2013 Survivors!!!
Comments
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Hi Stride.....glad you had a great vacation......keeping my fingers and toes crossed regarding your results.
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Great news Luanne!! What a relief!
Tazzy, don't work too hard!!
Stride, I've been thinking about you. Your vacation sounds perfect!! I love the idea of a B&B on the lake! I'm in your pockets today, praying for great results!!! (((Hugs))). Sheila💗0 -
Hi ladies... I am SO GLAD that you have all shown up!! Sorry I was a bit quiet. Ramols ping'd me. I've been a bit absorbed in putting my "Making Strides" campaign together. Making up cards to give people, going to local diners with donation cans. If anyone is interested in donating to our 2012 Sisters team here is the url: http://main.acsevents.org/goto/2012sisters
This is what I'm putting on the back of the biz cards I've made up: My recent experience with this disease has shaken me to my core, and if I can do ANYTHING to help the next woman have the resources that were available to me through the ACS, then I will have paid it forward.
I am asking for your help in reaching this goal. If we can each get 10 people to donate $5; perhaps instead of getting that next Frappuccino....
I recently learned that 1 out of 2 women diagnosed with breast cancer will reach out to the American Cancer Society. That's staggering to me, considering that is 6,800 woman diagnosed with breast cancer JUST IN THE STATE OF NJ each year!
So we have an opportunity to impact 3,400 women's lives this year by simply donating our time and asking others to join us in skipping a Frappuccino or two in order to make a donation!!. ~Jennifer Juneau-----
I'm hoping to raise more then last year, and last year I was bald so it didn't take too much work to get a donation! LOL!
Aruba: I love LOVE your flowers. I hope mine (if I EVER get my damn house!) is half as beautiful!
Stride: We are with you girl... "wiggling" around. (Love that!!!)
Scottie: welcome home... isn't Niagara Falls beautiful. The Canada side is so nice to look at from the NY side, but not so much the other way. As usual we over industrialized and degraded the natural beauty! I lived in Buffalo for a year, so I took plenty of friends on the maids of the mist tour.
Liefie: YAY... GRANDMA!
Websister: Am I the only one who didn't see a link of a photo of your GD?? :-(
So OK - I'm sorry if I was a bit harsh. It's just that I am used to seeing our thread at the top of the list of active threads; so a few days of TOTAL silence spooked me... BUT I TOO am GUILTY of getting busy with life and not taking the time to post.
I went for blood work Monday for the insulin resistance test for the Nutrition Center/Dr. I guess it's the same test they give pregnant women. You drink a bottle of glucose and then they take blood every 30 minutes for 180 minutes. SO having only ONE GOOD ARM... I can barely raise my left arm now. The funny thing is, I was afraid to go one of my 12 step meetings because it looks like I have track marks! (mind you I was NOT and IV user).... but trust people notice these things and rumors would start that I have relapsed. Luckily they are already faded!
I have my appointment for my ultrasound Friday morning on my thyroid, but don't expect to hear anything until I see the Dr.
I met with my PS yesterday... I love LOVE her... anyway, I am have a MINOR revision surgery of September 5th to lift the left (natural) breast to make it a bit more uniform to the perky right one. She said we can lift it OR we can replace the implant with a larger one which will lift it. I went for the less intrusive surgery - and she will also re-size my areola to match the one left on the right breast. I had nipple sparing UMX so the areola/nipple is smaller and a bit misshapen (but at least it's there). She is going to make the left one a bit smaller to match as well. SO.. I'm telling my DH this last night and he tells me that he doesn't think I should get more surgery and that I should be grateful my girls look as great as they do, that it could have been a lot worse. now - although this is totally TRUE, it upsets me! Why shouldn't I look the VERY best that I can? I feel lopsided.... she can fix that. It's a no brainer for me. I should ask my DH how he'd feel if his one ball sack hung lower?? (and BTW - she told me not to worry about my thyroid. Said 95% of the time it's nothing. I'm gonna roll with that one for a while).
This Sunday I arranged a breakfast with some of the ladies from my Casting for Recovery retreat. Really looking forward to that as well.
Anyway ladies... please PLEASE keep posting. Let's grow old together here on the BCO. I can't wait until it's 2018 and we are all still chattering away in the 2013 Survivors forum!!!!!
I love you all!
My recent experience with this disease has shaken me to my core, and if I can do ANYTHING to help the next woman have the resources that were available to me through the ACS, then I will have paid it forward.
I am asking for your help in reaching this goal. If we can each get 10 people to donate $5; perhaps instead of getting that next Frappuccino....
I recently learned that 1 out of 2 women diagnosed with breast cancer will reach out to the American Cancer Society. That's staggering to me, considering that is 6,800 woman diagnosed with breast cancer JUST IN THE STATE OF NJ each year!
So we have an opportunity to impact 3,400 women's lives this year by simply donating our time and asking others to join us in skipping a Frappuccino or two in order to make a donation!!. ~Jennifer Juneau0 -
Hi ladies... I am SO GLAD that you have all shown up!! Sorry I was a bit quiet. Ramols ping'd me. I've been a bit absorbed in putting my "Making Strides" campaign together. Making up cards to give people, going to local diners with donation cans. If anyone is interested in donating to our 2012 Sisters team here is the url: http://main.acsevents.org/goto/2012sisters
This is what I'm putting on the back of the biz cards I've made up: My recent experience with this disease has shaken me to my core, and if I can do ANYTHING to help the next woman have the resources that were available to me through the ACS, then I will have paid it forward.
I am asking for your help in reaching this goal. If we can each get 10 people to donate $5; perhaps instead of getting that next Frappuccino....
I recently learned that 1 out of 2 women diagnosed with breast cancer will reach out to the American Cancer Society. That's staggering to me, considering that is 6,800 woman diagnosed with breast cancer JUST IN THE STATE OF NJ each year!
So we have an opportunity to impact 3,400 women's lives this year by simply donating our time and asking others to join us in skipping a Frappuccino or two in order to make a donation!!. ~Jennifer Juneau-----
I'm hoping to raise more then last year, and last year I was bald so it didn't take too much work to get a donation! LOL!
Aruba: I love LOVE your flowers. I hope mine (if I EVER get my damn house!) is half as beautiful!
Stride: We are with you girl... "wiggling" around. (Love that!!!)
Scottie: welcome home... isn't Niagara Falls beautiful. The Canada side is so nice to look at from the NY side, but not so much the other way. As usual we over industrialized and degraded the natural beauty! I lived in Buffalo for a year, so I took plenty of friends on the maids of the mist tour.
Liefie: YAY... GRANDMA!
Websister: Am I the only one who didn't see a link of a photo of your GD?? :-(
So OK - I'm sorry if I was a bit harsh. It's just that I am used to seeing our thread at the top of the list of active threads; so a few days of TOTAL silence spooked me... BUT I TOO am GUILTY of getting busy with life and not taking the time to post.
I went for blood work Monday for the insulin resistance test for the Nutrition Center/Dr. I guess it's the same test they give pregnant women. You drink a bottle of glucose and then they take blood every 30 minutes for 180 minutes. SO having only ONE GOOD ARM... I can barely raise my left arm now. The funny thing is, I was afraid to go one of my 12 step meetings because it looks like I have track marks! (mind you I was NOT and IV user).... but trust people notice these things and rumors would start that I have relapsed. Luckily they are already faded!
I have my appointment for my ultrasound Friday morning on my thyroid, but don't expect to hear anything until I see the Dr.
I met with my PS yesterday... I love LOVE her... anyway, I am have a MINOR revision surgery of September 5th to lift the left (natural) breast to make it a bit more uniform to the perky right one. She said we can lift it OR we can replace the implant with a larger one which will lift it. I went for the less intrusive surgery - and she will also re-size my areola to match the one left on the right breast. I had nipple sparing UMX so the areola/nipple is smaller and a bit misshapen (but at least it's there). She is going to make the left one a bit smaller to match as well. SO.. I'm telling my DH this last night and he tells me that he doesn't think I should get more surgery and that I should be grateful my girls look as great as they do, that it could have been a lot worse. now - although this is totally TRUE, it upsets me! Why shouldn't I look the VERY best that I can? I feel lopsided.... she can fix that. It's a no brainer for me. I should ask my DH how he'd feel if his one ball sack hung lower?? (and BTW - she told me not to worry about my thyroid. Said 95% of the time it's nothing. I'm gonna roll with that one for a while).
This Sunday I arranged a breakfast with some of the ladies from my Casting for Recovery retreat. Really looking forward to that as well.
Anyway ladies... please PLEASE keep posting. Let's grow old together here on the BCO. I can't wait until it's 2018 and we are all still chattering away in the 2013 Survivors forum!!!!!
I love you all!
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Hi ladies... I am SO GLAD that you have all shown up!! Sorry I was a bit quiet. Ramols ping'd me. I've been a bit absorbed in putting my "Making Strides" campaign together. Making up cards to give people, going to local diners with donation cans. If anyone is interested in donating to our 2012 Sisters team here is the url: http://main.acsevents.org/goto/2012sisters
This is what I'm putting on the back of the biz cards I've made up: My recent experience with this disease has shaken me to my core, and if I can do ANYTHING to help the next woman have the resources that were available to me through the ACS, then I will have paid it forward.
I am asking for your help in reaching this goal. If we can each get 10 people to donate $5; perhaps instead of getting that next Frappuccino....
I recently learned that 1 out of 2 women diagnosed with breast cancer will reach out to the American Cancer Society. That's staggering to me, considering that is 6,800 woman diagnosed with breast cancer JUST IN THE STATE OF NJ each year!
So we have an opportunity to impact 3,400 women's lives this year by simply donating our time and asking others to join us in skipping a Frappuccino or two in order to make a donation!!. ~Jennifer Juneau-----
I'm hoping to raise more then last year, and last year I was bald so it didn't take too much work to get a donation! LOL!
Aruba: I love LOVE your flowers. I hope mine (if I EVER get my damn house!) is half as beautiful!
Stride: We are with you girl... "wiggling" around. (Love that!!!)
Scottie: welcome home... isn't Niagara Falls beautiful. The Canada side is so nice to look at from the NY side, but not so much the other way. As usual we over industrialized and degraded the natural beauty! I lived in Buffalo for a year, so I took plenty of friends on the maids of the mist tour.
Liefie: YAY... GRANDMA!
Websister: Am I the only one who didn't see a link of a photo of your GD?? :-(
So OK - I'm sorry if I was a bit harsh. It's just that I am used to seeing our thread at the top of the list of active threads; so a few days of TOTAL silence spooked me... BUT I TOO am GUILTY of getting busy with life and not taking the time to post.
I went for blood work Monday for the insulin resistance test for the Nutrition Center/Dr. I guess it's the same test they give pregnant women. You drink a bottle of glucose and then they take blood every 30 minutes for 180 minutes. SO having only ONE GOOD ARM... I can barely raise my left arm now. The funny thing is, I was afraid to go one of my 12 step meetings because it looks like I have track marks! (mind you I was NOT and IV user).... but trust people notice these things and rumors would start that I have relapsed. Luckily they are already faded!
I have my appointment for my ultrasound Friday morning on my thyroid, but don't expect to hear anything until I see the Dr.
I met with my PS yesterday... I love LOVE her... anyway, I am have a MINOR revision surgery of September 5th to lift the left (natural) breast to make it a bit more uniform to the perky right one. She said we can lift it OR we can replace the implant with a larger one which will lift it. I went for the less intrusive surgery - and she will also re-size my areola to match the one left on the right breast. I had nipple sparing UMX so the areola/nipple is smaller and a bit misshapen (but at least it's there). She is going to make the left one a bit smaller to match as well. SO.. I'm telling my DH this last night and he tells me that he doesn't think I should get more surgery and that I should be grateful my girls look as great as they do, that it could have been a lot worse. now - although this is totally TRUE, it upsets me! Why shouldn't I look the VERY best that I can? I feel lopsided.... she can fix that. It's a no brainer for me. I should ask my DH how he'd feel if his one ball sack hung lower?? (and BTW - she told me not to worry about my thyroid. Said 95% of the time it's nothing. I'm gonna roll with that one for a while).
This Sunday I arranged a breakfast with some of the ladies from my Casting for Recovery retreat. Really looking forward to that as well.
Anyway ladies... please PLEASE keep posting. Let's grow old together here on the BCO. I can't wait until it's 2018 and we are all still chattering away in the 2013 Survivors forum!!!!!
I love you all!
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Juneau.....lol....you made me dizzy (dizzier than normal) ....you didn't delete, you duplicated...ha ha ha .....yes, I do have to admit the US side looks pretty ugly compared to the Canadian side....wish they would do something about it so we would have something nice to look at.
PS....don't worry about your thyroid, most of the time it's usually nothing and good for you on the "Making Strides" campaign.0 -
Happy hump day! So this week I joined a gym. I am very excited about it. It's at a local hospital and they have everything I would want in a gym and a big plus is my sister is a member. Onward and upward I always say.
Tomorrow I am going to MSK for my first mammo since surgery. Not anticipating anything but I don't see BS until Monday so it'll be in my head all weekend. Tonight I go for a meeting for my walk on 10/6. I need to get some more peeps on my team. So hopefully they'll tell me how.
Last week we went to the county fair and there was a fire truck as soon as you walked in and it was pink. So of course I go over and what it was is a group of fireman that go around the country helping people who are struggling to pay the bills after treatment. And it's not just breast it's any cancer. All donations are used to help the fighters. So of course I had to buy a tshirt and he let me sign the truck (and as you can hopefully see from my first attempt at photo bucket) alot of people have signed it. So this is for you my sisters
I love you all!
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Karen - that's great - thanks for thinking of us! In your pockets for upcoming Doctor visit, mammogram, tests etc. good job on joining a gym / with your sister is a plus. Is Monroe close to Hackettstown? Juneau seems to be great at recruiting.
Juneau - proud of you as always! I donated, wish I had more but if everyone jumps in, you will meet your goal. Good job.
I'm not beading or baking today, something's wrong with this picture :-)0 -
My posts here also seem a bit lame to me recently, so I have a joke for you today sent to me by my weight-battling sister. I think it applies to us in particular . . .
A naked woman steps on a scale, checks her weight, and announces, ' I will subtract 5 lbs from my weight. Boobs and brains this fabulous should not count against me!'
Shianne, glad your son got some help.
Stride, thinking of you, and happy you had a great getaway with DH.
Juneau, you had me laughing out loud, and you made my day. Please tell us what your husband's answer was when you ask him THAT question - LOL. Don't be put off, and go for what you want. It is your body, after all.
I love you all, and wish you the best.
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Just back from having a CT scan of brain and neck. For several weeks I have complained to everyone; RO, physio, acupunture therapist, GP that my head hurts with just about any movement. More physio, excercises and it just got so bad that yesterday I went to the UBC hospital urgent care and had x-rays which did not show anything but the doctor ordered the scans and lo and behold they called this AM and since I live really close was there in 15 min. with my son driving. Driving has been ridiculous as head needs to turn so much! Anyway, good news as nothing showed up, no mets, not arthritis, not disc problems. Just need to take it easy and on some kind of arthritis/pain meds twice a day and he says I can take Ativan too. The scans did show nodules in my thyroid so now have a GP appt. to get that booked. Always something!
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My oncologist called me this evening with results from the scans I had TODAY. I am amazed by that turnaround.
So, it's bad. She said it looks like mets to liver, kidney, adrenal, thyroid, ribs and lymph nodes all over the place. I was also scheduled for a biopsy on Monday for what is probably a skin met on my scalp, but now it looks like I'll have the port put in that day, instead.
I thought about leaving thyroid off this list, with a Juneau and MarianElizabeth both dealing with concerns about nodules. But here's the deal:
1. I had cancer that grew during the last four rounds of chemo. So I had an exceptionally high risk of recurrence.
2. Statistically it was likely that one of us would go to Stage IV. I'm that one, so the rest of you are OFF THE HOOK!
I read the post about what Dr. Susan Love wrote about the term "survivor," and also what many of you have written about moving on from your breast cancer worries and just getting back to real life. I say EMBRACE the term "survivor" if you can. The odds are in your favor. For the past eight months I have been living as a survivor. I have been port-free since January 2. One of the best things I did was attend a breast cancer survivors' retreat held by Johns Hopkins. Juneau, it was a similar idea to Casting for Recovery. We went on nature walks, took a yoga class, ate great food and stayed at a beautiful inn at a town by the Chesapeake Bay.
I am so, so, so happy I got to have the "survivorship" experience I knew I had a good chance of recurrence, and frankly I haven't been feeling great. But how the hell could I live my life if I was afraid all the time? I threw myself into my job. My husband and I made a five-year plan and completed some things on it. And I went on that vacation last week!
I might live for a long time still, but I do not feel like a survivor anymore, so I'm just glad I got the chance to have that experience. And thank you to all of you for sharing your experiences!
I need to figure out what to put on the info that appears below my post that shows diagnosis and treatment. Perhaps "metastases to shitloads of places?"
I guess I had better go learn what the adrenal gland does.
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Stride,
Damn this disease!!!!!!!!!!!! I am so sorry to hear this news. I know there is an aresenal of weapons even with mets to kick cancer's ass. You do have a fight ahead of you, but know that you do have sisters on this thread that are going to march with you every step of the way. I am sure you will find info and support on other threads here on BCO, but you are forever a part of us and we are here for you now and always. A big gentle hug to you!!!
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Stride, I hope you can feel the huge (((hug))) that I am giving you ..... I am lost for words. You are in my thoughts and prayers. Keep working on that five year plan, if you keep adding to it then it could take you 10 or more years to get through it. . Next summer we are at my place near Niagara Falls.
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Oh Stride - gentle hugs from me too! I can only imagine how you are feeling. Prayers and warm thoughts going your way. Yes, as JoAnn said, keep working on that 5 year plan! Only God knows when its our time. Look how many survivors we have run across 5, 10 and 25 years out. We are all here for you. Let us know if we have any special talents that can help you get through this. Keep busy. We love you and are here for you!
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I am so sorry Stride. As the others have said we are all here for you!
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Stride......as Believe said....only God knows!!!!...Shianne told us about a woman in her town who was told to get her affairs in order that she only had a short time ....well, she's alive and kicking thirty years later!!!! We are here for you and always will be....❤
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((((((Hugs))))) Stride. my friend who was the first survivor I had met is on year seven with mets and keeps on thriving in between treatments because of her positive attitude and team of friends that are there for her always, Kind of like this group, we will always be sending positive vibes your way.
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Stride- Well...CRAP!!! Thoughts and prayers your way!
(I don't post often,but I check in daily)0 -
Stride, I'm so sorry. We are always here for you.
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Just adding my gentle hugs and warrior encouragement to the list, Stride. You have proven you are a fighter and you have a lot of life in you. Just keep on doing whatever you did last time! We're all here for you!
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Guess I had more to say. Stride - your strength shines through in the words you wrote. Trying to help the rest of us not fear a similar change in course. You sound like a very strong woman. For you - and for all of us - I am screaming mad at breast cancer. Enough is enough. Juneau - your efforts to raise lots of money for your Making Strides team is inspiring. So far all i've done is email my friends and family. I think i have some more work to do! On my page, I included this segment:
Who I Am Making Strides For
My list is endless. That is the problem. That is why I am making strides. I make strides for me, my family members who have been affected, my friends who have been affected, and for my 2012/2013 sisters at BCO who have kept me (mostly) sane this past year as they have lived through the same ordeal alongside me. And most importanly, I am making strides for my future daughters-in-law and grandaughters. We are leaving future generations with enough messes to clean up - let's take breast cancer off the list.Just wanted to share. Off to get some sleep so I can think about a newly invigorated fundraising plan! Hugs to you all!
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Stride...big hugs. I love your positive attitude already.....not letting 'it' interfer with your planned vacation...go you.x I will be praying for you and in your pockets anytime you need. Lots of love. Maureen.
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Stride: Well fuck, fuck, fuck. I am sending you all the hugs and love and positive vibes anyone could need - hope you can feel them. We are here for you, you know that. Easy for me to say but please try and keep focusing on the 'survivors' of this fucking disease. Thinking of you.
FUCK YOU CANCER !
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((((BIG HUGS)))) Stride! I am so sorry about your metastases to shitloads of places!! Son of a bitch! Fucking cancer! I'm sending healing vibes and prayers, hope you can feel the love!
As Ramols said, you sound like such a strong woman. I was struck by the way you were building all of us up in the midst of your news. You have a fantastic attitude and if anyone can pull this off, you can!! You are still a survivor, a warrior, and an inspiration to me. I don't think I could handle the news with as much grace and humor as you. We love you and are in your pockets 24/7. Lots of love, Sheila0 -
Stride I know there is nothing I can say that all of these wonderful ladies haven't said. I can only extend my support and prayers along with theirs and say how sorry I am that your news wasn't what you were hoping for. Your attitude is great but should you go through all of the emotional ups and downs, as all of us BC patients have done at one time or another, please don't hesitate to get on here and share feelings you don't want to share with family or just to rant to us. We are here to help each other through all of the battles this dang bc throws at us. I was reading through a post the other day of a lady with stage IV who was so inspiring; she was talking about how she has been stage four now for almost 9 years (her original diagnosis was 2 years prior). She has had it in multiple areas as well , has gone through various treatments but says she has been "stable" now for several years. So again, my prayers and support as you go through treatments to reach "stable" status and live a long life.
Cancer sucks big time.
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Stride, your news has stabbed my soul. Hugs and hopes for peace and serenity as you face new decisions in your treatment. What an amazing attitude you have! I would not be able to share such news with grace, as you have. We are all just a diagnosis away from your experience, and that's what makes me feel so raw at your news.
I have been reading this thread, among a couple of others, but backed away from posting, mainly because I wanted to "move on" (a recent topic here!). But reading about lives affected by this fucking disease keeps pulling me back. I had a revision surgery two weeks ago that left me with an unexpected skin graft and angry attitude. Let's just say I would not have been a poster child for compassion. I have embraced the fact that in the scheme of things, I am damn fortunate. But Fuck! It never ends...
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Stride, I don't know what to say that hasn't been said. FUCK!!!! I repeat that your strength and brightness is loud and clear, stay positive because as we all know drs don't always know everything. Joanne and I met a lady in Chicago who was stage IV with mets all over the place including a large tumour on her face. She's been a survivor for over 10 years!!!! It can and does happen all the time. Please, please check in often for the support and to keep us posted on what's happening. I'm settling into your pockets for the long haul now. Can someone please pass me a pillow?
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Dear Stride, just yesterday I wrote on another thread about the black dog that all of us bc survivors have on our tail constantly for the rest of our lives, whether we are NED or not. So very, very sorry to hear what is going on. Nothing I can say will be adequate, but just know that you will be in my thoughts and in my prayers. Your attitude is absolutely amazing under the circumstances, and I admire your grace, your calmth and your courage. Come back here often, and share with us. We are all on your team!
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Stride I am going upstairs to go and put on my FUCK CANCER t-shirt I wore for for the tri but this time it is for you! My thoughts are with you as you process and progress through this next set of hurdles and appointments.
Marian0 -
Stride- I am not going to give you gentle hugs I'm giving you a big ass bear hug! I am so sorry this fucking disease can kiss my ass. I am so done with this shit. I agree that you have handled this news with grace. I don't know if I could have done it so well. I am not handling this well with your results. If you are on Facebook and you want to friend me look me up. Christy-Jon Anderson sending lots of hugs and prayers and love!
I've been absent for a while. Hubby is home and work is killing me. Kids are on separate vacations. Stephen is in gulf shores Alabama with one of his best friends. Tay is in Tyler with my stepmom at an indoor watermark. Both kids are coming home on Saturday and I can't wait to see them I've missed them so much. Hubby leaves back to work on Sunday and kids start school in 10 days.
Love you all!😘🌺0
