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Treating estrogen responsive cancer naturally

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Comments

  • mybee333
    mybee333 Member Posts: 672
    edited June 2013

    Thanks!  I wonder why the difference?

  • Mini1
    Mini1 Member Posts: 1,309
    edited June 2013

    Like pretty much all processed foods we have here in the USA, soy has become a massed produced, over-processed, GMO'd filled mess. Soy in it's purest form is beneficial. However, that is not what we have here in most soy products. Veggie burgers, vegetarian and vegan meat look-a-likes, and other such foods are among the worst offenders.

  • mybee333
    mybee333 Member Posts: 672
    edited June 2013

    Good point.  I forgot for a minute about our food supply...........lol

  • lightandwind
    lightandwind Member Posts: 97
    edited June 2013

    what about miso, tempeh and tofu?

  • kira1234
    kira1234 Member Posts: 754
    edited June 2013

    lightandwind. From what I've read they are ok. I also eat edamame.

  • shayne
    shayne Member Posts: 524
    edited June 2013

    My naturopath told me stay away from ANY processed soy.  Edamame, tempeh are fine.  I choose to stay away from all soy.

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited June 2013

    Are miso and tofu soy products?

  • kira1234
    kira1234 Member Posts: 754
    edited June 2013

    Yes miso and tofu are soy products.

  • Mini1
    Mini1 Member Posts: 1,309
    edited June 2013

    You can't have tempeh if you have a mold allergy, which of course I do. :-(

  • phxsunshine
    phxsunshine Member Posts: 156
    edited August 2013

    My Naturopathic Oncologist also told me to stay away from soy.  Also, 90 years young and tamoxifen?? You have got to be shitting me.  I told my Oncologist, who I love, that I know he wants me to die of something besides cancer and Tamoxifen and AI's are the only thing he's got for me to make sure that doesn't happen.  I get it, I just can't bring myself to resume taking them again after I finally feel pretty much like myself again.

  • mybee333
    mybee333 Member Posts: 672
    edited August 2013

    How long have you been off of them? I have been taking a half dose - 10 mg. of Tamoxifen for about a month to try and ease into it. My feet hurt a bit but I sleep at night. I feel a bit anxious, depressed (life?) & get about 2-4 hot flashes during the day; I think it is doing something. I have had a hysterectomy but my tumor was 95% ER +. Docs have said that an anti-hormonal is really important for me for prevention of recurrence but even more so to prevent contralateral BC. I remember being off of them for a while tho'. It is nice to feel like yourself. Hoping my body adjusts.

  • momoschki
    momoschki Member Posts: 218
    edited August 2013

    Both my integrative oncologist and naturopath have told me that recent studies show that moderate amounts of soy (2 servings per day) are protective. This includes (organic, non-GMO) soy milk and tofu. Miso & edamame ok, too. The only products they stressed to avoid were processed soy, like the stuff typically used in premade, supermarket veggie burgers, and any soy supplements. When I asked which was safer to put in my daily latte (which I am NOT giving up!), both concurred that soy milk was far preferable to commercial, non-organic milk.

    There seems to be so much conflicting information on this-- very confusing!

  • QueenSansaStark
    QueenSansaStark Member Posts: 27
    edited August 2013

    Hi everyone. I've become a Natural Girl from being a Complementary Girl due to quality of life issues.  Tamoxifen was torquing my head and messing with my body too badly after 3 years, and I do not want to do the AI's because I am too much at risk for osteoporosis. Quality of life DOES matter to me.

    So I am doing the following: DIM (from Smoky Mountain Naturals), Curcumin extract (from Jarrow), CoQ10 + LCarnitine liquid supplement, fish oil, good quality multivitamin supplement from Garden of Life, probiotics from ditto, Pilates/weight training, and healthy diet (not any special vegan or Mediterranean or whatever - just trying my best to eat decent not-too-processed, not-white-carbs food) and following an integral spiritual practice. I've also ordered a bottle of something called Chromium Polynicotinate which is supposed to help keep the weight off  - very important in ER+ BC.

    My Quality of Life has gone back up to pre-cancer days and I feel like myself again. I'm thinking about going to get a Master's in Social Work and if I do that I need all the brain cells and energy I can muster! Laughing I've been steadily losing weight, firming up and sleeping so much better. I know how important losing weight and good sleep are to preventing BC from coming back. (And my doc was not going to keep prescribing me the ambien anyway. Ha.)

    Getting my sleep apnea diagnosed and treated also helped tremendously. I wasn't your "typical" apnea patient (that is, a fat middle-aged man) and I'm convinced that I've had it for some time. Sleep and BC are linked and I believe that undiagnosed apnea contributed to my BC diagnosis - but that's water under the bridge. I pushed and pushed for a sleep test, got diagnosed, got a machine, and now I'm getting actual sleep instead of the SEVERE apnea I was having. Now I just need magnesium and melatonin for sleep. Melatonin is a BC preventor anyway. And most people are deficient in magnesium. I take something called Iconic Fizz which tastes like raspberry lemonade as a pre-bed cocktail - yum!

    Maybe if I were a mom, I'd want to keep going the full conventional route, side effects be damned. But I'm not, so right now I am choosing quality of life over the assurances (?) offered by Femara and the like. I know my onc is Not Going To Be Happy with me when I see him on Monday but that is the way it goes. As it stands now I am happy with the path I am choosing and glad to see other natural girls here. Much love and support to all of you. 

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    Hi QueenSansaStark,

    I'm happy that you have a grip on your body and your life. I do not suffer from sleep apnea but my XDH did and it is a scary episode. I felt like he was on the brink of a heart attack or worse. I don't know if he still suffers b/c I sleep alone.

    Did you take the tamox or AI for a good part of the time since you were DX'ed 6 years ago? I can't or won't do it. I believe it was a hormone inbalance that caused my BC to grow?? Just the thought of getting rid of the estro scares me. I'm trying to balance the hormones with DIM, calcium D glucerate, diet, and a herbal TEA from Dr Wong (chinese Herbalist) who has done EXTENSIVE RESEARCH on BC and hormones. He has 'cured' many w BC and other diseases. I do take alot more supps to support a healthy body as well as try to control enviornmenal estro that we are surrounded by. Need a bubble for protection. QOL is all I ask for too.

    I just heard about the cromium polynic for lowering blood glucose, and some wieght loss is a real plus. Thats surely my next addition. I do take cromium picolinate and it DOES WORK, but I read somewhere that it will stop working.

    Back To School......Good for you and good luck.

    Maureen

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    QueenSansaStark,

    Are you a fan of Game of Thrones too? I love all the charicters but Aria Stark has my heart..and the IMP.

  • Mini1
    Mini1 Member Posts: 1,309
    edited August 2013

    My tumor was 90-100% positive and I tried AI's. Absolutely horrible. They have it listed as an allergy for me. I'm not taking Tamox. I do all I can to eat right and keep toxins out of my body by being very careful about lotions, perfumes, cleansers, etc. along with taking care of myself in general. There are still more survivors than deaths when you look at the odds, why can't I be one of the survivors? My MO still tells me I should take it and I stil say no.

    I take after my mom, genetically speaking. She had a mastectomy and took no meds and lived 11 years until she died of a non-cancer related cause. She also had a blood clot, diverticulitis and pancreatitis. I have or have had all of the above. I'm not taking a medicine that will increase my chances of having a blood clot or any give me any of the horrible SE's the AI's did. I'm hoping the genetics stay in my favor. It's a calculated risk, but one I choose to make.

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    Mini1,

    I can so relate. I'm not going to take any med that is going to do more harm than good. Even without the s/e's it is damaging a female body that depends on estrogene for heart health bones and overall health. Unfortunatly your MO has nothing else to offer you in the medical scheme of things. A little support would be nice. I really like my MO but she is bound to the standard of care. She very carefully does a breast exam, for at least 10 minutes. The best part of our visit. I'm such a slut.lol...............xox

  • mybee333
    mybee333 Member Posts: 672
    edited August 2013

    I love a great breast exam too! Not only are they so relaxing - how nice to be touched and cared for! - but they are so reassuring!

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    Breast exams NEED to be done monthly, right. I'm willing.

  • dogsandjogs
    dogsandjogs Member Posts: 677
    edited August 2013

    By you, not a doctor. Only you know your breast and can feel when something isn't right. Both of my cancers were found by me. Before the biopsies I was told: "It is probably nothing", but I knew something wasn't right---

    PS My former onc did horrible breast exams. Just a few squeezes here and there, didn't go deep, just skimmed the surface.  I don't see him, because I'm not on a hormonal, but he sure did a very perfunctory job---maybe if I had been young and gorgeous he would have spent more time with the exams? LOL

  • Mini1
    Mini1 Member Posts: 1,309
    edited August 2013

    My MO tells me that all he can do is recommend what he thinks is best, but it's my body. He thinks I'm wrong of course, but to me the treatment is as bad, if not worse, than the disease.

    My tumor was deep and not palpable when it was found. It was found in my mammogram. I do exams, but I don't know how much good it does. My MO does a cursory exam but unless it was really large, I doubt he'd find it.

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    My breasts were always lumpy, bumpy, and bigger than they should have been. There was a 4cm lump at 9 o'clock close to the surface and very palpable for many years. With all the breast exams from gyno's and mammo's through the years no one ever showed concern or questioned it., so niether did I. It was never flagged on a mammo, at least 10. I'm sure it went from a fibro cyst to DCIS to invasive. It was 4.5cm when it was finally dx'ed, not much bigger than it started at 30 some years ago. All those exams failed my very obvious lump.WHY? I'll take the blame for not insisting on a Bx. Half my breast was cut out and the other reduced and now that I'm postmeno the lumps and bumps are gone and their not so  familiar to me. My MO can proberbly feel a lump better than I can. She is very miticulas and thorough. If she let me see her monthly, I would.

  • jojo68
    jojo68 Member Posts: 336
    edited August 2013

    Chef...tell me more about the cromium picolinate...can this be taken while on metformin? Smile

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    yes you can take it with metformin but how low do you want to go??? The newest suppliment is cromium picnicitonate, its more effective than the cromium picolinate. (but I'm sure I mispelled it) I'll post the correct spelling as soon as I find it. sorry

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    CHROMIUM POLYNICOTINATE. As per Dr Oz. Love that guy.

  • jojo68
    jojo68 Member Posts: 336
    edited August 2013

    Oh, so Chromium Polynicotinate instead of metformin?  I, actually, do not care for Oz....LOL

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    I don't think you should stop the metformin, but the chromium helps to stablise your BG, and helps with wieght lose ......So, IDK. Worth a try. My BG is fragile and usually out of control so it may be more benificial for me.

    Again.........IDK

  • jojo68
    jojo68 Member Posts: 336
    edited August 2013

    I think I will wait and see how my BG reads for awhile...is the chromium bought online or RX?

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    Good idea to wait?????

    You can find it health food stores that sell supps or vitamin shops. NO rx required.

  • chef127
    chef127 Member Posts: 226
    edited August 2013

    Joellelee,

    Can you share how your BG is doing?