The Hermit Club
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Hi hermits- thinking of you this morning. Waking up to sunny skiies. We never seem can get any rain anymore.
Markat- I hope your mom continues to respond to the care they are giving her. I hope most of all that she is made to be comfortable and has no pain. And I like you found a place to have a tasty latte. Sometime it is little things like that really help.
Cami- hope you are waking up feeling good today. And that time with Joey is also good!
My sister is having her 2nd and final surgery today for her bc. Reconstruction on the side where she had the MX and a little lift on the other side to make things balance. I talked to her last night and her head was in a good place, but of course, we all hold our breathe with any of this stuff. Will let you know how things go there.
After not getting to the gym all week, I went for a yoga class last night and was glad I did. It helped me to sleep well too.
Hoping everyone's day is good.
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I've started doing my little walks again - not a whole lot and not all at once - just a little one at break time and another right before lunch here at work. I'm just hoping the foot blisters don't come back. So far my foot has been staying about the same, slightly sore but nothing new or worse.
I haven't heard anything about my MRI so hopefully no news is good news.
I have no idea what to do with the rest of the Ativan though. I only needed two and the bottle had 15 in it. My boyfriend and I are trying to figure out what to do with some furniture his mom is giving him. I was thinking he was talking about 2 or 3 shelving units but he told me last night that it's more like 5 or 6! I have a very small house so it's going to be tricky. On the plus side, I know we have more than enough stuff to fill them all. He's also bringing a table and chairs which I totally don't have room for so we'll see. He's going to be bringing the stuff from Nebraska in a month or two.
Best wishes to everyone.
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No i have the films myself and the difference between the two is easy to see plus radiologist only took second image side view of the affected lung......
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@camillegal, the exit interview questions were pre-written and all assumed that the interviewee had left the City for a different job. They were totally irrelevant to retiring employees. So it asked "why is the job you are taking better than the one you are leaving?" and "what do you think blocked you from obtaining promotion?" My supervisor and I both cracked up completely!
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Lily, I don't understand x-rays at all, but did u actually talk to the Dr. and they made an app't for next week, when next week? I do know there are more than 1 reason that there ar shadows tho so maybe u don't need to worry, I just put my worry on hold.
Curve that was it? Oh geeze how silly when u'r retiring.-but protocol is protocol as they say.
I got home a little while ago and enjoying my coffee, so tonite I go with Joey to my other DD's home and when I come home---I'm going to hermit like mad for at least 2 days--I need it after this week I won't even take a shower no one has to see me or talk to me (except Joey) nd if I want to eat after midnite I will. This morning Leslie made eggs for breakfast and I wanted some so bad, so she said iI'll make them when u come home. Well I didn't want any then, cuz I could have them. I drive myself craxier than I am.
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The shoes I wore this morning---Oh yeah I'd end up with 2 broken ankles.
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Teka This better be one of u'r favorites
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camillegal, you can definitely rock those shoes...in a chair..LOL ...me too
love all the jokes...and skittle, that 'hang in there' was so cute
markat...think of you daily, ate pizza last night from an authentic Napoli brick oven that was fantastic. No martini (boo) but a nice glass of red. I looked around to see if there was a Kramer look-a-like, for comfort. I know where you are right now, have been there twice, the last being Feb. and while it is so hurtful there are moments of undying love , clarity and a true deep connection that lasts all eternity. So much emotional pain for you and your family... I am honored to know you, even if only through your ability to make me laugh
teka, jazzy, blondie , all the new peeps and all I have missed *waves*
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Hoping all films, tests, results come back clear and free from added woes... Busy group of hermits.
Shoes--ouch! Give me bare feet on a beach, flip flops on a sunny day, or comfy old tennies. With an orthotist/prosthetist DH, I wouldn't even look twice at pointy toes, spiky heels, or balancing acts. Guess I've entered that too old to die for fashion era.
Dinner out for dd1's birthday last night. Amazing service. Everyone happy. Good to be away from school thoughts.
Jazzy... hugs to you and your sister. Glad you have each other.
Camille...hope you can satisfy a good craving soon. It's frustrating when the urge passes, because it would be so enjoyed. How do you like your eggs? Scrambled? Omelette? Sunny side?
whaevah, teka, Jinkala, Lily, all... hugs for a peaceful weekend. We should all join Jazzy in yoga. But don't laugh too hard when I fall over flat! Flip me over!
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Hi hermits- heading out for a lunch with a friend and some her friends. It is a lovely warm day here. Been outside this morning soaking up the spring air and sunshine.
My sister made it through her surgery just fine. Her voice is hoarse from the intubation but she says it all went better than expected. She called me this morning and sounded very good.
Have a peaceful saturday. Hugs to everyone having a hard day.
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Jazzy smiles about u;r sister, such a relief.
Markat I hope u'r doing OK too, this is a tough time and praying u'r Mom is comfortable and this works out.
Whaevah and Skittle no way could I every wear shoes like that--my fashion is in deep despair and it doesn't matter to me LOL.
Jazzy hope u had a good lunch--I've been munching all day.
I stayed by my 1DD's house last nite with Joey and my cousin came over--we had some good laughs and fun and Joey slept with me after cuz he wanted to take care of me if I needed him. Then my DD joined us early in the morning and we slept til 9---but we were up late laughin' and yappin' So I'm tired today.
The weather is warmish today--like SPRING and the trees are budding.
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Hello-
I'm a hermit too, so nice to find a place where it isn't considered odd. I am newly diagnosed, going for a lumpectomy on Monday 4/29. I am so scared. Doctors used term like "DCIS" "mild" and "early" but I see on my biopsy report grade 2-3. I am married, one son and a 7 month old grandaughter. My husband is in poor health, my sister is 91 in poor health and there is just me to help them. I think I am more upset that they have to deal with this too. I am so afraid that the path report of the lumpectomy will be bad. I have moments of sheer panic and I can't let anyone see that. I give Oscar worthy performances. I have many friends, really nice women. I have only told a few so far. Like many of you have said, I too wish they would leave me alone. I don't know why I am like this, I never used to be. This started long before the cancer. My husband thinks it is depression. Hope I can join your group. Thanks.
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Twinkle, Welcome and hugs. So sorry to know why you're here. (bc is a bear)... but know you are safe and cared for here. Will be thinking of you Monday. I'm sure you'll be getting used to all the jargon that goes with the territory and get more comfortable with each passing day. I hope you can find one or two friends to help you, especially with others in your life in health situations. You will need time to focus on yourself, for mental adjustment and physical healing. It is not a fast process. The one hurdle many of us struggle with is accepting help. It is not a time to be strong and in denial for those around us. Be kind to yourself. Eat well. Rest often. Laugh when you can. I'm glad you found the hermit nest. These ladies have been so very kind to me. They are wonderful and funny and knowledgeable. Take care. Keep twinkling.
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Thank you Skittle. This is the calmest I have felt today, knowing there is this place. Hugs to you too!
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Twinkle- welcome and glad you found us. The whole thing is so overwhelming, especially in the beginning. It sounds like you already know a lot about the pathology, but your surgery path report will yield a lot more info.
DCIS is early and usually the prognosis is good. My DCIS was Stage 2. I also had a very small lesion of invasive that was Stage 1 grade one. Your oncologists and surgeon will let you know what to expect and provide you with the best treatment options. Everyone's treatment process, timelines, etc. is very different as you will find out here.
I am sorry those around you are in poor health too. It seems to be the case for many of us here.
We all have our different experiences here about how widely we share things and what we want support with. It is sometimes hard to know what you want or need, especially in the beginning. If people want to bring food, or help you with rides, or get you out for lunch, you do what feels right for you. We are all figuring it out along the way here.
I will say this group has been a life saver for me. We share the good, the bad and the ugly here. It is a judgement free zone and we try to help one another along this difficult road.Wishing you a peaceful day tomorrow and good rest so you will be ready on monday. Blessings to you and keep us posted.
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Thank you Teka & Jazzygirl. Finding this site has been a blessing.
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Twinkle,
I read your post and my heart cried for you. I will be having my surgery 5/28. I really don't know what I would have done without this group. In my experience, I feel that we are told we have Cancer and then we are thrown into an ocean of questions without a lifeline. I was dx about 5 weeks ago. I went from knowing nothing about BC except 5K runs and pretty pink ribbons to being able to read my own pathology reports. It is ALL because of this website and discussion boards. Stay here and rest with us. You are safe here. We are all hermits and understand the need to just "be". I know that BC makes it very hard to just "be". There are questions and explainations. All these things drain us. We all understand.
This is a club none of us volunteered for, but it has become a club of more love and unity than I have ever experienced. Through the dark there is light.
Please know you have an army of prayers with you at all times. Use us to vent to or cry to.
XOXOXOXOXOXOXOX
Laurie
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Thank you Laurie. It is amazing how much better I feel since joining this group!
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Oh Twinkle everyone said sll the things I was thinking too. This is such a kind groupt of women, and one of them (me) csn't type well. So get used to certain things here too.
I feel bad when there are others in poor health around u too, cuz it could make u feel guilty cuz u think u can't help them. but like said take care of u'rself and u'll be back to helping others.
Again we've all had all different experiences with this horrible disease but coming here give u a venting way to say whatever u want anyway u want, and once things get moving it starts going fast and u actually start relaxing knowing what's going on. U'r team of Drs. will handle so much for u--- and we all get the I vont to be alone---OK if u'r too young u wont know what I'm talking about--I forget some are so young. I'm not LOL
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Thank you camillegal. No, I'm not young. I'm 70. So glad I found this site. It has been so much help in just one day!!!
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Keep us posted Twinkle....we are here.
Love and peace to all of you today. It is going to be in the 90's here in Vegas. We are going to church service and then just poking around doing quiet things. Tomorrow I get to go with my daughter for her first ultrasound (baby). Haha...I realized I need to clarify what KIND of ultrasound.
I am SO very excited. Also, one of my clients is having a BMX tomorrow, so I am asking that we all pray for her. Her name is Peggy. She is really scared. I told her about all of you. I hope she joins us soon.Blessings, light and peace,
XOXOXOXO
Laurie
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Prayers for your friend Laurie.
Welcome Twinkle. Many hugs to you!
Whaevah you made me tear up! Thank you spool much.
Skittle happy bday to your DD!
Camille hope you are hermitting well with Joey!
Jazzy hope you're having a fabulous day!
Teka, I haven't watched Hannibal anymore. I hear that new Bates Motel is good.
Hugs and good thoughts to all! I cut some beautiful lilacs for mom yesterday. She loved them. She's still in the hospital. Her counts are going down but bilirubin is still up
My MIL is having us and my mom's sister that is in from California over for dinner. That should be nice. Thinking of you all!!0 -
Hermits- wishing you a good sunday. Beautiful spring weather this weekend, warm and no wind. For those that live in the west, you know all about the wind thing.
I have been out spending time on the patio and with the gardens. I started doing my sunday morning meditation and yoga practice out there again as I have been for years. A time for prayer and peacefulness, and some stretching. Just ate a spinach and cheese omelette for breakfast. Yum.
Laurie- I hope your friend does okay with her surgery and that she will join us on this site. I met a very nice woman in AZ who was also getting rad treatment there and also told her about this site and our group.
And hoping you enjoy your time with your daughter. Mixed things here with your bc treatment but the excitement of a new life coming.
Cami- sorry you are feeling so tired. I hope you can rest and have those around you help to take care of you.
Teka-
My sister is doing well post reconstruction. She is still hoarse from the intubation, but seems to be getting along okay, eating, etc. I think she was still up yesterday with all the anesthesia still in her system. I am waiting to hear from her today yet, I don't call, I let her call me when she is up.
Back to home and garden. Trying to move my body more with walking, yoga, swimming and weights. Some days better than others with energy still.
Wishing everyone a good week.
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Jazzy good weather and workout wow--Good way to start the day and week. And hope that things still go wel for u'r sister.
Markat I hope u get some good time with u'r dinner nd can relax a little--prayers still going u'r way.
Teka--u'r so cute
Laurie, yes u have to make everything clear about tests here LOL--So exciting for the US tomorrow--this is such a happy time. But I am sorry for Peggy, she wil be in my prayers--as we sll are.
I'm still hermituding, I figure tomorrow I'll have more energy---hahaha who am I kidding?, But everyone have a blessed Sunday and enjoy the weather that most of us are having..
And Twinkle u'r better come back now--ya' hear
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Happy spring news... Lilacs, pretty days, buds, ultrasound, loving phone calls. It's 73 here, and I've been outside most of the day with the "new" dog. He loves chasing his football and just being close by. Found out, too, he loves Sonic ice.
Laurie, Will keep Peggy and you wrapped in prayer.
Twinkle, you, too! Tomorrow will bring lots of information. If no one goes with you, take notes or ask the nurse to. It's hard to remember all that they say. Your heart is trying to process it so the brain takes a mini break...
Jazzy, I hope your phone call brings welcome news. Glad your yoga was followed up by something yummy. A good balance.
Markat, Best to you and your mom. Thanks for the good wishes. I gave her one of my mother's opals--dd adored her grandmother.
Teka, A dear friend lives in Maine. Your lilac buds make me think of her. Seasons are so different. Enjoy your warmer days ahead.
Camille, Soon Joey will be out of school and perhaps his love and sweetness will help boost your energy levels. Hugs to you both.
Fl, bgirl, hermits new and not, Thinking of you. Hoping all's ok in your worlds.
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OK skittle what is Sonic ice--it sounds like something in the future.
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twinkle anybody can join, lol we love new people as the probably told you already....
thanks peeps, the 3rd week was horrible....I know it is coming so prepare myself, but I live with 2 19 year old boys and my older kids either don't want to deal with it or whatever, but none of them asked if I need food or drink, just are you ok and I would say no horrible....the twins that live here never asked, so I know that the the next time I need to stay somewhere for a couple of days where I eat and drink AND I need fluids the day after, have to talk to him (dr.) cause I know I was dehydrated....and also the friggin fingernails that are discolored, one of them apparently has some sort of fungus whatever...epsom salt it next....oh and the jersey shore is coming soon....
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I love Sonic Slushees!
Skittle what a sweet gift!
Blondie sorry you are having a rough time I shipped my girls off to my moms or MILs when I felt horrible. Have you tried the nail strengthener paint? My nails turned yellow but never fell off. It probably isn't a fungus, just a lovely SE. 0 -
Camille, Sonic ice is pelleted ice that has the consistency of snow. It's super popular here, since it keeps drinks cold for a long time, somehow doesn't melt immediately, and is very satisfying to munch if you simply want something cold and calorie free.
blondie... You are more patient than I. I think I'd be recruiting help from twins and kids. "Look. You know this is no picnic for me, and there are plenty of you so I'll be no burden. Twin one--breakfast. Kid one--mid morning drink and check on wants/needs. Twin two--lunch. Kid two--mid afternoon drink and check. All together--help each other out to plan and bring dinner, drink and check. All together--evening check. It'll make you better people, and will make my life more pleasant." Yep. I'd recruit. Hugs to you, hydrate!
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