The Hermit Club
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Santa was here and Joey was so happy and Santa left a note thanking him for the cookies that Joey left out. So the presents are being opened and Joey is handing them out and after a few minutes he stopped and said This is wonderful if this is all I get (a couple then) it's more than enough I'm so happy we have each other and he started to cry. So he got composed and we finished our presents and he was thrilled thanking us and Santa--cuz he knows he can hear him--And Marty said Oh there's one more and he brought out the last one--It was an IPOD V--with Searry??? Joey opens it and the tears really came and he said I never expected this, I know I couldn't have been that good--OMG this is unbelievable as he's crying his eyes out.--and he keeps saying TY, TY, TY-with tears running down his face. Talk about drama opening up presents. He's making us all cry.
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Lily I hope today is brighter for u and the peace of Christmas fills u'r heart.
For all---but I know some are having a more difficult time right now and this goes especially for our ladies that are just not feeling the way they should.
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cami, how sweet is your Joey? He sounds wonderful! I teared up just reading what you wrote. I saw this post over on the Insomniacs thread too. I've been lurking there, but now I see quite a few of us hermits there I may have to jump in there too!!
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That Joey is so sweet!
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Cami- I always think Xmas is about the children, and that little boy you have in your presence is a very grateful little man. How sweet is that he cries and is so thankful. He is very sensitive, although I picked that up in your previous posts. What a nice holiday you are having together! Enjoy it until you all pass out from all the fun day together!
GrammaB- an Insomniacs thread? How awesome. I am going to check that out next time I am up the middle of the night. Been sleeping well the past two nights. I am really tired from the go live (sometimes referred to as the "go dead") and glad to be getting more rest now.
I am having a quiet day at home. Making things to eat that I like, enjoying some movies, just happy to be home relaxing. Been talking to friends and family today which has been nice too. Going to go out soon for an end of the day walk. It is a nice day here in the southwest.
Hoping all of you had a wonderful day. Now onward to the new year, my hermits!
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I know I overtalk about Joey, he is in my life everyday now that we live together and he teaches me things just like I hope I teach him. And I spend more time with him then I spend with anyone---so he's in my mind a lot.----
oh Insomniacs thread it's now a 24.7 thread--I used to go there before but it wasn't as busy just our niteowls, now it has everyone going more and they're all so nice.
Jazzy I'm so glad u got a break from everything--it sounds good cuz u have been working so hard, which u don't seem to mind but still it's good to just unwind and do nothing.
I'm going back to hermiting--the last week (for me) has been hectic, with cookies, wrapping and just everything. I had something on order that was supposed to be delivered and the first time in history there was a big overturn with the UPS truck not far from here (no one was hurt) but packages all over the place, I'm sure one was mine. hahaha I'm so excited cuz I got some gift cards and I'm going to buy some really good Lotion, I did get Philosophy shower Gel--Vanilla which I love and did get Pink body lotion, but I need more and some good stuff for my face I'm almost out of my Argon stuff so it's good timing--my skin has never been so dry in my life, it just peels off, but it's dry under too. Might be some meds plus my skin anyway. Well I'm happy about it anyway. So I can do this from the comfort of my room, which I love---
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Good morning hermits- sounds like UPS and FedX are struggling to get their remaining packages to folks. Sounds like bad weather and they exceeded the ability to deliver all they took in. And oh my gosh, Cami, a flipped truck! Glad no one was hurt but maybe some damaged stuff as a result.
Today I am off again (yay) and have some things to do at home and a trip to see the MO at noon. A follow up to the going off the anastrozole for a month in November then resuming it. I am doing a bit better since I returned on it three weeks ago, but sometimes the worse foot and joint pain don't come for months. I am going to tell him that I will try to continue on this until we see each other again during my next six month follow up (April). I need to find out today what things I need to be sure to get done for this next follow up which should include blood work, and a mammo, but think a bone density test too. I am worried what the meds are doing to my bones. I have read on other threads that despite Calcium, Vitamin D and exercise, many otherwise healthy women my age are ending up with osteoporosis.
Going to go have some fun this afternoon too!
Wishing everybody a good day after Xmas whether you hermit or take advantage of the after Xmas sales!
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It is very pretty here during the holidays. Enjoy!
http://www.newscastic.com/news/10-photos-that-show-the-beauty-of-a-new-mexico-christmas-1266260/
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Cami, I enjoy hearing about Joey.
Jazzy, are you going to share what you are doing for fun today ... in any case, enjoy.
Morning Teka.
I guess I did too much on the 23rd and 24th because I was exhausted yesterday. After realizing I had no energy, I ended up sobbing because I just could not make my Christmas morning trips to see what Santa left the grands. After resting all morning and half the afternoon, I felt better. I started anastrozole 3 weeks ago. Between surgery, a post surgery hospitalization, the anastrozole, and a tendency for anxiety, I guess I need to be careful about overdoing. Being a lazy 70 is in the mix too. My anxiety is here today, but the exhaustion is gone.
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Teka, what is Sprint?
Sally it is easy to over do at first. And some can and it's not to bad, but some can't---We've learned how to pace ourselves --yea right. I'm sorry u missed out on gift giving. I know when I got home I was seeing stars, not the pretty ones--I still didn't rest properly and I feel miserable---my phones are going this morning so a little busy. And really it's hard for me to be so polite today cuz I don't feel like talking. Sally I know there's not the energy there anymore, I hope u can rest today.
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Cami, I hope that the phones will take a break and that you will get some good rest. I will be resting today and maybe taking a short, gentle walk. Walking has always helped calm my anxiety.
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Sally...your not alone....I am in you age bracket 70's......letrozole is killing me.....arthritis doesn't help.....then opening my gigantic dining-room table alone was the icing on the cake....plus 35 people xmas eve (all family, just my kids etc).......and invited to xmas dinner at my grandaughter's.........
Guess it eventually got to me sitting alone after everyone left, and thinking...is that all there is.......began crying, and thought of my husband who tied 22 years ago, and was diagnosed on xmas day....operated on. the day after New Years 1989.......
Was so sore, and hurting xmas day (dining-room table stunt) that I was crying again......guess it all hit at once....."did go to my grandaughter's, but being driven home by her mother, got in an argument with her......and more crying when I got home....
So you are not alone......thus is why I dislike this time of the year.......just take it easy. You need to....hugs
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cami, it just about made ME cry, your story about Joey. What a sweetheart you have there! wow, such a sensitive young person, thanks for sharing. Hope every one is having a wonderful after Christmas day. i am still in slippers and robe, and plan on staying that way, till at least 2:00 ! Jazzy girl, i did my very first dexa bone scan, after chemo. and before arimidex. and i was slightly osteopoenic in a couple of places then. well i just had another a couple of weeks ago, three months after being switched to tamoxifen, because of severe pain, and guess what? i am now severley osteoporotic in several places, and now they want me too see an endocrinologist, to figure it out. and the tamox finally was making all the pain and other symptoms come back full force. i had called the triage, and they told me to stop the tamox for two weeks, and then to call my onc back at that time. she said it had many of the same toxicities as arimidex, even though the way it works is completely different than Ai's. so happy to, i am just so done with feeling this bad. i might be one of those women who find them all intolerable. and i am only 53. and my whole life has been a big exercise! as was all my physical work! and i was always remarkably strong, for such a truly skinny person most of my life! even 5 years after meno, was still on slender side, just skinny came naturally to me. so yeah, not happy about my bones dissolving.
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Kath u sound like me too I'm on Aromsin--had the scan and I had moderate vertebrae and 2 lower discs dissolving (tho they don't call it that) -I can't think of the words I want. LOL then 3 months later it went to severe, plus extreme arthritis all over and scoliosis, plus my moving liver pushing into my ribs cuz my intestine is growing up my side and pushing my liver, plus 3 hernias--PLus other things but in 3 months--I mean give me a break--I laughed cuz I said I can't even grow an eyelash in 3 months and yet my bones and organs are having a circus in there--so I'm sent to another Dr. by that time 2 months later and test they found more--WTFI said u gave me meds to ruin my bones, why can't u give me stuff to take care of them????? I got a 2nd opinion on my liver and that Dr. said This is almost impossible the liver is like the heaviest organ (as everyone knows I call them my flying organdos) well it's happened--And there is nothing they can do cuz they said this is a dangerous operation for me. That is it with this 3 month thing was my whole point. How could so much go so wrong in 3 months. When I started my bones were fine but I did have some arthritis, some now of course it's severe--I've been to PT, I've been to LE PT and so on. I still have everything and it just gets worse.I know I'm repeating myself but the 3 months caught my eye--maybe if we waited 4 months we'd be OK, dumb 3 months.
Ducky why oh why did u move that table, u do know better, u'r hurting u'rself more Please don't do those things. I'm sure by Christmas day u were exhausted and in pain, I am truly sorry for that--it ruins u'r day so much with that combination. I know u are used to being independent but u have to slow down physically it'll just make u feel worse.If I wrote books one would be How to be a lazy Ass and feel no guilt. I've honed that to perfection. LOL
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Cam......"my grandchildren bought me a sweatshirt that said...."
CAN'T STOP, WON'T STOP............maybe that isn't true anymore""
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ducky, I hope you are feeling better and resting. Cooking for 35 ... yikes. Thank you for for your post. I am sorry that you too had Christmas tears. (((hugs)))
kath and cam (((hugs))) and wishes for some good bone news ... some good health news.
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Sally- the anastrozole will have you tired, on top of all the rest you have gone through. I had surgery in November of 2012, radiation in Jan and Feb of 2013, and then went right into the AIs in March. I was tired for a REALLY long time and even now, things still wear me out pretty easily. So be gentle with yourself and know that fatigue is a very common part of all this, and the meds pretty much compound it. It does get better with time though. I was highly emotional the first few months on the anastrozole.
Visit with MO went fine. I will see him again in April.
Spent a few hours in Old Town today with all the pretty decorations. Did a bit of shopping and it was very busy there today. One might think it was still before Xmas, but people who are visiting for the holidays often go there. I ended up mid afternoon on a patio at one of my favorite spots next to a roaring fire eating some mushroom brie soup (oh yum) and reading my book. Tonight, I will go to the gym for a yoga class. Back to work tomorrow for one day, then on to the weekend for more time off.
Hope my hermits here had an okay day today.
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Jazzy...never heard of that soup.....
Been beat up by AI's .....surgery and rads was the easy part....
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Hope everyone had a good xmas and are all feeling well...
Cammie....I am so jealous would love to live with my grandson Andrew (but can't stand the daugthers person she married) he wants me to live there also...
Jazzy I sure hope you are taking care of yourself....
Ducky, knock it off....you aren't taking care of yourself either....
tomorrow supposedly back on chemo the red devil one, they called didn't have me on the schedule, had me on for today....they screwed up, now might not get it done tomorrow, and been gearing myself up for it too....damn....
have a good night bbl
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Cami. Sprint is a wireless (cell phone) carrier.
We had a nice day at DDs, the boys were bouncing off the ceiling, so many toys. And they got new bikes. I'm so glad it's all over. Even though I didn't do much, it wore me out! Slept most of the day, ready for more soon.
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Hi hermits- two days off coming to an end. Tired tonight and early morning tomorrow. I hope I can sleep!
Blondie- hi and yes I am taking care of myself. I had a good talk with my MO today about food, sleep, exercise. He likes the things I am doing to take care of myself and thinks I am doing well. Thank you for caring about my well being. Prayers that your next round of chemo won't be so hard on you (but I can tell you are expecting it to be).
I found a recipe for wild mushroom and brie soup! After reading it, I am convinced I had more calories in that bowl of soup than I had in two days worth of meals. Oh it was so good though, and since I don't eat desserts anymore, it was my splurge!
Nite hermits!
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Hi hermit friends!
Geesh, I don't know how I got so far behind!
I am always glad to get to the other side of Christmas. It was my late DHs favorite holiday and we did it up BIG!! Since he passed I haven't had the heart for it. I put up a few decorations, not much. Had good visits with friends both on Christmas Eve and Christmas Day. Chatted with my kids and grands in CA. But I am glad it is done!
I don't think I am even going to try to respond to everyone, know that I have read your posts and am thinking of you. I am so sorry for those of you having bad se from the AIs it really sux that the med to help one problem causes so many more! Pacing is really hard, but we each have to find what works for us and then try not to go over the line. Yeah, easier said than done!
The weirdest thing for me is that I have yet to cry. I had one cry before sx, I was frustrated that my DS and DD were having such a hard time arranging their schedules to come a help me out after sx. It was brief and since then no tears. But then I am not taking any meds or having chemo or anything else besides x. I don't know, maybe I am heading for a big crash somewhere down the road.....
Teka, thanks for the invite, I'll pop over to the Insomniacs thread and say hi there soon.
Jazzy, love the photos and the soup sounds really yummy!!
Spookie, I am with you, I hardly did anything and feel so tired today!
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Gram......hope that day does not come.....I get down too......sometimes it's hard not to......,
I do believe this website helps so much.....why.......because we know the tough part is after the initial shock, surgery, chemo, rads., and finally AL'S..........for us it never really ends, but for others once you seem ok......they believe everything is ok......
That is when I come here for the support, that we lose over time......here we never do......love you ladies....could never have gotten this far without you all.........hugs
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CCFW, thank you for the reminder that even happy situations deplete energy as well as phone and online talking. You mentioned Boxing Day ... are you British? Do you have a celebration on Boxing Day too? A former neighbor from England told me that her family had a big family gathering on that day.
Jazzy, I start rads on Jan. 6. I will need to be very careful to pace since I will have fatigue from both the AI and the rads ... plus the AI emotions. Were you in Old Town, Albuquerque? I loved my two visits there. From your brief description, it sounds like it's as wonderful as ever ... if that's where you were. DH and I used to visit a small California town for it's ambiance until most of it's quaint, local shops gave way to tourist t-shirt shops. We were so sad. Hope you got a good night's rest and today, Friday, goes smoothly.
Hi Teka. I love potato leek soup.
Ducky, even though I had read about anastrozole side effects, I guess I was caught off-guard. I am thinking that the general breast cancer diagnosis emotions are compounding everything. I am so glad that I have you Hermies to support me.
Blondie, did your chemo treatments get straightened out? How frustrating! ... scheduling errors on top of everything else! (((hugs)))
Spookiesmom, since you are in Florida, the grands will have nice weather to bike ride. You said new bikes. Are the kids into neighborhood riding or trail biking or stunt biking? Out here we have mountain biking ... scares me to think of my grands careening down a mountain.
grammaB, I am glad Christmas is over too.
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Sally glad it's over too.....too much fuss, and thr true meaning is gone.....
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Hi everyone--wow, I didn't realize I was so not caught up. Been a little busy with work. going to my other DD'a tonite which I don't feel like going--I'm just dragged out.
I'm sorry I don't remember who asked, but yes a lot of my decaying bones are from the Al's and other things they haven't really seen much of so they don't know and they're not sure if my heart thingy is from Herceptin--no one really likes to say exactly why but most of us know. We're all screwed up even after a lot of chemo and then rads. I had 2 yrs of chemo all different types so who really knows. And I did have the red devil and honestly others were worse cuz I too was expecting horrible things but was a little surprised. And then think of all the meds we take that can't help--I take 15 different types of pills a day, but some a couple of times, I think they all have side effects so add them together and wham we're stuck Rock-------us--------hard place. OOh I'm moaning again.
U know I have never cried about any of this at the beginning or now, maybe my tear ducts dried out too with the rest of my body LOL
Ducky I'm glad this is over for u, u can't help u'rself to slow down, but maybe now u can. And it's true everything takes energy that we took for granted before and it zaps us out more--Even my silly job, I have to act nice and pleasant and caring to people--when I'm not in the mood to talk to anyone. And it's nothing really but It makes me upset, I've noticed cuz I have to do it when I don't feel like it. If it wasn't for all of the great women here I probably would be in a loony bin, cuz no one gets this all and my sister who is Stage IV never had chemo or rads--on I shot every 8 weeks--she said not bad--all different type of cancers than I had. I'm glad she's doing so well and she still works FT and she'll be 75--she's a wonder to me. But she has no more party of any kind at her home her kids have everythin now so she doesn't go thru that chit and she just gives cards for the holidays now so she doesn't have to shop. So she has slowed down somewhat.
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Oh I cried several times thinking of my children losing their mother. Their father has not been around in years but I know my sister and parents will help them if needed. I've been a sobbing mess but crying changes nothing. I can't cry for me. What will be, will be.
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Thinking of all of you and praying for you always. Lily....I am so sorry for you. I hold you in my heart.
Ladies....where is Skittle? Is everything ok with her?
XOXOXOXOXO
Laurie
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"It was his only defense." LOL! This reminds me of me a lot through this BC journey!
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