The Hermit Club
Comments
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ltb I'm LOLing for a second. U were asking about Vinnie and I thought the same thing before who is this person that everyone knows but me--u too now. LOL
bigirl-OMG That is an awful lot to go thru at one time--it's awful enough by itself Wow u need to really relax as much as u can to destress. It's so much in u'r head it's hard for anyone to understand cuz some of this does not leave u--altho I'm doing well, All my SE end me in the hospital and it takes a while to get strength again---so I can't even imagin all u feel, Please take care of u'rself first now, u have to--Thst an order from an elderly person. so there.LOL
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Bgirl- (((Hugs))) You have been through a lot. Come here and vent/rant away whenever you want! We're a very supportive group.
I can't make any decisions. I've always tried to be very practical and use logic to back up my decisions, but this cancer stuff has thrown me through a loop. I'm hoping it gets easier and just trying to trust my gut.
Whatevah- Hope you're feeling good.
Kltb- let us know how the appt goes. I only have 2 or 3 herceptins left ( they have to decide between 17 or 18 txs). Vinnie Meyers is apparently the nipple tattoo king. I looked up his website and his work is amazing. I haven't heard back from him, so I guess I should call.
Journey- do you know what kind of implants you are getting. Mine are 800cc silicone Mentor. They are finally starting to look pretty good. I have a really long torso, so they don't sit up as high as I would have liked, but with clothes they really do look like my old ones.
Camille- thank you for always posting the pics, they make me smile. Hope you're feeling a little better today.
I slept through the support group dinner. My mom picked the girls up for me and I decided to take a little nap after my herceptin. Well, my husband thought I needed to sleep so he didn't wake me up. I feel so guilty
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Markat don't feel guilty, u'r body is tired always be kind to u'rself.
And TY I do feel better---I'm always complaining jst fluff it off. LOL
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To all you wonderful ladies (camille - elderly - really!) You made me cry when I logged on today. It is so nice to have others understand and just know that sometimes we are venting and there really isn't any problem to solve. As for my dad it really was an amazing way to honour him and say goodbye. Not surprising I am still tired though I guess. Working on not feeling guilty for finally taking care of me. Enjoyed my couch time last night.
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Good birl--remember guilt is a waste of energy and u really need u'r energy for this stupid disease. It's been raining here today so I watched 2 differnt scary movies--I love being a hermit- it goes so well with my personality.
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shopping for shoes, a good reason to leave house! When I was done rads I thought I had spent enough on parking to pay for a nice pair of shoes. This anoyed me, so when I was done, I went out and bought 2 pairs.
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Rads are over fellow hermits.....yahoo!
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sissydi - congrats on being finished. Hope your SEs aren't too bad.
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Congrats Sissydi!!
And congrats on your new shoes bgirl!
CS still sending you good thoughts. Hope you are getting some rest.
I've just been doing the normal day-to-day stuff. I think we are going to try and refi our mortgage, so I have some minor projects I need to accomplish around the house. They need done either way.
Hope everyone had a great day!0 -
SISSYSI---YAHOO---CONGRATS
BGIRL----Good idea shopping--u can't have enough shoes, or purses, or any kind of jewelry---Oh don't get me started.
Markat this is the time to do it. Good Luck with that, boy that'll keep u busy.
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Camille- that pic is hilarious!!
I know! We were late on one payment last year when I was starting chemo (I've always been in charge of bills) so I don't think we can do the gov't program that would make it a million times easier, HARP I think? Sucks!!! I don't know if that will screw us regular refi or not? It's so hard being a grown-up, lol, just ask my husband ;-)0 -
I don't know but just one payment--hmmm U might be able to try any kind of government help with refi--I mean they have made that easier--I think. I wish I could answer questions, but I know nothin about this either. But u sound like u'r pretty together on this so I'm sure it will work out. U'r a smart woman Markat ---altho young LOL
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Sissy - congrats!!! Great news.
Camille - love that pic. You are so right that guilt is a waste of energy.
Markat - ugh on the refinance. We are on year 4 of a 5 year ch 13 repayment and we can't do anything. We can't finance anything get a loan, refi. Sucks because we have repaid a LOT of money and don't have any debt
now. Lessons learned.
Bgirl - I need to do some shopping. Shoes are hard for me bc I have really wide feet!!
Having a lot of TE pain the last few days. Have to go back Tuesday to ps. Last visit lasted about 2 minutes he clipped the stitches and told me to come back in a week. Spending weekend hermit-ing in my room while DH entertains his mom.
CS - hope you are doing ok.0 -
K, that does suck! I'm such a head in the sand type of person, and so is husband. We have to get this stuff in order. The TE pain did seem to ease up the fuller the TEs got. I did have to take pain meds throughout the process. I used to think I had a high tolerance for pain, boy was I wrong!
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Hi guys--well I'm supposed to go to a party tomorrow night, well late afternoon and evening (kids too) for halloween--this is an every year thing and all kinds of people there and I don't know if I really want to go. My dgtr says all u have to do is sit there I'll wait on u. but I don't like that either, but I walk horribly then I get questions--what hurts so much and why and blah, blah ,blahSee I'm already talking myself out of this.Well I'll see--I know I'm bad but that's how I feel--we'll see.
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Sorry you're feeling that way Camille
It's tough going to things like that and answering all the stupid questions. I don't think people mean to be rude or nosey, usually just concerned. Still, it gets old really quick. If it's something that will make YOU happy, then go. If not, then I would skip it...but I skip a lot of things unless family is involved. Will any of your siblings be there? You have a good time with them, right? I hate wasting good energy on forced social gatherings. 0 -
Markat right--Actually it's all my DD's in-laws who are fun at a party but not for questtions. Why do people think that's all my conversation could be about? Here I spill my guts but not when I go anywhere. I have better things to talk about when I'm dressed and out. That's why I have a question about going--Oh if it was my family I would love to go. Another thing this month drives me goofy, everyone on FB is all cancer stuff and to share it and I really have to but it's my space to forget about it and joke around and it's all so serious--I guess it' just me, I'm not very nice alot about certain things, but I relive over 3yrs of horror and still SE that a
land me in the hospital even now. So I'm mean. LOL (not eally mean I hope)
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I can't imagine you being really mean Camille! The FB crap is annoying. I have a really loud inner voice, but then chicken out when it comes to being confrontational. It's so much easier to just hide from all the people than to deal with them.
I think it's hard when you don't fit the typical survivor role. Some people don't seem to understand why some can't bounce back quickly and return to their former life- either because of residual SEs or emotional reasons. Then of course, people want to know what we've done wrong to allow ourselves to get this nasty disease. Sometimes I feel so defensive trying to explain to people why I'm not the one-size-fits-all cancer patient. As long as I have my girls, my husband, and mom…then I'm happy. Screw everyone else
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Markat u always understand me hahaha---I had horrible diarhha all during the night and so tired and sick I've been poppin my D pill like crazy so now I feel very weak and tired so it means I don't go the the party anyway. LOL I think the wworst of it is over. (I hope) My Dr. called to go over some meds with me and I need a new perscription for my pain pills. and my dgtr heard the conversarion and she was laughing cuz she said I sounded like an addict trying to not sound like an addict., but I have newish Drs. since we moved, but she called them in. not problem hahaha 20 yrs ago I didn't even take aspirin--now anything that helps me OMG have I changed.
I hope everyone has a good day today and Klt hope u'r pain is easing up some--I'm sorry u have to go thru this.
I don't know how u gals do all this with kids--it's such a struggle and then u have a family to take care of too. Wow--U really do have my admiration--u'r wonderful women going thru crap--and it just makes me mad and sad.
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Just wanted to check in and say hi. I had my surgery Tuesday, and got home Thursday. It all went well. My sentinel node biospy came back negative (yay!) so I had only one node removed. They did have to remove a bit of my chest wall, so I'm a bit sensitive. All in all, it went well and I'm doing well. Just wicked tired from the painkillers. I'll be back later to talk.
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CSmommy I know--just relax and heal.
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CSMommy - rest, rest, rest, rest, rest....did I mention rest? YAY for the negative node - great news!
camille - lol on the pain pills - I always feel like I have to have a casual attitude - like "yeah, I could maybe use some" when I am really thinking "GIMME THOSE PILLS!"
On FB - I finally spoke up today...I have kind of just ignored the pink posts, etc...but today was our states RAce for the Cure. I know Komen does some good work but there is a lot wrong with them too - first and foremost in my mind is the fact that only25% of their money goes to research. So today I posted as much - just telling people that it's great and awesome for the folks who choose to do the race but they need to know where that money is going - I linked to a couple of Ann's (coolbreeze) butdrIhatepink blog posts because she expressed it more eloquently than I ever could. I hope I didn't offend anyone. I also posted this picture.
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kltb04... Good for you! That picture is worth a thousand words.
CSMommy...yay on the good results and yes, rest up
Hope everyone has a nice weekend
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CS, so good to hear from you! Yay about the nodes!! Just rest and take it easy.
K, that picture is the truth and it's great that you posted it! Thank you!
Hey Whatevah! Hope you're feeling good!
Camille, glad the worst is over. That's funny about what your daughter said!0 -
Cs - yeah to negative nodes - rest and feel better.
camille - what a crappy (pun intended) way to get out of going out.
Drugs- love/hate. But I do take more than I used to. Have chronic pain from spinal injury when I was 12, didn't take much for years (lot didn't work anyway) but now I say screw it, if something helps.
K - would make a great ad campagin, but most people would be like the pink doesn't scare anyone. Perhaps that is the problem, people should know that this BC stuff is not all pink roses and fluffy pink teddies.
Markat - think the probelm is we are all supposed to be the happy/positive cancer patient. Society rewards you for this as it makes them more comfortable. I am generally a postive person, but BC doesn't make me happy! Let me choose how to feel. I know women who breezed through rads, I had big chunks of skin come off/tissue with surgery sutures/ blisters the size of your hand and post rads inflamation of the chest wall/ribs for the last 6 months. How can anybody compare our recovery and should they? I have been this graphic with a few people who couldn't understand why I wasn't out running for the cure this month and they were shocked, but at least they sort of got it.
On that happier note, DD#2 and boyfriend came for weekend (promised them dinner as they missed an extended family dinner 2 weeks ago as BF was in hospital). Then my DD#3 showed up Friday night - texted me from train asking to be picked up. Then DD#1 showed up at 1 yesterday afternoon, had got a ride from roomate to come home. DD#3 BF home from his university this weekend. So ended up with a big family party (had cooked a turkey) and it was fun to have their energy around. Whoever said, my family is what is important and screw the rest. I hear you!
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Just catching up on all the posts...I hope I don't forget anyone!
markat - my implants will be 800cc but I can't remember what brand the PS told me. They're not "gummy bears" or silicone but they're the ones that won't leak. That's about all I can tell ya. Sad, isn't it?
bgirl - wow, with what you've been dealing with, its amazing you have any energy left. Its time to be selfish and take care of you.
csmommy - I'm so glad your surgery is behind you and you're on your way to recovery. Awesome news about the node! YAY! Remember to take it easy and rest.
kltb - I get a chuckle everytime I see one of your "new" words or phrases! Frankenboobs are exactly what they are!! You crack me up. On a more serious note, that picture says it all. I'm thankful you gave folks a dose of reality. This disease isn't pretty.
I'm afraid if I don't post this right now, I'll lose what I've written and I hate when that happens...so think of this as #1 of 2 lol
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birl---that's my favorite time---when everyone ets together and u'r right there is so much energy it's almost catchy. All the laughing and fun stories and silliness and everyone is helping the other. And u never leave hungry LOL
U know sometimes I feel like picking up my shirt and saying tell me how beautiful this looks and why it should be pink. And my skin is all black (rads) I have LE which can be interesting (haha) and chronic diarrhea, plus other everyday things. So there is nothing pretty in pink about it.
A people have said I'm so stron--I tell them balogna there was no strenght involved it was a no choice do this or.....I did what anyone would do for survival. That doesn't mean strenght it means scared stiff And I tell them. I'm no martyr And I know this sounds terrible but when they see commercials or any type of talk shows they see healthy strong women, they don't see alot of us so unless they know personally they see happy healthy people. And od Bless them (I mean it) but not all are like that.
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birl---that's my favorite time---when everyone ets together and u'r right there is so much energy it's almost catchy. All the laughing and fun stories and silliness and everyone is helping the other. And u never leave hungry LOL
U know sometimes I feel like picking up my shirt and saying tell me how beautiful this looks and why it should be pink. And my skin is all black (rads) I have LE which can be interesting (haha) and chronic diarrhea, plus other everyday things. So there is nothing pretty in pink about it.
A people have said I'm so stron--I tell them balogna there was no strenght involved it was a no choice do this or.....I did what anyone would do for survival. That doesn't mean strenght it means scared stiff And I tell them. I'm no martyr And I know this sounds terrible but when they see commercials or any type of talk shows they see healthy strong women, they don't see alot of us so unless they know personally they see happy healthy people. And od Bless them (I mean it) but not all are like that.
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