The Hermit Club
Comments
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Hi everyone--Blondie I'm so sorry you have to go thru this--but it will help u breathey better right. I disn't know this was painful, I pray it is most comfortable for u this time and let us know as soon as u can. (((HUGS)))
Markat those slides do keep the kids busy for a while anyway.
I went to my oldest DD's for the weekend and went SWIMMING, something I haven't done that in years. My legs and arms wouldn't let me completly swim but I used a floater for my arms and just moved my legs loads--it felt so good for over 3 hrs. with my cousins and Joey and he was so happy and my DD kept on putting lotion on me like I was a kid, bit it worked--the only thing is it felt great but I guess I overdid it cuz out of the water I can bardely move, Stupid me I shouldn't have moved all that time, u'd think I'd know better. So back to hermit myself for a couple of days good thing cuz I walk worse now than before. But if I can go more it'll be really good excercize for my back. And my legs will get used to it too.
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Hi hermits- been a busy but good weekend. Been out and about doing music and today, went a lavender festival here. Something I have not been to in years. The highlight of the day was the lavender lemonade.
Cami- good for you that you got in and moved around in the water. So good for you and know you have back and other joint issues, but water is a great way to exercise with those problems. I hope you can get some rest and recover. When I first went back in the water, it was a major adjustment.
Blessings to everyone here facing tough emotional days and medical care this week.
Peace hermits.
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Blondie... hugs and hopes for less pain, and better breathing.
Camille...good for you for water time! Sorry you're suffering on land, but glad you had a good time.
markat...water slides are so fun. DD2 worked at a summer camp once, and they put on dish soap for bubbles and swifter sliding! Kids loved it.
Jazzy...lavendar lemonade? Sounds different--good? I love the smell of lavendar, but don't know about taste... (have been adding fresh peppermint to green tea... dh won't touch it, but I like it.)
Lori... you sound stronger. Yes, tears still, but stronger. Proud of you.
Laurie... hope all goes well with future appt. dh will come to grips with it all in his own time. They mourn normalcy as well...
slickchickie...how's the move? It's always tumultuous, to me, to move... Hope all goes smoothly for you and Capone, adjusting.
Good Monday to each. Strength to all, and may side effects be fewer...
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Hi skittle, haven't moved yet. My parents are sending me to my sister's after surgery this week & I'm staying there until they get moved in to the new house. Wicked fun, living back at home with the 'rents...wicked fun.
I'd like to mention that this entire cancer experience has been outstanding (clearly I'm being generous here) & I'd like everyone to know how grateful I feel everyday (obviously my sarcasm speaks for itself) As a matter of fact, I feel lucky (just shoot me now) & truly blessed (in a cursed kind of way). Smile, hermits-- there is nothing left to do but laugh!0 -
Slick I am laughing at u'r post--good choice of words--couldn't say it better. But u did leave out that many times the joy of this disease is that it doesn't just go away like a cold---so many fun things just keep on keeping on, so the joy of it never ceases.
UGH my DD just came into my room and said I forgot u were here. hahaha I make such an impression on my kids---I told u I really hermit myself.
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Oh Camillegal, I think the joys of cancer deserve their very own post. Don't you agree? I mean gosh, there are so many...Also, I would like to add that cancer has turned me into a sexy beast. I mean really-- I thought I was smokin' hot before BC...but now I know that bald with no eyelashes is where it's at. I used to think my self confidence was attractive...but now I see that self loathing is really hot. Can't wait for the hormone therapy, radiation & surgery. By then I will be queen of the Frankenbarbies!!! Queen, I say. LOL
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Slick I agree, but my titles is Queen, look for another title--I'm much mich older, so I've earned it having so much fun.
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Hmmm, I was unaware that the Frankenbarbie's already had a queen. Of course, Camillegal, I bow down to you dear. I will be your snotty little princess:)
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OK Slick I'm used to snots.
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Thank peeps.....last time, last year it was my left lung, this time it is my right lung.....don't know how much fluid is in there but have to get bloodwork tomorrow around 1130 and then draining....not happy they numb it, slice it and then put the tube it to drain it (sorry so graphic) ....will let you know how it turns out, have chemo on wednesday!!
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Teka--i've been searching on a few of those pages and all of u'r posts are deleted??? and nothing shows u'r DX===what happened? I thought u didn't want it on, cuz I don't remember seeing it.
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Teka I was seaching all over for other posts, I didn't see anything???
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Teka... When I searched, your diagnosis info IS there, but when you pull up the post, the content and diagnosis are deleted. Looks like info is not so private even with delete... saved in archives?? Might want to pm moderators if you are concerned.
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I didn't see all these things-I did search Teka tho. Teka go to the mods like Skittle sayd and make sure what u don't want on the board is not there.
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what is going on with that.....scarey!!!
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Blondie I'm not sure just testing what Teka asked, but Skittle knew how to do it better????
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Camille... all I did was type in Teka for search. It gave over 1,000 results. I went to the last "page" and pulled up her entry. It gave the first line of her response and her diagnosis/procedure line. I pulled up the entry by clicking on it, and nothing is there, saying it was deleted by Teka. Confusing to me, since I thought delete meant all of it, period. Odd system. (sorry, Teka)
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Yes Teka. I think so too. I go tomorrow for my CT Scan and preliminaries.
Still working on the MO. I STILL have not been reassigned. The IV nerve tear situation has become pretty serious. Doc said I could lose the use of my arm. 
. I am battling for treatment. It is a full time job. He prescribed Lyrica, Methodone and a compound cream that costs $250.00.
My daughter has been put on bed rest for the remainder of her pregnancy. 5 months. My son is doing well. Tourney in AZ in three days.
How are all of you??? What is going on in your lives??
Love you,
XOXOXOXO
Laurie0 -
Markat,
I have the muscle aches and joint pain too! It came out of nowhere three months prior to my BC DX. I still have no answers. It gets worse every day. The legs aches keep me up at night. I can't figure out if is is muscle or bone. I can't bend my legs to sit Indian style or even one leg folded under me. I was a BEYOND fit just three years ago. I don't know whose body this is now.. I just just and sometimes Vodka is the only band aide. I worry that the Arimidex will make it all so much worse.
I am with all of you.......
XOXOXOXOXO
Laurie0 -
Lol! Just read a lot of your past posts and they make me smile. You girls rock!!!
Blessings to all of you!!0 -
Laurie I feel bad for u'r DD having to have bed rest, cuz I'm sure it sounded good for a day or 2 but to HAVE to have it is probably scary for her. Prayers going her way.
Now WTF are u talking about u'r arm, I don't understand, u can loose the use of it because of a nerve thingy? OMG u have to be so careful, is this something that will heal and then u'll be all right or something that could happen anytime--this all sounds crazy to me, but u know I'm not medically inclined to know much--Prayers for u too, Laurie
U know what I do when I say I'll say prayers I say them right away, otherwise I'll forget who I'm praying for. I know I'm bad.
Someone explain Laurie's arm to me.
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Hi Camille,
When they did the last IV, I felt a "jolt" of electricity down to my thumb. Basically they tore a nerve with the needle and now I have a trauma to my arm that will spread if not treated. They prescribe Lyrica which is used to treat nerve trauma and a compound (specially mixed ) cream to treat it. The neurologist will do a nerve study on my arm in a week to see the extent of the trauma. The hospital is taking responsibility, but it has been a nightmare of phone calls, documenting and follow up to receive the treatment. I can heal if treated aggressively. It may take up to a year though.
I will be fine I'm sure. Positive thoughts!!!0 -
Oh Laurie I'm sure u'll heal, but what a crazy thing to happen to you. I' just never heard of that. Oh they'll take very good care of u--since they did it especially.
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Laurie--Love your positive spirit, and so sorry you're having to suffer through the trauma. It's especially hard to see an old fit, healthy self become a shadow. Keep that spirit, though. When I had my back surgery (lots of nerve issues/pain due to a crumbled L5S1 spinal mess) I was told not to give up. Healing would be slow, if at all, so I was told to be persistent. I still have issues over seven years later, but things Do improve. I have had to accept I will never be my strong, painless me... but the new version is still making progress... and who knows what the future holds? Hugs to you and yours. Prayers for your dd, too!
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Hi hermits: doing some conference calls for my client from home this morning and checking in here on you ladies.
Laurie-sorry to hear about the nerve damage. I had some to my femoral nerve in my leg last year after abdominal surgery. It has not compromised the use of my leg, but there was considerable numbness on the top of my thigh which has improved with time. Also lost the sensation around my incision and abdominal muscles. But the good news is, with time and rest, nerves can regenerate themselves. Take the advice of your doctor for how to best heal your situation. You need to get plenty of rest to get through this and all the rest that will follow. The reality is with being cut and poked, our nerves are at risk.
There are three types of AI's including Arimidex, Femara, and Aromosin. One of my MO's said the goal is to find one that works for you, as everyone has different SEs. They started me on Arimidex as it is believed to be one of the most effective to reduce reoccurrence risk. I think Femara is good too. I think less is known about Aromosin and it's effectiveness. You will be seeing your MO through time and he/she can make the changes to your meds depending on your quality of life issues as you start the Arimidex. I have been on it four months now and my body is adjusting.
Teka, Skittle, Markat, Cami, Lori, and all the rest, Tuesday hugs coming your way!
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Laurie- also, vodka does help. I like mine in vanilla or grapefruit flavor ala Absolute.
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Laurie, red wine helps too--good for the blood flow.
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Heya - lots of reading to catch up since the last time I checked (Thurs, I think). I'm doing well. I had a Herceptin treatment on Friday. The nurse chided me a little about not having my heart scan done but it's not my fault that apparantly that dept doesn't leave message if the answering message doesn't include a name. Sheesh, you'd think they could just leave a message to call Kaiser at whatever number. The MO okayed me to have treatment anyways but I have to have a scan before my next one in August. The chemo nurse made the appt for my scan for me and couldn't get any sooner than Aug 5 so my last Herceptin will be delayed from Aug 2 to Aug 7. Ah well, still glad it will be my last one. Hopefully my hair will start growing faster once I'm all done with that.
I think the vitamin B12 I've been taking is helping with my feet problems. My feet have felt 'weird' and sometimes really sore since about chemo 4 or 5 though it didn't get really bad until about 2 months PFC when I suddenly was getting peeling and blisters. I don't have the classic numbness of neuropathy but it seems to be similar to that or to hand/foot syndrome that I read about. Either way, it is nerve issues and I think it's improved since I started the vitamin supplement about a month ago.
I was told today that one of the ladies in my work group got a call yesterday confirming that the biopsy she had last week found cancer of some sort. She's out today with an appt to talk to a surgeon. She had expressed some concern to me last week before going to her biopsy and I tried to be positive. Even with my 'experience', I really am not good at talking to people so I'm not sure how I will handle talking to her when she comes back in though I know she will want to. I'm really hermity and private in person and while I am okay with talking about facts and stuff like that, I really am not great at dealing with emotional issues especially in person. I'm at the point right now where I am trying to think less about cancer and get to feeling 'normal' again.
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Hi Jinkala--glad u almost done--godd u'r getting the scan and who can blame u aboit talking about this ouutside of this world cuz none of us want to think about it--I's how we've lived for so long. Tell her to join the board-there are alot of topics she might find some interest in--Oh but maybe not this one--nevermind. And I've heard about the feet thing, I had mine during chemo tho so I guess it just hppens when it happens. Sorry it's no fun.
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Thank you so much Jazzy, Skittle, Camille, and Jinkala! You made me smile yet again. Thank you for the info about the Arimidex too.
I had my CT Scan today for my radiation treatments. I didn't know about the tattoo markers. Boy, did those hurt.
I start the treatments next week, so I decided to go Phoenix with my husband and son for baseball tourneys tomorrow. My husband is coaching.. I'm looking forward to getting away for a bit.
It is hot here. About 114 degrees. Phoenix is even hotter. It gets yucky sitting at the field.
Love to you all.
XOXOXOXOX0
