The Hermit Club
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Whaever, I hope u take No.5 easily.
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Lol! I remember being so disappointed with the taste of cheesecake during chemo. Eat it up!
Whatevah- hope #5 isn't too hard on you.
Kltb I hope you are recovering and resting!0 -
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Wah, I have a PS appointment I forgot about today. Was so looking forward to catching up on some cleaning and making dinner before my 8yo's soccer game tonight. It's an hour each way and I'll catch rush hour traffic on the way home.
Hope everyone is feeling good and having a good day!0 -
markat lon ride---be safe.
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How's everyone doing? My PS appt was confusing- of course. She was pushing nipples but I think I've decided on no more surgery. I'm surgery'ed out for now.
I was also invited to a support group dinner being catered by a pharmaceutical rep...odd I think! Unless of course she has free samples ;p
It's cold and rainy here.0 -
Hey markat it's rainy and cold here too.
That dinner sounds like it might be interesting--I hope u get some free stuff too.
And I'm going to my irlfriends tomorrow for lunch, so I'm going out--I'll be back to my hermitude soon like Sunday. hahaha. This is scary movie weather.
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kltb - I'm so glad the surgery's behind you! How are you feeling?
markat - I'm having exchange surgery next month. Are implants softer than TEs? Please tell me they are...I'm considering having 3-D tattooed nipples rather than having them "made". Someone told me that formed nipples have been known to look erect all the time. I don't want that!
The support group for husbands with illnesses...hilarious! Can't you just picture all the whining?
camille - love the pics!
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My drug addled brain is going to prevent me from addressing everyone so here is an update.
Still having pain even on round the Clock percocet Wondering if the TEs make the pain worse? A lot of people I have talked to about BMX alone don't seem to have as much pain as I'm having. And my PS was very vague about how much I should move, any exercises I should be doing etc.
So I just get up every few hours, go to the bathroom, DH strips and empties the drains and then I walk around the house a few minutes.
Followup with PS Monday.
Oh and I am itchy. Not like allergic reaction just my back gets sweaty during a hot flash and then argh. Itchy time. PA said I didn't have to wear anything special as far as bra or cami but just enough to have some light compression most of the time. That I could go without anything if I chose for periods of time. So at some point during my sleepless night I managed to unpin my drains pull off the sports bra I had on and repin the drains to my cami. Amazing that I didn't stab myself.0 -
Journey- the implants are much softer. I can actually sleep on my side. Good luck with your exchange!
Kltb- I think the TEs make the surgery much more painful. Think about those poor chest muscles being stretched and the cut nerves. I think the women on the LE boards suggest no special exercises for awhile. My range of motion was fine after surgery. Just rest and keep taking your pain meds. I had to have them give me a higher dose for the first week because the 5/500 weren't touching the pain.0 -
Klb--I didn't have any recon so the pain was like nothing, but what u've had I have heard is painful just relax and take u'r meds.
Journey I have no idea what's best I'm boobless and enjoy it.
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I feel so neglectful of my fellow Hermit friends! I apologize for not checking in. My old friend came to stay with me for a few days. We had an absolute blast - lunches and dinners out, a trip to an art gallery, a morning at the Farmer's Market - all the stuff I loved to do with her years ago. Felt like old times. I was so sad to see her leave.
For some reason, her visit made me take a step back and reevaluate relationships with the people in my life. I have heard more than a dozen times that a cancer diagnosis will show you who your true friends are, and this couldn't be more true. I'm actually quite upset that I invested so much time and energy in years past on people that couldn't and won't be bothered with me now, yet the people that are proving themselves to be the most generous with their positive energies and help are ones that I feel I may have taken for granted. Perhaps I'm blessed to be able to realize this.
And my friends have become more of my family than my family has. And I'm finally OK with that.
Whew...little therapy session there!
I'm sorry I missed your surgery, kltb4. I hope you can find some relief from your pain soon! Good luck at your followup on Monday.
So did you decided whether or not you're going to the pharmaceutical-catered support group, markat? At least you'd get a free meal if not some goodies! And oy - OY! - on sick husbands. Mine had a cold two weeks ago, and if I heard him say "oh, my God, I'm dying" I was going to go ahead and kill him myself.
Hope your mouth is feeling better, camillegal! Has the bruising faded? Thanks for posting all the pictures - always good for a smile.
Hi, whaevah! I didn't realize that you were also TN! I hope the Taxol is treating you well. You're almost halfway done, yes?
Welcome, michellej1980. I hope this thread helps you as much as it's helped me. Like you, as much as I appreciate people wanting to help, sometimes I just want to be alone.
How have you been feeling, Jinkala? So glad to hear your vision is back to normal. That's absolutely scary when it changes on you.
Hope I didn't forget anyone!
As for me, my BMX is scheduled for October 16th. It seems like it's so far away, when it's only just over a week away. There might be a bit of denial there.
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CS I love hearing u had a great time with u'r girlfriend. That was a goo treat and therapy for u.
I had a wonderful day with 3 of my girlfriends today and I love that. It feels so good.
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CS and Camille, so glad you both had a good time with your girlfriends!
CS the 16th is when the dinner is! So as you're recovering I may or may not be wondering if my dinner is pumped full of hormones
I'll probably go. I would like to get more involved in volunteering with and for cancer patients, so this might be a good way to see what's available. 0 -
LOL Markat! Watch out for those hormones!
You and I are on the absolute same page about volunteering. I am seriously considering a career change after this is all over. I'd love to be able to do something helping cancer patients, and if I can't make a career of it, I'll at least volunteer. We have a cancer center that has become invaluable to me, so I'd like to do something there. It dawned on me yesterday that the person who calls me a few times a week to remind me of different classes is the same woman who I have met in my group therapy sessions (always wondered why her voice was so familiar!). It clicked then that I could both give & get help.
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CS Mommy it just occurred to me that I could be a little more sensitive in sharing gory details about surgery since yours is coming up. I am sorry!! It really is getting better each day. I am getting up and down and around by myself. I think I should have pushed for better pain management at the hospital. Right now I am quite comfy in the rented hospital bed with my pillows and down comforter.
I guess I need to start giving some thought as to what I want to do too. Not going back to retail! And no desire to go back to teaching. I really would like to learn Spanish for some reason.0 -
kltb04 - please, PLEASE, don't feel like you have to censor yourself! This is a place for you to talk and vent and I would hate to think that you are holding back what you need to talk about because you're afraid it would frighten someone. I'm also one to want and need to know all the down and dirty details, both good and bad.
I am so glad to hear that you feel like it's getting better. And I'm glad to hear that for YOU, not for what I'm anticipating. I'm glad to hear YOU are feeling better. Take good care of yourself.
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Ok, you asked for it
No really, before the day and age of all this instant posting of information, I think by the time we would get around to telling others about our life events - surgery included - enough time has elapsed that the sharp edges have rounded a bit! PS appt tomorrow. Going to be interesting to see what he thinks and how he thinks things look because it is a hot mess from here!
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Kltb, I hope your appointment goes well. I hardly ever look at mine anymore…except in the shower. Thankfully, the light fixture in my bathroom is broken so only one light works. It's perfect lighting to make things appear better
(I really should get that fixed, I guess).0 -
Kltb let us know after OK.
markat take y word for it--don;t get the light fixed. LOL
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Hi to all - I feel like I kind of belong here since I am in forced hermitude. I am over all the BMX/recon stuff and was lucky to not have to have chemo or rads, but I think that in some ways the last 3 months have been way worse with a fractured elbow that had to have a plate and 7 screws to repair and that was followed by rotator cuff surgery 3 1/2 weeks ago. I have my arm in a sling and am not supposed to pick up anything heavier than a TV remote (wow they do get heavy - LOL) or move my arm. To dress and shower have to lean forward and let arm hang so I can wash the pit and not smell too bad. Can't drive so DH has to drive me everywhere - ergo the forced hermitude. He doesn't like to go anywhere and thinks I don't need to go anywhere either. He has to drag his butt out of bed every morning to take me to work and pick me up afterwards. I am miserable since the arm is my right and I'm right handed. Have the eating with left really down and do most everything left handed at work - the writting is terrible! My boss wants me there but doesn't so it is touch and go and I just try to lay low and do what I can. Fortunately my co-workers are pretty helpful with lifting and stuff like that. Do have to use a cane when walking very far as I fell twice within a month so not stable on my feet, especially with this sling.
Sorry for the rant, but feeling sorry for myself today. Did too much around the house and arm is throbbing. Guess I'll take the meds and off to bed.
Camille - love all of the pictures - they are so relevant.
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OMG Deliah how are u even working--rhe pain 'r in has to be terrible--Geeze can't do anythin. Oh I'm so sorry u'r going thr this oh and a cane--u mst look like a poster child for this can happen to you. See I would tak fll advantage of this and JUST use the remote--it could be heavy yo know. Well we're here so jst rant all want I do.
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Delilah, so sorry you are going through all of that. Geeze! I would take Camille's advice and veg out… of course I do that anyway, lol.
Kltb continued good thoughts your way.
Whatevah hope you are feeling okay after chemo.
Jinkala you too!
I'm waiting to hear back from insurance about when my deductible starts over. Sadly, that will influence when/if I get nipples. I just hate anesthesia and feel lucky that I haven't gotten any infections yet. I know I'm young in breast cancerland, but it doesn't seem important.0 -
Hello fellow hermits! I win the hermit award for the weekend; had to sit and air out my breast and underarm due to rad burns; one more week! Hermiting topless!
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Oh sissy TOPLESS must be an interesting place to visit. My thoght is do whatever u need to be as comforable as u cn be--whatever it takes. No rules.
I like the way I think and hermitde is a chosen profession to me, it's not easy (LOL) but it's very doable (as they say) and I head the list and marat is pretty close behind. LOL
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LOL! Me too!
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Oh sissydi, I'm so sorry. I remember my mother doing the same thing after radiation.
I'm in full hermit mode today!0 -
Oh, Sissydi, that sounds positively miserable. Hope it's feeling better soon.
So leave it to one of my son's classmates to shove me back into hermitude. One of his "friends" asked him why his mom looked so weird. I pick him up from school every day, and we have a specific area where the teacher releases the kids, so all his classmate's have seen me. One finally spoke up.
I know people stare. I can't say I've ever gotten used to it, but to have heard someone made a comment about it (regardless of age) really hit me hard. I can't believe I'm upset over a comment made by a second-grader, but I am.
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