The Hermit Club
Comments
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So, I typed out this whole big thing about how the steri strips and plastic sticky flim thingy gave me a square of blisters after my port surgery, but then my pc shut off, stupid thing. So anyway, start chemo tomorrow, if they can poke through the blisters to get to the port.
Turkey day was good, it was just hubby, the kids, my dad and one of his friends who didn't have anywhere else to be that day. I always make sure no one we know will be alone on a holiday. Unless they choose to be a hermit of course. Lol
So much going on for a bunch of hermits!
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Whaeva---sounds like u are happy with u'r food choices to---sounds good to me.
Inspired U're doing well it'sll all get better and as far as my results I don't know but she already told me my lump probably won;t show up so I really don't care when I get them--I never think about those things.
Stormy u start tomorrow with that goofy port - ouch . Well they'll be gentle--now what are u getting? Thid isn't the first time u getting chemo right? I'm so sorry, I hope it's OK for u;
Oh when I got home out tree was up--so pretty.
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Oh skittle I have the perfect luxury spa picked out for us hermits. It is the Don Cesar aka "The Pink Palace" we can be waited on by the "cabana boyz" and dip our manicured toes in the white sand...Oh, it sounds so good!!! Who has the winning lottery ticket? I'm in.
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Yep, first time. I'm trying hard to talk myself out of going. lol Cytoxan and Adriamycin to start. Then switch to Taxotere umm.. in 3 months I think he said.
Christmas deco up already! I haven't even drug mine up from the basement. I'm such a slacker.
Fl, that is beautiful!
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Camille glad you had fun at lunch with your girlfriends! Girlfriends are a good thing! I met one of mine for coffee yesterday and I enjoyed my time with her! Hope all goes good with your scan tomorrow!
Stormy sorry about the blisters! Ouch. Best wishes for an easy infusion. Hope it goes well for you.
I put up a few decorations yesterday. What little I am doing for this year is done. I used to go all out on decorating for Christmas until last year. I just didn’t have the energy or really care (I was in a dark place). This year I am living in a small space, so there is not much room to decorate.
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oh, my... so tired. I think we're all done in with the Thanksgiving exertions. Out of character/out of comfort zone for me sometimes. Just wanna curl up...
FLwarrior--you might inspire me to buy more than one ticket! what a photo. At the going numbers, we could spring for a week there!
Stormy--prayers and (((( )))) are with you.
Camille--so happy you have found the ways of the computer. It is amazing to me, too, that cyberfriends can bring so much comfort and humor and care. This nest of hermits is such a safe spot... I feel honored to be among you all. Will be thinking of you tomorrow.
ok, whaevah--I am dangerously close to a glowing fireplace right now... and it would bring great satisfaction to set the essays aglow... (I buckled down and graded a third of the pile... and they're rough...putting it politely.) Congrats on your progress, though! Wishing you well tomorrow. Keep a little energy for yourself. And thanks so much for your humor... I could picture your poster child for sodium... cat sauna... blowfish. Hoping you feel better...
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FL--I love the spa--someone better win. And I know the feeling about decorations I've always loved them but for a couple of years I just had some lights that. was all.
Stormy I thought u had chemo before I'm sorry. I'm sure u'rll probably get the usual something for nause, Benedryl (love that) and then I saw what u'r getting. Let us know how it goes and how u feel---I don't want to out any preconceaved (sp) notions in u'r head about it--everyone is different so keep us informed how u'r doing day by day and we'll talk u thru it. (if u want) They no doubt will give u some steroids and that will probably ive u energy so do what u can--I love steroids hahaha (really) and tell me the color of the chemo too. OK Good Luck and don't let them hurt u with u'r port. But when u heal u'll love it.
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FL I wanna go now!! <stomps feet and pouts>. I'd totally leave the house to go there!
Camille, glad you had fun! Let us know how everything goes tomorrow. I have my fingers and toes crossed that is easy and quick.
Stormy, I have allergic reactions to that stuff also. I still have a scar from the tape after my BMX. I hope tomorrow goes smoothly and you can go home and sleep afterwards.
Bgirl, glad you got to see your family and had a good time. Hope you sleep well tonight.
Whaevah, our show was a repeat anyway. I eat a lot of pizza. My DH is a pizza junkie, seriously. Try not to hurt anyone when the laptop eventually goes flying out of your hand. Eyebrows are overrated. They're just extra face fuzz.
My tree is up, the lights outside are up. I have 2 little elves that can't stand to wait. They dragged up the ornament containers from the basement so I didn't have much of a choice. Tomorrow I see my MO and probably get bloodwork. Tues is H.
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Stormy (((HUGS))) for today
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Stormy and Camille I'm thinking of you both today. I hope the day goes by fast.
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Goodmorning ladies. Its Monday morning...I should be at work. (rant starts here) Thanks directly to Obamacare and the Medicare CUTS my company is now in fiscal trouble (actually they are loosin' their a$$). SO... I, along with 20 others, am laid off as of today! How's that for Happy EFFIN' Holidays? Camille I am going to join your letter writing campaign. The white house on the hill is gonna get mail-from me!!! I am single, not retirement age, and broke (everything I had was taken by the bc ordeal). I HAVE to work! I NEED to work! Really?...They are Really going to lay people off during the holidays??? It SUX!!! (rant over)
Camille and Stormy thoughts are with you both today.
Lottery ticket...need winning ticket!!!
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Aww, thank you guys so much! So many well wishes so early. I needed that.
Camille, *hugs* back at ya! I hope your scan goes well.
Come on power ball!
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camillegal...hope your procedures go well today
Stormynyte...best wishes for no SE's, I just finished 4AC and 12taxol, and really it is doable. Not fun but doable. I found listening to music was really helpful, as was Ativan on infusion days
markat...how many more H do you have? geez thought you were finished
Oh and could I borrow your elves, sure could use some Xmas helpersFLwarrier...that just sux, really sux
*waves* to all, back to work for me
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Cami- hope everything went well today. Stormynyte - sorry to hear you have to do chemo. FL warrior .... I think you summed it up when you said that it SUX. Yes, Yes it does!!
Will go buy a lottery ticket here ... someone has to win. and it is not like we don't all deserve it!!
Went to gyn today ... surgery on 11th of Dec. Don't like the idea of anesthesia again, but it is quick ... only 1/2 hr and recovery time after is very easy. Except no sex for 3 weeks ... lol.
Good thoughts to those I have missed, oh and was good to here from you K. Puppies for christmas sounds exciting.
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Flwarrior so sorry about your situation. Medicare is a mess that will take a long time to fix. It's hard to watch all the bubbles burst. I miss the glorious 90's when our biggest problems were a prez getting a BJ.
Stormy let us know how you're feeling. My biggest piece of advice is to stay in an ativan induced fog for the whole week following treatment. Also, limit your exposure to assholes as much as possible. Hugs!!
Tomorrow's my last H! I thought I had 1 more after but it's tomorrow!! What a freaking year.
Whaevah, my elves would have your house decorated in under an hour. They are mini Martha Stewarts. Not sure where they get that.
Bgirl, will the surgery help with the pain you've been having or is that a separate issue?0 -
Markat, good luck and congrats on last one. This surgery will only deal with some of tamoxifen induced gyn issues. Pain creeping back up in back/hip, but do have apt with my PCP next week so will be bringing up again. MRI results from my BS tomorrow ... hoping for official all clear. When do the apts end?
Question: How do you all deal with sharing information with family? My mom gets upset when I am just general and don't keep her up-to-date with all the details ... not that she has called more than twice in the last year ... but when I do she proceeds to share very personal details about my medical problems. Let her in on stuff on weekend when I was away and talking to sisters at her place and then I hear her on the phone the next morning talking to someone from her church. Ugh, I was so upset. Feel guilty when I don't talk to her, but don't get any support and she just uses info as gossip.
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My mom doesn't want to know the details but my MIL was terrible about that. I've shared before that she tells everyone she meets about my BC. She even insisted on going to my appts when I was in the beginning stage. I would either just leave out details when you talk to her or beg her to keep it to herself. That's a tough situation.
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Oh my gosh! I just pee'd orange! Ha! I didn't run away, tho I was thinking about up to the point they had me hooked up, figured it was to late then.
Chemo went fine. I was in a little room with 4 recliners and a tv. The nurses were right there all the time, very friendly. They even fed me pumpkin pie with a big ol blob of whipped cream!
Not sure what all they gave me tho. There were 3 syringes.. I think. All anti nausea meds, one with an added relaxant. Then 2 small IV bags, both clear, not sure what that one was now, I meant to wright it down, but I was slackin. Then 2 BIG syringe with red kool-aid. I think I've had more drugs today than I have had in my entire life combined. Lol And I have no idea what they were.
I have to go tomorrow for a nulasta (sp?) shot and some IV fluids.
bgirl, my mom is the same way. Drives me insane. As soon as I tell her anything she is on the phone telling EVERYONE she knows. Ugh.
I hope you get the all clear. I don't think they ever do end. At least it gives us something to put in our date books. :P
Has Camille checked in yet? Hope her scan went well.
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FLWarrior - So sorry to hear about your situation. It is tough during the holidays. I live in fear of getting fired every day I go to work. It is no fun, but a job is a job these days. Will pray you get another one soon.
Camille - hope things went well for you today.
Hugs to everyone.
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Oh Stormy, that's the lovely Red Devil. Are you going to take Claritin before your Neulasta? It supposedly helps with the bone pain. It didn't for me, but a lot of women on here say that it does. I used left over pain pills to help with the bone pain. Glad it went okay!
Camille check in!!
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Hello ladies - I'm a newbie to these boards (about a month now). I've been reading through your posts, and admire the fun, spirited conversation and support here. I have a healthy sense of humor and love to help others when I can.
FLWarrior - my heart breaks for what you're going through right now with the lay off. It's happened to me twice before...but with having BC too - that's just cruel and unusual.
Stormy - glad you made it through your first chemo ok. I had that same combo when I was originally dx 12 years ago.
LizLemon0 -
Welcome LL ;-) If you're super outgoing, just don't brag about it, k? Lol!
Fl, I wish we could all take you out:( It would be weird to all skype in a bar probably.
Bgirl, I actually get a months reprieve from the MO, I'm so excited.0 -
Markat - LOL! I am an extrovert (true confession) - but I do absolutely HATE to talk to anyone on the phone. I can't even stand to order take out!
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Me too! Except for the extrovert part. Honestly Liz, WWLLD? (What would Liz Lemon Do). Stay at home in her jammies and avoid people
Skitttle, I missed your posts yesterday. I don't know how you teach all day! That would be absolutely exhausting with our exhaustion issues.
I'm wired. Took my tamoxifen too late and giddy about tomorrow. I'm going to stop at the local pastry shop and get my nurses some treats and a thank you card. They've been absolutely wonderful this year. I've seen them more than any of my friends!0 -
I'm here at 5:30am---crashed when I got home.
First things first===FL I can't express how bad I feel for u--being alone myself forever I can feel the horrid feeling in the pit of my stomach. First off can u collect unemployment? It not like working but it's something. And during that time go on Craigs list and start looking for u'r type of job---Now they won't pay u what u'r used to cuz (I hate to say this) but the business are taking full advantae of the situation with jobs-They get the money the want but turn around and not pay the employees what they normally pay if the job thing was good, Which I think is deplorable. cuz if they did than people would be able to spend and the economy would start moving. I'm sorry I'm not trying to get political, but u have no idea how bad I feel for u. My SIL has been unemployed for so long, he's in construction when the economy was good he mad $40.00 an hr. Now he gets little jobs doing anything for 10.00 an hr. He doesn't look for 40, but 10 is hard for a family to live on.
My money is mostly paying bills but I don't make that much either and went thru all I had all these yrs. cuz of BC--The fear of paying rent happens every month and now with Christmad--So I so sympathize with u and mad this has happened to u.
OK now the computer can help big time rather than running around to places and they usually ask for a resume then they will call u back, don't say what u used to get paid st all, say it's negotiable. And put every little thing thst u know on it as u'r accomplishment, so u vary what u can do. U can always learn--if someone else can do it u can too. U could just say u'r rusty on a certain thing. So if u don't know anyone to help u get a job, use u'r computer alot. There are different job sites on there too.
I'm sorry FL I wish I could help u, bjut we are barely making it ourselves. Good Luck.
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WELCOME LL---I hate phones too and I can't type well either. We are a wonderful group her the girls are great even tho we are forced to be around people and we just simply care about one anither. So I hope u post often, we're fun too. (I think)
Stormy I'm glad u started and yes marat she's on the red devil I think most of us got that Yea pee changes cokor a bit LOL now keep us informed everytime u have one cuz from time to time they change how u feel and if u have any SE let us know right away.I hope u do well, OK at least OK on this cocktail u'r stuck with.
All right my scan was done today and I've gotten the results (oops yesterday) the lump??? was OK just hace loads of arthritis, mor than before so that's done but I never was concerned i knew it would be fine--But I see the heart Dr. Thursday--and this I'm more concerned about and I admit it. But I do have to tell u--When the teck came to get me for that stupid shot I stood up and I had instant diarrea --it exploded--so I told hime i was going to the bathroom while we were just stand there and pkease get me to one. Well I always bring more clothes and stuff so I got all cleaned up, went to the nurse for her to acces my port and viola agin I stood up and all over the pkace (it goes thru my depends alot of the time) so I go and clean up. Well I had to wait 2 hrs. so I spent most of that time in the bathroom. and I cleared out. LOL When I went back the tech got me and said If u want to postpone this--no no no put extra pads on the table and don't stop that thing. LOL And I got my results in an hr. But I was so tired (my body( I really crashed out So that's done ladies and still OK about cancer getting any more complicated than it is. So I'm fine. Thanks for u caring.
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Cami, I guess saying the techs learned that "shit happens" would be a bad pun. Sorry you had a hard time, but glad that scan went well as far as results.
LL -we can all be fun and happy .... but still prefer to cocoon at times.
Markat ... happy dance for you today ... don't actually see MO for another 3 months ... just all the others apts .... should get a break in the new year.
Stormy ... hope the morning finds you well
FLwarrior ... I am so sorry this is happening to you, especially at this time of year. I hope you are able to find a job quickly.
Hi Teka ... really need to take a page out of your book and become a woman of few words.
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Jane how are u feeling? I hope ok.
Oh marat I love not seeing Drs. at least for a while--to me it's like a hamster u'r just sping and trying to keep them straight. Right now I'm back on the wheel for seeing them and when I don't I try to do nithing. Maybe that's why we get hermitty cuz for periods of time we're forced to see Dr. and nurses and such and when u get a break it's so nice to be quiet. But u start u'r job next week right? So u'll be among the living again (in person, is what I mean)
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Ugh, I've typed out 2 long posts from my phone and neither would post! Is Teka our new Moderator, LOL!
Camille, so happy for you! Glad that's over and hopefully the heart doctor will look gooood Thursday! So sorry about your son in law. That is total crap. I wish we could magically fix all of this stuff.
Jane thank you!! I really need to make an appt with the gyn. Did you notice more yeast problems with Tamoxifen or things like that? I have a situation going on.
I'm supposed to start the job Monday, but the state had to approve the new program I will be involved with. We all know how that goes. It could be after the new year. I hope not, I really need the Christmas money.
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markat! WOO HOO you are done!!! Congrats, *happy dance* ...I am sure it wasn't easy.
I guess now you can revisit getting deported !?
bgirl...I don't tell my family much, I do tell one sister who then passes around what we decide they all need to know. As for inlaws, mine are not worth talking about.
I do think that if you feel guilty about saying or not saying something to your family, consider it a sign that you were putting yourself first...and that is a good thing!
camillegal..yay on the scans but wtf with the Dtrain...enough already! hugs~
welcome newbies!
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