new and future flat sister, with questions
Comments
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I'm so freaking tired! Woke up at 11:30 to smear my chest and fill up humidifier for baby. Tried to sleep but couldn't. D@mn weather change. The cows and coyotes were at it. And I didn't hold last night before falling asleep at 8 and too afraid to take it later.
Hope Bobo is doing better than me. I always fell out with DH before anything big. Bless his heart, he was just as anxious as me.
Baby has bronchitis and some kind of throat itis. Got a steroid shot and antibiotic. Deep croupy cough.
She probably could stay home another day but I won't be done until 11:30. She'll be napping by then. Don't have anyone to ask. My sister is sick.0 -
Should I be worried about the baby? Poor baby. I hope the medicine is working quickly. How are you feeling, Z?
Wish I could be with I and M and ND at her house having tea right now. But instead, it's into the breach! I will try to be as brave as possible.
Sending you kisses and hugs! XXXXOOOO0 -
OK, it is 4,09pm on the 5th in FL, early morning on the 6th here. Bobo, thinking about you, have been since I woke up.
What time are you going to the Hospital, and what time is surgery?
I hope it is quiet time for you now, but I am guessing you're still marking papers or something equally consuming.
I am with you, whatever, as are all the others!
I have to get cracking right now, but let me know what's happening, please. I will check in as soon as I get back!
Hugs to you...M x
Zills, I am so sorry that the baby is that sick! I hope the meds have kicked in and she has turned the corner! Hugs.....M x0 -
Thinking so much about Bobo today, are you holding up? Let us know if you can take the time, I know your head is spinning, and not from the beer!! I am there with you tomorrow all the way, guess I will bring some snowballs! maybe Florida needs something cooler right now, not sure if the cold blast has hit your state or not. I just keep checking this thread to see anything from our girl! You will do fine, I am sure of it, but the nite before is brutal. Just know we are all in your pocket tomorrow!
How are you Zills? and baby? gosh you have a load, will be so glad when you are done with rads.. as I know you will be. Hope you got some rest and everyone is feeling stronger.0 -
Ok I have the beer, you all are just going to have to make room for it, like it or not! I imagine our girl is running around like a maniac today trying to get everything done and probably will not rest at all today or tonight. I hope to heck she is at least eating.. but I doubt that as well.
Zils, I hope you ended up being able to get some rest. The poor baby.. that has to be one of the most heart breaking sounds, I hope that the medicine does the trick. I wish I was close to you, would love to be able to give you a hand.
M, I'm glad you are getting your dogear straightened out.. that is horrible having to "tuck" in a lump of flesh.. F that. I'm sure it will be a relatively simple procedure and I don't imagine you'd have to go under for it. That was the scariest thing for me about surgery.
I'll check back in a bit!0 -
Baby better. Snow expected tomorrow. Hope it holds off so I can go to the Christmas lunch at my old job and do rads.
MO said come back in 8 weeks, keep the port for now, next scan in March, double the Effexor and call if you need anything.
In the bag for Bobo. Hope you are holding and drinking. Here's a song for you. I hear the chorus every time I'm pushing fluids.
http://m.youtube.com/watch?v=KRJ02VB5Evk&desktop_uri=%2Fwatch%3Fv%3DKRJ02VB5Evk
Hi Granwe! M's going to need to send some heat over here. Instead of a three dog night, it could be a 3-4 kitten night! Not! I don't want to encourage them anymore than now.0 -
Thinking about bobo here too. Tonight is going to be the worst. You are right ndgirl in describing it as brutal. Hope she is getting some rest, but knowing her, I doubt it. Will be with you all in the bag tomorrow.
Zills, sorry the baby is so sick. That deep cough is so scary to listen to. Hope her meds kick in fast.
Ariom, glad you are getting that lump of flesh taken care of. You'd think they would be able to make a smooth closing the first time.
Hugs!0 -
I'm on DLLPs phone chain. Will post as soon as I hear from her tomorrow.0 -
Excellent!0 -
Our sweet sweet Bobo, want you to know I'm in the bag for you tomorrow. Hell girl I came out of the witness protection program just to let you know how much you are loved. Take a deep breath, slooooow your roll, I promise its a piece of cake.xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxox0 -
Hey ya'll. I've been here for all your appointments, yes I was quiet, but I was still in the bag every morning for Zills rads, for Idesim, I was even Colins first mate while he was racing, damn we did good too. I would hop into M's bag but I'm afraid she would sell me for a good price at the Op shop.
Where to start ? There has been so much chatting going on I don't know where to start.
Idesim, Thank you for the cute card. It has a place of honor on my windowsill in the kitchen, it cracks me up whenever I'm doing dishes, which is all day everyday.
Fiaranch. Thanks a lot, I am now banned from the library. Went in to try to post, read your post and they kicked my fat "fanny" to the curb for excessive noise. I was okay until I saw the bra planter then I snorted, the librarian who evidently has no sense of humor, escorted me to my car. I'm sorry you had to join our little band but you have jumped in with both feet, bad@ss attitude an all. I love reading your post!
Zills, ND, GB, Wren whos buried underneath snow, who's freezing their butts off? Bobo, M, Spookiesmom, Idesim, are you in flip flops and tank tops? Goodness knows all ya'll, southern plural for everyone but me, has been shopping like mad women. I'm sitting here sporting my 1993 jogging suit, electric blue, or at least it was 200 washes ago. I did splurge on a new bra, Wal-Mart $5.95. Spend 2 hours in that place, looking like some kinky weirdo turning every cup inside out until I found just 1 that had removable padding. The phone for the store just happens to be in the ladies department, in between answering a thousand incoming calls their employee was eyeing me suspeciously, even more so when I slipped into the dressing room with my 1 bra and didn't emerge for half an hour. Plucking my foob from its pocket wasn't so bad, but it wouldn't go back in without me removing my bra, I can't put on said bra without help. By the time I finally composed myself, Ms Phone answerer had phoned for security backup, I thought they were going to frisk me before I got out of the store. I adore the bra, even if my Darling daughter thinks it makes my foobs hang low.0 -
Thank you Granwe. You always make me laugh. Trying to process the waiting game and feeling sorry for myself.
I waited 6 months between appt with GS and actual mammogram. My "cyst" went from thumb size to egg size with mets. Now I wait another 6 months to see if rads and tamox are working.
The doctors asked if I felt any lumps. Going thru rads I'm not feeling for lumps. Thought BMX would take care of any.
I'm sure sleep will help and I have two kids and snow coming. Won't be able to dwell on it. I know most of you all are ahead of me in the waiting game. I know I've done all I can do but it doesn't seem right to wait 6 months. I don't want to be in the hole again. Maybe I'm just borrowing trouble.0 -
Zils, if I'm not mistaken you're 2/3rds done... with 10 more rads? I hope there aren't a lot of side effects to the Effexor. Seems every damn drug has fatigue and nausea as side effects.
I feel so much better knowing that somebody has communications with DLLP.. what time is she scheduled? I'll be glad when this is over tomorrow.
I've read Granwe's posts.. and as always I am laughing my @ss off. The best was being afraid of M selling her off hahaha!!!! Love ya bunches Granwe!
I'm gonna hop into bed early, we have a big day tomorrow and I need all my energy to wreak havoc at that hospital.
See ya all in the bag tomorrow! *hugs*0 -
Don't want my post to be lost.
Thanksgiving, was celebrated here, only family thank goodness. Turkey, ham, dressing, mac&cheese again, mashed potatoes, broccoli salad, green beans, deviled eggs, pumpkin, lemon, apple, and pecan pies. Nothing happened, no one planted their face in the potatoes, I didn't sling the turkey across the kitchen, it was nice and boring. Christmas decorating began bright and early Friday morning. Except for the real tree I'm almost finished, even tho it doesn't feel much like Christmas at the moment. The living room, and sun room trees are finished, I will have to get the real tree this weekend. I scaled back this year. LOL
OG is having surgery Thursday, finally! The description is rather gruesome so I will spare you the details. They will have to break the one finger he didn't injure, and insert pins through his knuckles, so he will be immobilized for somewhere between 6 and 12 weeks.
Little Mommy to be, isn't so little any more. She has gained 40lbs so far. She is at 29 weeks, and the baby weighs about 2lbs, so far so good.
Know I'm still stalking, and will be back when I can. HUGS...Bobo you got this.0 -
HUGS Zills. I know the waiting game isn't fun, you have done all they asked of you. I figure if they are comfortable with telling you to wait for 6 months then we are going to trust that they know what they are doing.
Check for lumps after a BX? No one ever told me to do that, good grief I've got more lumps, humps, and bumps than I can count. Everyday there seems to be a new one thats popped up. Lets just not sweat them, okay? Stay warm, and be careful in the snow.0 -
Zils, happened to see your last post before signing off... I am assuming the 6 months you are talking about is the time between the scans. I was told by my MO that they don't like to scan too often because that can cause cancer as well. I wanted my brain and body scanned again just to be sure nothing was left behind.It's not like I got surgery right away, I had chemo first and was walking around with the cancerous breast for over 6 months... whats to say it couldn't have traveled. But I was told no scans.. I'm not happy about it but have to assume they know what they are talking about. But then again, I had a similar issue to you... I too was told cysts and suffered for many months in discomfort.. fast forward to last year and it's cancer in the exact area I complained about... so who knows.
From what I gather, even though the breasts are removed, there can still be regrowth or left behind cells on the chest wall.
I agree with you about the waiting, it just doesn't seem fair and it makes you feel helpless.
Lets just get you finished with rads and worry about the rest after... if it's too upsetting for you, maybe think about a 2nd opinion?
I hope you get some rest.. you have so much on your plate right now.0 -
Zills, so glad you will have news about Bobo and can post here! I was also told to watch for lumps in my one side with no boob, I asked what was that all about, and they said just to be sure as the beast could linger in the chest wall and now they dont remove all muscle just tissue, that made my heart sink but what can we do? DId anyone else see on ABC or NBC a new treatment for bc, was mri guided and then just a shot of something, not sure if it was heat or freezing cold, and that was it, no chemo, rads, etc. I need to search for more info. Isnt it ironic that radiation can cause cancer but yet they treat us with it?
Gramwe, you just crack me up, your posts are the best, agreed the one about Ariom selling you wins the prize. sorry about OG's surgery, ouch, but hope things help him. So glad you are out of the witness program
! Another classic from Gramwe.
God, it is cold here this week, wind chill temps are unreal. I want to go to the movie Last Vegas, starring all the old guys, probably close to my age! But not sure if I want to venture out in sub zero temps.. but probably will, if I stayed home until it warms I wouldn't go anyplace for 3 months at least!
Idesim, I too wanted to be checked from head to toe checking, but they said no to me too, said they could give me every test in the book, but if a cell got loose and entered my blood they couldnt tell anyway, but also that the body can fight those off if conditions are right... this is a real merry-go-round isnt it? Just take a day at a time and be glad we have it.
Stay well everyone, will check often tomorrow for Bobo post.0 -
I guess we all want scans after treatment, I asked too. The only thing I can figure is if the blood tests show something wonky, then they start investigating. A friend who survived lung cancer said the same thing tonite. We also decided we are going to keep our ports forever.
Yep, wore shorts and flip flops today, was a very nice 75ish day.0 -
Our neighborhood store, which is a bit pricey, had an open house tonight. We walked over and sampled exotic cheese, chocolate, cider, tea, and cake. They had chicken and steak also, but we're becoming more and more vegetarian and I didn't want any. Theo chocolate is made locally and I got the info for their factory tours. They're a short distance away and the tour is $7. If we get a couple of samples, we'll make up the entrance fee.
It's cold for here with highs in the low 30's and lows in the 20's. No wind today, so not miserable. Snow flurries are predicted tonight, but we're low and close to the water, so we won't get any.
It's going to be a long crowded time in the pocket tomorrow. I think I'll bring sandwiches. Waiting makes me nervous and nervous makes me hungry. Bobo, we're all there.0 -
Hi all, I am back and had a wonderful last meeting for the year with the Pink Ladies!
I can't tell you how much I ate, but it was all wonderful. We had two new ladies turn up, and one from another BC group in the next town who is involved in the Dragon Boat racing.
It was a hoot, I showed my newest black and rose gold colored Mx bra and even whipped out the new Prosthesis I'm trialing for Amoena. They all loved it, but I think I may have scared the new ones!
Npw gramwe, I would never sell you, I miss you, and can't wait to see another post from you! Big hugs to the OG, I hope he has a really successful but uneventful surgery, and no pain!!!!!
Bobo, been thinking about you, it won't be long, and you'll be on the other side of this surgery crap. I think I need a strong drink to get through this, ahh, I forgot,I don't drink!
Zills, you are our time and records keeper, how fitting that you will post the updates on our girl. I will be checking for your posts. Thank you!
ndgirl, I haven't seen the story you speak of, but I just saw a story saying that in Australia we have to pay $4000.00 for an oncotype score test, so very few have it, and so many people are having unnecessary chemo for early stage BC. There is a lobby for the test to be subsidized. I had no idea we were so far behind.
Wren, what a lovely way to spend an evening! I'd love to do a tour of a chocolate factory too.
Posting this before I lose it...making some dinner....check back later M x0 -
Sorry. I don't have a time. I didn't want to bug them and was just grateful DLLP agreed to text me, a stranger. I hope to hear something from bobo before she goes in. I'll keep you posted.0 -
Thanks for letting me know about your scans. That's comforting. That's why I love our group. Nothing like getting it straight from the horses mouth. Stay warm except you Southerners or Southern Hemisphere!
I hear the baby flipping the lights. Need to go see what Mother Nature left overnight.0 -
No problem Zills! Whenever you hear anything is fine.
I hope all is well. I am more skittish, than I was for my own! M x0 -
Let the pacing begin! That was sweet of DLLP to agree to text.. I was figuring we wouldn't hear anything until she was able to text which wouldn't be until tonight or possibly tomorrow. Hate waiting!!!!!!!! I'm not even sure how long her surgery is... it's going to be longer than ours where she is having recon. Hate waiting!!!!!!
It's humid and rainy here today.. we've had cloudy weather all damn week and it's really starting to get under my skin.. I am in a foul mood.. be thankful you all aren't working with me today
Going to drop back to cold later today.. still haven't finished decorating the tree and here Granwe already has 2 down and working on a 3rd. 3 trees? Wowza!
M, I'm glad you had a wonderful meeting and I am laughing over you whipping out the foob!
Nggirl, incredible story.. I searched for it, but all I got was articles about that newscaster who is undergoing treatment.
Wren, my favorite things, cheese & chocolate!!!
Zils, how's the baby feeling? I hope you got some rest and you have 2 days ahead to rest up.
Ok.. back to work!0 -
DLLP texted. She went in 8 ish. I don't know how long it will be. Going to nap. Hopefully I'll hear something when I wake up.0 -
She just texted again. Surgery supposed to start at 9 and be out 2 or 3. Poor DLLP. That's a long wait.0 -
Gosh is DLLP there all alone??? It's so nice of her to include you. It is a very long wait.. it's going to be a long afternoon.
Hope you have a nice nap, Z.0 -
BS done. Waiting on PS. Nothing found.0 -
Whew!0 -
I think we paid for our chocolate last night. Went to bed at 11pm and neither of us was asleep, nor did we feel sleepy at midnight. Not that unusual for me, but very rare for DH.
Zills, Great news!
It's going to be a long wait for DLLP today. I hope someone is there to support her. Is Bobo in eastern time zone?0
