The Hermit Club
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Hi All - Laurie - you should come to my neck of the woods : ) I live near Oakland, CA and the high here was about 65 - it's foggy and cool - I am sitting here in leggings and a sweater!
I have been thinking of all you - you are all inspirational to me. I finished all my treatment last Tuesday! It's such an amazing feeling - the past year was a blur - and I am grateful to have met you!
Love,
Marilyn
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LaurieParr: I hope your nerve pain goes away...seriously! I understand about not knowing whose body you are living in. I feel the same way. I was FIT before my dx...wondering how long until at least I can get back into shape. Ahh, something I can control! Hopefully whatever they put me on after radiation (tamoxifen or whatever) won't cause weight gain.
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Hi hermits!
Jinkala and CV, congrats on finishing or almost finishing those herceptin infusions. My sister has her final one next thursday and is so looking forward to being done.
Jinkala- I agree with Cami, refer them to this board. Everyone's diagnosis and treatment is so different, it is really hard to give people advice. Giving them a place to go to get information is sometimes what people really need.
Laurie- maybe a change of scenery will help. I hope you can get some rest too while you are there-don't be afraid to let your family know you need to slow things down. Hanging at the hotel to get some rest while your son is playing may be alright too. The radiation treatments may fatigue you, so good to be rested up before that begins.
It's been cool and overcast for 2 days, only in the 70s and a lovely break after 100 plus temps last month. No rain since sunday night when we got the last soaker!
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Marilyn Yippee--it's done---
Laurie di u mean the tats hurt? Oh I'm so sorry. Please wtch u'self in the heat and don't get dehydrated--with all that going on for u it happens quicker. So be cautious.
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Marilyn, Jink, congrats and happy dance. Wonderful when we can say one more step to normal (or what may be our now normal.)
Jazzy, ooo, 70's! and Marilyn, a sweater? We hover by 100 for weeks on end. Still no rain. (But, Laurie, I think the heat award goes to AZ. Wow, you be safe out there!)
and Jazzy, I've never had a massage therapist... My foot pain is something I grant to the Arimidex and try to cope... DD2 has had sports injuries and suggested ice; DH suggests more foot support (sorry, but I love flip flops whenever the weather allows... and I know they're not good for me...)
Camille, how's your back? Able to walk a little better?
slickch, when you are up to it, jogging with Capone will zip you into shape! He looks high energy. (Cooper is my current exercise routine.) I've been dieting and have lost 8 lbs since school let out. (small victory!)
Lori, Teka, hugs and hope you are both ok...
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Skittle- Congrats on your weight loss, I am so proud of you! I have surgery tomorrow & after recovery from that, radiation. I'm pretty concerned my right axillary dissection is going to ruin my workouts! I hope I can still lift weights, run on the treadmill & walk Capone...I hear lymphedema is a real b*tch. Do you have any experience with that? Reading the lymphedema threads is making me nervous...
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slickchickie...I had "reverse axillary mapping"--a blue dye procedure that via dye indicates any cancerous nodes. They only removed one for biopsy as all indications were clear. The scar certainly indicated deep incision, but I have been deeply blessed with no lymphedema. (My dr is internationally presenting findings, and is always doing something researchy... Each appt. I plunge each arm into a water tank, and the nurse measures gain or loss in lymph accumulation/circulation/atrophy whatever. So far, so good.) Your workout will most likely demand that you let yourself heal a bit before stretching those tender stitches. I gave up my treadmill for longer than I'd wanted, since each "bounce" and each step caused more jiggle than I could've imagined (I am not large chested so expected minimal ouch after lumpectomy/partial mast... wrong, again.) Give yourself healing time, and you are so young, you will gain strength and stamina quickly, I think. (But truly don't overextend in an eagerness to get back to normal. You have to baby your body for a little while to overcome the shock you've endured.) I'm sure many hermits here can help guide you on any lymphedema helpful tips... Hugs and high hopes for tomorrow! Prayers will head your way. (and thank you for the congratulations. 8 isn't much really, but it is a struggle on these drugs to lose at all... for me, anyway. I am aiming for about 10 more... Don't know if I'll get there or not... but at this point am willing to try.) Again, best of luck tomorrow!! Let people help you.
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I do have LE, took out 14 nodes. Woke up with it. If you do get it, the LE threads are great!
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Good goin' Skittle.
Slick I have LE but I think I got it a little later--I read u'r have amastectomy right" not a lumpectomy. If I'm right it's amazingly not painful but u do have to baby u'rself for a while either way, (prayers)
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Slicki- good luck tomorrow. We will be thinking of you and hoping all goes well. Hopefully the next time we hear from you, you will be on the other this and healing well.
My lymph node dissection bothered me more than the incisions on the breast, mostly because they cut through muscle and that is always a bigger healing process. I did not do any exercise, including lifting weights, for many months after my surgery. Talk to your doctor in your post opp visit about exercise, what to start when, what is okay or not. You have to be careful with lifting for awhile too. Like Cami says, you are young and will recover faster but you have to be super careful not to overdo.
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Slickygirl Teka's right look at it that way, Oh I remember after my first visit to the Dr. he told me to get a smaller purse cuz mine was to heavy--he lifted it. I never thought of that. So I actually did, first time ever. hahaha
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Thank you for all of your support, ladies. The way I feel about this surgery, the loss of my breasts is horrifying. Worrying about how the axillary dissection is going to affect my everyday life is overwhelming. I'm going to try to do what Teka said: just focus on getting back to Capone. We'll start with that.
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Slic today is the day--u probably won't read this but we're here for u, come back when u can.
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Rooting for you Slickchick
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sorry I haven't been on but checking in now..
Slickie hope all goes well
Laurie glad you are going with DH and son....I know it is a full time job when you have this you are alway calling and checking and honestly for me I have to double check and ask lots of questions of the professionals cause honestly I don't trust them...they do make mistakes....they did something going through the vein and I have a permanent lump near it....
Teka you take care!!!
All other Cammie, Lily, etal HUGS!!!
I am here, welll went to get the lung drained the surgeon said not enough to drain, still can't breathe, waiting for oxygen as I speak and getting a angiogram to make sure I don't have a blood clot tomorrow at 1130!!! Thanks for caring and thinking of me!!! Had my 3rd week of chemo and yep got steroids so am speeding wish I could breathe where I could clean up...my week off is next week...oh and slept all night think the extra fluids is the trick..
BBL
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Hi Hermits,
Just checking in....went to my first couselling appt. Seem to go well, learned some things, and will be going back next week. Sooo tired today, had chemo Monday, maybe delayed effect? Good news, my hair is coming in! Its strange how this works, I lose my eyebrows, but the hair on my head is coming in. I use to dye my hair, so didn't know how gray I was, and no mistaken I have lots of white hair. So I will go from long brown hair to short white hair....thats ok, Im just glad that maybe just maybe I might be able to go without a hat/scrarf?
Went to Paul Mccartney concert, he was awesome. Sounded great for an old guy, was funny as well.
I don't go on here a few days, and it seems I miss out on things, however I do notice how I still get well wishes from you all.....Laurie, I am so sorry about this nerve damage.What in the world happened with that I.V? Good for you for having a good additude, I will have a pissy one for you, cuz it's not like you have enough going on for crying out loud. Blondie....always always you r in my thoughts...and they are warm! Later Gators....
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Lori I'm glad u check in to let us know how it's going---Paul Mccartney OMG that had to be great--I'm glad u got to go.
It's very hot here so I'm hermiting more than usual.
Thinking all good thoughts for all of u.
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W all try to forget it but whatever---But I've picked a few threads that don't let me think about it to much so it's fine. And I still hermit anyway so here I am.
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lori so sorry that you are having a rough time but I thank you for your thoughts.your hair coming in is a good thing.....yep mine is friday usually, that would be tomorrow, not looking forward to it.
Paul McCartney really he is touring, how cool is that.
I don't think about it 24/7 or at least I try not too.....
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Hi hermits- I would LOVE to see Paul McCartney. One of my friends who lives in Seattle is going to see him soon! What a wonderful thing to get to see!
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Well typical California weather now it's heating up and I am sitting here in shorts and t-shirt - anyway it is nice to be getting back to me! oday the port came out and I got to keep it! Perhaps a Christmas ornament????
Wis we all lived close so we could "hermit" together!
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Marilyn hahaha use it as an ornament I'm sure u don't want to see that again. I didn't know they gave it back to u. Why is that funny to me.? Mine is still there and it's still being used so I keep it. I'm glad this makexs u feel better and if we did live next to each other that woud be fine with me.
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Oh I just lost a whole post WTF do I do? Well I hope everyone is doing OK today--it's supposed to cool down tomorrow so so it'll be easier to go out. (((HUGS)))
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Camille... sorry you lost your post. That is so frustrating!
Hope all are ok and in comfort spots. Hugs and healing thoughts to you all.
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Ok update, went for CT scan yesterday and no blood clot in the lung but plurual effusion in both lungs but they are saying not the reason I can't breathe....have oxygren in my room which is ware I spend all of my time. The Onc is is now sending me to the lung specialist, he will call him on monday and set up an appt....until then use the oxygen...even to sleep, it usually doesn't both me unless I am excerting myself.
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oh, blondie, hope you can be comfortable and breathe more easily after your appt! Will be thinking of you on your dr day!
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Blondie I'm so sorry--but pay big attention to Teka, don't think Oh I'll wait cuz the Dr. didn't seem to worry--well he;s not a lung specialist --I'm not saying to worry but I'm sure when he sees u he can figure out what to do. Each Dr does their own thing and that;s it. nothing more. So use u'r own judgment.
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Happy Sunday Everyone,
Just checking in to say hello...its been another rough past two days with the DH. Fighting/not speaking/ and lots of crying. We finally talked, and everything is cool for the time being. Part of the problem is I see certain personality traits of his that are less desirable. In the first year of our union, he was this happy easy going but high energy man who was easy to be around with. We never argued, life was easy. Now I see him as being irritable inpatient and on edge. And thats how my ex husband was....Im different too, I am much more quiet and withdrawn and oh yes I have cancer.
Idk...I guess all I can do is keep talking to the couseller...he did say he would go. Today we are going to the Italian fest and the Brewer game. Tomorrow another Brewer game, except I have chemo in the morning and it tires me out, so am going to see if he can find someone else to take....
Blondie, am thinking about you, and hope u r having moments of peace...do you have good family support? Camille, I lost a long post not too long ago...don't know how that happens, but its frustrating....Have a good day everyone.....
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Loru I hope counselling helps. Sometimes the cancer we have makes partners more miserable than u think, they just can't explain it or know what to do about it. I hope he doesn't make u feel like u have to keep up with what he wsnts to do and u feel like u should Cuz when u get chemo it can knock u out and u need rest. Sometimes it's extra hard for a husband to have an ill wife, they can't adjust so easiky and just plain don't like it. It's their denial. Could that be part of all this? I hope u'r doing OK with /Chemo, it's so not easy.
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