Treating estrogen responsive cancer naturally
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I have deleted most of my posts. My treatment plan has been customized to me - I do not want to influence another person negatively.
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peace strength,
I enjoy your posts, I hope I did not offend you, teasing you about the carrots....I admire all the ladies here ,that are much more knowledgeable than I, and more disciplined. I cringe now, when I plop a cookie in, without really thinking about it, or last week made a batch of brownies...
I also wanted to ask you about the Zometa. We visited on another thread, I remember you said you had flu like symptoms. Did they last long?
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Holeinone - I'm not offended at all, just don't want my customized treatment plan to influence someone else in a negative way. I will pm you about Zometa.
Aromath - I only gave half the picture of my diet in my previous posts. No, my juicing is not toxic because I balance it with more parts of greens than carrots - per my naturopathics too.
Bblues - feel free to pm me if you have question about my treatment plan.
Peace everyone
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peacestrength I am a big fan of juicing too, do not get me wrong...certainly juicing is not toxic...
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Six months ago I had an inverted nipple, and had a lumpectomy in a second area in the same breast -Lobular Carcinoma In Sito. I had an incision with extensive biopsies in the nipple area that came up clear. Six months later, in same breast they found a 4 mm nodule - 1 cm behind nipple. Radiologists wanted to do a breast MRI. It was hard but I decided not to have it as I had metal poisoning in the past and having the chelated metal contrast with some 'black label FDA warnings' on it worried me. A relative who is a radiologist said that with all the biopsies in the nipple area and the lumpectomy, he felt that there was not enough scar tissue as it was six months ago and that everything would light up. Tomorrow I am going to have an ultrasound guided biopsy of the nodule. I was happy with the US and wondered why they hadn't done it the last time - maybe this nodule would have been visable if they had done it. I have been taking Tumeric Force once a day, and lately have been taking 1 T of organic tumeric powder, mixed in 1 Qt. of hot boiled water (Dr. Mercola.) Also I am taking a probiotic, refrigerated flax seed oil with lingnans, Pau D'Arco, astragalus, burdock root, Cat's Claw. 90% organic foods, raw nuts, D3, DHA, DIM,etc. Like many women I use a lot of skin care products and cosmetics and I have been looking into Skin Deep Environmental Working Group's cosmetics data base http://www.ewg.org/skindeep/tools/ I have been seeking paraben free skin products (non estrogenic) and have converted to a permanent hair color that is paraben free, ammonia free and resorcinol free. When I got thyroid disease 30 years ago, they wanted to put radioactive iodine in me, and I declined. And that had worked out o.k. I'm not saying I won't do the MRI at some point. I am looking for any feedback and suggestions you may have.
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I so have a problem with texture! Swallowing liquids is something I do slowly and I'm slow to try certain new liquid drinks. My daughter has a Vitamix and loves smoothies and knows it would provide me a good nutritional supplement since I tend to not eat well even though I am trying. Anyone have alternatives to all these smoothie recipes. Oh yeah, I know there is spinach in there. Love spinach but it shouldn't be in a drink!
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I throw everything in my Vitamix. The most common ingrediants are, Kale, Broccoli, Spinach, Cauliflower, Celery, Carrot, Tomato, Cucumber, Strawberries, Blueberries, Blackberries, Raspberries, Apple, Banana, Pear, Grapes, Pineapple. I usually pick about 5 veggies and 4 fruits from the list, and change it up each day, but it still tastes pretty similar. lol... (flax seed, chia seed, soy free vegan protein powder, oatmeal, almond milk, alkaline water and ice, I use each time) I make enought to drink one in the morning, and then take one to work and drink before I go home. I also take a bunch of different vitamins like, fish oil, calcium, b12, vit E, vit D, vit C, cranberry, amino acid, probiotic, biotin, Turkey Tail mushroom Pill. Sometimes I skip some vitamins if I think I had enough in food, but I also don't take it all at once, i'll break it up through out the day. I still take my tamoxifen pill each day just because i'm scared of the "what if" The hot flashes and the chills really suck, but I trust that it's working. All my blood levels were on the low side, since I finished chemo in December, so hopefully my next bood test will tell me if I am taking too much or too little in certain vitamins.0 -
Dear Peacestrength
No. Never heard anything bad about Turmeric. I know women who take it pre and post op - just for good measure. I'd trust the Turmeric more than that ghastly Femara!
Good luck
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Fallleaves,what is DIM?
Kathie100, I stopped taking Tomoxafin on 2/24 and lost 8 pounds in 15 days. This week the horrible brain fog began to lift and I was remembering to do things I kept forgetting before. Yesterday, I had a surge of energy and was able to go all over town getting errands done. All of this was not possible before due to incredible fatigue, which caused me to lay on my sofa all weekend, and when I'd get home from work.
I bought Dr. Christine Horner's book and have just started reading it. So far, I am only trying to avoid wheat (don't know yet if she advocates for this) and am taking Curcumin 2000/day. Know she advocates for turtumc. Started the Curcumin about a week before stopping the Tomoxifen and have found the arthritis in my rt knee gone and the pain in the Achilles Tendonitis I have on both ankles, virtually gone.
I saw my Onco 2 weeks ago and told him in person I was opting to stay off the Tamoxifen. Told him it was effecting my quality of life and ability to do my work, which is very stressful and requires a fully functioning brain. He flipped out. Made me promise to call him in 2 weeks, saying he felt very strongly I needed to be on something.
Feeling so good now can't imagine going blog to those drugs.
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I was taking B complex but about 6 months ago, at my annual physical, I was told my B levels were too high and to stop taking it.
I've read about a correlation between low B 17 and BC and am thinking of adding just that. Anyone heard about this?
Also going to connect with a well recommended Naturopath this week, to follow me and make a natural treatment plan. Guess I will still have my Oncologist to monitor me with blood work, to show tumor markers, and he wants me to have another MRI on my reconstructed breast next month.
My cancer was rt up against my chest wall, so no lump and mammograms didn't detect, it until it was huge. For the MRI, I lay on my stomach with by breast dangling down in the field. It seems to me an MRI would be useless since he won't show the area the lobular was. Any thoughts ladies?
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Hi Pipers
I have invasive lobular carcinoma with "satelitles" Currently stage 2A. I think you and I and Lily are the same. Trouble with taking supps is that one never really knows how much good they are doing us. I see women who have gone down the full allopathic route of slash, poison and burn, now take one tablet a day and eat and drink what they like....................and they're fine! At the moment I take one tamoxifen per day plus about 15 supps, some once, some twice and some three times a day. It's very flipping expensive and I'm becoming fed up with the restraints it puts on my life. Also, as long as my tumour doesn't grow, my doc is happy to keep me as I am but if it does, he wants surgery, fast. So I can't book a holiday in September, say, as who knows what will happen between now and then? I'm living from month to month.
How do I choose what sort of surgery that is not going to leave me feeling like a Frankenstein's patchwork dolly? That's the big question for me at the moment. I refuse to have muscle cut off, but am thinking about either Fat transfer, DIEP flap or an implant. I'm a 32A bra size, and would be suitable for any of these procedures. I am scared witless of what might go wrong if I have surgery and how I'll look afterwards AND in my heart, just don't feel it's the right way to go forwards. Do I go onto a different "discussion" page re: this? Probably yes.
Good luck to all of us
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Flavia. Just read your post detailing the B17 and BC connection. Thx so much. You've given me some good reading material, which I will further research.
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Hi Eve
B17 is also found in Apricot kernels - you can buy them on the internet. I was taking 35 a day, dividing it into three lots, breakfast, lunch, dinner. There is a lot of talk about Apricot kernels/B17 some good, some bad, not to take more than 9 at one go etc.. I eventually gave them up and have found no difference one way or the other. Always diff to tell if any of the supps any of us take do anything. I take loads - see my previous posts.
Good luck
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Lily, what is DIM?
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Bosum, what dud you hear about baby carrots?
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Thx for the responses. Ladybird, I did a lot of research on reconstruction and was opposed to having silicone implants, didn't want to lose stomach muscles, so no TRAM. Decided on immediate Deip reconstruction, following a nonnipple sparing left mastectomy. 11 hour surgery, developed a breast infection after the drains were removed. Due to size of my mass, they recommended and I had 6 weeks of rads, after starting 6 months of chemo in 9/2010.
Phase 2 of deip never happened bc PS said we had to allow 6-12 months for my skin to heal, post rads.
I have no nipple and SEVERE fat necrosis, which is always painful. My left breast looks so deformed with the oval circle of belly skin in the middle of my breast and visible scaring around the entire oval. The oval skin has pores, whereas the rest of my breasts skin dies not. So it looks hideous.
Wish I had not gone this route and am considering having the entire reconstructed Breast removed, and perhaps have the rt one removed to, for peace of mind.
Know others have not had my experience but wanted you to know. Wishing you all the best!
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Dear Eve
OMG! You poor thing. I'm so sorry to hear how things have gone so badly for you - and in your photo you look so smiley! Thanks all the same. I guess my PS was also trying to bring me into reality by telling all the things that can go wrong. Arrrrggghhh! It's such a game of Russian roulette!
One can read as much as one likes, but who knows how one's own individual body will react.....................
DIM is an anti-cancer and I think anti-oestrogen natural supplement. It's a cruciferous Vegetable concentrate. Altho' I'm in the UK, I take an American brand made by www.AllergyResearchGroup.com Technically it is dindolylmethane complex. Indole carbinol 3 is similar but I believe there has been more research on DIM. I take both!
Best wishes
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Yes lady bird, some who opt for Diep it works out well for. In CT there was a limited choice on PAs who were trained and did it. Had it done at Yale by a well respected PS who was called the "king" .
It's been suggested I see him again so I think that will be my next step.
That smiley pic was taken before Cancer!
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Ladybird, I had a DIEP 11 months ago and I'm really happy with the results. If you decide to go that way it is VERY important that you find a doc who does a LOT of DIEP's - i.e. has a lot of experience. I'm in Michigan and ended up having to go to New Orleans (Dr. Sullivan) for my surgery. I had nipple and skin sparing and I like what I see in the mirror. For more info check out the forums "NOLA in September" and "DIEP 2014." I think I really had the best results possible because I did my bilateral mastectomy and reconstruction at the same time.
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Dear Eve
Don't know where CT is! I agree, I think you should go back to the original PS who did the surgery. At least write to him or talk to him or his PA. Nobody should be left in the state you seem to be in. You'd think the "king" of Yale could get it right???!!! I thought all you Americans were meant to be so litigious??? Sue the man!!!!!!!!!
I do wonder why you were given so many AIs in such a short space of time. Seems odd to me. No need to explain. We must all look to the future. I know I've already made mistakes and I haven't even had surgery yet!!!
I remembered yesterday that the DIM is specifically for us ladies with BC i.e. it IS anti-oestrogen as is the I3C.
Yes, I too have a smiley pic of myself on my gmail a/c..............before cancer. Ha!
Best wishes to us all
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Dear Eve
Don't know where CT is! I agree, I think you should go back to the original PS who did the surgery. At least write to him or talk to him or his PA. Nobody should be left in the state you seem to be in. You'd think the "king" of Yale could get it right???!!! I thought all you Americans were meant to be so litigious??? Sue the man!!!!!!!!!
I do wonder why you were given so many AIs in such a short space of time. Seems odd to me. No need to explain. We must all look to the future. I know I've already made mistakes and I haven't even had surgery yet!!!
I remembered yesterday that the DIM is specifically for us ladies with BC i.e. it IS anti-oestrogen as is the I3C.
Yes, I too have a smiley pic of myself on my gmail a/c..............before cancer. Ha!
Best wishes to us all
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Klanders, many thanks for this. So good to hear some good news! So many women seem to have had such bad experiences, it's good to hear something +ve.
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Dear Klanders, Where are the Forums you suggest I look at? Nola and DIEP 2014???
Are they on this website or else where? Do I just have to look through all the "Topics" ? Is it one of those?
Thanks
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Hi Eve1956,
Sorry I missed your question about DIM before now. It's short for diindolylmethane (you won't catch me trying to say that!), which is a compound that comes from cruciferous vegetables like broccoli and cabbage. Here's a link to the Memorial Sloan-Kettering website that explains what it does: http://www.mskcc.org/cancer-care/herb/diindolylme...
In short is has shown cancer fighting properties and may shift estrogen to the less dangerous kind of metabolites.
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Ladybird, both are on this board.
Here is NOLA in September: https://community.breastcancer.org/forum/44/topic... This topic is for ladies who have been or are considering having microsurgery done by Dr. Sullivan, Dr. Trahan, Dr. DellaCroce, and Dr. Massey. These docs are all in New Orleans, however, Dr. Marga Massey also works out of Chicago and Charleston. Their patients are a VERY loyal group of ladies. We love these docs!
For DIEP with all docs around the country there is a new topic created each year. Here is 2014: http://community.breastcancer.org/forum/44/topic/...
This should get you started if you decide to go that route. Keep in mind that every doc does things a little differently. NOLA (short for New Orleans Louisiana) let me keep my skin and nipples and could do both breasts at once. They don't do TRAM's anymore and do DIEP's, GAP's, etc.... My Michigan doc told me I was too thin - but Dr. Sullivan had no problem getting me back to my 34B. It is not, however, a surgery for the faint at heart. Initial recovery was pretty tough for me.
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Dear Klanders
Thanks so much for this. I suspect none of these procedures are for the faint of heart! It's good to hear you say that as I am looking for real answers not generalisations which is all a consultant can offer you. You're so right that it's also always good to speak to different Docs as they do indeed differ. I only discovered this a few months ago when I changed consultants in November 2013 and the difference is staggering. I like my new Doc but I still have not idea of the way fwd. At present I still have time, but if and when my tumour decides to grow again, he wants to act fast, so I'm trying to be prepared for the worst!
Many thanks for the links.
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Hello All - I have been lurking for a while - I also just started taking MSM (it is best to take it with a good amount of vitamin C) - I am already noticing that my skin and eyes are looking clearer already.... If it doesn't hurt me - I'll try anything to stay off the AI's... - my kitchen counter looks like a health food supply store.... I have learned that I LOVE kale...
Thanks all for having this thread - so much information - hope you all the best!
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Hi I also have an ER+/PR+ type of c. I was just reading recently about the link between Iodine and breast health. I saw a study about Breast cancer cells being inhibited by iodine. There are also studies looking at woman with fibrocystic breast disease having iodine help their lumps and pain. Japanese women have much higher level of Iodine than women in the West, orders of magnitude higher than seen here or what is considered the US RDA level , yet they have much lower level of c, which changes to our miserable levels when they go to the US and eat like us. I have had hypothyroid issued before c and after I read this I started to research dietary sources of iodine and realized I have never had much of that in my diet. I just completed a 24 hour Urine Iodine test and I think it will show that I am low. I eat a very good diet with a lot of fruits and vegetables but not much natural sources of Iodine. I had tested low on selenium, as well as several other vitamins just after my c diag. I also had a very large gallstone so I think I had very poor nutrient absorption which I now correct with a supplement called Biogest. (If I don't take it I get gallbladder pain after eating. ) If my urine test shows low Iodine then I will definetly have my Naturopath start me on supplemental iodine. Hopefully that will be one more effective tool in addition to the several other things I am doing already.
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Hi, i am new here, i just want to ask some of you.
I met a lady at my onco visit this week and she mentioned she takes something to help with her bones. Here is what she said"
Re Bone enhancement...I am taking pamidronate ...intravenous...Don't know how it would work for you. It was also suggested that I take Vitamin D and Calcium supplements...I just find it overwhelming to take sooooo many pills. So I take it when I remember!
In my case i take V D3 5 k a day only prescribe by me plus v C. but I ask my onco and she is not suggesting i take anything else. Is there a good supplement you all take that i may benefit off. Sorry i am terrible at taking pills, i am against the chemicals now i just wonder. I saw the movie Dallas Buyers Club just now and now i am all paranoic Here goes Mathew Mc messing with my mind once again
lol
Hope you are all having a great weekend!!!!
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