The Hermit Club
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Hi ladies,
I wanted to clarify that I'm not worried about waiting to have to surgery due to the DCIS....it's that the waiting has brought such an overwhelming drain to me emotionally and physically due to all of the work and clients I decided to juggle first. I am realizing that I should have maybe just worried about me first. Hard to admit, but true.
Thank you all for listening and supporting.
Love you,
Laurie0 -
Laurie--such happy, happy news! How wonderful to be valued and loved and validated in your profession. Not only as a person, but as an asset to the business. Too often people are taken for granted, and I love that they are stepping up to acknowledge you as a blessing to them. Your devotion to your clients is clear, and I love that "what goes around, comes around" for you! And--your son's success! It is such a heartfelt joy when our children are happy, too. He must be on cloud 9... Hoping rashes and worries lessen soon. Hugs...
Happy weekend. Am off to a wedding this pm. (It's an outdoor wedding. Normal temp this time of year is about 75. Today--45! )
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Thank you Skittle! You are such a bright light.
I dream of meeting all of you one day.
Love to all of you!
XOXOXOXOX
Laurie0 -
Laurie- Cami is also right. No need for the PET scan. I know they often do those for more advanced stages of cancer when they are concerned about whether it has spread. Different tests get done for different stages. Because you are stage 0/DCIS, you will have less tests. Sounds like most of your tests are more pre-op related. You are doing to do just fine!
I did not have to go into work in the end, but monitoring some things from home on our conversion so I am kind of working but enjoying being home and doing other things too!
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Laurie that is so awesome, you deserve it I am sure they wouldn't have done it.
Mark....sorry about your mother....
Missed you guys went away on my week off to stare at the ocean so went to the Jersey shore....thanks, my kids know what the deal is, they text me ask how I am, I say horrible and that is it....I ask the twins they say no, most of the time....I don't want to leave my house and do have a frig in my room.....they apparently are having a hard time, whatever....
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Welcome lpc - I hope you are doing well today - I'm sure everyone's heard the thing for today - "May the Fourth be with you" seems appropriate for all of us. Today marks a year since I had my mamogram that started this whole thing. Such mixed feelings today - grateful mostly.
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CVmarilyn- I heard the same thing this am on NPR "May the 4th be with you." Funny!
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CV I never heard that in my life--Funny.....
The neighbor came over today she's so nice she's a retired nurse and both sides (neightbors) have taken such a liking to Joey she heard he hurt his ankle and wrapped it for him. They just gave him a badminton set too.
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Cami- I hope Joey's ankle is better soon. The retired nurse sounds like a sweetheart!
I have been low energy today. Been taking it easy at home. Watching Bridesmaids on HBO, which is a super funny movie (seen it before) if you have not seen it. Fun chic flick!
Hoping the hermits who are resting, been traveling and are back home, etc. are doing okay this weekend.
Special thoughts for Markat and Blondie today.
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Good Morning Hermits--or who want to be out of hermitude (don't blame you) Most of u are young and u should feel free to really do so many things. But I know sometimes life feels heavy--it's easy to not bother with people we don't know very well.
My mind too goes to Markat and u'r mom--this is such a difficult time for u'r family.
And Blondie u'r not feeling well so u just rest as much as u can.And don't forget u'r water, it makes a difference.
And the weather is goofy so sitting outside is sometimes not good. Well not yet it's chilly right now. But I do hope u'r Sunday is filled with good feelings.
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checking in hermits......relishing the last couple of days before chemo starts, planning, etc...the pain pills he gave me aren't working and I am taking 2....wth...
wish I could drink water but makes me nauseous, drinking green tea and also propel is my newest thing...weather is 60's almost 70's almost time for a nap.....worked 4 hours at macy's last night!!!
bbl.....
how is everybody?
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Blondie... Macy's--wow. That's "big city" to most Arkansans... There are no Macy's down here close... unless you shop online. (Fond memories of Macy's... Bought my wedding dress at a Macy's in St. Louis with my college roomie--a St. L native.) I hope your pain can be dealt with soon and that the chemo takes care of "the enemy." Hugs and hope constantly with you.
Hoping Monday brings each a good week. Love to you all. Wish I could wrap each of you in a protective blanket of hope and healing...
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Bondie how can u work--ick Macy's is such a walky talky job too.---I still drink propel I love it. As u all know the first 4 months of chemo I worked, I don't know how I did it--I do remember locking the office door and laying flat on the desk with the wastebasket near me once in a while but it was very difficult working with so many people and in the morning counting 100,000.00 dollars and when I was of a dollar or two put it in myself and over took it back--No the way to do thigs. But who had the patience to do it not me. Oh I didn't break any laws I just was chemod out.
Happy Cinco de Mayo--I forgot this morning---everyone have a drink or drugs or both
Blondie what drug are u taking?, mine aren't very strong but they help some so I take them alot.
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Oh I have to tell u Joey beoke his ankle, so he's all wrapped and on crutches---finall a boy thing. but I feel bad for him cuz as he puts it he likes to be mobile. So I'm letting hime use my computer more--brat that's probaly why he broke it.
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Hi hermits- the weekend is at an end once again. They sure do go fast. I got out and about today and got a whole bunch of cool plants and shrubs for my yard and garden. Once I get everything where I want it to be, I am going to post some pictures, so stay tuned!
Cami- so sorry to hear Joey has a broken ankle. I hope he can stay off it and get better soon!
Blonde- I hope this next round goes better. Is this the last one? I know this has been so hard on you.
Oh and I thought about finding my way to a margarita for cinqo de mayo today but it never happened.
Skittle, Markat, CV, Curveball, Teka, Laurie, Lily, and all the rest, wishing you a good week with whatever you are heading into.
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Hermits,
Hope you all are doing the best possible. Jazzy, Camille, Skittle, Markat, Teka, Lily, Blondie, Marilyn and all of the rest...peace and love to you.
For now I am just in a holding pattern. Just lots of clients to get through before my surgery. I do have a question about the HER testing though. I checked my biology pathology and I don't see anything about that on there. Is that a separate test I have to ask for? I am the first in the history of my family to have BC. Is there a special criteria that would eliminate me from getting this test? Sorry girls...I'm confused on this one.
Thanks to my lifeline of hermits...
Love you all.
XOXOXO
Laurie
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Laurie- when you have your surgery, they will biopsy the area and determine if there is estrogen, progesterone, or a protein called HER 2 associated with it as part of the pathology. The presence of the hormones usually will indicate if you would benefit from any sort of anti-hormone therapy. HER 2 is a type of protein that makes the cancer grow more aggressively.
They checked my area of DCIS as well as the invasive area for all this. I was both ER and PR positive, and HER 2 negative. My sister, who also has breast cancer right too is HER 2 positive and she has received a special infusion every 3 weeks of Herceptin for a year as part of her treatment. There are some other women here on this thread who may be able to provide even more info on HER 2 than I know from my sisters care.
You sound like you are getting things taken care of with your business so you will feel better going into your surgery. That is a good thing.
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Laurie someone will come on that really knows, I don't Jazzy has a handle on it- I do know I was positie across the board and had hereptin for a year wekkly=combined with chemo and then a few months just herceptin. But they told me all that after surgery and all that stuff--that's all I know. U are organized tho and that's a good thing--but don't overthink this--well I never did--it was and has been much easier on me.
Jazzy u are so organized and energetic, I'm so happy that u are.
OK it's seis de Mayo today--mean anyting? No? Just asking.
Markat (((HUGS)))
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Cami- I am not as organized as you think! I used to be so much more organized before all the health issues, but then again, I accepted things would be messy for awhile too.
My energy is not good today and my client site has been wearing me down, so I opted out of going on site to do work today. Going to work remote and from the comfort of my bed and will get a lot more done. Self management and all that jazz.....
And I googled what holiday may be today and turns out May 6th is "May Day" in the UK! So it does mean something (at least to the Brits and the rest over across the pond).
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Jazzy I'm sorry u'r not feeling as good as u sound. And leace it up to u to look it up about today. LOL
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Thank you Jazzy and ladies. I understand now. I knew I could count on you. Love and hugs.
XOXOXOXXO
Laurie0 -
Cami- I am doing okay, most of my issue is just tiredness. We have been in endless deadlines on my project for awhile (and more to come) and I just need a good week off from this whole thing. I am pretty sorry I took this project on, way harder than expected. People are nasty to each other too. I am just self managing the whole thing and taking care of jazzy today!
We had some hope of rain but the sun is out and it is no longer looking promising.
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Thanks for the warm welcome to "Hermit Haven" ... It is definitely good to be here! And, by the way - I agree completely with cvmarilyn - we must learn to be true to ourselves! A true friend will understand even if it takes a little while! LaurieParr - at least your friend offered to help and you managed to keep her at bay! Whilst I've been on this whole BC journey, I have most definitely found out who is important in my life, who cares about me and who I care about ...
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SoLinda did I say Hi, I don't remember--u'r from and live now in Brazil--SOUTH AMERICA Wow--if so that looks like one of the most exciting places to live. I've known one person in my life from Brazil and her name wes Linda and I had a Spanish class with her and she sat next to me-(my 2nd yr os Span.) I got all A's thanks to her and pushed to go into my 3rd year without her tho-Well that's the year u never speak English--that didn't last long all I could ever say was the Bull is dead and I don't speak Spanish, well I failed without her by my side but I do hve such nice memories of her.
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Hi SoLinda. You are such a good reminder to us that breast cancer crosses the generations as well as the continents.
I think bc has finally taught me who cares about me and the relationships I need to nurture. I am at much more peace in my life with my family and friends, having let go of some people who really don't care about me and never will. All I have gone through took those blinders off once and for all.
We are glad you are here with us!
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Markat... Peaceful prayers for you and your mom.
Laurie... We'll cradle you in warm thoughts as you move forward. (I'm HER negative, too, so can't add any wisdom.)
Jazzy... You rise to each challenge. Be kind to yourself so you can gain some energy.
Camille... hugs to Joey as his ankle heals. I thought of him today while watching my sixth graders at track and field events. Running, leaping, throwing... Most love it.
Blondie... hugs to you. Hoping you find a Propel flavor you can count on to like.
SoLinda... I had a Brazilian grandfather. Never met him. He was a band director, divorced my grandmother in the early '30's?
bgirl, teka, Fl, and all... hoping you are ok and the spring months are bringing you good days.
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Skittle u r always so positive and cheery with all of us--sweet skittle.
Jazzy I'm glad u have weeded out the people in u'r life. If we have loving families and some wonderful friends that's all we need. We value the very good ones. I have een so blessed going thru all this crap everyone stuck right with me and are still there. But I weeded mine along time ago LOL
Joey's staying home a few days with his broken ankle but I'm selfish enough to like it. Not that he's got a broken anything just that he's home and I get to help a little cuz he's always helping me.
Markat (((HUGS))) for u and u'r mom.
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Oh no about Joey! Poor kid
My mind is a little fuzzy and confused and exhausted! So I'm sorry that I can't keep up with everyone
Mom is basically being kicked out of impatient hospice I'm not sure what our next step is. They have stabilized her, made her spirit happy and pain free...and now she either has to go home or to another facility (nursing home). This makes me so sad. She is still eating and very alert, so she must transition somewhere else. Ugh the stress. She needs aides, doesn't qualify for medicare and the medicade options don't seem quite right either! She's fighting! And I don't blame her. Many phone calls to make tomorrow to doctors and the facility. Maybe back to the hospital
Hugs and love to all!0 -
Oh Markat I hate when decisions have to be made, I like when the Drs. make and enforce them. It's such a difficult time. But now u say u'r mom is better? Tht's a good thing tho. Can she actually go home and a nurse comes in or is that not practical to do? How old is u'r mom???
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