The Hermit Club
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Jazzy u'll get back to u'r music soon u'll see--and it'll be great
I loved that cartoon. LOL
Hi everybody--had m usual diarrhea today, so I'm exhausted and tiny bit busy with the phones, so much for this Dr. figuring things out. No one ever does.
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Hi hermits! Middle of the week and tired tonight. I had my usual long day of command center coverage yesterday but went out for a fun early dinner with a couple healthcare vendor colleagues and had a GREAT time! One of the gals I think of as my "little sister" and she looks so great after loosing 60 pounds this year. It is good motivation to know someone who has lost that kind of weight. I have lost 15 lbs since I changed my diet to low carb in Sept and also stopped eating anything after 6 p.m. (this really made a difference with faster weight loss). Anyways, I had a super long day yesterday and early day today so tonight I am resting!
But I have to say this go live is going so much better than any of us expected. And we have this sort of cool mojo going on with my groups where people have been bringing in different foods every day. Last week, one person brought in bagels for breakfast, another couple gals got salad and pizza for everyone. This week, one of the gals brought in a whole spread of snacks, cookies, fruit, chips and dip, you name it! Tomorrow, I am bringing in breakfast burritos for my command center and super users. We made a joke today that it is the "most delicious go live ever." LOL!
Cami- so sorry to hear the D is back and that the doctors have not been helpful. I loved the photo you posted, that is hilarious!
I hope everyone is doing okay. Holidays are not always an easy time for folks.
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Jazzy u deserve to rest tonite and it's almost the week-end so I hope u can slow down a bit,
It's so tru about the Holidays almost bittersweet---people are missing, moved or just aren't feeling good and for some it's hard to get into the spirit. And it's dark earlier or snowy or rainy--all kinds of reasons, so I truly pray we can all have peace at this time and enjoy our families, friends and love that is in our lives.
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Oh you animal lovers are going to adore this. Saw this on FB today and had to share here.
https://www.facebook.com/photo.php?v=491872560921420&set=vb.222272341214778&type=2&theater
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Lilly, So sorry you are living in your dark hours right now. How I can identify with you. I want to say something to you that is enlightening but the words are not coming. I can say though there are times when I am alone and in my dark times, I question the meaning of my life. I have had friends and family that I have felt betrayed me in some way and felt extremely hurt by an action of theirs. I can hurt so bad--but then I think about those that would hurt and would not understand me NOT being here. I think about the guilt I would leave to those who love me--I think about the legacy--my grandkids-- I would damage-- but most of all I think about the love of ones like our group on these boards who are here to brighten every dark day if you reach out, my coworkers who cook everyday for me when I am recovering from surgery, my sons and family who call daily to make sure I am okay. My real friends--not the pretend one--who really loves me in their own way. So even in my dark hours, I know that when I hang on--the light will again shine and however long it shines--that is the lifeline that will keep me and you going until the next dark day. I call it hanging on to the edge. It's okay to hang on to the edge--just don't let go. We love you--because we are all one here. Hang on Lilly--there will be brighter times!
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Lauriepar--sorry to hear about the horrible SE of your meds and all the medical problems it caused. Glad to hear you are on your way to recovery. Congrats on the birth of your new grandchild. Babies are so precious and such a blessing from God. Enjoy being a Grandma!
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Hello gals
Yippee PA is going to have a heat wave in the next couple days. It has been in the 20's so I am looking forward to 40-60deg weather- Yippee
The electric and cozy blankets sounds good. I was at the store this evening and I almost bought another blanket-just can' t have enough!
Yikes- Target and stolen CC # 's- oh that's horrible.
Laurie, congrats on your grandson that is great news another little one to cuddle with and spoil!
Jazzy, you are so freakin talented what a blessing- I do like Jazz very much so
How's everyone feeling? Shopping done???
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Furfriend- thank you for the nice compliments.
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Dwill- your words about people letting you down ring true for many of us. I have felt so loved and embraced by some, so judged and dismissed by others. I had some people say some incredibly insensitive things during my darkest hours. And some now who just want it to go back to the way it was before this all began. In the end, I am much clearer now who the people are who truly care. And that is where I put my energy now in my relationships.
I read something along the way that said do not spend your time with people who have no empathy. I have sort of taken that to heart after all I have come through. Those who cannot get on board with others hardship are just people. They are not part of your support system. They may be family, friends, people who have been there for you in the past, but not now. You need to not focus your attention on them. Let them go live their lives and find others who fit into their paradigm. I have stopped explaining myself to others to try to get them to understand or being the one always making the effort because they are afraid to be around someone who has cancer. I want to be around people who are okay being around me.
As a result, I may have a few less people around me than I used to, but the quality of people in my life is much better than it has been in awhile. This has also made room for some great new people to come into my circle.
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Dwill and Jazzy u expressed it to beautifully, there is nothing I can add.U seem to be the wordsmiths here so I'll just agree cuz it's true.
Jazzy beautiful picture and all the detail there.
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Jazzy that's hysterical.
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OMG Well spoken Jazzy- your are the bomb girl!!
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Good morning hermits- glad you like the photos. I figured we all need a good belly laugh every once and awhile. Just like that seal!
One more day of go live command center for the week. Been busier as the week had gone on, but we are still doing well. I look forward to not having to be up and out the door before day light tomorrow and Sunday. Yay for the weekend.
Wishing all my working hermits a TGIF and a peaceful day for the rest.
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Jazzy u so deserve u'r week-end, I'm glad u'll have it.
I'ts raining here? supposed to get sleety out, I hope not that a true recipe for disaster with so many people running all over the place. I need to get out for a few things but someone is always using the car for work lately--busy times--so this week-end I.ll get going. Not a lot, just little stuff.
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Hi all,
Today my anxiety is a little high. I am having lunch with a seemingly supportive friend. She has survived another kind of cancer. We approach life differently, so her advice to me sometimes leaves me without a response.
Jazzy, I am going to store the seal pic in my brain to focus on when I need comic relief. Thanks.
Cami, I hope you get the car when you want it tomorrow.
Furfriend2, our high today is 39 with bright sun. I hope you got to 60 degrees with sun. Sun always makes me think it's warmer than it is.
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Sally I hope u check in when u'r done with u'r lunch and I hope it really goes well.
It's raining here right now maybe sleet later, know one knows for sure, but tomorrow snow for sure. WTF it's damp chilly.
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Hi,
Someone on these threads said that sometimes we have to ask for what we need. Today, at lunch, I used that advice. I asked my friend to accept that my way of thinking and her way of thinking could be different but both could be positive ... hers for her and mine for me. I am not sure that she agrees, but she did back off of telling me how I should be controlling my thoughts. After I stated what I needed, we went on to have the best conversation that we have had in over a year.
Cami, I hope you are staying warm and dry. Damp chilly is a double whammy. I hope you can get out to shop tomorrow since you couldn't today. Driving in snow ... yuk!
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Sally- good job on asking for what you need. It sounds like doing that really helped you to move beyond where you were with your frienda and to and have a good conversation. Bravo!
Cami- I hope you are able to get out for your errands. It may rain/snow here tomorrow too.
More later. End of a LONG week....
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Thank goodness for the weekend and hopefully some needed rest for all of us in BC land. This stuff is exhausting by weeks end!
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This may be a dumb question but is there any reason I couldn't use a heating pad on my lower back? I'm thinking heating pad, some sort of pain reliever, and probably make sure I don't sleep in the recliner again. Yesterday I told the doctor I thought it was getting better. Now it's as bad as it's ever been. It's making me anxious.
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Sally I'm so glad u did that it opened up doors for u to talk like u used to. YaY for u. Oh I don't drive nymore--It's safer for the others on the roads. I don't trust my reflexes with my legs cuz they don't work like they used to --Oh I can fall easily, but I worry I might not be able to react quickly enough if needed--The pain mostly comes from my back, but I do have LE also--anyway I need rides now but it's easy when we have the car home LOL
I made those 3 ingredients cookies with Joey tonite--well I'm not a baker, so to me it wasn't so easily done and overcooked some and Joey was rubbing my back while I was doing the last of dropping the cookies down. Never again-he said the same thing--Next time we'll buy the made already suger cookies and decorate them==we can do that Monday. LOL Took no pain meds all day so I wouldn't be tired as soon as I was done popped those suckers down, I could barely move LOL And Joey stayed with me and rubbed my legs for a while then we just cuddled and laughed how awful making them were. And he loves to bake.
My SIL is driving my DD to work tomorrow so maybe I can get out a little, unless it's snowing like goofy then I'll make a list and let them take care of it. My Christmas shopping is done mostly--Leslie did it for me and I ordered stuff too. so that's good I hate shopping anyway. Never liked it.
Well TGIF for some--it's all the same to me with my little job.I get a few calls on the week-end, but nothing that very busy like. We're going into Christmas week, now is the real crunch. Leslie's GF is coming Sunday so they are baking and making cookies--let them do it.
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frack!! I had a whole post ready to post and poof, its gone! Now to recreate... Somehow this thread was deleted from my Favorites so I have a lot to catch up on! Forgive me if I miss some of you!
Jazzy I come from a very musical family which somehow skipped my generation. My children both play the guitar and have childhood backgrounds in violin and piano. I totally love listening to all sorts of music. I find it so soothing and calming. Love the Frankenstein photo. Gave me a good laugh. So glad your go live is going so well.
Laurie, I am new since you were here, sorry for all your troubles. Bless you for your new GS! Aren't the grands such a great blessing, filling us with such love and such a desire to be around as long as possible?
I have been in that dark place. When my DH passed after 2 years of he11 dealing with AML, diabetes, blindness, amputation and so many blood transfusions I almost lost count, when he passed the only out I could see was to join him. 2 serious attempts, time in a psych ward, and meds finally got me through it. He11 that was worse than what I am going through now. Somehow I always felt that bc was going to catch up with me so when it did, I wasn't as much shocked, as, what do I do now. My answer was the most powerful thing I could do. Get rid of it all...so BMX
Still lightly snowing here. Should be nice and very white tomorrow morning and will probably have to do some shoveling. Going to one friend's house for Christmas Eve. They have a crab feast and caesar salad for dinner. Christmas Day going to her sister's house for dinner and gift exchange. They have pretty much adopted me since I moved here from CA 9 yrs ago. All my family is in CA and they have so many different directions to go at Christmas, I just decided not to get in that mix. My boxes of gifts are in the mail and I am done as far as shopping goes. I can retire to my hermit status in peace and quiet.
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Dutchiris- so sorry to hear about your lower back pain. I cannot see any issue with a heating pad. Another thing that helps me sometimes is putting lavender oil on sore areas. I had a pain on the inside of my hip/thigh in the joint area a few days ago, and put some lavender oil there and it helped. Do the docs have any idea what is causing the pain?
Cami- I love the stories you share about your time with Joey. It sounds like you had a nice time together regardless of cookie outcome. He sounds like such a delightful young man. I hope your pain meds kicked in and you are feeling better today.
GrammaB- I am sorry for your sadness. All you went through with your husband, and now your own health challenges has been a tough journey. I went through a lot before my diagnosis too, so I was not all that surprised either. I was much more stoic about the whole thing than reactionary. Holidays are tough, they have not been my favorite time of the year for years. There is a lot to be said for taking things so and easy this time of year. I think you have some nice people where you are who are embracing you and including you in the holidays.
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Jazzy u should be resting now, I think--u had a trying good week, but still hard for u.
Gramma I was sad reading u'r post. I'm truly sorry for what has happened to you. I'm happy too u have an extended family near u so u will be with friends for the Holiday. To be in such dark places, and climbing out is not simple, but u did, and we're all glad u did. Life is so strange to me, there are some people who have a semi-normal life with no big challenges and have money to travel, nice healthy families and just live life and enjoy. Then their are others who just make it thru with hardships and sadness and not smoothly. And make the best of what has happened and continues on one way or another. And u done good. Even tho we're hermits doesn't mean we're unhappy, we just prefer our lives being this way to an extent.
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Thanks, Cami. My doctor really didn't say much when I told her about it. Maybe because I told her I thought it was getting better. I have been wearing a 10 lb aspirin more often and longer at work. I also had that 15.5 hr workday a couple weeks ago
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sorry been missing last 11 days been a challenge, been in hosp last six days via emergency dept that i only got to,by a fluke , i was so,ill i did not know how ill i was, lost all recon, now in worse state than i was before....
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