Bone Mets Thread
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JustJean - so sorry for the loss of your dear Effe. She had such a sweet face. Allow yourself time to grieve.
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JustJean, glad you got good news but am sorry you lost your friend! That's heartbreaking! I had a large German Shepherd years ago that had seizures and we lost him to a seizure. That is very traumatic to go through! Hugs!!!
OK went back into the dentist this morning. He said that post has actually broken, end it was an old post that they use to seal down instead of using cement. He said they are seeing a lot of them give way like this. So he cleaned up the crown and put it back in place with some actual cement this time. He said it could last six months or could last 10 years but if it comes out again they will send me to an oral surgeon in Wichita that has experience with cancer patients and biphosphonate ( I never know if that's the right way to spell that ) so I'll just have to get a hold of my oncologist now and let him know what happened and see what he wants to do about my shots, and whether he thinks I can go ahead and get my next one or not. So now it's a waiting game.
Thanks ladies for being so concerned and for being here for me, I know that I get really freaked out about this stuff, but it is really hard to go through this by myself. If Tom we're still alive he would be here to help call me down, but he's not so I have to do it myself. And as you all can see I don't do that very well. But I'm very blessed to know that I have friends here who get it! I'm so glad that we are all here for each other,
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Gracie - so glad you got to see the dentist today and you were able to get that tooth cemented back in, even if it could only last 6 months. Let's hope for the 10 years! BTW your spelling of bisphosphonate was almost perfect. You were just missing the s - biSphosphonate. That word is in my signature line so if you ever want to double check you can look at one of my posts LOL. Hang in there. We are all here for you (and each other).
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Gracie,
So glad the dentist was able to see you. Having a plan will help! Sending a hug Totally understand the stress...hang in there!!
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Gracie so glad you got that tooth sorted one worry less eh😉. Let's hope for ten plus years on that one.
So had a scan yesterday morning and it's an important one because two weeks ago I had my last chemo and I'm on nothing at all right now. Funny that I'm having more trouble with my feet two weeks post chemo that when I was on it. Six months is a long time to be putting poison into your body on a regular basis. Been feeling a bit nauseous lately so that has me worrying also they scanned my head again and I'm now petrified that I have brain or skull mets. My TMs at last measure two weeks ago were normal so I don't know why I always do this to myself
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Wendy3- so hoping for the great response to be shown on your scans. I feel nausea after 3-4 days off the Ibrance on the week (or 2 for me) off. So strange.
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Wendy, hoping and praying that the chemo kicked butt!!!! Sending you cyber hugs!!!!
Iwrite, thanks so much it is a relief!
Animal crackers, I think the thing that helped more than anything was my dentist taking the time to explain to me in detail exactly what happens with osteonecrosis and what starts it. I understand a lot more now, and it's not just this huge thing sitting on the periphery!!!
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Wendy, I've heard the neuropathy can start after chemo is done, too.
Did you ice feet and hands regularly?
I'm starting the "Taxol tour of duty" on Tuesday. Got two sets of ice booties to switch off from. Chemo nurse said my first infusion should take about 3 hrs. They want to push it SLOW the first time to minimize reactions.
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Gracie so glad your dentist was so there for you and that he relieved your worries. It must be so hard to deal with everything by yourself!
Wendy hoping for wonderful scan results. I started having neuropathy issues in August- way after my Taxol treatments and, I iced before and after all of my treatments. My mo thinks it may actually be a degenerative disc( that she saw in an old scan) so I'm going to a neurologist this week. I've been trying acupuncture but no relief as yet.
This Wednesday is my first scan since on GDC0077. I'm thinking they'll be good because my TMs went down 1/3 the first 28 days on this treatment but, I'll know for sure the end of the week! Fingers crossed!!!!
Today I walked with my sister who had ovarian cancer 19 years ago for Support Connection a wonderful group that helps those with breast or ovarian cancer. She and I were named Ray of Hope Champions because of all the $$ we raised for them. And, after 6 years of walking we finally named our group "Lillian's Girls" after our Mom who died of BC in 1969. My friend came up with the name! Can't believe we never thought of this before!!!!
Hoping we all have a good week
Babs
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Wendy and Babs, I am sending good vibes to both of you for great scan results.
Hugs and prayers, Lynne
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Babs and Wendy, sending all my positive mojo your way for excellent scan results!
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Babs, hoping and praying for good scans!!!
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Wendy and Babs Hoping you both have good scans this week. It's so hard waiting for the results. Sending cyber hugs to both of you.
Gracie I'm so happy that the dentist calmed your fears and cemented the tooth back in. I am one who also freaks out about dental issues. I didn't want to put more stress on you last night, but I was worried when you said that you were going to try to put the tooth back in yourself. When my crown came off I went to the dentist to have it put back on. Unfortunately, I am a person who gags easily, so when the dentist saw this happening, he stepped back and I assumed he had the crown in his fingers, so I swallowed! A very expensive snack to be sure!! lol
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Babs your so right TMs are important to remember we should both relax and we will deal with whatever comes. Sending a ton of good mojo your way
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D.C, I think there was a misunderstanding, I wasn't ever going to put it back in myself, because it was too extensive 😊 But gosh I can't imagine how scary that would have been for you to swallow that!!! Wow, now that would have freaked me out big time!!!!
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hoping for good scans for you Wendy and Babs.
I had the 3 month CT scans on Friday and got a call from my MO this morning that I had developed blood clots so I spent the day in the ER getting lots of tests. I didn't realize this was common for people with cancer. It shook me....I felt like Mr Cancer had taken a lead in this race. Started blood thinners. Yet another pill but I'm so grateful that the clot she didn't cause a bigger, scarier heart issue. Anyone else here on thinners
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Babs and Wendy - wishing you great scans!
Jen - It's very common for cancer patients to develop clots. One more pill as you but luckily no damage!
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Jen I read a lot but don't post much. I developed a clot in my leg behind my knee last November I am currently taking Xarelto. I asked my oncologist how long will I have to take it and she said forever once you develop a clot with cancer you have to stay on it kind of a bummer but it is what it is.
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Jens, not a blood thinner but I do take aspirin daily due to a blood marker that shows I have had a blood clot, although I don't know when, as I don't think I had any symptoms
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Gracie - I am so glad you posted through what you were going through. Knowing that you are alone I get very worried when i don't see posts from you. I am so glad it's over. How are you feeling now?
Jen - I was told to take blood thinners pre-emptively before my flight. I did not, but probably should have. Supper common.
Babs, Wendy - thinking about you. Whatever happens the scans say you will deal with it, but it sounds to me you are both on a roll...
Babs - It takes a lot of strength to have a public image like your daughter has, but I know where she got it...
>Z<
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Gracie, do you know what blood marker specifically shows whether you have a clot?
I have homozygous MTHFR and have had many clots starting back when I was a teenager. When I had a full hysterectomy several years ago, the entire backside of my uterus was covered by an attached clot. Stuff like that. But I'm not on a blood thinner. I get full labs very often now that I'm on weekly Taxol, and if one of those values in the report is a marker for clots, I should be watching it, for sure!
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Has anyone had Gemzar and Carboplatin together? Anything to share about this combo? I had both of those yesterday. The cancer has spread into my liver, hip, lumbar, with pathological fractures, lung and upper ribs. I can't have a liver biopsy because I have numerous hemangiomas and its too risky to biopsy with the tumors so close. I was on Ibrance for 5 months, and it didn't work nor did the radiation on my hip two months ago. I'm having a lot of pain in my hip, Ischium. MO said chemo won't always help as well as hormone therapy for pain in bone.
Babs and Wendy good luck with your scans.
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Lindalou, I have no experience with the combo you are on, but I hope it works quickly and well for you. How are you feeling today?
Lulubee, When my husband had blood clots a couple of years ago, it was a d-dimer blood test that identified their presence. (They followed up with scan to find their location.)
Lynne
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Jen, I take a anti-coagulant for afib (atrial fibrillation) and have for years. Just one more pill in the routine, although if you have anything like faslodex injections you want to let the person giving them that you are on a "thinner" so they apply a little pressure for a minute to avoid bruising. For other procedures like any sort of surgery, you have to come off of them.
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Z, thanks so much for being a concerned friend!!! I'm doing ok, and although I talked to the dentist, am still going to be a little nervous about XGeva. Am going to call my onc about maybe holding the next shot. Will let everybody know what happens.
Lulubee, I don't know the name of the marker but I will ask the next time I'm in the doctors office.
Lindalou, my Mom had that combo when for her ovarian cancer. It was difficult for her, but she made it through. Difficult because she had so many other health problems. She was diabetic and her kidneys were starting to fail, plus she had already had a heart attack, and back surgery a year before that which made mobility very hard. But she did it!!! Her worst problem was diarrhea. Hoping and praying the combo kicks butt for you!!!
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Hello all you lovelies,
So saw my oncologist , I swear is there anything worse than waiting in a cubicle for the hammer to fall? Forty minutes seemed like hundreds. So it was good all my bone mets are healing everything else shrunk pretty dramatically and nothing new. My onc was pretty surprised that I didn't plateau on the Taxol so she said it will always be something to use in the future. The plan now is low dose Letrozole and possibly Ibrance if I can get on the freebie train. I am riding the happy wagon right now for as long as I can, lord knows it will change as it always does but for now I'm okay.
Lindalou a friend of mine is on that combo and she kept all her hair the biggest complaint she had was hands and feet. Lots and lots of cream is what she did. I hope it works well for you😊
Lulubee how are you handling the Taxol ? Did you know it's made from the pacific Yew tree? I always told myself I was getting the power of beautiful trees while I was getting the infusion. Maybe that helped?
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Wendy3- seems like a good time to get on the freebie train since RIbociclib and abemiciclib are trying to get a foothold in palbociclib's dominance in the market. So far palbo is working for me and doable-as you say things change over time, but, I'm hoping to get a year or two and see what the immunotherapy treatments have to offer. Does Canada have a long process for approving drugs? Abemiciclib just got approved last Thursday in the US.
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Wendy, WOOHOO for those great scan results! I am happy and excited for you. I hope that letrozole treats you well for a very long time and that you get that free Ibrance. WOOHOO! Doing the happy dance for you.
Hugs from, Lynne
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Wendy - I've been watching for your post as if I was sitting in that cubicle myself. So worried, although I don't know why as you were clearly doing so well.
Here's to many more scans like that one!!!!
Curious about your experience on letrozol. I really think if you don't get Ibrance it will be useful to have it in the bag for later...
>Z<
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Wendy, great news! Yahoo!
Z, I hope you are getting to enjoy Japan. I can't wait to read all about this treatment. I believe I am losing the Ibrance train in Dec. My MRI was not good. For some reason, they did the whole pelvic area. Possible new tumor in left hip and probably in bone marrow in the right hip. I see Mo after pet scan in Dec. Good luck! I told Dh I wanted to go if this works for you. He is totally on-board. Thinking of you.
Claudia
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