2013 Survivors!!!
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stride - so sorry to hear your bad news - thoughts and prayers are with you!! We care.
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Stride, just want to echo what everyone else has said. Big hugs to you.
I have dear friend, 12 year survivor, stage IV for at least 8 years. Mets to sternum, back, skull and brain. She is doing really well. Still travelling...always busy doing something. She told me awhile back that her onc told her he hadn't used all his weapons yet. I take a lot of comfort in that researchers are always trying to come up with the next newest weapon in this fucking disease. Fuck cancer.0 -
Stride - just catching up this evening, so sorry, not the news you were hoping for. It has all been said, your attitude and spirit are incredible, adding my hugs and prayers. We will be staying in your pockets
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Thank you all for being in my pockets yesterday for my surgon appointment and then my MRI. The staple removal went better than I thought, but sore. I am going to start back to work slowly starting Monday. I forgot how uncomfortable the MRI was, but I made it through and only needed one needle stick to get the IV going. The contrast made me very sick feeling, but my DH was there to take me home so they didn't make me stay. I should get the results in 5-7 days. The dreaded waiting begins.
It is never dull around our house. My 2 DDs, 12 and 10, wanted to go see the new goats next door the on Tuesday and I said sure and let them go by themselves. Wednesday night my 12 year old started to get a small rash on her face, but she said it didn't itch. We gave her Benadryl and sent her to bed. My DH and I said that if she was no better we would take her to the walk in clinic first thing in the morning before we left the DDs with my MIL for our trip to the hospital. She woke up with the rash all over her face and it was now itchy. I told her that we would be taking her as soon as they opened. I woke my 10 year old up and her face was starting up also so told her she was going also. They finally admitted that when they went to see the goats they went into this brush to get the goats grape leaves to eat and there was also poison ivy in there. They are now both on steroids since it is all iver their faces and bodies. They learned their lesson the hard way! I know God only gives you ehat you can handle, but I would really like one week without anything! That will not be happening anytime soon as my DD needs to go for an EEG next Tuesday. I will have to sleep deprive her the night before which means I will be sleep deprived also. Maybe things will slow down in September. One can only hope!!!!
Thanks for letting me rant. It really does make things seem better.
I can't wait for our vacationing October when we go to our new vacation house in the Outerbanks! We have owned the place since June, but have only been in it for about an hour since it was rented all summer. As my DH says it is like getting a Christmas present and then not being able to play with it. We have all these great ideas on how we want to fix it up and can't wait to start.
Hugs to everyone that needs them!!!!0 -
Stride I am floored, dismayed, sad and amazed. Your strength that comes through is amazing. but like others said there are many that live with mets for years and it sounds like you ate ready to do just that. So move over ladies me and my treadmill are jumping in Strides pockets for the long haul! I am kidding just wanted to give a good laugh! I am bringing chocolate and espresso martinis!
Yesterday I had my first mammo since last year and it was normal! Big sigh of relief! My sister also had an appt with her Dr for her melanoma and he said one more set of scans this year and one more visit next summer and she will never darken MSKs doors again as a patient! This Dr told her in 2009 to get her affairs in order. When she walked out church bells were ringing. Talk about angels singing.
So to celebrate we went to Carmines for lunch, Ferraros for pastry and walked it all off shopping in Chinatown and Little Italy. What a great day we had! However going through little Italy I couldn't get the theme to The Godfather out of my head! I can't wait to go back!
Ok going to attempt to go to the water park with the kids today. Between my trainer kicking my ads Wednesday and walking yesterday I am only good for going around the lazy river!
Good day ladies. I am in those pockets who need it and hugs for all!0 -
I had my first mammo since surgery last Thursday, and have been waiting for the results. Got a call from the surgeons office yesterday and it was good news NED, both breasts look fine. She said just continue exercising and take Vitamin D...Thank God...
Congrats Karen..
To all that need a shoulder I'm here and always will be.
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Karen.....great news for both you and your sister...💃 I love the day you had. I'm always so envious of women who have sisters. I have only one brother who is ten years younger
than me and lives in California (I'm in Toronto) .....any f you gals have a sister you want to dispose of....lol
Momof3Great.......you certainly have your hands full....hope you can get some you time
in October when you vacation. Sending positive vibes for good test results....❤0 -
Loral.....we must have been posting at the same time....lol....congrats to you too....💃
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Stride- what do we say? I am trying again and again with no words except to say that reading your post made me so proud on how your attitude is and I am so glad you are living life and doing things! I am sorry that this fucking disease does not care who it continues to try and take down. We all know some that have survived with METs and some that have lost their battle and it makes us frustrated as hell! But I believe that we all continue to realize that we need to live now! We need to quit that shity Job, get rid of unpleasant people in our life's and break a few rules and just live! I love you and thank you for sharing your news with us and I am in your pockets and I am holding your hand for whatever you need. I am shedding quite a few tears right now for you and I was dealing with a work issue today that was bothering me but your news reminding me that I need to go play in the sun and enjoy the day and I hope you are doing the same my sister! HUGS!
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Good Morning Lovlies. I woke up very anxious today. Odd - 2nd guessing all my party plans etc, worrying about my up coming doctors appt etc. shouldn't sweat the small stuff.
Thinking about Stride was my reality check. There must be something we can do. Then I thought of us starting a prayer chain. They have worked in the past. I'm in, does anyone else want to jump in?
Momof3 - glad your appt went well. Sorry for the poison ivy. Kids! Don't we just love them. Hopefully their meds will kick in and you can all get some rest.
Like Ramols says - searching for some happy today.0 -
Hi gang,
Karen and Loral, so glad to hear the good results! Momof3, you will be so ready to kick those feet up in the outerbanks. What a treasure cove you will have there!
Believe, Enjoy that party, savor it! Sorry you will be lopsided, but I am jumping into your pocket early to enjoy the festivities and do the worrying about dr. appts for you so you can enjoy. Can't wait to taste the goodies
Stride, I have added an extra prayer for healing as Believe suggested. Sisters, can you post a quote of inspiration and hope as Stride begins to again KCA..Here is one to start and if you just type one that is great too! Hugs!
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Stride......."It's going to be alright, maybe not today but someday".....I think we can all remember this one.....love you all.....❤
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Stride... Big hugs! And I am sooooo sorry... Fuck cancer!
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Stride- You have handled this information with a diginty, grace, and strength that is amazining. Thinking of you and settling in you pockets for as long as you need. I may be quiet, but I'm here.
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Stride- one day at a time! This too shall pass and all those other corny bullshit quotes! Ha sorry, trying to be funny and supportive. Here's my support: when you need a friend we will be here, when you need a drink I will chip in the money to help drown your thoughts away! Then we will all start drinking with you and keep Luanne and Christine and Michelle off the tables. Love you sweet girl 😛
Shari how's Hawaii? 👙0 -
Cancer is a journey, but you walk the road alone. There are many places to stop along the way and get nourishment – you just have to be willing to take it.
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First let me say - chrsirenee... welcome home. we missed you.
second - Karen, you went to Carmines and Ferraros without me.... *pouting*
third - the tech told me this morning (off the record) my thyroid looks great.
Now on to the REAL business of getting real.... STRIDE. What can I say. I WILL NOT tell you some fucking story about some other person who has lived with mets for years. You already know this to be the case for some, and I must say - when I was diagnosed initially I DIDN'T FUCKING CARE ABOUT OTHER PEOPLES EXPERIENCES!! I was the one who had cancer, I was the one who was gong to have to have her breast removed and body poisoned. Your feeble attempts to make me feel better... well were just feeble (although well meant as they were). It's like when someone passes away isn't it. There are really no words that will make it better, different, return to how things were the moment before you got the news. That's it, it's just changed forever.
So I'm not going to try to console because I love you too much. All I'm going to say is that although this is the "2013 survivors" thread - you are one of us, and your experience is why we are all still here. We started out here to rant, cry, share, love and listen; and we are still here to do that - so please... when you are having periods of fear, anger, tears.... when you're not feeling as strong, and beautifully put together as your initial post telling us of your new diagnosis... WHEN ALL YOU WANT TO DO IS SCREAM.... PLEASE DO IT HERE!
and thank you for trying to add some humor into a stark reality, by saying that (and I'm paraphrasing) that you have taken one for the team so that we should all be able to continue to thrive. From your lips to gods ears that no other 2013 survivor will be forced to live with this fucking disease, instead of living after it.
we love you stride!!!
Jen
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PS; Ramols- here is my fund raising letter. I wrote it instead of using their form letter.
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Hello! I hope this note finds you well. This is NOT one of those American Cancer Society form letters, I am using their forum, but this comes from my heart.
First an update for those of you I do not see regularly. It was a challenging year, but I currently have No Evidence of Disease (NED); and head of VERY CURLY, short hair!!
This experience has shaken me to my core, and if I can do ANYTHING to help the next woman have the resources that were available to me through the ACS, then I will have paid it forward.
With that in mind I am asking that you might be able to help me to reach my fund raising goal for the Making Strides for Breast Cancer initiative 2013! so no matter how much or how little you can give, please click one of the links at the bottom of this email and support me with a donation of any amount.
AND IF POSSIBLE COME OUT AND WALK WITH US on October 20th!!!!
I have to honestly say that before this happened TO ME, I wouldn't do much to give of my time (maybe a $50 donation) - because I thought "Breast Cancer happens to other people". But turns out that Breast Cancer doesn't discriminate, and next week it could be someone you love who is need to support. Perhaps you can donate a little time?? and join my team (even if you can't come walk) and do a little fund raising on your own... if we can each get 10 people to donate $5; perhaps instead of getting that next frappachino....
I recently learned that 1 out of 2 women diagnosed with breast cancer will reach out to the American Cancer Society. That's staggering to me, considering that 6,800 WOMAN ARE DIAGNOSED with breast cancer JUST IN THE STATE OF NJ each year! So we have an opportunity to impace 3,400 womens lives this year by simply donating our time and skipping a frappachino or two.
I will say thank you in advance - and warn you - I will keep reaching out to you until I hear from you. Please, please, PLEASE help me; to help another woman.0 -
Stride for you from Joanne.
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I just have to take a moment to say how much I love all of you - truly. Stride - your news shook me to the core - as I think it did to many of us here. Please don't take that in a bad way. This is life. This is our new reality. Cancer lurks and can come back for a visit anytime. The support I've read for you since you shared your news is so heartwarming for me to see. When I first got diagnosed and people pushed me to think about support groups - I was so reluctant. Write to strangers online and have meaningful exchanges and relationships with them? The thought was ridiculous to me. But once again I learned that in life that you never know until you try. Stride - I echo Juneau's sentiment. The name of this thread is irrelevant at this point. We are a virtual support network and family for eachother no matter where we are in our cancer experiences. So big monster to hugs and thanks to you all. I plan on trying to find my happy with friends and family tonight and shake off the cancer cloud as best I can. Believe - your lovely "happy" bracelet and angels have helped me get through my dark thoughts these past few days. You truly are our resident angel!
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Stride do you have a favorite flower or something. Maybe we can all change our profile pic in support of you. What do y'all think?
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chrisrenee - that is a beautiful idea. I'm for it if everyone else is.
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Stride-
We love you...0 -
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I just got a call from my BS and my MRI yesterday was NORMAL!!!!!!!! I am still NED!!!!!!!! I don't have another doctors appointment for 2 months. I am not sure what I will do with all my time!!!!!!!! HaHa, with kids there is always something. My DD is going for another EEG on Tuesday. We are hoping it shows nothing, but we will know in about a week.
Thanks for all the well wishes! Congratulations to the Karen and Lorall for your good results also!!!!!0 -
I also love all the posters and sayings!!!!!!!
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Momof3Great......great news!!!....sending good vibes for your daughter's EEG.
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I am watching the Big C and I heard the expression "Don't Delay the Happy"....words for all of us to live by....love you all.....❤
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