The Hermit Club
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Jazzy so excited for you, would ask for Hawaii sand (collect sand) but someone on another site so graciously got it and sent it....Yay for your sister.....
Lori....glad you are going to counseling go for me also, and absolutely right the "YOU" statements make them defensive....
Skittle...hey there how r u?
HUGS to all of you...!!!
We have been kinda quiet.....me not doing anything had the echo cardiogram yesterday no results, the other one was an acid reflux test, yep I have it but it isn't the reason I can't breath...they send a thing that they put on your finger to check the oxy level and have to keep it on overnight...who knows to check for what, thought it was for sleep apena...whatever....just dont want to become oxy dependent, just want them to find something out...chemo again on wednesday with drs. appt and then 2 more weeks...for my 3weeks on 1 off.
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Hi ladies,
Sorry I have been off line for awhile, but nontheless, I think of all of you everyday.
I am six weeks out from my second lumpectomy and will have my third radiation treatment tomorrow. ( I will recieve 30 total). I was not prepared for the tattoos they give you to prep you for the radiation. That hurt so bad, that I cried. As of yesterday, I was finally reassigned a new MO, although it is not really too important as the BC is not invasive like all of you.
As you all know, I had a trauma with the IV that they did for the surgery and I am now dealing with a neurologist about that. It is a pretty serious condition and I found out that I may need treatment for the rest of my life. I will know in the next two weeks if I will be unable to return to my career as a hairstylist due to the trauma to the nerve. THAT was certainly NOT in the plan, but it is what it is.
You are all wonderful and beautiful. My heart is with all of you and I read all of your stories and pray for all of you. Getting Cancer is such a deeply affecting thing. Non-cancer people cannot possible understand what we all go through and it is such a relief and blessing to have all of you to vent, cry, laugh with.
I have a lot of catching up to do on your posts. I will do that soon, but I just wanted to write you a quick note.
XOXOXOXOX
Laurie
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Thanks Teka
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Congratulations, Teka, on the new family additions! About a year ago I googled cat trees, and loved one particular one... Looked it up, and it was $900! (needless to say, my kitties are still living the simple life.)
Laurie, Prayers continue. The nerve issues sound soul-wrenching. Will continue to hope for healing. And for your rads and future treatments to go swiftly and less painfully.
Camille, You ok? Hope Joey is enjoying his summer. Will he be in fifth this fall?
Blondie, Hugs your way. Breathing any better? Heard an interview on npr with James Earl Jones. He keeps oxygen back stage for all his performances. Talked about a scary time when he jumbled lines and could not think clearly--due to lack of oxygen...
Jazzy, Off to Hawaii?? Yay! Dip those toes in the sand and relaxxxx!
Lori, Hope you are able to have some alone time, if that's what you seek. Relationships can get fractured by all this mess. Collateral damage isn't just in battle.
Off to appts on Thursday. They're the all day kind... ick. (and no one should go w/o deodorant on an August day. I guess mammographers know what they're doing...)
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Congrats Teka!! So cool that the cats will be in a good home now. My husband said he was going to build a tree for Fritz, but he's too busy with his pumkins.....Fritz is finding plenty of other things to climb on for now.
Laurie, I am thinking of you, it is so unfortunate you have this nerve damage to deal with. I hope you are making it a point to do something nice for yourself.
Skittle, thanks for the well wishes. Tomorrow I have my all day appts...well all morning maybe. Hope yours goes well. My husband is on is off week starting today. Will see if I am ready to choke him by the end of the seven days...lol
Another cool day, I might make cookies? But then that means I have to eat them. It seems that all I do is think about food. The state fair starts this Thursday, and I am already thinking about the delicious cream puffs, not to mention all the other food vendors.
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Congrats Teka!! So cool that the cats will be in a good home now. My husband said he was going to build a tree for Fritz, but he's too busy with his pumkins.....Fritz is finding plenty of other things to climb on for now.
Laurie, I am thinking of you, it is so unfortunate you have this nerve damage to deal with. I hope you are making it a point to do something nice for yourself.
Skittle, thanks for the well wishes. Tomorrow I have my all day appts...well all morning maybe. Hope yours goes well. My husband is on is off week starting today. Will see if I am ready to choke him by the end of the seven days...lol
Another cool day, I might make cookies? But then that means I have to eat them. It seems that all I do is think about food. The state fair starts this Thursday, and I am already thinking about the delicious cream puffs, not to mention all the other food vendors. Have a good week everyone.....Lori
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Well it seems like the hermits are hermitting....
Laurie so sorry about all the things you are going through....Hugs!!!
Teka congrats
Lori, I always have intentions to do things but can't start....
Me am doing ok, still hooked to oxy and they can't figure out why I can't breathe!!
Have a good day!!
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Hi hermits- started to post this weekend, got distracted, here I am back again checking in! We had a very severe storm here on friday that left many without power, trees down and in one community, a levee broke bringing in a 4 foot wall of water, mud and debris. Some homes will be completely lost. I may have some minor roof damage but got a claim going with my insurance company and an inspector coming tomorrow. I consider myself lucky! We had 90 mph winds at one point- like a tornado or hurricane (they nicknamed the storm "Hurricane Green Chili.")
Laurie- I was thinking about you recently and wondered how you were doing? I am sorry things have been so difficult. So upsetting to think about the nerve damage and what it may do with respect to your work. I hope they can continue to work with you to bring you back to where you were. Prayers for continued healing.
Teka is right about the importance of a good MO (they will be the one to follow you for the longer term) regardless of DCIS or more. They take it all very seriously, as once you have cancer in your body, they want to do their best to get rid of it and make sure it does not come back. And you will be tired from the rad treatments so plan to rest every day. Keep us posted on how you are doing as you want to share here.
Teka-congrats on new family kitties!
Skittle- good luck with your mammo. Mine is coming up Sept 3rd. Fingers crossed.
Lori- I love the fall fair here. I hope you feel well enough to go and enjoy the fine "fair food!"
Blondie- so sorry about the ongoing breathing problems. When will you see the pulm specialist?
Hawaii now a week away. Tropical storm Flossie hitting there tonight into tomorrow. We hope there will be nothing that damages the island or risks our trip. Fingers crossed here too.
Cami, Markat, CV, Curve, Lily and all the rest, hoping your week is good.
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Jazzy--so glad you're safe and not there yet! Saw the ntl news and Flossie headed that way, and worried for you. Perhaps it'll all be blue and beautiful by the time you and your sister arrive!
Lori--I forgot to ask--what kind of cookies? yum... (I'm down 10 pounds now, so cookies are off limits, sad to say. But I can look forward to my future enjoyment...) :-)
Markat--Hugs to you and yours. I know loss takes time... Love to you.
Each and all, best wishes for a peaceful evening.
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Hi All - I've been working too hard and forgetting to stop and smell the flowers. So... yesterday I went and did errands - BTW - I returned, or tried to return some stuff to Best Buy and could not due to their 15 day return policy
who knew???? Well it's right there on the receipt. Oh - silly me - I forgot to read the receipt - I was just proud that I had kept it. So that's my bad plug for B.B.I am so grateful to have met all of you and think about you all - and your own journeys. It will be 3 weeks tomorrow that I had my last treatment. It seems in some ways like it was a dream. Notice I said dream and not a nightmare. I feel very strong. Like I won a marathon. But it is so very, very personal and I guess that's what makes it so special.
I love you all-
Marilyn
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Hi guys--had a busy weekend and went out tonight=I'm so so exhausted hahaha
Laurie I feel so bad about this nerve damage--I pray it heals quickly for u, of all places to get it--Stupid cancer
Blondie I can't beieve all this too what is u'r oxygen level (that thing on u'r finger) they still can't figure this out. it's been a while, I hate all this chit.
Jazzy How could u have a hurrnado in NM like that--I never heard of such a thing. So glad u'r safe and now hurricanes in HI? We're going upside down.
Marilyn I'm so glad u seem to be feeling well--but u'r right don't be so busy that time slips by so quickly, savor the good.
Teka I love kittens/cats
My operation isn't on my back===my colon somehow had brok off track and went wehere my liver is supposed to be and pushed my liver in my ribs. So colon cut out lver rearranged and the best part this is so stupid that I'm not even thinking about more cancer there. OOHH So I think this time I have to be cut but they weren't taking me seriously cuz I goof around so much cuz my back is so painful they thought oh yea side too cuz I was making fun of it. Finally they gave me a test last week and 2 Drs. said I never saw anything like this (they're young) so they showed it to me and what do I say why am I looking at the inside of an ear--then they pointed out the colon is where my liver should be--so she says OMG u must be in so much pain and I LOLed and said I told u. Nobody believes me. Anyway I called my surgeon from the other hospital and he will see me Wed. and I had all my test resuls from the last 3 tests--it was just on the last one but whatever. This one sounds awful to me--all my other surgeries weren't bad so I'm hoping it'll be the same. OK nuff about me
Markat I hope u'r doing OK==it does take time and take all the time u need. But I hope u'r enjoying u'r family.
If I missed anyone I'm so sorry, I forget so easlly--Lori be patient.
Have a good rest eveybody.
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Hi my dear friends!
Skittle, Teka, Lori, Marily, Cami, Blondie, and all of the rest....praying for you and hugging you all from afar. Cami, I cannot even imagine. Bless your heart, I am praying for you. Please try to keep us updated as you feel up to it.
Love you all..
XOXOXOX
Laurie
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Camille is that what caused all the D problems? I hope that fixes it!
Well we went away to a lake for a long weekend and it was really nice! We all had a great time. I'm exhausted still.
Teka congrats on the new kitty addition to the fam.
Lori I'm so guilty of using the "you" instead of "I". I even say "Well maybe you should..." so often that DH makes fun of me. Well, maybe you should take the dog for a walk or weed or go play golf. It's usually while my butt is parked on the couch
Hugs to all. Jazzy, I hope you have an amazing trip!0 -
Jazzy saw the lung specialist he is on vaca until august 29th, he sent me for a pulmonary test, problem is nobody at the friggin hospital knows what he wanted, whatever.....also he sent me for the echo and espho grams.....have a great time....
CAmmie my ox level (the thing on my finger) when I am without oxy and walking around 70ish to 79....good luck with the dr. appt, let us know what happen...
Mark where did you go?
chemo tomorrow and drs. appt (onco) he better figure something out.....
luv u guys!!!
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Blondie I fell like someone has to take care of u while he's on vacation--God forbid he dies on vacation then what--he's the only one who know what to do===be pushy Please.
Markat I'm so glad u and u'r family haad a good time--u all need it.
Teka it's not exactly a twisted bowel, it's moved strait up to shove my liver into my ribs and it separated from the windy one. It just decided it felt like moving my organs around, of curs I know the bowel could be cancer but right now I want my liver in place hahaha, it hrts an awful lot like a knofe in my ribs. This is so stupid.
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Camille... Will the drs fix the pain issues soon, I hope? Can they "rearrange" what has wandered? I hope you're feeling better asap!
Markat... Sounds like a wonderful time, but start saving up some energy. Will you be going back to school soon? (We start back Aug 12, and students Aug 19.)
Blondie... My mo's wife is a lung specialist. He always says their time off revolves around her since breathing can't wait. I hope your levels go up so you can feel better. Hugs... gentle ones. (I agree w/Teka... someone should cover his patients.)
Laurie... How did your sweet pitcher do? I know you're hurting, and wish we could help...
Lori... no strangulation yet? I hope dh is being good to you. :-)
Jazzy... don't forget the sunscreen and sunglasses. Have fun!!!!
Marilyn... Our only bb is pretty far away. I share your pride in tracking down an elusive receipt, though, since I usually lose track of the little things. I bought gallons and gallons of paint recently, and was so excited about a five dollar a gallon refund offer... only to find the posters displayed prominently all over the store advertised an offer that ended July 4. Humbug! (hssss Home Depot.)
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Hey hermits, I haven't said anything here for a while but I thought I would come back and give you my good news. I was dx with mets in February. In May I had both a PET scan and a followup CT. The PET showed "no abnormal uptake, consistent with treated tumor", but the CT showed a slight increase in size, so after that, my oncologist switched my AI from anastrozole to exemestane, and added a second medication. Last week I got the results of my next followup scan: stable!! So I am doing the happy dance, bigtime!
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Curveball all I can do is Chandler happy dances the best I can do for now---but it is great--I know I'm holding my own cancerwise and it's a great feeling.
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Blondie we went to Lake Cumberland in Kentucky with a few other families. It was so peaceful. My 9yo "tubed" for the first time.
It was funny, all my friends wanted me to do it because I have never water skiied or tubed. I told them I was too afraid of my arms/lymph nodes hurting. Bummer.
Skittle, I don't start back until the first week of September. My girls go back on 14th. So I'll have some time to relax I'm worried about our school calendars being different this year. My mom was my babysitter 
I need to sit down with our calendars today and figure out which days I'll need to find sitters. My mother in law just had double knee replacement so she won't be able to help for a long time. I know spring break is different and they get out 3 weeks before me.
Yay Curve!!
Camille I hope everything is sorted out soon!0 -
sounds like fun Mark
happy dance for Curve!!!
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Curveball, good news and glad you are doing better. Always good to hear from the hermits that something is going better for them.
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Thank you ladies!
Curve....WHOOOOO HOOOOO! Blessings.
I pray for all of you and your struggles. I think of you all of the time.
I met my new MO today and he is WONDERFUL! He was so awesome that I wanted to cry. He validated everything the other doctor was an ass about and made me feel great. He will see me again after my radiation is over (25 more treatments) and then will put me on Tamoxifen probably. I questioned that based on my hysterectomy past, but he explained why Tamoxifen would be best for me regardless of the ovaries being gone. He taught me things I didn't know! Wow! Ha ha ....I thought I knew everything!
The other thing is that my original OB (the one that MADE me get the mammo that found the DCIS) randomly called me again to check up on me! He wanted to know where I was in this journey and assure me that he was there for me in any way. He said he prays for me every day! I was just so touched. He is amazing.
My daughter is half living with us for now as she has gotten Vertigo and her pregnancy has taken a rough turn again. She cannot be alone and so she sleeps here while her husband is at work. She throws up and gets terrible nose bleeds at least 6-10 times a day and is so weak and dizzy that she can barely walk. Needless to say, it has been very hard and chaotic around here. The baby seems to be ok and so we are so grateful for that.
Nick is doing great. He got clearance on his elbow from the Orthopedic and will just have to make it stronger with PT. It is a relief. He drives me everyday to my treatments and it has really bonded us even more.
I had and EMG nerve study done on my arm yesterday (that was NOT fun) and the neuroligist said that the good news is is that it seems to be just a partial tear and not a full one. I will have the full results in three weeks and we will go from there.
Well, that is my update. I pray for all of you and thank you for your friendship.
XOXXOXOXOXOXO
Laurie
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Laurie I'm not surprised that u'r Dr. called u and how nice--but's u leave an impression that not many people do. And I' so glad u like u'r Dr. that's so important.
U'r poor Dgtr what a time she's having--are they giving any reason why this is so hard on her? (((prayers)))
Markat why is u'r schedule so different? I would think it would be the same. hahaha no tubing huh. I never did that myself and know I never would the most I ever did was go in the boat. But I'm glad u all had a super time really.
Teka I can not believe it's August already unbelieveable.
My Surgeon's app't is Aug 12, he's on vacation--so we won't talk about that again OK?
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Ok chickies, I'm baaaack! Can you girls believe it took 2 weeks to get cable & internet hooked up at the new house? My parents bought a house out in "the country" so I've been taking my hermitting to an all time high level. Try going without cable/internet-- it's like living in the ice ages! I'm doing pretty well after surgery, no crying or major depression. I start physical therapy & radiation next week & also finally get to have my port removed, then back to work on 8/12. Also, Jazzy, I'll be accompanying you to Kona in spirit! Gonna take a serious vacation next summer after reconstruction & all this is completed.
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Oh slci u sound so good--but without cable and internet, I thinkn I would again look for my clown suit and grabe a shotgun and get on a bridge--I'd be crazy. WowI'm so glad u've got everything undercontrol now- and u sure did enough hermitting for a while. LOL
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Laurie I am on taxotere so don't hesitate to pick my brain...sorry about your daughter...
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Camillegal, I'm still hermitting! I've been locked up in my room all day, reading/watching tv. Feeling pretty sore, but going to try to get off my butt & walk my dog around my new temporary neighborhood this evening. How are you feeling today?
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Oh Slicky I'm hermitting today my GF's were going out and I just didn't feel up to it tonite--Sometimes I go out for a few days then I get knocked on my A$$ for a while and I'm anxious to see that surgeon--Again it's hurry up and wait, I should be used to that but I never do. I'm glad it's rainy out it's good for hermituding.
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checking in, I went out today actually, it was so nice to be out and about since I have my friend oxygen, which by the way I have to name him (yep decided it was a man I was dragging around, lol) Me too Cammie of course did too much, visited, lunch, DQ came home and went to sleep for a couple of hours.
Have a nice weekend, bbl
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