The Hermit Club
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Thinking of you Grover. My heart is with you.
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Jazzy I will let you know when they put it on the website, they taped all of the workshops and said it would be put on the net within a month....the food one was awesome....
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Oh girls no one here is from Boston right? or went to see the Marathon I hope--right now I'm glued to the TV with this horrific attack on the marathon. I can't believe all this crap. All the people involved and they're all there to raise monies for charities. IDK this boggles my mind,
But I have to say Blondie u seem so much more relieved or in a better place after going, I hope that's true.
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Hi hermits- it has been a hard day. First the news that a friend lost both her mother and her sister to cancer this weekend. Then this Boston bombing. The world is not a friendly place today.
I hope there is no one here who has been directly affected by the bombing. I know we are are all affected by the ongoing violence in our nation.
I have many marathon type friends and all are okay and know people that were running the race. But it is the crowds that go so badly hurt.0 -
Attacking the vulnerable, it is so sad. Used to be that there was some whacked "moral standards" about targeting the weak. Bless everyone who was there, too much trauma to go around.
MO yesterday, bloodwork good. Had a chat about tami SEs and not sleeping. He does not like that I am not sleeping more than 1-3 hrs most nights. So another pill, told me to take it and then go see my PCP to discuss `my pain and sleep issues` as she has the better capacity for on-going follow-up. Ugh!
More drs apts. more pills, ... can`t we just press rewind ... when did I become this? Ok there was my whine with breakfast.
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Hi All
Pulmonologist was really nice : ) DH went with me - he was worried....anyway we saw the scans and it is so timy -looks like someone tried to erase a dot - it's smudgy. Anyway - so tiny that there's nothing to do at this point - probably not cancer - but due to "my history" it has to be watched - so a follow up CT scan in 6 months. Sometimes I think all this watching - but then again - yea for it!Menopuase was so funny! I especially loved the scene where the woman was holding up the sexy lingerie to her not size 2 body - and trying to figure out how it would look on her.... I could so relate!!!
Today I go in for my Herceptin - Pdrug (placebo or perjeta). Then only 4 to go! Is anyone here doing Arimidex? It gave me hot flashes so they put me on Celexa which lessens the hot flashes but now I'm hardly able to cry. I hate that - I want to cry sometimes - but I hate hot flashes - what to do?????
Thinking of you all -
Marilyn
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Jazzy a u'r friends Mom and her sister. WTF oh how horrible--I'm so sorry to hear that.
Marilyn I hope it goes well today for u. Tht's why we're on so many meds- one takes care of the other and so on and soo on. It's a cycle of the drug companies making a fortune on us. LOL
And I had to turn the Boston bombing off for a while watching it just to much--I can't stand it and I truly pray no one has anyone that would be involved in harms way there. Prayers go to their horrific times.
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Beautiful posts Teka
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Awesome Teka. Thank you!
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Great quote Teka!
Sending good thoughts and hugs to all.0 -
Oh Teka u say so much with few words.
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Hermits all safe? Crazy world. My students all want to talk about the eight year old victim. They always zero in on whomever they can relate to within a tragedy. So sad.
Se's everywhere. Hoping everyone is able to manage... Thinking of you all. Be safe.
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Ok Skittle that really gets to them the most. My GS came to me and asked how could this happen, he was my age and we talked quite a while---I think it's a very fine line what to say. U would know exactly what to say--but in my head I think I want to get accross caution and alwas being alrt but not so much that u can't see beauty around u. It's scary to an adult, how could it not be for a child.
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thanks Cam I am, but tired it was so informational....can't wait til next year...
sorry Jazzy.....{{{{{{{{{{{hugs}}}}}}}}}}}
beautiful flowers, love them!!!
me too...turned it over, they were looping, it was making me dizzy
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Hi ladies....Skittle, how very difficult. My daughter is an adult, so she understands...my son however cant see to grasp it. Boston is his favorite city in the entire universe (his whole room is Redsox) and I can see that he doesn't know how to react. I told him just to pray for everyone.
I hope you are all happy and peaceful today. I found out that my MRI results are ready for me to pick up today. You can be sure that I am going to frantically rip open that packet AS soon as I get into the car.
I will be relieved to finally have more answers. I know your hearts are all with me. I will post later today or tomorrow after I see the BS. Love to you all,
Laurie
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Hi ladies....Skittle, how very difficult. My daughter is an adult, so she understands...my son however cant see to grasp it. Boston is his favorite city in the entire universe (his whole room is Redsox) and I can see that he doesn't know how to react. I told him just to pray for everyone.
I hope you are all happy and peaceful today. I found out that my MRI results are ready for me to pick up today. You can be sure that I am going to frantically rip open that packet AS soon as I get into the car.
I will be relieved to finally have more answers. I know your hearts are all with me. I will post later today or tomorrow after I see the BS. Love to you all,
Laurie
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Laurie we want to hear everything.
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Camille...hugs and love to you. Thank you.
Ladies...Ok...I believe it is good news if I am understanding the MRI report correctly. Here is what it says:
Right Breast: Biopsy changes of the upper outer right breast with associated small seroma or hemotoma 9mm. Low signal focus centrally probably represents a biopsy clip. There is only minimal, wispy linear adjacent enhancement superior to the biopsy cavity. This is located within 2 cm of the superior margin of the clip.
There is no discrete mass or suspicious enhancement elsewhere with the breast to suggest multicnetric disease. However, in situ malignancy may not exhibit significant enhancement as evidenced by the minimal enhancement seen associated with the biopsy changes. The breast consists of scattered fibroglandular elements. No parenchymal enhancement elsewhere. No morphologically abnormal lymph nodes..
Impression: Biopsy changes along the outer breast. There is no evidence to suggest multicentric or contralateral disease. However, in situ may not exhitbit significant enhancement on MRI. Continued mammographic followup recommended.
BIRADS : 6, knowsn proven malignancy, right 2; 2 benign, left.
The only thing that I was confused about was the last line that says "right; 2". Does that mean there is another spot other than the known DCIS?
ANY help with interpreting this report would be appreciated. I couldn't wait get home to share this with all of you. Thank you for helping me. I see the BS tomorrow am.
XOXOXO
Laurie
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Laurie I'm confused by that also. Maybe there were some dense areas on the left they were looking at? Not sure.
My brain is fried. Had mom's biopsy today. Had the meanest nurse I've ever encountered in my history of nurses and hospitals. I started crying and basically fired her and found another nurse (absolutely wonderful) to take care of mom after biopsy in recovery area. We were there 4 hours after because nurse 1 didn't put an order in correctly. My uncle is with her now while I get some things caught up on at home. Looking forward to seeing our MO tomorrow and getting tx started so she will feel better! I love her so much.
Hugs to all. Skittle I've been trying to shelter my kids from the continuous coverage.0 -
Markat,
Taking the time to respond to me with all that you have going on just touches my heart. Thank you.
My prayers continue to be with you and your mama. Thank you so much for keeping us updated. I will continue to be there for all of you through every life journey you chose to share.
Hugs and love,
Laurie
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Laurie, sounds pretty good, from what I know from the 3 mri s I have had. Good luck tomorrow.
Markat , think of you and your mom often. Why is it med people either seem to be terrific or awful ... no inbetween? Some people shouldn't be in the "caring" field.
Hope everyone else is having a good week. Treatments going well and getting some rest.
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Hi ladies: Busy week at work, started with the personal trainer too (so far so good).
Markat- I had a nurse when I was in the hospital last year for abdominal surgery that I fondly referred to as Nurse Rachet. The nurses would come in to give you that shot in the stomach at night for blood clots and most would pinch the skin to deliver the shot, she plunged it into my stomach! I am constantly reminded not everyone who works in healthcare is nice. I am sorry that nurse was mean to your mom and glad you fired her.
Teka- love the crocuses! Love the photo!
Laurie- your MRI report sounds good, nothing on the other side. Can you ask someone about that section you need clarity on?
Cami- you are always filled with such kind and supportive words for us all.
Skittle, Blondie, FLWarrior, B girl, Grover, Whaeva, Lily, and everyone else, hope you are hanging in there!
I am doing better since monday. My friends double loss touched upon my own from the loss of my mother and my aunt (her sister) two months apart last year. I am in the zone now with the year anniversary of both of their deaths and it is very much on my mind. So my friends loss sort of threw me back into my own grief again on monday.
I decided to detach from the whole marathon bombing thing but saying prayers for the lost lives, people injured and all those who have been traumatized by this. I just cannot handle watching the news about it.
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Thank you ladies
You are all so wonderful!
Jazzy, mom kept whispering Nurse Ratchett when the horrible nurse would walk out of the room, lol. I'm so sorry about your loss
I've decided to put off going back to school until...well, until I can. I'm spreading myself very thin right now. Do you ever feel like you have so many roles and jobs and that you aren't doing any of them very well? That's where I'm at right now.
Sending all peaceful thoughts and gentle hugs!0 -
Laurie, I'm glad these grils are availbe to u for advise--Ive never read anything and don't understand one word of u'r report, so that's why I'm glad they are there for u.
Markat of course it's rime to run into a nirse from hell, but for u'r mom its not acceptable. And I know u'r spreadig u'rself thin right now, OK so u put off the school for a while, and concentrate on u'r mom and family and work too. Geeze But do me a huge favor take care of u'rself along the way. U'r mom would not like it one bit uf u get to overwelmed and u know that. So give u'rself u'r time sometime so u can recharge, And of course tell us everything about u'r mom.
Jane I'm glad u'r treatments are so doable but rest and drink alot of water--Loads as I say. Rest whenever u can.
Jazzy sometimes we think back and it's sad, what we lost and the time went so fast. allow u'rself u'r sad time, why not.
It's Friday eve everyone so most Mon-to Frid peeps are looking forward to the weekend--I still do cuz Joey's home from school--that's my bonus. So have a good day, and rest, relax or work whatever u need to do but always be good to ur'selves, u al deserve it.
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P.S. We had so much rain during the nite alot of expressways are closed and no school for Joey things are flooded??????????
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Hi Cami- wow, lots of rain your way? Joey is home from school, your buddy!
It got very cold here and hard freeze warnings. Brought my potted plants inside, and covered what I could not bring in from outside. Worried about my tender new trees that are budding out right now.
Markat- I feel like I do alot all the time and don't do much of anything very well. I think it is the lot of women in this world as we wear many hats, caring for husbands and children, our jobs, homes, etc. I have tried to just spend my time on what I really must do- things for my health, my work, my home, and my relationships. You have a lot on your plate and now school too (which is great) so you take care of you too.
And thanks to those who hear my grief. So much happened at once in my family and in my own world last year. I ended up putting a lot of my grief "on hold" with my own health problems, but feel some of it returning. And that is okay too, learned long ago that grief has it's own process and works its way through you. My mom and aunt lived good full lives and I am grateful for that. It was just a shock to loose both so close together (we expected my mom's passing but my aunt went very suddenly). Despite that, I am trying to be there for my friends who have lost loved ones recently too.
If I have learned anything this past year with all I have gone through (including bc) it is not to take anything (or anyone) for granted and live each day to the fullest!
For those working this week, two more days to go!0 -
Hi Sissydi,
Yes!!! I am in that hermit place as I type. Sometimes, I get out but more often than not, I don't go anywhere because no one gets it. I don't want people staring if i go without a wig and just wear a hat so I haven't gotten to the point of wearing a hat yet. I am 7 weeks post chemo and My hair isn't grwoing in the best. How depressing is it that one has to think about hiar loss and then when time to grow back comes in, it comes in sloooooow. It's just better to avoid the social scene because everyone wants to know and want s to tell you a story of someone they know and ectt...
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Hi Ladies,
Ok, so the verdict is in. The MRI showed no more obvious cancer and I will be having a Lumpectomy/Sentinal Lymph Node Dis (right) the end of May. He is also going to remove the 6 cm biopsy hematoma (It was my choice to wait until May due to my schedule.) The doctor said that he was going to do shots of radiation in the breast right before the surgery. He also said that he was going to be inserting a wire? in the breast.....I am uneducated about that. He said something about a nuclear test before the surgery too. Then he said the Oncologist would talk to me about Arimidex or Tamoxifen. I know I have to wait for the pathology results before we get into all that.
He said he will be going through the pectorial muscle. Of course he made it sound like a "nothing" surgery, but as a hairstylist, I know what I am in for with recovery. The biopsy alone bothered me for over two weeks. I am coordinating my surgery with a vacation that I have, so I will have 3 weeks at home and then 3 weeks of vacation. I am anticipating that this will be enough (pending clean margins) time prior to going back to work.
ANY comments or advice about any of it is welcomed.
Thinking of you all and praying that you are safe, warm and at peace,
Laurie
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Oh.,,,,I am off to my son's baseball game, so I may not be able to respond until tomorrow.
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markat--prayers continue your way. I hope you and your mom can work together toward feeling better and getting past the "hard parts." wish there were something we all could do to lighten your load somehow. I'm glad you shelter your little people. When my sixth graders pour in each morning, they are all about wanting to talk about the news and what they've heard. One had a stepdad in the Texas explosion. It just floors me, all they are exposed to. But it seems no one at home listens... and they just are hungry to be heard and taken seriously. (One wants to start a fund to help purchase prosthetics for the injured... caring.)
Jazzy--you've been through so much and stay so busy. hugs your way... I know what you mean about grief on hold. I still have not allowed myself to process some losses. And the heck of it is, they keep on coming! (DH lost a good friend last night. Series of strokes. End of an era.)
Laurie--your son will come to grips with the mess in Boston. He's at that perfect age to reason out the rights and wrongs and grow toward manhood understanding we all feel helpless sometimes, yet keep our heads and hearts hopeful. We love and continue to love, no matter what others choose... (42 was wonderful.) He can fall back on his love of the game, and internalize that the horror was the choice of a sick mind, not of someone to admire--like his loving mom. I don't speak mri, so am no help at all. Once, though, they were tossing numbers about, and I asked... They were talking positioning on the breast (like 3:20 meant location of tumor)... To hear it all was intimidating.
lwood--sorry you find yourself here, but you've found the right place.
teka--thank you for the well-timed bouquet for us all. Pretty, peaceful, centering.
Cold, cold rain today. Seems like the world is crying.
Be safe, sweet hermits.
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