I so want a jovipak - have two little rounds I use under my arms and has helped but the shoulders and underarms need a little more help.. When I went to the fitter for my compression bra - She didn't even talk about them because of my financial status..
((((GMA))))) I believe there are funds to help, maybe someone with some more info will come along.
I talked to my LET about the one piece glove/sleeve, but don't think it would work for me. I am working pretty much full time outside the house, and it would be hard managing it at work. I am getting a new glove/sleeve combo, the same one I have, just new. I need to question him when I go back. I am not sure what he did, but he said he was going to do something different so I wouldn't have to wear a pad inside the glove. One idea was to get a glove in a higher compression than sleeve, but I am already at a 2 for each. He didn't want to go to a 3, and neither did I. I asked about going down to a 1 in the sleeve. I don't think he wanted to do that either. I think he said something about fudging the measurement a little to keep my hand from swelling. We'll see, the only thing that has worked thus far is a pad inside the glove.
Saw my let yesterday. She did a treatment, and the first thing that happened when she touched me is she found a lump. Well hell. She thinks it may well be just a pool of trapped fluid, but thinks it calls for a closer look. I have my one year mammogram scheduled for next week, so the timing is good. But in any case, after we figure out what it is, we will talk more. If it's "only" fluid, she's going to want to try a night garment and sleeve. She also wanted me to try a glove rather than the gauntlet I've been using. For now we are trying an off the shelf Juzo. At any rate we will meet again in a couple of weeks, after the MO and surgeon have had a chance to look at the scans. Meanwhile, my PCP sent me for a brain MRI. Did that this morning and have my colonoscophy tomorrow.
Now we'll never know what would have happened if I hadn't worn a sleeve, but I didn't want to take a risk!
Good for you, dassi!So glad you enjoyed your trip and yes, working with Nancy for return has been a pleasure.
Sounds like you are getting all systems checked
I sincerely hope everything comes back A-OK. Maybe just some fluid that a glove will make up for .
Take Care...sending good thoughts your way !
Cindy - it sound like you are going through the ringer.. I will be in your pocket!!! I'm still avoiding tests but just had my organs checked and they are all good.
Thanks for the good thoughts. I went in to see my pcp for a routine blood test to get my HBP meds refilled and left with 5 referrals for testing/treatment. Don't get me wrong, I'm glad she's be careful, but I wasn't worried when I went in. Now? I'm a little freaked.
Cindi, I know how you feel, I called my PCD as I had a case of vertigo, primary doc sent me to the specialist who ordered 4 tests plus a referral to another specialist
oh yeah, no one knows why I had the vertigo yet and it is a royal pain but they kept saying to me...You know, with your history.....as in the dumbo BC junk
If I had a nickle for everytime I heard "with your history" just today... between the BC and the fact that Mom has MS. Sigh.
Hope they get you un vertigo'd. That's miserable.
Cindy. Dang, Dang, Dang, I will be thinking of you. I hope it is just fluid and you can work it out easy.
Just did my walk in my new Juzo glove with the diamond shaped little holes, Yup it breathes way easier than my regular juzo. But I am snaging it easier. Still I would take the snags over the sweaty palms. It was 130 dollars at brightlife. I am not sure if it is on there site as I had to ask about ordering it. They may have it on the site now. The glove is really comfy, no binding.
Also wearing my braand new spanking black 3512 with strap sleeve and it does fit a bit tighter than my beige 3512 (black dye tends to be tighter in anything you order.) The seams are sewn different at the axilla area so it won't run as much.
Cindi, me too on tired of the with your history, docs know we can be scared by stuff! or at least I can! Course then after all the tests, they are still nice and vague! But a pal of mine who is a lawyer, she says it is because they are covering their butts and afraid of lawsuits.
likely so, any way, vertigo is mysteriously gone and many folks I meet who have had it once say it does not come back. Wish I knew that before my doc visit...take a dramamine and go back to bed would have been the better idea!
HUGZPls tell me more about the strap sleeve.
Cindy, hope all alarm is for nothing but it is nerve-wracking! You mentioned colonoscopy. I just dread the preparations. (I got to do one this coming summer). So good luck with all tests and hopefully all's well.
Proudtospin, don't mention vertgo. I had a number of attacks a few years ago, and it was absolutely awful. There was a way tp deal with it. A PT or ENT does a manoevre called Epley on you, turning the head so the loose crystals in the ear canal that cause the vertigo get out of the way. This is only good for a certain type of vertigo (which I had) but till that was diagnosed I really suffered. No idea what brought it on, and I do pray it won't return although doc says it's something that just happens. Ever since have been sleeping with two pillows under my head. Add a 3rd one for under my knees because of a bad back, and since hand LE a 4th one for my arm. No space left for me to lie down! besides, not enough pillows when guests come:)
A bad bout of vertigo can disable you completely, so let's just stick with LE.
epply, yeap vertigo sure is a pain, it seems to be worse when I am tired...as in last night after coming out of the gym...
did anyone talk to you about surgery? my guys are talking about a stent in my head to drain fluid and no way do I want that
Well, survived the alien probe. Procedure itself was a nonevent, everything is good, see you in 10 years. The prep, sad to say was every bit as horrid as I had feared. I couldn't handle the solution and started spewing from the wrong orifice. Ended up having to have a couple of enemas. But, if all my results end up as good as this, I'll be happy. I believe doc said that he didn't send anything to the lab so YAY! He does think I should eat more fiber. I promised to try.
To make this somewhat on topic for the thread, I wore my glove and sleeve to make the point that they needed to not stick my arm. Two of the nurses were cool... the third argued. Seems that I can't possibly have le if the cancer wasn't in my nodes. What wonderful news. I shall be tossing my garments on the bonfire.
Cindy, glad you're done and that it's fine. Dumb nurse. You should have also brought that informative page on the stepup page. Maybe she'll get educated in LE. Wish there were a LE simulation chamber (like flying a plane) so people that don't believe how painful LE can be etc etc, can simulate having LE with all the issues involved, and let's not forget 24 hours of bandaging in a very hot climate. That'll make believers out of them. Just wishful thinking when I read about these jerks.
Update on the Juzo expert glove with 3 diamond shaped breather holes. This glove is great but.... it snags easier than my Mediven esprit (I think I called it Juzo esprit on one of my posts.Thats wrong, sorry)
This new Juzo expert has very, very, soft material with the 3 breather holes on top of hand and 3 in the palm. If you blow on it you can feel the air go thru. Yeah...bring on summer babe!
The material on the index finger lands right at my joint of my top of my finger and when I bend my finger thruout the day it has strecthed out the material so is bagging a bit at the top of the finger. Not good. Hopefully it will shrink a bit after a few washes below the joint and then it won't stretch out. I am surprized that this has happened already. If this problem remedies itself then I would love this glove. Still I am waiting with baited breath for Josh's glove.
Purple. My Juzo varin 3512 has no band around my axilla area. Instead the sleeve goes over the shoulder and a strap crosses over to my other side of my body and sits under my implant. It is great if you can't take constriction at the axilla. Sometimes people will swell if the band is a bit to tight here. I think I actually do better in the strap one than a banded sleeve but I am still experimenting with that.
The main reason why I wear the strap one is that I have a large conical arm that is super short and the regular varin is a tad bit long even after it shrinks a bit. But I think the strap one being bandless allows my arm to fill it up at the top and over the shoulder and then this causes it to shorten. The sleeve then fits perfect for my arms. I haven't found anything that fits this short although I am in other banded brands. It is about 50 bucks so I am happy about that. Lymphedivas short is pretty good.
Thanks for that info on the juzo varin HUGZ. Very interesting.
I like the price, I'll tell you that much!
I've worn custom Juzo expert gloves in both silver (class 1 & 2) and regular (class 1) fabric. My impression is that the silver Juzo expert class 1 is less compressive than the regular Juzo expert class 1, even though the pressure stats on the two are the same.
I'd love to hear how the following custom Juzo gloves differ from one another (comfort, compression, durability, flexibility, etc)
Juzo strong (model 3051/3052)
Juzo expert (model 3021/3022)
Also, have people found the Juzo expert with the doral vent to be less compressive than the Juzo expert without the vent? KS1
KS1 Are the Juzo expert with the doral vents the same thing as mine with the 3 diamond shapes(breather holes) on the palm and top of hand? I have found these ones to be less compressive than the same class of my Medieven garments. That is probably why I say they are so soft and comfy.
I love my Juzo Expert (3022) they are a one piece sleeve/glove. They are comfortable, wear well, you can get them with different materials - mine has polypimide (sp?), Elastane, Viscose (rayon), and lycra They breath in the summer, I don't get sweaty under them at all, even with some pretty major hot flashes. The ones with these four materials seem to last best, I got one that only had two things (Polymid and elasthan) in it, and it seems to snag in the hand - that one I use for cleaning, housework, etc.. I guess you can get them with cotton and/or silver in them too. Also, mine are compression class 2.
Anyway - I love mine, and I have a great fitter, I have to get custom made garments, and she makes all the difference. Like I mentioned to Purple - she takes two hours measuring, about a jillion measurements - we discuss where I swell, where I've had problems with other garments. She measures a little looser in some places and a little tighter in others - and she gets me a perfect fit - and I've heard that most fitters refuse to order one piece w/glove because they're so hard to fit.
Not sure that answers your questions, but it can't hurt. My fitter says that she orders silver in the garments quite frequently for people with skin issues, or that smell, she said they take care of it and really keep the bacteria away, it's great for the skin!
Yes, hugz4u, the vents sound the same.
LindaKB, thank you so much for the info on the expert gloves. I didn't realize that the expert came in more fabrics than just "regular" and "silver." I will have to figure out which I have. Do you find the compression to be the same in the two vs. four material version of expert? The reason I ask is that I am right on the cusp of needing class 1 vs. class 2 compression.
My therapist originally ordered Juzo expert silver by mistake (checked the wrong box), but it was good for the summer (cooler) and seemed to help a bit with skin breakdown. On the other hand, the silver seems to stretch out more (during the course of the day and over the months) and doesn't have as much compression.
Speaking of summer, while scouring the juzo website for comparisions of the different juzo fabrics, I came across the following "Juzo® guarantees a UV protection factor of 80, and therefore reliable sun protection, for all products in the Expert product line." Yippee!
Yet another question about the juzo product line ... what is the Varin line? KS1
I got email about sales on a couple of products that people mention using
BandagesPlus is having a 15% off sale on Farrow products. The farrow gloves is $73
Legluxe is selling Solidea CCL1 armsleeve for $55
Thanks so much for posting the sales !
I actually might have liked to try that sleeve, but I noticed there is a very small 'cuff/band' at the wrist and I cant have that - wrist is my problem area.
Dont care for the way they advertise ' lymphedema prevention', but whatever. Pick your battles, I guess.
I am a big fan of the Farrow glove, and would recommend women with mild hand swelling try it. Just be aware that different colors seem to fit different. (Myhand LE has progressed to the point that it doesn't do the trick anymore).
A couple of years ago. I ordered the solidea sleeve but returned it. If I recall, the back portion was too loose (I'm petite), the arm too long, and I didn't like the thickness of the wrist band. If memory serves (a big if), when I spoke to the company I bought it from (lymphedema sleeve company?), I was told they were going to redesign the class 1. I wonder if that happened, and if legluxe is selling the old version. The price is about half what I have seen elsewhere. KS1
The new Farrow black gloves are running unsually small.
Order a size up if ordering black.
KS1 - thanks for the info on the UV factor - the compression is the same on both - I guess I just bumped up to the 2 this year, because I was 1 before. It feels great, sometimes gets a little pinchy by the elbow at the end of the day. I don't know exactly why the gloves have different materials, I know she told me there were options, but she order the one with the least the first time, then after I liked them, she order 4 more with all of the materials. I should ask. I know she ordered the first one to see if it would work, maybe she ordered a less expensive one so that if it didn't work ......? Then when it did work, so ordered the others, my insurance pays for it, and haven't seen the EOB for either yet - I will definitely check it out.
I know from a conversation with a Farrow executive that they are actively working on solving the problem of black gloves not fitting the same as other colors. It turns out not to be a simple fix, but they are aware of the issue and working with their manufacturer on it. I'm fairly confident that he will let me know when they have black gloves that feel and fit the same as the other colors.
Here's a question about everyone's experience with LymphDivas sleeves. I have one set of sleeve and gauntlet, and I absolutely love the fabric. But I bought the sleeve with the silicone diamonds on it, and of all the sleeves I own, this is the one that I cannot prevent the top of the sleeve from rolling when I'm very active, and after a time it forms what I fear is a tourniquet effect. So, I don't wear it while exercising, which is a shame, because the fabric is lighter and seems to wick better than my Juzo or my Jobst sleeves. I have silicone dots on my Juzos and have no such problem, and I wonder if the Divas problem is that the diamonds cover a lot more area under that top edge--so are they somehow preventing the sleeve from moving or stretching as needed?
Has anyone used the same size of Divas sleeve with and wtihout the silicone diamonds, and if so, do you notice any difference in how the very top of the sleeve behaves when you are active? I would love to buy another Diva sleeve to add to my exercise gear, but not if the top is going to roll as has been my experience.
one that I cannot prevent the top of the sleeve from rolling when I'm very active, and after a time it forms what I fear is a tourniquet effect.
I have a blk onyx sleeve (and paisley ) with the DB and I have another blk onyx without. I was not happy to discover that my fitter ordered it without the DB, but I kept it as is.
Here is my experience:I would not exercise without the DB because that sleeve will inch its way down with activity. What's to hold it up ?
Having said that, I AM having a problem with a 'rolling' of my DB under the axilla . I emauiled Josh about it just a few weeks back, and although I am tall with long arms, I wondered if perhaps I should have ordered a short. (I dont know about you, but my sleeve/DB will go waaaay up the underarm) After giving a few measurements to Josh, he thought I might have been better off with the short. It makese sense to me because then, if I pulled it waaaaay up it would not have the axilla area in a sense pushing it down. ( Is thatwhat the cause of yours is/what do you think ?)I will be interested in your respoinse because I have a local company covered by my INS looking into Divas and I planned to order the short next time.
I can really say with confidence that I do not think you'd be comnfortable with your level of activity and no band at all. I feel certain it would move downward- though would not create any tourniquet effect.
Let me know if you think having a shorter sleeve would make sense or not. I know Josh reads these threads.
As for the farrows, thank you!
I am having an issue with mine now. I plan to discuss it with my LE'ist.
She looks for ' valleys and hills' on the backs/palms of the hands. This has trained me to do the same. My Farrow, on the palm, is not a bit snug. I have ' hills' there now. I wonder if the glove itself is actually causing these hills (pockets of fluid?) by being snug and effective in the other areas of the palms ( the valleys ) Very hard to describe, but my farrow did seem too good to be true. Perhaps I will need an insert of some kind. If that becomes the case and I find my Farrow is not as 'perfect' as I originally thought, I might just shop around some more. I dont want a glove that CREATES areas I have to essentially fill in. I wonder if others find their Farrows have a loose spot so to speak on the palm.
Aaaah, you would think custom fit would be the answer, but not with my fitter. Nope. Those suckers were vices ! Perhaps I will ask my LEist to measure and advise . I dunno'. I so love the looks and light weight of the farrow.
Cant we have it all?!
LindaKR -- I had the problem with elbow pinching in my first Juzo expert all-in-one glove/sleeve, and had to stop wearing it because it was impeding blood flow. My LE therapist/fitter ordered an elbow dart in the next, and I have been able to wear it without blood flow issues. Since the one without the dart was in "regular" expert fabric, and the one with the dart was in "silver" expert fabric, I can't say for sure whether it was the dart or the fabric that mattered.
I tried to figure out what set of materials my Juzo expert glove is made of, but the labels don't say (just says 3021). KS1