painful way since 2 am on and off and the fentanyl isn't really helping. Not sure what to do. Really feeling defeated. I don't want to get up to go to work. I feel angry that my DH isn't working. It's really unfair that I have to work. I know he can't find work but this is getting ridiculous in my mind. I'm so frustrated with him. I posted with some online friends, and they don't know the whole story, but nobody gets it. Why do I am have to work when he's completely able bodied? The situation is just ridiculous. That's my vent for the day.
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Dee: such great news to hear stable. What a relief.
Cristina: I hope the pain went away. And I hope your husband finds something soon. You are under so much pressure from so many directions and seemingly carrying the load alone. I think that situation would be challenging even without MBC, but is so much more loaded because of it.
I saw my oncologist today and am having an infusion now. She called me the poster child for a great treatment response. Those words make me so happy! My tumor markers are great and my echocardiogram was normal, which with the herceptin was a big relief. I will have scans in the next couple weeks, but am hopeful for good results.What a difference from the fear and uncertainty of six months ago. So how will we celebrate? By getting a dog! Our son has been asking for a dog since he could talk. Now that I'm not working and I'm feeling well, there are no more excuses. More to follow once he arrives this weekend.
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Rachel, WOOHOO for the poster child of treatment. That is so encouraging. All signs look good. Do you know what kind of dog you will get? Your son will be so excited. Dogs are such great company. They are always eager to please and are never judgmental.
Cristina, I am sorry that you have so much stress in your life. Is your husband actively searching go a job? Since he is not working, is he able to help out around the house and with shopping, etc?
Lynne
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Rachel you're my poster Girl too!!
Lynn- Are you bracing for the cold weekend coming up ?
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WooHoo to being a poster child, Rachel! Can't wait to see your new dog!
Cristina, is your DH still doing real estate and/or looking for another job? Is the economy so bad where you live that he can't even find something P/T? I agree that being the sole wage earner when you're dealing with mbc is far from an ideal situation, and I'm sure it's contributing to much of your overall stress and discomfort. But not sure what can be done to light a fire under him. And I also agree with Lynn that if he's not working, he should be doing absolutely everything else there is to be done in your household -- childcare, shopping, you name it!
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Carol, Cold doesn't even begin to describe it. Brrrrrrrrrrrrrrrr. I will be dreaming of warm breezes and sunny beaches. Remind me again...why do we live in New England?
Lynne
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Rachel, that is such great news! The poster child for great response, I love it. Pics of the dog please....
Cristina, sorry you're having the stress of your hubby not finding work. Vent away! Hugs.
MomATT, so glad that you had a good time.
Everybody try to stay warm! We're having a monsoon here, but we need the rain after the last two years of drought so I won't complain.
Take care everyone, cheers dee
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Hi all! Been super busy at work and with cat rescues. I've just finished Page 392 and the thread is at 395. Will catch up this weekend. Sending hugs to all of you! Love the furbaby pictures. LindaE - reminds me of my huge tabby. Love the huge kitty and hubby in bed...so funny. And crockpot kitty (all three are lovely, but...that made me laugh)!
To help you all laugh a bit (I hope), one of the volunteers (Lia) foster failed with Stevie. Susan, who runs Kitten Inn, got him back from the vet today (he was neutered) and Lia is picking him up later (she has to work late). So Susan is torturing Lia by posting these on Facebook. And Stevie is fine; he's a mellow kitty!
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So happy to read mostly good news! Dee and Rachel - Whoo hoo! Bosco - glad you got your treatment! Rachel - my onc said I was a poster child for stable on first line treatment, but yours is even better! So happy for you!
Momall - so glad you went to the party and enjoyed yourself.
Annie - sending good thoughts and hugs.
Lynne - your poor DH. Pancreatitis is painful and yucky. Hope he's on the mend really soon. Happy his kidney function is doing well though.
I've been doing huge amounts of kitten rescue. That's a fancy way of saying that I shuttle kittens and cats all over the place.
I'm getting quite good at finding my way around. Had 8 carriers full of cats on Monday (it was a holiday here); drove from 6 am until 4 pm doing kitty pick ups and dropping them at Kitten Inn. Long day! Have 2 lots to take over this weekend. And work has been really busy. Client called today and I have to fly to Auckland at o'dark thirty on Monday morning. Fly home Mon night. Then meeting the same client at my office on Tuesday (he has another meeting in Wellington in the morning), then back to Auckland to work with him on Friday (just for the day). Crazy as crazy can be. Oh well. I was at a construction site today and went to jump into a shallow excavation and my feet went out from under me. Skinned my knee. Again. That's twice in two months. Good grief. I'm way too old for this crap, I think.Hugs to all..you're always in my heart and thoughts.
Terre
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waving hello to all0 -
Hi Patty!
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Good morning to all,
Rachel, I'm so happy that you're having such a good response to treatment! I'm positive your scans will reflect that. Oh how nice you're getting a dog, I can't wait to see pics.
Cristina, I don't know what to say but I feel your pain and frustration. As Deanna said I hope your husband is taking care of everything else at home. Sending you big hugs.
Lynne, how is dh today? I'm hoping he's improving and the 2 of you will be back in the comforts of your own home very soon.
Terre, you are one busy lady! How do you do it? Love the kitten pics! You have me thinking of volunteering at our cat rescue centre here. We go all the time to see all the cats and kittens and my eldest did volunteer work there for a short time and wanted to bring them all home. She found it very rewarding and I'm sure you do too.
Patty, how are you feeling?
Hugs to all, Annie
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Rachel- awesome news!! I'm so happy to hear of your positive response. Even happier to hear you are getting a dog! Please post photos.
Terre- you awe me with the amount of energy you have!! Shuttling cats everywhere is lots of work, good for you! I love those photos. Can you clarify what foster failing means? Thanks! I so want a cat but my daughter and DH are allergic. My daughter wants a cat so badly she's asked for the shots to help her be less allergic!
So DH doesn't help all the time at home, but he definitely helps, and more than some other DHs. He has an interview next week and I'm hoping that goes through. But there is constant tension bc I just don't have faith in the real estate. He's been talking about money coming in since November. I have yet to see a penny and it's February. Thank god for unemployment which our accountant said it's ok to collect. Even his unemployment isn't that much money and I have no idea why. Aargh. I'm hoping the spring brings better news and better weather. My deadline is June bc that's when unemployment runs out. I will likely be putting our house on the market in June if he doesn't have a good job by then. We just cannot afford it. We would move into a rental. I wouldn't want the responsibility of home ownership if we don't have enough money.
Last night, I went to a Young Living Essential Oils party with my neighbor. It was nice to get out. The ladies presenting were a little weird but when I went home, I put on my Serenity (DoTerra brand) and I slept much better last night and feel a little better than usual today. So I may buy the Young Living starter kit. It's a good deal and I do use those oils.
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Good morning all,
Rachel - that's awesome news! Can't wait to see a pic of your dog!
Cristina - I really hope things turn around quickly for you and DH. That's a lot of stress.
Annie - good luck today with infusion and results. Thinking of you.
Terre - you are one amazing woman! Those pics are simply adorable. Hope you didn't hurt yourself.
Hi Patty - waving back at you. How are you?
Lynne - how is Dh and how are you?
Bosco - how is tx coming along? Are you still in hospital?
It's so cold up here, feels like a real Quebec winter finally. Can't complain really, our winter has been so mild up until now.
Sending hugs all around.
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Linda
Been a bit of a roller coaster. The Depocyt was OK. Tuesday Platelets dropped again so no Eribulin just the Zometa. So far so good. Wednesday midnight I keeled over and ended up in hospital in a confusional state, high temp and 24 hours of fever. Fever broke and feeling better. They are keeping me till Tuesday Then starting new treatment Been a scary few days
Thanks for following up
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(((Bosco))). Hugs & prayers that things continue to look up after what sounds like a very scary experience!
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Prayers for you, Bosco, may you have relief and comfort soon!
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Bosco, Kind thoughts for a quick recovery & getting out of hospital. Cheers, Dee
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Bosco wishes for a quick recovery! So sorry. At least you got one of the treatments going.But what's w the fever? A cold or SE from tx? What's up w that? And why did you keel over? What do they expect to do for you more at the hospital that they wanna keep you so many days?
Lynne hope you get out soon with hubby feeling much better.
Ladies were you not suppose to have some answers w the scans by now?
Rachel so happy for your good news also.
Terre what cuties!!
Cristina - money is def a big stressor. I'd venture to say, as with a lot of men, he probably does not express his anxiety about how to deal with you, how to help etc... so the best he does is act up. Not too helpful but it is what it is.
Warm hugs for a much needed warm weekend for all !
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Christine- I am amazed at what you can do.. you still are able to work.. AND you take care of a 3 year old, and still have energy to go to a Young Living Party after all is said and done. I think you're really doing well and I bet if you were able to take it easier your pain would be so much less. I will pray that DH gets a new income that can let you take it easier.
I am a big fan of the oils too- I have been using the Frankincense on my mets but it makes my back itch so the last few nights I have not put it on. I do mix it with coconut oil too. I have a big collection of YL but I am afraid to combine it with my treatment plan so I am careful.
We have an arctic blast arriving tomorrow. Wind chills of -40... and high of 2! My daughters and grandchildren are visiting over the next few days and I am very excited.
I also just started Medical Marj two days ago. I have the 1:1 ratio, no real high feeling, but I feel much less anxiety, and I think I see a difference in pain- maybe this is helping with inflammation- it does not help me with sleep so I was a bit disappointed but I am not taking the full dose as suggested yet. I have more energy after I do the drops.
Hugs to all
Carol
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Bosco, I looked up the intrathecal Depocyt SEs and fever and confusional state are part of them. I sure hope you recover quickly and get home soon. No place like it. Hang in there, we're all rooting for you. Big hugs to you all the way from Canada.
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Think it's treatment induced confusion OR neuro sepsis or just inflammation. Want to keep me on antibiotics and see what happens.
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