The Hermit Club
Comments
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Thanks for the reminder Teka!
Welp I have some yucky news. They think my mom's breast cancer has came back in her liver
Its really early but she had some scans today and apparently more tomorrow. She's been cancer free for 13 years. She had bc 2x and told me she was a year behind on her mammogram. She's 61yo. I'm a bit numb right now. She wants me to deal with everything since I seem to know more. F this stupid disease!
Thanks ladies for all your good thoughts and support. Love you all.0 -
FBC - Markat so sorry you have one more thing on your plate. It must be even worse dealing with someone who has the same disease ... I know my dad's cancer last summer was hard, but at least it was something else.
Hugs love and prayers to you.
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Thanks bgirl and Teka. This sucks. I guess we will know more soon. I'm an only child so this is tough.
Hope everyone is doing okay and having a nice week. I'm going to message Camille and see where she is
maybe just computer problems.0 -
Markat...
My thoughts and prayers are with you and your mom. I wish I could take all the fear and sadness away.
XOXOXO
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Mark sorry, cancer sucks
Laurie congrats grandchildren are the best, they always make me smile...
grove, skittle, bgirl, curve, whaeva {{{{{{{{{HUGS}}}}}}}}}}
Teka I was the first 3 you listed....glad they can take my mind off of everything...
am ok just sitting here, not only are the steroids ruining my sleeping but they are making me gaine the weight...whatever, made a slice of pizza hated it, am going to make something...it is hot here was 88 and tomorrow will be 60 and rainy....told the dr. we need to go back on zometa for the bones, lots of pain and he agreed so next week zometa back again...the port clogged so had to get cathflo and then it worked, got home 5pm and drs. appt was @ 1030, was there all day.....asked him if the chemo cumulative and he said it was, which makes sense about why the last time was rad....getting a PET scan next month i think and he did a tumor marker test with the blood today to check and see what is going on.....I am fine tho, just hungry and tired was up from 130 to 430, WTH....sorry...
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Oh no markat...I am so sorry to hear that
Moms are special, it is hard to see them ill. Wishing her a good treatment and a speedy recovery.~BIG HUGS~
FC
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Laurie--happy, happy!! I'm still hoping for my two girls to meet a wonderful guy... A baby in December will brighten everyone's holiday! Break out the cameras.
markat--so very deeply sorry to hear your rough news. It's difficult to face with one you love... and... Wish we lived close by. My DH would be happy to get rid of your tree for free. Chainsaw ready, trailer ready, and he'd have it gone. (Termite in a former life?) :-) Seriously, he'd set off for your house if he knew where to go! He's like that. Loves, loves to help wherever, whenever.
Hope Camille finds us again soon. (Camille? Hugs to you! Hope you're ok!)
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hopefully cami just deleted us from her fav's by accident again ... not because she doesn't love us.
Wishing everyone a good night.
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Oh blondie what a long day
Those steroids can make you crazy, well they made me crazy Have you tried microwavable mashed potatoes? That's pretty much all I ate near the end of my chemo. I hope you get some sleep!
Thanks all! Skittle you're so sweet! Your DH is a definite keeper!
I messaged Camille but I haven't heard back she must be out partying without us! 0 -
Oops double post
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OMG I'm so sorry, I wasn't meaning to ignore u, I really haven't been on the boards today, maybe super early I don't even remember
Markat I feel awful about u'r mom,I don't know if this is useful but for certain kinds of liver cancer they have that cyberknife??? that u can get--I know one woman who had it and said it was a breeze??? and she' doing OK--she's in her 70's so hopefully they can help u'r mom with super results.
Laurie--Grandma??? how wonderful they more fun then when u had u'r own kids, that's for sure---Boy will Christmas be extra fun and exciting for u'r whole family. Congratulations.
Skittle get one of the chainsaws u used in u act when u were a st--Oh doesn't anyone know??? That's a lot of $$$ but I know it cost alot.
Blondie I hope u get some good rest, nothing is good about this crap, well I did get strong nails cuz of it and straight hair??? But this still isn't worth what it does to you.
I hope all of u have a great day tomorrow, It's still raining here and cold so it's not planting time yet not that I'm planting I was just saying...
I't my sister's borthday today and she shared it with my Mom, same day so we kinda get a little glumpy around now -So I've been really herminating.
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Thanks Camille! Happy Birthday to your sister and mom. So sorry it makes you sad. I love the stories about your parents and family.
We just missed ya0 -
Markat thank u for PMing me.
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Thanks for all of the congrats ladies! Camille...my heart is with you.
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Hi fellow hermits,
I will be emerging from stealth mode to go to my niece's graduation, and I probably won't have access to a computer from tomorrow lunchtime until late Sunday. Have a good weekend everyone!0 -
Oh curve we'll miss u but I hope u have a wonderful time and store u memories so u can tell us how great it was. Be safe.
OK Markat u'r stuck with me and my stories. This was told t us when we were adults. My aunt and mom when they were teenagers snuck out of their home and git all dressed up with makeup and hats and went downtown Chgo--which was close--and went to a stip club--and ordered a drink my Mm was actually 12 my aunt 17 and they didn't get caught--If u met my mom she was all prissy and my aunt would swear like a sailor (they used to say) so opposite and so very close=my aunt could always make my mom laugh so hard she's pee her pants-well both of them would -even when they were old so of course we inherited-my cousins too this abnormality in laughing so when we were all together the men would all wak away. What a family so much fun.
Oh I have to tell u my grandson came in to kiss me goodnight and said Now if u feel sad or scared tonite u'r more than welcome to come to sleep with me, I'll take care of u. He's my love.
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Cam I love your stories and happy birthday to mom and sister.
Thanks Mark, love those mashed potatotes, can't smell or taste so it is the visual...
Thanks....took 2 benedryl and pain meds and went to sleep at 1100, got up like every hour and finally at 330....played on the phone for a while...got on here and am going to get off in a few and just lay and listen to tv and hopefully i can go back to sleep, have a meeting at 1130 -1145 and then nothing....
HAPPY THURSDAY!!
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Blondie I hope u get rest so u'r up for the weekend.
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Curve hope you have a lovely time at your niece's graduation!
Blondie I'm not sure how you are, but I had a hard time concentrating on reading and watching TV during my treatments. Not sure why? I would get pretty nauseated I think. Just yucky from all the meds! Glad you got a little sleep. I slept on my couch for like a year because it was quiet and cool! Lol. DH has actually had a hard time adjusting to me being back in the bed. Might have to put him in the spare bedroom
Camille that story is hilarious! Could you imagine a 12yo in a strip club lol! And Joey is such a good boy! We might need to hook him up with one of my girls in the future ;-)
Quiet day at work. It is devastating what some of these kids go through and the struggles they face. I just want to adopt them all. Don't think DH would appreciate that lol. I like this school because these kids don't have to feel different and their classes are so small!
Hugs to all.0 -
Mark and I am glad work was quiet but you are so right, people have no idea what kids go through and when they go to school as you know it may be the first meal they have had, someone who is nice to them, the first place they are warm, without little animals running around etc. you are a special person.
Thanks, it depends on the time and day, now tomorrow afternoon is really the worse day for me....have a meeting from 9 - 11 tomorrow and have to go to walmart to get food for one of the twins (the other and I went shopping for him) and then the conference on Saturday, I should be ok....volunteered to be a greeter at 8 til 9am it is til 4, home and then back on Sunday...wish I was staying at the hotel, last year someone offered the other bed in the room, it was awesome, this year no such luck....I will be ok, ya gotta do what you gotta do, and I am looking forward to it....
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Markat u'r so kindhearted that's why u can be where u are and I bet all the kids love u.
Wow blondie u'r really doing alot right now. Please give u'rself some alone and quiet time when u can u desere and need it, and chocolate. LOL
We're sharing one comp. in this house for now so I don't always have it handy so I'm not on as much, hope this is temporary, cuz I'm used to my own. Oh well--Like Blondie said u gotta do what u gotta do.
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Markat, your soft fuzzy side is showing and we love it.
Cami, we love your stories and your humour. It is nice to see that your grand son is obviously so well raised. Nice in this day and age of a lot of self centred kids. MK's girls sound like the perfect match.
Blondie take care of yourself ... some times during treatment you need to be selfish.
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Good morning girls,
Today is my long awaited (7 days seems like 7 years) MRI. I am SO looking forward to having more answers. I don't see the surgeon again until next Thursday though. UGH! Why do they make us wait and wait and wait? It's horrible. I do feel like I will be able to interpret the MRI results pretty well on my own though. I have been educating myself like a crazy woman! I was really proud that I was able to read my entire biopsy pathology report and understand it! Hurray! Knowledge is power!
On another note...I have been feeling a big sense of guilt over ONLY having DCIS when I see what all of you are going through. I can't help it. I am not looking for attention, I just genuinely feel sad. I guess that is normal.
Also, I have felt very alone at home. My husband is there for me, but not THERE for me. He just wants this all to go away and has really downplayed all of it. Last night I said I was going to pick up my films for today's appointment and he says, "What is tomorrow for again?" I cried so hard inside. I have friends that have kept track ALL along the way. He has said a few times, "What you have (he refuses to say CANCER) is not life threatening, so I don't see why you have to bring so much attention to it." What do you even say to that? I have just retreated further back into my hermit shell and looked for my strength in GOD, my friends, and all of you.
Just needed so badly to vent. I promise to post what I find out later today or tomorrow.
Love to you all....peace and comfort to you all....
Laurie
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Laurie - don't feel at all guilty for being upset that you are a member of this sorority - none of us want to be here - but here we are and we all understand the roller coaster this _________ disease puts us through - and our loved ones. Your husband is probably so scared that he doesn't know how to express it. Have you told him how that makes you feel. Not when you are angry but when you are calm? Maybe that would help???? I hope so - you deserve better than that.
I had a CT scan Tuesday - a follow up to a very small nodule that was found in my right lung in October. Yesterday the dr called me to tell me that the nodule in my right lung hadn't changed....but (isn't there always) a 4 mm "ground glass" nodule was seen in my left lung. I am being referred to a pulmonary dr and will see him on Monday. She said that if it weren't for my history it wouldn't be looked at - but... here I am - another scare - ughhhhhhhhh - just when I was getting used to being with what I have - something else to worry about! Damn!
Thank you for being there for me. I admire you all - we are tough cookies.
Marilyn
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Laurie - I know how you feel and often feel the same because my situation doesn't seem as serious or scary as many other women on the forums here. I hardly ever visit the stage 3 forums because I just don't feel like I have anything in common with them since I am stage 3 simply because of skin involvement instead of having positive nodes like so many stage 3 women have.
I also feel a bit out of place at times even here since I don't have any children to share stories about (although I do like reading the stories). I guess we are all coming from totally different situations and mainly just have this one scary thing that we all have in common and wish we didn't have.
I'm doing well. I haven't heard back from the MRI place. I called them on Monday and they said they'd call me back when they got the paperwork from my HMO. No rush, I say.
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Laurie U need (((HUGS))) I'm sorry I can't give them in person--Cancer is cancer no matter what stage or whatever. And like marily said U'r DH is putting it out of his mind , for some people it's much easier for them and I bet he doesn't understand any of the crap that this puts u thru mentally, like was said the tests, waiting etc, etc. Like marily said talk to him when u know it's a good time and tell him how u feel, maybe he doesn't have a clue--Some men don't. So don't feel to bad, which is easy for me to say cuz I have no husband, but try and we're here for u and do get it.
Marilyn everything they see now they have to make us crazy so it's a tough go with this beast--hoping all comes out good for you.
Jinkala I'm glad u'r doing well hoping it keeps up.
I see my Onc. next week so I hve some issues to go over and I hate Drs.--just thought I'd put that in. LOL
Here's hoping for a good day for all.
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Laurie, of course you are grateful your diagnosis is not worse, I think we all are at some point no matter where we are. BUT that doesn't change the fact that your innocence has been taken away, you may not have to worry about mets, but you are now high risk and will always worry about it coming back. Worry is Worry ... no competition around here. Also, you are facing tests and treatment and none is ever easy. As someone once said, if it were his man parts with "non-life threatening" cancer and they wanted to squash them, test them, do surgery on them, nuke them ... I am sure he would be worried. Although his comments may be insensitive or minimalizing, he is probably just scared to death or like the rest of us he wants it to be a bad dream that just goes away. (((HUGS)))
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Laurie don't feel guilty! Cancer is cancer! And believe me surgeries, possible radiation, and hormonals are no picnic. Husbands can be weird about cancer. They are fixers usually, and this is something they cant fix. My DH never could keep track of all the appointments or doctors names. I never wanted him to miss work for my appointments so he probably went twice (and actually fell asleep at one, lol). I wanted him to be a good dad and I know that it is hard work running the house, so that's pretty much how it went. It worked well with his personality and I kept my feelings from being hurt that way. It was my decision to let him off the hook and to try to keep him emotionally stable.
It is life changing! My mom had DCIS 2x and it was hard for her just like it was hard for me.
Which is why I thought it was so weird that they thought the BC came back in her liver. They now think she has lung cancer that has spread. Definitely bad news. I'm just numb... I guess the CT showed something and she will have some type of biopsy next week.
Marilyn, sending you big hugs and good wishes.
Jinkala, you aren't the only one without kids! There's a few others I have felt out of place for different reasons but we all share this same horrible bond.
Hi Camille and Bgirl. Trying to be fuzzier0 -
Awww.
Thank you!
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Blessings to you Marilyn. I am praying for you. I am so sorry that you have yet another scare.
XOXOXO
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