2013 Survivors!!!

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  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited July 2013

    Juneau - where in the Outer Banks were you? We just bought our vacation home there in Corolla. We can't wait until we can go down and enjoy it. It is rented until the 2nd week in August, but if surgery goes well and the house does not get rented we may go down for a week. I completely understand about the interest rates. We paid 1% higher than we started out with because the first house did not work out and we had to lock in again once we got the second house. I hope everything works out for you.



    I went to my PCP and was cleared for surgery Mobday morning so get ready for a long PP as I will be in the hospital for a week. I am scared, but know that the hernia, which is already the size of a small watermelon, will only get larger so I am going through with the surgery. Wish me luck!



    Hugs to everyone that needs them and I am in anyone's pocket that needs them!

  • iatigger
    iatigger Member Posts: 269
    edited July 2013

    Juneau, so glad you had a great vacation and the new boobs got a great reception.  Keeping my fingers crossed that your mortgage gets finalized soon.  Problem with vacations is it is hard to get back into the real world especially work.

    Momof3, glad you are a go for surgery next week. Will be in your pockets.

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Jennifer, gotta love complements on the boobs!!!!

    Mortgage companies are so greedy!! It's one of my HUGE peeves!!!

  • Believe777
    Believe777 Member Posts: 540
    edited July 2013

    Shianne - you are funny. Mortgage Companies don't set interest rates. Losing 5 pounds is impressive.

    Juneaubugg - looking good! I thought you'd be running your office by now. You don't need a boss.

    Momof3 - in your pockets all week with lots of treats! It will be over before you know it, and into your rear view mirror.

  • Caylianswife1
    Caylianswife1 Member Posts: 4
    edited July 2013

    Hello juneaubugg,

    I'm new here, my journey is just begining and it's a lot to take in. I'm 36, was diagnosed with IDC in May and found out after test and scans that it has metastasized to my bones and liver. I'm still in shock that I am stage 4, totally freaked out but ready to fight the fight. I'm going to miss our vacation this year to Outer Banks since I will still be going through chemo, we go every year in September... But already planning for 2014 OBX getaway!! I have 4 amazing kids that should not have to see their momma go through this. Enjoying reading all of your posts BTW

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited July 2013

    Welcome Cay! I agree your kids shouldn't have to see this but it's amazing how strong they are! And I'm sorry you are here but know everyone here is crazy strong and we'll help you fight!



    Everyone else - in pockets with snacks and beverages! Big hugs to you all.

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Welcome cay!! So sorry about your dx but as you will see there are quite a few stave IV that have survived for many years and lead normal ( new normal) lives. We will be here for you all the way. Plus it's been discussed in the past, or maybe another thread, but don't let chemo stop you from travelling. I did Orlando before my last treatment ans was fine. Kind of helps keep it normal for the kids too.

  • ireland20
    ireland20 Member Posts: 175
    edited July 2013

    Hi Cay, I am in total agreement that kids shouldnt have to see this but as karen says...it is amazing how strong they are. You appear strong and up for the fight...you will always have support here even when you dont feel strong...thats when the ladies here lend their strength to you.

    Big hugs.x

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited July 2013

    Hi Cay....what everyone said....sorry to have to welcome you here, but one of the best places for support.

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited July 2013

    Thanks Liefie, Believe and Aimee, my pain is waaaay better than it was Thursday night, thankfully. I see the BS today so I'll see what she has to say.

    Welcome Cay!! It's is the best bunch of girls around. Caring, compassionate, inspiring, supportive....I could go on and on. We'll be here for you!! (Are you in the U.S?)

    Jennifer and Mom of 3, DH and I went to Duck Island ages ago,BC (before children). It was such a blast. We rented a huge house with 3 other couples. We got to see wild horses running around, had fabulous food and great memories. Glad everyone liked your boobs Jen! Good luck with your surgery Monday, Mom. We will be in your pockets!

    Shianne, you are so funny! I have a feeling we will be laughing until we cry in Iowa and I can't wait!!

    Twinkles make a comeback next week. We're in trouble now!!😊

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited July 2013

    Thanks Liefie, Believe and Aimee, my pain is waaaay better than it was Thursday night, thankfully. I see the BS today so I'll see what she has to say.

    Welcome Cay!! It's is the best bunch of girls around. Caring, compassionate, inspiring, supportive....I could go on and on. We'll be here for you!! (Are you in the U.S?)

    Jennifer and Mom of 3, DH and I went to Duck Island ages ago,BC (before children). It was such a blast. We rented a huge house with 3 other couples. We got to see wild horses running around, had fabulous food and great memories. Glad everyone liked your boobs Jen! Good luck with your surgery Monday, Mom. We will be in your pockets!

    Shianne, you are so funny! I have a feeling we will be laughing until we cry in Iowa and I can't wait!!

    Twinkies make a comeback next week. We're in trouble now!!😊

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited July 2013

    Cay- welcome to the group! You won't find a more supportive group than this. We laugh/ cry and cuss with the best of them. I was diagnosed last year at my 35th birthday day with stage 2 IDC. Although I didn't go through chemo/rads I have gone through the thoughts that my kids don't deserve to see me at my most vulnerable state. I was the one nursing them back to health and now I was on the other end of it. Having to tell my babies that I had BC was not what I had on my bucket list. But it's now there. I plan on making and putting long term goals on my bucket list.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited July 2013

    Hey, Chrisrenee....soo happy to see you posting girl....was about to send out for the coast guards...ha ha ha ....I know you are crazy busy with everything going on in your life

    right now so I'm letting you off with a warning this time...ha ha ha ...😎😷



    SwgeeWi....glad you're on the mend....❤

  • iatigger
    iatigger Member Posts: 269
    edited July 2013

    Hi Cay, welcome to the group. Best support group around, along with being just a fun group of gals.

  • Believe777
    Believe777 Member Posts: 540
    edited July 2013

    Welcome Cay. You've found the best support group I've ever met. You will never be alone with this group. Yep, we cuss and giggle, keeps us sane. Glad you've found us. You don't have to hold back.

  • Outdamnedspot
    Outdamnedspot Member Posts: 164
    edited July 2013

    Cay, ditto what everyone has said.  This is the best group to hang out with.  Love them all!

  • liefie
    liefie Member Posts: 761
    edited July 2013

    Dear Caylian, just want to add my warm welcome to the others. You are dealing with a lot at your young age, but your mindset is obviously so positive, and you are in the driver's seat - way to go! As far as the kids, they will gain wisdom and strength from this way beyond their years that will stand them in good stead. Kids are so amazing, and very resilient. We are here anytime you want to get info, if you just want to chat, if you want to whine, cry or whatever. We GET IT like nobody else.

    Swgee, Scottiee, Latigger, you girls must be getting sooo excited for the Iowa trip! Can I send you some fudge to go with? Just let me know, and I will happily oblige - lol.

    Just came home from a session with the physiotherapist. After DIEP surgery 8 weeks ago my ROM is not what it should be. It is the rads damage in the armpit that causes the ROM issues. On my goodness! She almost broke off my arm a few times, told me to just breathe through it - yeah right! The tightened tissues in the armpit and breast pull on all the arm and shoulder muscles - ouch ouch ouch! Then my new mantra jumped into my head  - if you can survive chemo, you can survive this. So I breathed through my gritted teeth, and stuck it out. Fortunately I see her only every two weeks - LOL. The rest of the time I have exercises to do at home. ROM is better already, and one of these days I will be glad I did it.

    Momof3, good wishes on the surgery Monday!

    Juneau, I hope your house deal will work out, and that you can move in soon.

  • Shari0707
    Shari0707 Member Posts: 260
    edited July 2013

    Thanks or birthday wishes all!!!! Sorry haven't been on site since before my birthday and so I just saw all the posts!! Thanks for remembering ladies! Here's to 32 being a lot better than 31 was and that we will all grow old together!!!

    Hugs and kisses to all!

  • Joanne_53
    Joanne_53 Member Posts: 714
    edited July 2013

    Welcome Cay ...... I am just going to say "ditto" ... and that will cover it ... we are here for everyone and this is a great group.

    liefie -- you forgot me ... I am excited too ... lol.   I understand the physio -- I went through it after surgery and then during rads and then again about 5 months later -- my ROM was bad and it was painful.  Things are good now.  You will feel great -- I really found the acupunture to be helpful.

  • liefie
    liefie Member Posts: 761
    edited July 2013

    Sorry Joanne, and everybody else I am forgetting - wonder why I'm so forgetful -  LOL! I'm soo jealous of you guys - what a hoot it is going to be! Thanks for the acapuncture tip - will look into that. Will hang in there with the physio too.

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited July 2013

    Just lost my post. It's been that kind of day. Lol. Just got home from Dr. appt. My BS did a punch biopsy to check for IBC. I don't think it is (neither does she), but it'll be nice to rule it out so it's not floating around in the back of my mind. She'll call as soon as she hears, probably Thursday. I'll keep you posted!

    Liefie, hope your ROM returns quickly. You might need it for balance when you're dancing on tabletops.😜 Love & hugs

  • cmbernardi
    cmbernardi Member Posts: 853
    edited July 2013

    Welcome Caylainswife1

    So so sorry about your diagnosis.  I have been dealing with IDC too and it is a major BITCH!  Trust in yourself, your family and our Lord and Savior to carry you through this unwanted journey successfully.  And of course all of our fellow Sister Warriors on this thread are ALWAYS here for you, night and day!  Be safe and stay well and cool everyone with little to no pain and minimal SEs.  It is 102 F here in North Texas today.  HOT!  Peace and Hugs to ALL!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited July 2013

    Welcome Cay - cant say anymore than this wonderful bunch of ladies/friends/family have already said.  We here for you whatever emotion you are feeling.

    Sorry been MIA lately - cannot believe how busy life has got.  DH returned from UK so spending some good quality time with him.   This has made him realise all over again how fragile life is.  Also Ma (in the UK) was taken into hospital - she's just had a sequemous cancer cell removed from her leg... got infection, then got a bladder infection so not good.  She's home now and doing better, just weak and tired.   Thank goodness my Sister who is a nurse was with her.

    Work is crazy busy - must be lots of full moons.   But I feel good sisters.   Except pissed about missing on Iowa, but I keep saying there will be other times.

    Jumping in pockets where needed - I'll bring margaritas - sending hugs and positive mojo where needed and love, laughs and peace to all.

  • Caylianswife1
    Caylianswife1 Member Posts: 4
    edited July 2013

    Thank you everyone for all the warm welcomes. You are a great group of women.. I have an amazing support system here at home, family and friends, but there is nothing like hearing from people going through the same things you are. I am in the US. Live in Dover Ohio, originally from Cleveland area. I just celebrated my 18th wedding anniversary June 10th two days before my first Chemo.. My husband is my best supporter along with my 4 children. Oldest son is 17, he is quite sensetive about the situation. I have a 16 year old son who has been to almost every appointment I have had. I have an only daughter 14, she is the best helper all around. My youngest son is 12, such a sweetheart couldn't love his momma more, I get lots of hugs and kisses from him. Thanks again ladies for welcoming me.

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited July 2013

    Hey Cay. It's Sheila from Wisconsin. I was born in Marion and grew up in Findlay, went to OSU (go Buckeyes!) and still have family in Findlay and Powell. Are you able to go to Cleveland Clinic? Happy Anniversary! Sounds like you have a great family and supportive friends which is so important!

  • shianne29
    shianne29 Member Posts: 282
    edited July 2013

    Liefie, I hear ya on the ROM of armpit after rads!!! It's really fucking up my golf game!!!!

  • Layla2525
    Layla2525 Member Posts: 465
    edited July 2013

    juneau, hope you're doing good. I got a second set of implants on July 1st and my fiance stayed here for a wk. When he went back to his house, I had a good cry. The place was so quiet with the dog sprawled out on the kitchen ceramic tiles trying to keep cool.

    Guess I can relate somewhat.

  • liefie
    liefie Member Posts: 761
    edited July 2013

    Shianne, you are sooooo funny! But I can well imagine that it will impede a golf swing. Keep on swinging - it has to loosen up, don't you think?

    Cay, your DH and all your children sound like sweethearts, and they will indeed be your biggest support. I find that our family is closer now than we have ever been before I was diagnosed, and we have all learned from this. DD is the practical one who cooked special meals to make me strong again, during chemo older DS kept me laughing with his wonderful sense of humour, and youngest DS found it hard to process, but was always there for me. DH was like the rock of Gibraltar . . . their love and support meant the world to me, and it was a beautiful thing to experience. Big hugs to you!

  • Caylianswife1
    Caylianswife1 Member Posts: 4
    edited July 2013

    Hi Sheila, my name is Heather. :-)

    Here's the Kicker, Not only Dx with Advanced stage tripple negative BC... I have no health Insurance. I can't go to Cleveland Clinic. I'm going to The Cancer Center at Aultman Hospital in Canton. Yes I am pretty lucky with such a supportive group of family and friends, it keeps me positive :-)

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited July 2013

    Hi all. Dr. called me with biopsy results for IBC. NEGATIVE!! No cancer, no infection. Thankfully!! Just radiation damage to skin & lymph system that will take time to recover. How long, I don't know, but at least I won't be questioning it now. What a relief!



    Heather, how do you like the Cancer Center you are going to in Canton? Is it very far away? My DH has MS, and we just found out that, thanks to our Governor, his HIRSP ( Health insurance risk sharing plan) will end Dec. 31, 2013. I think everyone in this country should have acess to affordable health insurance. I have private insurance and can only afford that because we have money in savings, not because it's affordable, that's for sure! (Of course that won't last forever!) At the very least we won't be able to afford to continue to live in the state of Wisconsin with Scott Walker as our governor. :( ok-I'll stop now.



    Wishing everyone good test results, sunny days, and minimal SE's 💗Sheila