The Hermit Club

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  • camillegal
    camillegal Member Posts: 15,711

    Lily please don't give up on healing--u will heal--it's going to take u longer with more pain thn u deserve, but u will heal---I told u this is a low % of women who gets this and unfortunately u'r in that %. And that in itself sucks. Of course cancer is chit we all know that, u'd think once it got out of us we would be better, but it doesn't work that way all the time. This disease sometimes follows us like a stalker and it's always on our back--Like /Ducky said she's feels worse now and it's out of her than she did before--it doesn't make sense, it never did. I make jokes about my SE's but it is no joke with pain--I have my intestine growing up my side and pushing my liver over and pushing my ribs up--Gee is that normal --then I hear nope and the surgery is to dangerous for me and I'm in constant pain, then I have degenerative discs and vertebrae --well the list goes on and on--and I thought since I was in remission I was going to feel good, yea well that never happened all the Drs. I see and all the tests and procedures I go thru, I don't even talk about here much cuz that's sometimes all I do. Please, Please, Please don't take this wrong, I'm not saying to u OH well, I'm saying this is all crap and no one by now should have to go thru what u are going thru. Of course it's breaking u down mentally, it has to--this was not supposed to happen and it shouldn't have but it did. U have to fight with all of this with u'r mind, body and spirit and with the Dr.s u will be better, but the experience will always be there but hopefully fade. This is shattering to u and u'r family and u'r poor DH doesn't know what he can do for u, he hasn't a clue how he can make u feel better.No one knows how to help u--but u know and u have to give to u'r spirit for life and live for it and continue thru this horrendous web and u can and u will.I hope u can go deep inside and find that spirit and let it fill u'r heart and u'r mind will follow and u'r body will heal. U'r in my prayers Lily and healing (((HUGS))) are coming u'r way.


  • jazzygirl
    jazzygirl Member Posts: 11,976

    image

  • duckyb1
    duckyb1 Member Posts: 9,646

    jazzy........just about how I feel right now

  • spookiesmom
    spookiesmom Member Posts: 8,178

    but..... but..... Where's his house??

    Really cute Jazz. Good use for snow

  • Tomboy
    Tomboy Member Posts: 2,700

    Wow, lily55. jeezus christmas. i cant believe that happened to you, although i am glad that you felt ill enough to go to the emergency room. that certainly sounds like a life threatening infection that could have become systemic- so it sounds like you got there in plenty of time. And it sounds like next christmas had better be extremely event free. you must be incredibly hard to kill! do you realize that that is almost two cups-o-pus!?! jeez. so its ok if you lost the recon, YOU are still here.... and isnt it federal law that if you have mastectomy that you atomatically get reconstruction? i thought for sure that that was the case, regardless of ability to pay. And anyway, it sounds like someone fugged up if you were feeling that ill that immmediately. anyway, i am so sorry that it happened to you.

  • Tomboy
    Tomboy Member Posts: 2,700

    ,,,,i miss everyone here. i have been exploring other places in bco, just finished my paint job barely, in time for my neighbors christmas party last night, and one more day to get everything else done to be ready for wednesday. i hope everyone has a safe, healthy, stress free loving holiday. all my hermits are the best women of all.

  • duckyb1
    duckyb1 Member Posts: 9,646

    Hermits love ya back kathec.....

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Lily- thinking of you here tonight and praying you will heal and feel better soon. You have been through so much and know you have shared the support system around you may not always be there in the ways you need them to be. But we are here and we care. 

    I want to share a little glimpse about my life last year when I was in a place very close to where you are at right now. I was diagnosed with breast cancer and then ended up with a ruptured appendix. All in the same week. I was convinced I was going to die, although I was not sure which one was gong to take me. More likely the ruptured appendix as I was close to becoming septic. I made it through and you will too. It just is going to take time and there are going to be more hard days. Just keep putting one foot in front of the other. You will get through this.

    Laurie- thank you for sharing the beautiful picture of  baby Grant. Babies make the world a better place. I know you also have had a very rough time but hope holding that dear little boy in your arms makes you feel the good in life!

    Kathyec- welcome back! Fun to explore other threads here. 

    Wishing my hermits a peaceful Eve before Christmas Eve. 

  • duckyb1
    duckyb1 Member Posts: 9,646

    Let us all hope and pray for a fabulous 2014.......My Christmas Wish....

  • Furfriend2
    Furfriend2 Member Posts: 168

    Lily55,

    I am so sorry for your pain as I could feel your sadness while reading. I don't have any information to share on recon I am sure someone here on BC org will be able to help with what you are going through.

  • grammaB
    grammaB Member Posts: 1,118

    Jazzy, great Snoopy!!  Wow, you had a tough time too!  I am so sorry to hear that.  You are so right, when things get that tough we just have to slog through it one step at a time, one day at a time, and eventually we are on the other side.

    Hi kathec, good to see you again.  I lurk on a lot of other threads around here too.  So much to be learned from everyone's experiences.

    As far as the law, I think what it says is that ins companies have to cover recon to make you symmetrical, not that you have to have recon.  In my case I opted not to do any recon and because of the law my ins had to cover the prophylactic removal of my left breast for symmetry.

    Hope all my hermit friends have a great Christmas!

    Hugs

  • Tomboy
    Tomboy Member Posts: 2,700

    hi grammaB! yes, i dont really know, i just thought they would, i thought i read it somewhere. but it seems like after she was better, they would take care of her. it wasnt her fault at all, and seems like it happened really too quickly. when i had my port inserted, i hadnt been home more than 10 minutes before my lung collapsed. they asked me what i did?!? wtf? went to fridge , opened door? not my fault, not her fault. it happens but she could have died. and she lost both, it sounds like. what a shame after all she has been through. i mean all of us have in our different ways, but that just made me shudder to hear!!! and like cami, i love horror movies and am not squeamish! love

  • Lily55
    Lily55 Member Posts: 1,748

    thank you for your support, i am not in the US so every bit of recon has to be paid for by me in advance.......now i am worse off than ever before physically and financially, thousands of euros wasted.....and i am not well off, have two mortgages etc......

  • duckyb1
    duckyb1 Member Posts: 9,646

    Lily so sorry........

  • grammaB
    grammaB Member Posts: 1,118

    I agree with you kathec, that infection came from something that was or wasn't done during sx.  They should be responsible for at least getting her back to where she was before or better.  None of it was her fault.

    Oh dear Lily, I am so sorry that you have to bear all the financial burden on top of the physical and emotional aspects of all this.

    Yay Teka!!  

    Happy Christmas Eve to all!

    Hugs!

  • Furfriend2
    Furfriend2 Member Posts: 168

    Here's to a F'n Fabulous 2014!!!! LOL Teka SillyHeartLoopyWinking

    Hugs & Holiday Cheer to each of you!!!

  • duckyb1
    duckyb1 Member Posts: 9,646

    and you....

  • Lily55
    Lily55 Member Posts: 1,748

    Have a great Christmas everyone - its 50 minutes away from Christmas Day here and we don´t even have a card up!!  Never mind, rain is forecast all day tomorrow.........plenty of time to do what really matters....

    Thank you all for you support in 2013........you really helped me get through.......here´s to a better 2014 for all of us

  • Tomboy
    Tomboy Member Posts: 2,700

    lily, merry Chritmas to you, sweetie, and all my best wishes for you.

  • CCFW
    CCFW Member Posts: 570

    deleted

    Nerdy

  • CCFW
    CCFW Member Posts: 570

    deleted

  • blondiex46
    blondiex46 Member Posts: 2,726

    MERRY CHRISTMAS HERMIES!!!

  • camillegal
    camillegal Member Posts: 15,711

    Oh Lily I didn't know u were paying for all of this---Can't it be a horrible mistake that they HAVE to fix without u paying. IDK--That's horrible--I hope u start to feel better, like nowSad

    {{{HUGS}}} and {{{PRAYERS}}} for u Lily.

  • camillegal
    camillegal Member Posts: 15,711

    Got my hair cut, did my nails-which I ruined one already and I don' care--- wrapped my presents--under the tree and put together to take to my nieces tomorrow--slept 2 hrs this afternoon!!! and worked the phone for a while-and a little computer work--ate a ton of cookies that we made last nite--so as little as I did I'm tired hahaha. My kids are spending tonite with my SIL's family I didn't feel like going and didn't go to my cousins either. So I'll save my energy for tomorrow--we stop at my DD1 and open up presents there and then go to my nieces with about 35 people all of whom are family and love them all and my sister's there and one of my brothers and our kids and their kids--My other brother might stop by I hope he does. so much food and fun, my favorite 2 things--Italian and (as we say) American food all great. I bought my sister such a pretty necklace and matching bracelet--some yrs I like things that I buy her better than other years, this is one of my favorites. Oh and Santa comes here of course during the night, then morning is Christmas breakfast (my SIL makes) and Santas gifts and ours here. So see why I need my energy for 1 day, then when I come home--usually late I put my nite gown on and Leslie and I talk about the day and the next day I literally can't move so Joey knows he has to wait on me--as he puts it it's not figurately, it's literally. Last year I drank a shot of bourbon, 1st time, I put my mouth over it andno hands and downed it--Boy did I get an applaud, but I can't top that this yr. Anyway I'm still on my Aunti-Bee's --well I might chet  little. 

  • camillegal
    camillegal Member Posts: 15,711

    image

  • camillegal
    camillegal Member Posts: 15,711

    image

  • spookiesmom
    spookiesmom Member Posts: 8,178

    Merry Christmas everybody!

  • grammaB
    grammaB Member Posts: 1,118

    Just got home from my friend's house. Totally stuffed myself on crab! Even indulged in a tiny piece of garlic bread. First piece of wheat bread I have eaten in 2 years since my diabetes dx. My friend coaxed another friend of hers who is also as much a hermit as me, maybe even, more to join us. She came reluctantly, and now we are hoping she will join us tomorrow night at my friend's sister's house for dinner. My dear friends are gathers of us lonely souls, and I love them so much for that!

    Merry Christmas to all my hermit friends here, may your New Year be blessed with health and happiness!

  • jazzygirl
    jazzygirl Member Posts: 11,976

    Merry Xmas my hermits. May you have a lovely day today, however you are spending it. 

    Blessings for a peaceful and healthy new year too!

  • SallyS70
    SallyS70 Member Posts: 816

    I am thinking of everyone.  All of you have been a blessing to me this holiday season.  Thank you.  May some joy find it's way into everyone's heart.