2013 Survivors!!!

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  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited July 2013

    Sheila......congrats!!!!! What fabulous news. Now you can breath, heal and get ready to

    party .......💃

  • liefie
    liefie Member Posts: 761
    edited July 2013

    Swgee, YAYYYY!!!!! Wonderful! As Scottiee says, now you can get ready for Iowa - I am so happy for you!

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Even more reason to celebrate in Iowa!!! Great news Sheila!!!!

  • Joanne_53
    Joanne_53 Member Posts: 714
    edited July 2013

    Great news Sheila, what a relief that it is negative ...

    A week today we will be in Iowa celebrating with Michelle ...

  • aruba
    aruba Member Posts: 276
    edited July 2013

    What a relief Sheila! I am sooo happy and relived with you! Now go party and have one for me!

    I'll be rhinking of you all on the Iowa trip... I sooo wish I could be there too!!

    I am settled in Fla with dad going to alot of pre op appts. His surgery is the 18th total right knee replacement. He fought this for so long, but now is counting down the days as each step hurts so bad. We are going out to eat after appts and will get a few mivies in while he can be out and about with me. It is hot and very humid here. Have gotten to the pool once so far. Will keep reading and catching up In the meantime hopping in the pockets and hugs to all who need one!

  • iatigger
    iatigger Member Posts: 269
    edited July 2013

    Thats awesome Sheila, another reason for celebration next week. 

  • chattipatti
    chattipatti Member Posts: 14
    edited July 2013

    Hello ladies,

    Well tomorrow I will be 48, for some reason I'm crying.  I have not cried since I found out I had breast cancer, maybe I needed this, I'm so glad to be alive.  No one really understands, no one is going through this but me.  I do thank u all for being there.  I'm alive I'm alive.

  • iatigger
    iatigger Member Posts: 269
    edited July 2013

    Happy early birthday patti. I turn 48 in August too. You are so right that no one outside this special group can relate to any of what we go through. Thank goodness we have this site to share with our virtual family.

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Chattipatti, nothing wrong with a good cry!!! I believe whole heartedly in them. Happy birthday!! And many, many, MANY more to come!!!

    It does seem that no one understands at times, I'm forever grateful for this site, when others think I'm having a pity party or looking on the dark side of things, you ladies "get" it. So, cry away. Blow your nose and sing it... No... SCREAM IT at the top of your lungs... I'M ALIVE!!!!!!

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Btw, my SFB/DH has a birthday tomorrow too.

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited July 2013

    Happy Birthday tomorrow chattipatti!!!!! I think our birthdays mean more than just the day of our birth now. We have a greater sense of our mortality, therefore a greater appreciation for the passage of time and the moments in the everyday. (See things a little clearer, smell things a little sweeter?). Cancer is a very lonely place, I've found. Please celebrate tomorow (it's Friday for goodness sake!) and enjoy and savor every moment. Cry if you need to, we get it! (((Hugs!))) Sheila (in New Glarus) How far away is New Berlin?:)





  • ramols
    ramols Member Posts: 310
    edited July 2013

    Just wanted to pop in and say hi. You've all been busy chatterboxes here! Between work, the boys and summer life - i've been busy, busy, busy. But I always stop in here to see what you're all chattering about. Its a touchstone for me. Decided that I'd write tonight since I succeeded in finding my happy today and thought of all you when I did. My hubby spent last weekend building the new play/swingset for the boys (since the old one got crushed by a tree during Sandy) and it's been so hot and wet that they haven't gotten a chance to play on it yet. So tonight after dinner we all went outside to check it out. And I felt like a little kid again - I played on it with them. Swung on the swings, used the boogie-surfboard thing, climbed up the ladder to check out the little playhouse, climbed into the tunnel. They were thrilled to have me join them as a playmate. Was a great "happy" for the day. Hope you're all managing to find your happy! Love and hugs to all!

  • cmbernardi
    cmbernardi Member Posts: 853
    edited July 2013

    Happy Birthday Patti.  A good cry will be very cathartic for you and may just have been a long time in coming.

    Congrats. Sheila on your awesome news!

    Now, can somebody tell me why I have persistent joint pain and stiffness for 1 solid month after completing both chemo and RADS?  No pain med are working and I am really hurting.  I cannot sleep well at night and toss and turn with pain in my fingers, hips, shoulders, knees and feet.  Suggestions?  Next week after my surgery to remove the tubes and ovaries, my MO wants me to start taking Femora whose major SE is joint pain and stiffness.  What's up?????

    Well, prayers and hugs to you all out there and thanks in advance for any suggestions you may have.

  • loral
    loral Member Posts: 818
    edited July 2013

    Chattipatti, have a great one!!!

  • mcook301
    mcook301 Member Posts: 314
    edited July 2013

    Ladies- would be honored to put all of your names when I am running can someone start me a list or have on they can PM? I can use screen names too! Love and hugs!



    I am super busy trying to get organized for this week so would love to get a list and I have a lot of them but can't find the list we had earlier:) PM me if you want



    Only 6 days left and I am nervous! But even if I can't run the whole marathon I have friends to help me by jumping in and taking a few miles:)



    Check out www.aboveandbeyondcancer.org for amazing videos and stories from the race!



    Hugs and love!

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Carolyn, it seems to be a common complaint with all of us. My fingers ankles heels and low back into the sciatic hurt so bad after a period of rest, if I'm moving its not as bad unless I overdo it. No one seems to have the answer, or rather we are all given differing answers. My MO told me it was menopause and our systems "complaining" about the lack of hormones and calcium, but others have been told something else. I'm on tamoxifen which isn't supposed to cause pain but everyone I talk to on it past or present said it did. I'm also told it starts to alleviate within a few months.

    I take tramacet and it takes the edge off, this can also be taken with zopiclone for sleep at night. Fortunately my MO and BS don't believe in martyrdom and are pretty generous with meds, maybe because these two are not habit forming nor are they a narcotic

    Hope you get some relief soon!!

  • Believe777
    Believe777 Member Posts: 540
    edited July 2013

    ChattiPatti - Happy Birthday! And many more. We so get it. It's not your age but that you are here to celebrate.

    Cmbernardi - sounds like Shiannes Doctor has a good list of medications to try. Sorry you are still suffering. You definitely deserve relief after all this time.

    Swgee - I'd trade your Brown here in CA for Walker. I guess we are never happy. If we can't be happy - pain free would work.

    Aruba - hope your Dads surgery goes well and into his rear view mirror quickly. Glad you were able to check in.

    Mcook - you make me smile. So proud of you!

    Ramols - playtime sounds wonderful. Glad you found some happy. Your expression has worked it's way into all of our vocabularies!

    Momof3. - thinking of you and your up coming surgery. In your pockets - check in when you can. Positive thoughts streaming your way.

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited July 2013

    Oh Carolyn, welcome to my world of pain! I really don't like this "new normal". I liked the "old normal" and want that back. The one good thing is my ROM is coming back after surgery, rads, etc. I used to be able to get up at 6:30 make DH's lunch and get on with my day. Now I get back in bed. I know I need to force myself to stay up and maybe once school starts again it'll be easier since I get dressed when they do but I really hate this.

    I have to admit I have been feeling down lately. My DH (and whole family) couldn't have been better during this whole year. DH did everything plus worked. I used to get into fights with him because he would do laundry and I would try to help and he would want me to rest. I honestly cannot say enough wonderful things about this man during this past year. And I probably shouldn't feel like this but I can't help it so here goes - I get mad sometimes because he thinks Ok chemo's done let's all get back to normal. And that is just not happening! Just because I am not curled up on the couch doesn't mean I feel good. I don't! And to make matters worse it is really bringing me down! I put on a good show but I'm not feeling it. And I've always been a glass all the way full type. I think if I just felt good I would be ok. OK 'nough that rant.

    I think alot of us cry around our birthdays because it's also our cancerversary. And it's all so new to us that it's hard to celebrate. However we get through and live to fight!

    Ramols - I would love a pic of the boogie board thing! My DH built our swingset and a couple of years ago expanded it. One of our friends found an old firehose nozzle and made a water gun out of it.

    My NY sisters - I think you'll appreciate this - this past Saturday went to Westhampton Beach and from Exit 8A on turnpike it only took 2 hours! We did so good on time we drove through Coney Island just because. And coming home was 2 hours 15 min (had to stop at library and Dunkin)! Unheard of in the summer!

    Ok TGIF everyone! In pockets for those who need, big hugs for everyone and a luscious coctail to go with it!

    Karen

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Karen, my DH is the same. I think sometimes if we just showed how we felt it would be better but then it feels like all we do is complain. Actually DH and I are in the middle of one of those arguments right now. I tell him I need to rest and I need a break from the little DS and he's all " I just worked all day, when is my break?" I feel guilty, then I get mad because I'd love to be ABLE to work all day. I do a load of laundry and I'm just wiped out!! I feel like I'm being taken for granted here so I hope this week away will show them what I do around here. I was going to make some dinners and put them in the freezer for them but to hell with that shit now lol. Ok my rant over.



    Believe, I got the bracelets yesterday and they are truly beautiful!!! I can't decide if I'm going to keep them all or gift to my ladies at the golf club who have gone thru BC as

    As well lol.

  • Outdamnedspot
    Outdamnedspot Member Posts: 164
    edited July 2013

    Must be something in the air.  I have been down and almost out some days lately, to the point where I can hardly function at times.  Stiff and sore everywhere, must be the Tamoxifen.  DH stresses me out with business stuff and I find that I just want to shut down when that happens, but have to force myself to keep moving.  Everyone thinks I must be feeling fine because I look fine and manage to work 9-10 hours some days.  But, some days I just want to say fuck off!

    Crap, my boob is still sore, armpit and upper arm numb and I've gained weight.  

    Swgee is right on when said cancer is a lonely place.  I never hear from one of my 'closest' friends and it has been like that since I told her.  Sad.  

    There, my rant is over.  The upside is that I am alive, have started to be more active and have lost a few pounds of the Tamoxifen 15.  I'm planning a vacation in August to meet my DD in Vancouver and stay at my sister's.  My nephew is getting married in September and it is going to be a great family reunion as there will be people there I haven't seen in ages.  And, I have managed to be able to concentrate enough to read Ken Follet's latest book, all 941 e-pages!  So, I do have lots of happy, just have to remind myself.

    Hope everyone has a great weekend.  ((HUGS))

  • aruba
    aruba Member Posts: 276
    edited July 2013

    One year ago today I was out to dinner with friends and going to see Magic Mike as a distraction to waiting for biopsy results.  At dinner, my BS called with the news that rocked my old normal. I had to walk out of that movie before seeing any good parts Frown and have never tried to see it since.  I truly look at things with a different view today and cherish everything more deeply.  I want to let you know that you all have been there 24/7 through the roller coaster and knowing we have each other has often given me calm through our storms.

    Just wanted to ackknowledge how special you all are to me on this day.

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Outdamned, I love the term tamoxifen 15. Lol I've managed to shed 5 of it but its been tough. I, too, hate the fact that friends disappeared, I'm supposed to be "cured" and there is no appreciation from those closest to us. Thank God for BCO!!!!

    I'm going to have the wreath logo tattooed on my belly button scar when I'm able to, Ive asked the moderators and they are okay, actually excited, with it. I will find out in Sept when I see my BS when that will be possible.



    Aruba, I know happy cancerversary is not I term we like but when I had mine just over a month ago I was very emotional, since then I've come to feel like it IS a day to celebrate, you are here a year later, you are alive, you have a future!! I say rent Magic Mike and have couple glasses of wine. But remember Channing Tatum is mine!!

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited July 2013

    Just a quick checking to let all of you know I am doing ok with surgery and very busy. Since I will be out of work for 6 weeks they have been working me real hard to get the most out of me before I am gone. I have a couple more hours to do tonight and then I am done for a few weeks. I have also been getting my DDs ready for overnight camp. This will be there first time at camp so there is lots to do. At least I don't have time to worry about Monday.



    Thanks Believe for thinking of me. I look forward to as many as possible in my pockets next week.



    Take care and I will write again as soon as I am up for it next week.



    Hugs to all!😄

  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited July 2013

    Hi All,

    I hate that we still have to welcome new people -dang- anyway welcome and so sorry you have to join us.

    I see lots of good news these days and see the trip is coming up. I'm sure you will all have a great time!

    This is a weird summer; moving on yet unable to quit thinking back to the "last year at this time" situations . I don't care if it's something as ordinary as getting dressed I think back to "last year at this time I had those expanders and couldn't wear these tops" or gardening and thinking how I was so afraid if I overdid anything I would get lymphadema, or last year at this time how I was planning my exchange, and last year at this time I was staring at a full Arimedex bottle, etc etc. Anyway it's a whole lot easier to have it behind me and just looking back but in a way it's definitely like ptsd- the memories can stir up emotions that have been laying dormant. Aruba alot of my summer is going along like yours. Dad has needed several procedures.Fortunately though he only lives about 50 minutes from me not states away like you. Where in Florida is your dad-sarasota?    I am fostering a little dog for the local rescue. She's a real sweetie but has been through alot in her lifetime. Fortunately she and my other dog are becoming best buds and it's like she has always been here. Like all of you I am so grateful to be alive and do something other than go to the doctors, etc. I'm certainly not liking my extra poundage either but I don't think I can blame it on the arimedex so I'm going to blame it on those of you like Believe and Liefie and others who talk about baking and other good things. lol I think I just pack on a few pounds everytime I go through the posts and see what your baking or cooking.

    McCook I'm so proud of you running the race- I hope whoever makes your list will addme;  2friedeggs Sometimes I think how nice it would be to use my real name and not be afraid of someone I know finding out about my BC but unfortunately with so many relatives that could be on here because they have bc I don't want to risk it; it's one of those things I will have to keep to myself until my dad passes. Anyway Good Luck in the race; you're making us proud!

     In the pockets of all those who need a pocket party. Have a great weekend all!

  • aruba
    aruba Member Posts: 276
    edited July 2013

    2fried I so get what you mean about looking back! Dad is in Boynton Beach, FL lots warmer and more humid than Ohio right now. How sweet to foster the rescue dog! As for not telling the dad,, you are a strong person that also does what needs to be done. I admire you!

  • Believe777
    Believe777 Member Posts: 540
    edited July 2013

    2Fried - sounds like you have a new dog! I could never give one back. I would end up with a whole house full of pets. You are such a good person. I try not to look back but I was just thinking a few days ago that last July I was in the middle of radiation, this July is a whole lot better! Yes, what a difference a year makes.

    Shianne - so glad your Angels arrived and that you like them. You made my day!

    Have a great week end ladies. Hug to all of you!

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited July 2013

    Beleive - I wanted to thank you again for my angels! I wear my one of my bracelets everyday. The other day I had taken it off by the kitchen sink the night before and in a rush the next day forgot to grab it. I felt naked all day long at work until I was able to get home and put it back on. It brightens my day whenever I look down at it. I only wish I could wear it in the hospital next week! I am packing it in my bag so that I can at least have it there with me even though I can't wear it.



    2Fried - I agree with Believe that I could not foster any animals because I would get too attached and want to keep them all! What a great ting you are all doing!

  • ireland20
    ireland20 Member Posts: 175
    edited July 2013

    Hi all,

    Its been busy on here....cmbernardi good luck with op...I am now recovered and heading back to work monday. Hopefully urs goes as well. Mom of 3.....6 weeks off...i hope you are not in too much pain so you can enjoy it. Cant believe its only a week til the "trip".....so jealous ....i hope that mcook does well and all you ladies heding there have a greaaaaat parrrrty!!!!. I must get out of bed for another tropical day in Ireland......Scottie the weather has been unreal with temps of 30.....at one point during thee week we were hotter than spain!!!! Have a great weekend everyone. Hugs to all.xx

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited July 2013

    Ireland....you're not in Ireland, you just think you are...ha ha ha

    Momof3great.....will be thinking about you...❤

    Aruba...you always know the right things to say..((()))

    2 more sleeps and I get to meet Shianne and then on to Chicago and Iowa to meet McCook and the other gals....can't wait, I'm soooo excited ....I hope I can stay out of trouble...😎

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    2fried, PTSD is the best description I've heard yet, that is exactly what it's like. A year later I'm still losing sleep and having anxiety attack about my dx. I'm going to make that list tonight so I will make sure you are on it. Anyone else that wants on as real name or screen name please post and let me know. I hope Michelle's shirt is big enough lol.

    Scottie, trouble is fun ;-)