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Treating estrogen responsive cancer naturally

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Comments

  • Momine
    Momine Member Posts: 2,845
    edited February 2013

    Mini, which one has cancer as a SE?

  • purple32
    purple32 Member Posts: 1,767
    edited February 2013

    given Aromasin because the onc said it did the "least" damage to the bones!

    and potentially the most to the heart, if I am not mistaken.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    Yes, youre right on that.  Im going to make an appt with a doctor to have some heart testing done on Monday.  I am still having heart palps.....and I just read that aromasin can cause stroke, heart failure and death.

    http://www.rxlist.com/aromasin-drug/side-effects-interactions.htm

  • Momine
    Momine Member Posts: 2,845
    edited February 2013

    Shayne, have you had a DEXA to check your bone density? If not, I would ask to have it done along with the heart tests. 

  • shayne
    shayne Member Posts: 524
    edited February 2013

    I had one before I started the AI - it was all normal.

  • purple32
    purple32 Member Posts: 1,767
    edited February 2013

    Thats great, Shayne.

      With normal dexa you could exercise add extra d plus some CA and have your bones potentially stay the same.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    I do a pump iron class (weight lifting/aerobics) 3 x a week since 2004.  Saw a naturopath after I was dx and she put me on supplements, Vit D amoung them.  And Calcium.  Osteo issues do not run in my family thank god.  

    I really really hope in the coming weeks, that I start to feel better.  I have some grief issues thinking of how active and strong I was this time last year......I cannot believe how this pill has made me feel so wrecked.  

    Im so grateful to this community - you guys are my lifeline - i have no one else to talk to that really gets it.  Really, so so grateful.  thanks!

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited February 2013

    I stopped the Fosamax because I was getting jaw pain. Even though my dentist said it was very, very unlikely that I was getting necrosis of the jaw, a pharmacist said I had made the right decision. Also, I was getting worried about difficulties with swallowing on the day I took the Fosamax. And then I heard that the drug adds bone to the outside of your bones and bones regenerate from the inside not the outside so that does absolutely no good! Also adding to the outside makes the bones more brittle and has caused fractures of the femoral neck.  And guess what? I broke my hip 4 years ago and it was the femoral neck!!  I'm sticking to calcium with D--

  • shayne
    shayne Member Posts: 524
    edited February 2013

    I was low in D at dx - then added the D....got tested and was STILL low....so had to add more!  

    That is crazy - the Fosamax!!  wow....

  • Mini1
    Mini1 Member Posts: 1,309
    edited February 2013

    My sister was taking Fosamax when she began to have extreme pain in her thigh. At the same time she began to have trouble swallowing due to the meds, so she quit taking it. She noticed not long after that her leg stopped hurting. A few months later the news about spontaneous femur breaks from the osteo drugs came out. I have no doubt she was on her way to a fracture. I know that they work for some people, but I don't want to take something that can eat through my esophagus or break my leg.

  • Mini1
    Mini1 Member Posts: 1,309
    edited February 2013

    Dogs - my doctor says they call them green stick fractures. That it's like when you break a branch and the inside breaks but the thin outer layer stays intact. I take 50K IU once a week of vitamin D and calcium.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    Thats how much I take as well.....

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited February 2013

    The ones caused by Fosamax are called Green Stick? That's not what I had, the fracture went all the way thru. I had 3 pins put in - huge ones, like sock knitting needles. Mine was not caused by Fosamax then, put it was in the femoral neck area.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    You poor thing!  That sounds so painful!!  HOw are you doing now?

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited February 2013

    Actually it wasn't that painful. I just thought I had a pulled groin muscle for 11 days until I went for x-rays. I had to have surgery within 2 days and had to "hop" on one foot during those two days. That was fun! And afterwards there was no pain at all.

    My broken arm in November was much worse and that didn't need surgery. But because the break was by the shoulder, the arm couldn't be in a cast so every single move I made it hurt. And because I am on a blood thinner the arm swelled to twice its size and bending down to put down the dogs' dishes, etc. was so painful----and the arm was so bruised---thank God it is almost healed and the therapy has been very helpful.

  • purple32
    purple32 Member Posts: 1,767
    edited February 2013

    though my dentist said it was very, very unlikely that I was getting necrosis of the jaw,

    Baloney!

    I will never touch that crap again.

    I  was on actonel and have  had 3 major breaks.

  • Momine
    Momine Member Posts: 2,845
    edited February 2013

    Purple, is actonel also an osteoporosis drug?

  • abigail48
    abigail48 Member Posts: 337
    edited February 2013

    ataxanthins in various fruits, dark & red colored ones, as well as red colored fish.  the red color added to salmon is?? ataxanthins.  better than vit C it's said

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited February 2013

    Purple, where were your breaks? I mean what part of your body, not the location you were at LOL

  • Mini1
    Mini1 Member Posts: 1,309
    edited February 2013

    It could have been from the Fosomax. It depends on if you had taken long enough to develop the outer layer of new bone. I'm glad I stopped taking it. I have enough bone and digestive problems as it is. I'm surprised your femur didn't hurt more. I've always heard that a femur fracture was the most painful-something I argued against when they broke several of my ribs for surgery on my lung. I always said if it was worse than that, I don't ever want to break my femur.

    I'm constantly amazed by what the FDA will allow on the market. Put out a drug that can give you a heart attack, stroke, or cancer, along with a myriad of other probems and you're good and make zillions of dollars. Take a natural herbal supplement and they tell you it's unregulated and too dangerous. Well then regulate it. DUH! The cure is often worse than disease these days.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    your last sentence.......should be put on a t-shirt.  No truer words have been spoken!

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited February 2013

    I fell a few years ago and my ribs were just killing me. It hurt to breathe and forget about coughing. If I had to sneeze I had to hold on to a chair and grit my teeth. Xrays showed NO broken ribs so I guess I just stretched or tore something.

    I can only imagine the agony it must be to BREAK a rib. My teenage son cracked two when he was "checked" into the boards at an ice hockey game. The doc told me he MUST breathe deeply or he would get phneumonia (sp). My poor son hardly complained at all--

    The coach was not sympathetic and said he should have kept his arms low so the arm would have taken the impact instead!!

  • purple32
    purple32 Member Posts: 1,767
    edited February 2013

    yes momine

    actonel is very simliar to fosomax.

  • ClaudiaMetz
    ClaudiaMetz Member Posts: 136
    edited February 2013

    I just joined and have read all the posts I could.  I had a lumpectomy in November (no cancer in lympth nodes).  My cancer was small and low grade.  I was able to have internal radiation wich I finished in December.  My cancer was estogren positive and I have been put on med to block the estogren.  I am boderline on osteoporsis.  I felt like I didn't have much of a decision.   I was told that if any cancer cells had gotten out this would help prevent it from coming back.  I felt like I had so much thrown at me.  I have always been a big advocate of natural alternatives.  I was taking a lot of natural supplements due to another condition (dermatomyositis) an automune condition that effects my skin from a Chiropractor.  I would have continued but my son had back surgery and has not been able to work for 2 years.  We are trying to help their family.  The supplements were getting so expensive but I do believe you can accomplish so much with a natural approach.  The SE of my medicine scares me.  I am very confused.  Thanks to all of you who are making me re-think my decision.

  • mllethani68
    mllethani68 Member Posts: 2
    edited February 2013

    I loved reading this thread but seems there s not a lot of posts anymore about natural treatments for hormone responsive cancers ....I tried the traditionnal approach , too much side effects ...., want to read more about the natural ways .., thanks !

  • shayne
    shayne Member Posts: 524
    edited February 2013

    sorry - i think i got things off topic there........Will post after my appt with ND about how to keep estrogen levels down naturally.  

  • purple32
    purple32 Member Posts: 1,767
    edited February 2013

    Have you tried DIM ?  Pls google DIM.

    No sorrys here Shayne.

    Good luck to all.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    Yes, I really want to know more about DIM. 

    Thx purple

  • ClaudiaMetz
    ClaudiaMetz Member Posts: 136
    edited February 2013

    I googled DIM and printed out some information.  Can someone give me some advice on the best way to start.  I am trying to buy organic and I get my beef from a friend and they are grass fed and no hormones.  I have started with a primary care doctor who told me and my husband to watch video "Forks over Knives".  We did and it was an eye opener when you realize everything that has been put in our foods.  I am not saying that we don't eat some prepared food but we are trying to change our way of eating.  Exercise is something I don't do enough of and I am trying to change that as well.  My chiropractor gave me exercises to open up the lymph system.  They are stretching exercises.  My life has been so crazy and I get started and then something else happens.  Money is an issue right now so that is why I am asking about the most important things to take or do first to get started naturally to control estrogen. I would like to get off of the medicine when I think I have a way of controlling it.

  • shayne
    shayne Member Posts: 524
    edited February 2013

    Just wanted to comment the best exercise for the lymphatic system is jumping on a trampoline.  Even one of those smaller exercise bouncers will do.

    Vitacost.com has great prices on supplements, some at 60% off.  I get all my vites/supplements there.

    After my dx, i went totally organic meats and veggies (was doing partial, and meat was at least hormone free)  Its a little more expensive, but hey, cancer treatment is MORE expensive.  

    good luck - sometimes making changes slowly helps instead of trying to do it all.