The Hermit Club
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good afternoon peeps....
ditto jazzy!!!
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Blondie are u doing OK?
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yep am, not looking forward to chemo on wednesday, it is usually worse one.....hoping with fluids it will b better....thanks for asking...
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Blondie I know it's not the day of chemo usually, it's the after effects and then they just keep on coming.(((HUGS)))
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thanks Cam....and me too Teka...
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I've been watching the horror that that thing caused on TV and it's so so sad--so many people have lost their lives mostly kids--I can't even fathom that==I had to change it it was so difficult to watch. The I put on the Jodi Arias thingy and that was rediculous to watch, so now I have my comedies on.
It's thundering and lightening here and my Katie-Kat is hiding somewhere, when I see her come out I feel so relieved cuz it's over then. It's funny cuz I saw my Katie put her nose in the air and perk up her ears and got out of my bedroom and within 2 minutes I hear thunder so they know and my dog is walking around the house about the same time but doesn't hide. But right now I'm not comfortable.
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Camille--I hope you're safe and secure now. We, too, had rough storms all night, and they're supposed to continue throughout the day. We usually get Oklahoma's weather a day later... (Today's my appt with MO, so am not at school. The kids are always on edge in threatening weather, so I hope I have a good sub. They'll be wanting to talk about the tragedy and just get their feelings recognized.) Glad you have your Katie alarm.
blondie--hugs... Hoping tomorrow is tolerable for you.
Jazzy, teka, Lori, Laurie, and all... stay safe. Hug a little harder today. This world is so unpredictable.
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Skittle let us know about u'r MO today.
And U'r right I think the kids do want comfort at a time when so many little ones ost their lives at school too. It's strange cuz even as an adult u need some type of comfort and wonder why this horror had to happen, like there is not enough stuff happening now. U are so kind and thoughtful for u'r kids their parents are so lucky, I hope they all appreciate u.
We usually get the wether the next day too, depending on the winds, so they said the next few dys are going to not be so nice either. As long as they are just not to nice fine.
I took a shower and I smell so delicious it's relaxing. LOL
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Hiya - had a rough weekend - worried myself sick (literally) about a friend. I think things are back to normal now though. *relieved sigh*
On the subject of Mammograms - I had one after my cancer was diagnosed - and it still didn't show anything. So, it sometimes makes it a bit hard when people ask me if I found a lump or if the mammogram found it and I have to say 'neither'. It's awkward being the 'weird' one all the time. I'm going to my MO tomorrow and I'm guessing she will push me to go get a mammogram. I know I'm overdue but since my MRI already came back fine, I am not worried about it - just lazy.
Hopefully everyone has a good week - we all deserve it!
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Jinkala it is time so u'd better go, and u know that LOL It's funny cuz my cousin had a mammo and it was fine and 3 months later her breast was hurting so badly she went to the Dr. and got an ultr shoubd--yep cancer and the mammo never caught it. When I told my GF's at work (3 of my best friends) we went into the office cosed the blind , locked the door and they all want to feel my breats we were laughing so hard and so loud, it really doesn't go well with customers--DMV==so when we got done still laighing someone said what were u guys doing in ther u were having so much fun--and my girfriend said Oh we were feeling Camille's cancer. and we started laughing all over again, so t=no one at that time really thought I had it--and tht was fine, then I lost my hair and it surprised everyone. I have such silly friends.
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Camille--you are one spirited lady!! I can picture you and your friends laughing hysterically.
As for MO visit today... Blood work--too early for results. Bone scan scheduled for November. Side effects? Pain? Fatigue? "You're fine. It's to be expected." One new dr said, "Well your last cancer marker was 23." This was news to me!! No one had ever given me a number before (other than oncotype.) When asked what it really means, she said not to worry. Only worry if it hits 31. ??? Again, news to me. Humbug.
Storms here have been amazing. Rain pouring sideways! Tornado watches tonight until midnight. Poor Oklahoma. DH wants to go help, but I'm thinking they'd shoo him away wanting only Ntl Guard or homeowners in the area...
Hugs to each. Hoping chemo, tests, surgeries, roller coasters are not too rough. Like it or not, I feel like I've adopted you all. (Never had a single aunt/uncle/cousin, so don't know what a big family is like... and married an only child! Only ones on the planet related to me now are DH and our two DD's!) --Camille--I think that's why a warm, story-filled Italian family appeal so much!!
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I love this thread. You ladies are awesome. So much love and compassion--and humor-it's a must!
My heart goes out to Oklahoma and all those suffering in this world...
love and light to all
carpe diem with love.
i've not been feeling well, so have been laying low-- looks like it's finally spring--it snowed on saturday--crazy! i think it was our longest winter ever. went with hubby to greenhouse to get a couple of hanging flower plants (and See's chocolate)--not exactly in that order:).
when we got home i ate a few and told the hubby to hide the chocolates. i found them--they were in the pantry cupboard. think i'm ready for scotland yard? lol
love to all--comfort and joy
xo
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Chocolate0Yummy___ Seriously I'm sorry u'r having a bad time--It sucks Just relax and take what u need including chocolate, but thst is funny how u'r DH hid them--See if someone wnted to hide something from me they could put it in the dishwasher, by the vacuum, or laundry room and I'd never find it. But to each his own. (((HUGS))) to feel better
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choc, take care of yourself and feel better.
Cam you are too funny...
went out today to daughters to spend time with the grandchildren which I usually do on Tuesday although it is getting harder and harder they are 3 and 1....although the 6 year old was there but so was one of my twins who is 19 and my granddaughter who is 17 and they helped me....
3rd week on tomorrow...hate this week...will be ok I know, talk myself through it....
Jazzy, teka, Lori, Laurie, skittle (am an adopted only child), and all others have a good one....
thoughts and prayers to OK!!!
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Blondie I'm glad u'r with u'r grandkids (with some help) Oh I could never do that anymore 1 and 3 exhaust me ith just a thought about it.
Good Luck tomorrow and let us know whe u'r done. (((HUGS)))
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Hi fellow hermits- very sad news about all the devestation and loss of life in Moore, OK. Sometimes I think life is hard, we all have/had cancer, but then look at that and think there are people who have lost so much-loved ones, their homes, and more. I love the stories of the people who layed on top of the children in the schools and in the daycares to protect them. The human being at it's best really.
Went to yoga tonight and glad I did. It always helps my mind, body and soul. I have been trying to make some decisions about a difficult work situation I am in the midst of and some of what I need to do next became clear to me in yoga class tonight. That is the gift that comes with this practice-helping you to slow down and let go and then the answers come.....
Hoping everyone else is getting through their chemo, doc apt, tests, etc. I want to know what each and everyone of you have planned for this weekend!
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Jazzy I know that it is such a peaceful practice for yoga and I'm glad it clears u so and u'r decisions can be made with thought and not on impulse.
Oh this is the holiday weekend, I really forgot--we haven't really talked about it yet--The weather wil be cooler so my DD's pool might not be so inviting--it is heated tho--I don't know we'll just see. I know she's having something going on Sunday so we'll see/
Chit I think I just took my night pills, but now I'm not sure. Well I won't overdose if I take more so I guess no biggy.
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Cami- put on that bathing suit and get in the DD's pool! A gathering on sunday sounds nice too!
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Thinking of all the those affected by the storm.
Blondie I hope today goes okay for you. Sending you good thoughts and hugs.
Skittle I hope you all are okay from the storms! I hope all your kids are safe and secure today!
Camille thank you! Glad you had a fun celebration!
Mom is back at the hospice facility. She asked whose dumb idea it was for her to get chemo for a second time
Her insurance turned down a rehab stint at a nursing home so now she needs to decide if she would rather go to a nursing home or go home with hospice care. She is extremely weak and unable to walk so I think a care facility would be safer. My house is a no go according to the doctors and social workers. It would be too hard on mom and my girls. Sob. One day at a time.
I was reading an article about when you finally felt like a grown up. Well I've had two children, owned two homes, and had cancer. But this has made me finally feel like a grown up
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Oh Markat what a way to feel like a grown up---I'm sorry about all o this for u'r mom--she does have a wonderful dgtr tho. I know Hospice is a wonderful place for her to be and I hope and pray she'll be comfortble, and prayers and hugs for u and u'r family too.
I'm glad u let us kow what's happening.
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Hi Everyone,
Blondie, I am sending you warm thoughts and tons of Hugs. ...
Life has been Topsy turvy....long story short my therapist wants to up my antidepressant, so that tells the story. I will continue to do anything possible to recognize the positive in life. I read all of the posts here, and marvel at the level of optimism and strength by everyone. I went to a baseball game with my husbands co-workers and ended up talking to a gal who also had breast cancer eight years ago...she had a large tumor, went through a lot of chemo/radiation and is doing great. In spite of the event being painful (cause I am extremly interverted and find it draining to chit chat with people I don't know) I was happy to hear her story...not to mention her words of encouragement. On a different note, does anyone ever have an alcoholic beverage? I am going to a wedding this weekend and feel like I would like to maybe a glass of wine (or two) but don't know if its a good idea....
Hope everyone is having a good week...Take Care...Hugs to all...Lori
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Yes i do have a drink or two, beer or wine normally not spirits, we need to live!
I have posted in the reconstruction thread as news not brilliant today......and will definitely need reduction on remaining breast to get symmetry, or close to it, and i feel inordinately upset that i need surgery on that side too.......and will have scars0 -
Oh there's some drinking, just don't overdue. sometimes I have a beer and my sister who's Stge IV has 2 glasses of wine everynitearound 5PM/ And I remember when I was in chemo alot of the women couldn't wait to get home to have their drink ad the nurses would say can u at least wait 24 hrs and the answers were nope. I'm not advocting drinking I'm just telling u how it is LOL---and the Dr. will get the right med and amt. Some people take longer and some don't use them it just depends on the person. You know LORI I'm not really good at explaining things cuz I don't even understand anything about cancer excet it sucks--but I almost feel like the more u fear or get sad it'll get the best of u, and u want the best of u for u'r family and YOU, Most people live their lives with some type of difficulty or disease and seem to wether it pretty well and this is no different. This is a crucial part of u'r life that has great impact, it's a long bumpy road, filled with pot holes but their is pavement at the other side and u do feel better. I never felt this journey thing, that how I feel--so it's just me--but everyday gets better and even smelling the rain gets more exciting--I know it does not seem that way now and no one can just change 'r mind but it does happen and that's how u have to retrain u'r minset to think. So it'll happen.
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Markat- I am so sorry to hear about your mom. It is hard to know which location will be better for her. Nursing home can be okay if you feel it is a good facility. That is sometimes hard to know until they are in. Trust your instincts on where you think she will be the safest. I am sorry you are still struggling through this.
And you find yourself in a very grown up place when you take over the care of a parent. My mother always needed a lot of my help her whole life, but when she had a stroke and then broke her hip and my sister and I had to take over everything, it brought my adulthood into a whole new phase.
Lori- not sure about the alchohol while doing active treatment, but I kept mine to a minimum due to all the drugs I was taking for awhile and worries about interactions. One of my MO's said the medical community says alchohol increases breast cancer risk, so they suggested I say to 3 a week adult beverages a week. I hear different things on this subject and not sure if they really know. Can you call your treatment center and find someone to run this question by to see what they advise?
Long tiring day and time for bed!
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Teka--u'll be busy and it will look beautiful
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Ladies,
I have read all of your posts as of late and my heart is with each one of you. Markat...I am so sorry you have to endure the sadness with your mom. To ALL of the rest, I am wishing you peaceful and painfree days. I think of each of you every day and pray that you are well.
I have three more days of work and then I am off for my surgery. I have been working really long days and my body and mind are tired. I have received SO much support and love though and I feel good that I have everyone taken care of before I fully hermit. My husband has been amazing (he went through the first month after my DX in denial) and he hired a housekeeper for me while I am off. Sounds fancy huh? Lol. She is really reasonable and nice. It was THE sweetest gesture on my husbands part as he knows how OCD I am about the house. He knows that I won't be able to relax if I think the house is dirty.
I'm a crazy one for sure.My daughter is doing well. She just entered her fourth month of pregnancy. The ultrasound looks like a little baby now. You can see little arms and legs. LOVE! My son has his first Legion baseball game of the summer today. He also passed his driving permit test recently. Hurray!
Well hermits....I am off to work. Love you all....peace to you all.....I'm here always.
XOXOXOXOXO
Laurie
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I had an appointment with my MO yesterday. She is very pleased with how well I'm doing and how all of my scans have come back good. She did suggest that since my MRI came back good that I should just wait on the Mammo until later this year - keep the MRI and the Mammos about six months apart. I'm good with waiting. LoL
I did comment on how much trouble the people who do the MUGA have with finding my veins and she asked if I wanted to do a different heart test that didn't involve any injections. I can't remember what she called it but said that it wasn't as precise as the MUGA but since I haven't had any heart issues at all, it should be an acceptable alternative so I'll be doing that towards the end of next month.
She said I have 4 Herceptin treatments left - last one to be on Aug 2 - yay!
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Thanks Cam was going to take the lp, glad I didn't one of the twins went with me (don't think it is a good thing, it was, but I refused to turn on the ac so he went for the ac in the building, or so he says) and my friend came and there are issues with my oldest GD so we talked about that...
Jazzy my friend swears by yogaand pilates (no she doesn't have cancer)thanks, nothing planned was trying to plan a BBQ but alot of us, want my grandchildren together not for me but for them, they don't see each other enough...
Thanks Lori....it is what it is, just make the best of it, been getting chemo infusion for almost a year will be in july....before that was xeloda, chemo still just pill form am used to it...have fun at the wedding.....
thanks Mark...sorry about your mom...
Laurie take care of yourself, sounds like eveyrthing is going well....housekeepeer jealous but you will need it, take it eacy, don't push things, and we are here, so you can play with us for your time off, we are really fun, and there is a STFU board that is so much fun, you just have to not offend easily...I love it....
next page
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yay Jink, sounds good...
Rain here today also, or so they say...
what is everybody doing over the weekend, hoping to have a bbq at DD2 we will see....
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Jinkala Great news, u can rest mentally which is great.
Blondie u sound OK (I know) but hope u have that BBQ this weekend and everyone can come.
Laurie oh what mixed emotions==gee U have time off of work, Oh I have to have surgery kind of 50/50 there; I am so glad u'r haveing some one come in to clean your home. U know a lot of areas have free houseckeeping for cancer patients, it good to know anyway.-We're all with u Laurie (((HUGS)))
I hope Markat posts today and of cours skittle.
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