new and future flat sister, with questions
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Hello dear friends!
I too am getting worried about our gramwe, her DD and OG! Hoping so much it is just computer problems.
So true Ariom, my ins paid for 100% of my prostheses and bras so it would be a tidy windfall for me if I sold them. I just don't want to be too hasty in case I change my mind at some point.....rather doubt that though.
Viv, I still get the iron bra feeling sometimes. I massage my chest area a lot so I'm hoping eventually it will be gone altogether. Haven't really had any issue with itching, though I may have just jinxed myself!! Enjoy your lazy day! Everyone deserves one once in a while.
hollyboo, yeah spell check is really wacky sometimes. I've seen articles with tons of hilarious ones listed. Makes you kind of wonder what kind of mind the person had that created the program?
Zills, hope you get your walk in and have a really nice day.
(((((bobo)))))
Linda, love it Bionic Boob!!
ldesim, nice to see you! Glad your hand is OK, be careful of it if you shovel snow. Have a fun game party!!
Fia, really hoping you don't get the flu!!
Have a couple sales to pack from eBay, may even get to listing a few things today.
Have a great day/evening! Hugs for all!
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GrammaB, The guys (definitely guys) who worked on spell check were probably all under 25. It definitely tries to change it to something sexual. Nonetheless, they can be very funny.
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Well that sure doesn't surprise me much!! And yes some are really funny!
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Hey all! Happy football day to those watching or entertaining!
M, never apologize for your novels, we love reading them! I hope you're enjoying nice normal summer temps now.
hollyboo, you're right about Ariom's super mood genes!
bobo, so glad to have you back in fine form! Love how you talk some sense into us when we need it!
wren, so fun that you're babysitting cats! Must be tough not to get too attched to them, but it's good when you get this regular babysitting gig and can see them again. Do you think they recognize you or your place? I hope the PT will be able to soothe your neck pain, funny how these things happen.
gB, congrats on getting your tax stuff organized!
ndgirl, you must be counting down the days to your trip! Have you figured out what foobs you're packing and how?
viv, glad the LE is under control! I hope you get good results from your scans.
sgc, glad you're feeling ok and found this thread since these ladies are an irreplaceable source of info for everything post-op. And I do find that most weird sensations go down a lot even after just a few weeks.
Fiaranch, thanks about the advice for fluoride and tamox, I'll keep it in mind when I start taking it.
Zills, funny about the foobs feeling big, but too bad in a way. Would you be eligible to get smaller ones next year (if you wanted others)?
I told DS about chemo yesterday, with the help of a special kids book. It went well, but it's big news for him to absorb. We'll see how the coming weeks go. He's such a good kid though (I'm not biased
), and I feel we're in tune with each other, I think we'll be fine. I also went shopping for a wig, they will perm it to hopefully match my curls. I'll pick it up next weekend, I hope I like it. I'm supposed to meet with another bco member tomorrow who just started chemo, it would be good to have local support throughout this little adventure! Tomorrow is also BS (f/u from infection), PT and heart scan. LE has not gone down, it's still minor but enough that they don't want me exercising without a sleeve, so they're ordering one. Really don't need this additional inconvenience in my life, but "oh well" like I say all the time with this BC!Hugs to everyone!
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Otceb, how can you have LE? Sh1tballs! From one node removed? F0ck those statistics. Will it go down? Thinking of you and so glad you'll have a local sister.
Idesim, your party sounds so fun! Glad your hand is better. Wish I could be there right now, cold temps and all. Although I don't really like football. I would just sit there happily. I too am worried about Granwe, OG and DD and watermelon. I do not have Granwe's email. I was just thinking I may have to write her an actual note and send it in the mail. What do you think? XX
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hey bobo, i did not get LE after my surgery. It started only 3 weeks later when I had an infection (I'm another one of your infection sisters even without the TEs!) that landed me in ER and a 3-night stay at the hospital. 14 nodes removed (7 on each side) but only 1 has cancer. Great idea about sending a note to granwe! Maybe she's having technical issues? How are you doing? Just slowly healing? Take care!
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Bobo you sound like your old self!!!good to hear!
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I luv all you guys words of encouragement!! Bobo I luv your attitude!! I did go out to dinner last night and had a great evening with my DH. Did everything I should not have. Had wine, high fat food, dessert and it felt great. Back on track today!! It did help a lot to get out. I wore a shirt that had lots of ruffles..... Lol. I was more self concious than anyone else. People really don't care when it comes down to. I rested today as I was wiped out from my outing. I hope to get these damn drains out tomorrow. I am ready to pull them out myself. I wonder if anyone has ever done that...... Lol. I will be trying to wear the prosthesis as I am self conscious. I hope to get fitted next week, but it sounds like I am gonna have to wait. I will wait if it keeps down infections. I will use all of your wonder fashion tips on wearing patterns, scarves, etc Plan on resting one more week before going back to work. That is gonna be very interesting! It comes with drama and all kinds of stress.....exactly what I don't need. I am just wiped out from this last surgery. Just too many in a short period of time and plus numerous infections. Looking forward to getting back into my new normal life. It has been a long six months! Hope everyone has a good week.
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Good grief, how am I supposed to keep up with all of you? You're so bloody prolific in the middle of my night!
Bobo, so glad you're back you're sounding so good, I love that cursing, well placed and showing some of the Punk Princess is returning.
I will answer in reverse order because we have turned another page.
otceb, I am constantly surprised by how many of us succumb to infections. I too did all the right things, I thought, but that bloody bra I tried on, must have been the culprit for me. I am so sorry to hear of your LE. There are a couple of ladies in my BC group who have it, and my Mother also had it.
I'm so pleased to hear how your son is responding to it all. It must be so hard on all of you with young children, it's more than the young ones should have to process, but I agree that knowledge is power and your attitude, is what gets them through it. You are all such amazing women!
I thank you ladies for "The super mood gene" comment. I don't really see it that way, but for those who don't know my situation, maybe this will give a little insight. Colin is a C5/6 Quadriplegic from a hang gliding accident 36 years ago. He is the most incredible inspiration. He has been through so much to get where he is today, that I am humbled by the fight. He had this accident just 4 months short of his 21st birthday, no insurance, and was just about to start his career in micro biology, he already had the job offer, and all looked rosy.
I won't write a novel about him here, even though there is definitely one that could be written. His drive and ambition is what still blows me away, and I have only been with him for 15 years!
If I said he sat in his new car, daily, in his family driveway for many months, just getting the strength to turn the wheel, or that he researched surgery to remove the tendons from the front of his shins to transplant into his shoulders to give him back a tricep lift. That he trained in Ergonomics, and computers when his chances of a scientific career were finished because he hadn't enough motor skills for the practical side. He became a designer and has designed a new type of electric wheelchair that we are trying to have commercialized. It won the People's Choice Award on the New Inventors, in Australia. He re-learned to snow ski, helped design a sit ski which is now used for disabled skiers in Vale CO. also water skied, then became interested in solo sailing, which became a sport he came second and 4th. in the worlds and was state and Australian Champion 3 times. Nominated twice for disabled sailor of the year, was even presented to Princess Anne!
Together we designed our previous house and he did all the design drawings. He did the same for the extensive renovations we had done here.
He has always driven a modified car, used a manual chair, and has worked full time from shortly after his accident, right up until a few years ago when he took a package from work after I had been made redundant with all my other colleagues by United Airlines. He still has an online business that he runs from home.
We knew we had one more big move in us, so this was a well researched move and we couldn't be happier.
There is so much that I could go on and on about Colin and his achievements. Not once have I ever heard him complain about his situation and he has always supported me in anything I want to do.
I have always been the "Lucky" one, pretty much floated through life, being in the right place at the right time, getting jobs that others coveted.
I have had some health issues I could have done without, but when this one raised its ugly head I really was shattered. It was definitely the most fearful I have ever been and I have had several cancer scares before.
Colin was my rock, he was at every appointment, he researched, he worried, he cried with me when I did the Happy Dance in the car park after hearing my final path results, and his comment "You don't need 2 boobs to be gorgeous!" gave me the confidence to move on without any negative thoughts about my scars.
He's also really interested in the contents of the FoobMoire! he shows interest in all the clothes, bras and foobs I buy, and is a great critic because he knows I need reassurance for this new body image.
He also has a great sense of humor about it all, we often joke about it. He has the job of giving me the wink if there is any kind of "Boob Malfunction"!
For me, I think this is a big part of the reason why I have the good mood, you speak of.
There you go, I wrote another novel! Be back soon....M x
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Hi Spookiesmom, and Togtherness!
So glad to hear the night out was fabulous! I am to the way of thinking now, that the only people who really take any notice of chests, are others like us. I have dashed out to the supermarket, only to realize I am boobless on one side. I am at the point now where I don't care, but before, I would look around to see if anyone was staring, or indeed, gagging at the sight, but no, nothing. It could be because I am officially a senior now, and people don't look, but I really don't think people notice as much as we think they do.
Rest up today, the dressing without boobs will be fine. Did you have one of the surgical camis with the puffy inserts? I know a lot of women just wear those till they get fitted. In Australia, Berlei the bra company gives every woman who is Dx a Mx bra which has a hook up front and back and a pair of adjustable puffy things that you can remove the stuffing from, to customize the size. I wore that fairly soon after surgery, but I had washed it, unlike the other Genie bra that I tried on without washing first.
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Ariom, the love the two of you have for each other lights up the page through your words. Give Colin a great big hug from me for being the wonderful man he is!!
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Togetherness take your time with the fitting. As you heal, your shape is going to change and you don't want to go too soon and end up with a fit that isn't the best. You can rock flat for a bit, as you found out no one really noticed at all. Each time you go out flat you will get more confidence in yourself. I think it was by my 3rd time out that I realized no one noticed or cared and I have been just fine with it ever since.
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Thank you gB, I just try to get across how my perception has changed, through seeing what he goes through every day. It is easy to have a positive spin when you're around him.
Don't get me wrong, he can be a pain in the ass, just like any man can and I have let him sleep in the car for coming home too late! LOL
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Hi to everyone else, Hollyboo, you have some great attitude too you know! and Fiaranch, I feel for you doing it tough right now. Zills is preparing for the Big Freeze" I am still missing gramwe, and have actually bought the stamp to send a snail mail card to her because I miss her so much. I know I haven't mentioned everyone, but Colin is already in the car waiting for me, no I didn't make him sleep there last night,
so have to run..I'll be back later....M x0 -
Ariom, I agree with gb, your love does light up the page with your words. Such a precious gift!
I wish I would have been given an MX bra or even direction for how to go about all of it. I will be flat most of the time, but my niece is getting married and I might need some foobs to make a special occasion dress look okay. I never have been a patient shopper. I tend to frequent smaller stores that I know will have what I want. Well, I did before, now who knows! Someone had said that after the MX their stomach looked so much bigger and now I know just how huge it seems. Between the weight gain and MX I swear I look preggers-my DD's have sworn that I don't, but I think they are afraid to tell me the truth! Anyhow, I don't know how to tell if any of the stores that come up in the search are good ones. I live an hour away from anything so I don't want to drive around aimlessly! It is all so frustrating. I don't have anyone here to help me, so any suggestions you all have are more than welcome! I really need a shopping buddy. While the DD's are willing to go they seem to be a little put off by it. Dd2 seems to be having a harder time with all of it, but I see her more because she lives at home. Still haven't heard from DS's. Not one word! My SIL texted everyone during and right after the surgery. Since I didn't hear from them, I sent out another (upbeat) text Thursday. My heart is broken, again. I can't fix it because there isn't anything to fix. I am nice to all of them, etc. (I have been nice to all the spouses even when I hated my DD1's wife because of the awful way she treated DD!). I don't get it and probably never will. Just plain sad! So many changes in my life and many more to come! Change is good- but I would have liked to win the mega bucks lottery instead of the cancer one...wouldn't we all! Have a good night!
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Hello to all,
Ariom, oh please keep those novels coming, I just love hearing your stories of Colin! What an absolute gem you have, and his remark that you dont need 2 boobs to be beautiful just warms our hearts here on these boards... and the same goes right back at him, but not the boobs! I am just amazed at what he has accomplished in his lifetime and continues to do so. It is said that everything happens for a reason and he makes me a believer in that phrase.. thanks again for sharing. You both have great stories to tell.. I think a book is in order!! I guess I did not realize that you got infections from a Genie bra... yuck, I bought them too after surgery. I was so paranoid about infection it was crazy, luckily I did avoid it. Hugs to all that are fighting it.
Togetherness.. so glad you went out for a nice dinner, that must have been such a mood lifter for everyone, glad to hear you ate and drank everything we are not supposed to!! Now it is time to rest again. Keep up the good work.
Otc... So ready to go on my trip... got the pedicure with a cute little design (hope it doesnt wear off in snowboots before I get there)
! Just talked to my friend and she is so enjoying it... weather has been quite warm for San Diego, they were sitting at the beach when they called me enjoying the waves and ships! I asked about the fires and the earthquake that we heard about on the news.. they are both quite a distance from us... I asked her.. "what the hell?? have they heard this north dakota girl is coming to sunny ca or what"The place we are staying is right on the beach and she said she can hear the waves, only down side was there is construction going on which is quite noisy during the day, so we will just leave! I will have my ipad along so hope to check in to see how everyone is doing. glad you had a talk with your son, it is alot for anyone to take in, but I think you will be surprised how well children can adapt to things. When my son's wife died of this damned bc and left him and 4 young boys I thought I would go out of my mind with worry about them, it will soon be 4 years and they are doing remarkably well! kids are so resilient. That was a big reason i chose to do a mx, I just wanted the best chance of those boys and our son never having to deal with breast cancer again. That was the hardest part for me was telling our son that I had it... the 3 women in his life were struck with this.. his Grandma, wife and now mother. But it is what it is and we move forward and remember to try and enjoy each day for what it is and take the bad days when they come along too. Best of luck with the le, I was so worried about it that I watched my arm, wrist, fingers like a hawk at first thinking every day I saw some swelling... but it was just me being me.. You sound like a very informed strong lady and most of all good Mom.. things will go right!!
Bobo, sounds like a good plan to drop Granwe a note... hope she is ok. Good to have you back.. but remember to take things easy.
Love to all.
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M, what a beautiful love story! Colin is such a gem and a role model for any human being. The fact that the two of you found each other, and that you had the maturity to not let the physical aspect stop you, is really special. Keep the stories coming, you're helping me grow a little. :-)
Togetherness, I'm so happy you went out and had a good time! Just wondering, do you have the little foob cushions? Most specialty bra stores probably have them. They do the job for me, I have not worn the silicone foobs yet. Your body is definitely not ready for the silicone ones.
Sgc, sorry I don't know the stores in your area but I just relied on Google before going to mine, it was one that kept coming up even in local bc forums, so I gave it a try. You could call 2 or 3 ask if they have mastectomy bras/camis. That's what you need now, don't worry about finding the best store. I don't think the store staff needs to know much for you to buy this basic item - try some on, know some of the brands before hand (Amoena, for e.g.), and that's all. If you eventually buy silicone prosthesis, you will want a store that knows what they're doing to fit you well, but you're not there yet. Just my humble opinion! As for your DS not being supportive, I'm really sorry. Maybe we should blame it on the fact that he's a man?? I hope your DD can nudge him that you would appreciate a call...
ndgirl - you will have a blast! Your friend seems ready to have a good time too, it will be a great vacation! Thanks for your kind words. I did not know about your son's situation, and that he lost his wife to BC with 4 young kids? Wow, such a tragic story. It's great that they are doing so well, it's quite a testament to your son's strength, which he got from the strong parents he has. :-)
Good night all!
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Bobo, I know you have a bizillion commitments to catch up on. But would you add HollyBoo March 19 to your bday list. I want to see my name in this club in party lights.
What a great crew here.
I had no infections with this mastectomy. Yay. And it was actually pretty easy to adjust to. Surprisingly so. I LOVED my breasts and it was hard saying goodbye to one.
I did have a scary sepsis infection 3 days after my major hysterectomy for uterine cancer last year. Again, the surgery was no big deal. But the infection wiped me out. I wanted no food and nothing but sleep. I had a great hospitalist. He read my record, declared me a "warrior" and explained why my body needed food and movement in order to rid itself of the infection. Within a half hour I was making loops around the hospital floor pulling my IV with me. We all need THAT person at moments input lives. It is great when it is a husband like Collin. But sometimes it is a stranger. With my mastectomy it was a gorgeous young male nurse who would say let's take a look and gently pull back the bandage from my "mutilated" chest. He didn't hesitate or cringe or run. He did not look at my would like I was mutilated.
Togetherness had her togetherness night out. It is such a big deal in the beginning. And then....well, somehow for many of us it truly becomes the new normal.
One of my three kitties follows me to the park when I take the dog. She then hides in the bushes and comes out to the sidewalk when we head home.
So sad when adult family members do not have it in them to be tender and caring and aware. Breaks my heart when I hear about Bobo's brother and some of your other relatives. Thank goodness there are others in this world who will be there. I was truly blown away by how many people signed up to help me out. I felt so loved. It was like having a funeral before dying. Flowers, cards, delish salads, rides, company. And LOVE.
That is what this group has too. Affection and love.
Thanks!!
I hope auto correct did not leave tooany jokes floating about tonight.
Fiaranch--What is the Femara chloride advise?
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Hi Hollyboo! What a great post! you've really been through it too. A bloody Hysterectomy last year and now this.
I love that so many people signed up to help you out. I found that people here were very generous to me too, and they didn't really didn't know me. Some of my girlfriends came from Melbourne and I had Bec here for 10 days.
I can see how you'd describe it as a Funeral before dying, that made me smile!
Your story of the young male Nurse reminded me of the young girl who was my Nurse after surgery. The morning after my surgery this lovely young girl asked me if she could help me in the shower, I said no, I'm fine, but thanks, she came back and offered to come in with me and said she'd turn her back, if I wanted her to. I said I was really fine, but why did she want to come in with me. She said that most ladies that have had this surgery, cry in the shower and she didn't want me to be alone.
I told her I was so grateful for her caring, but I was certain, I wasn't going to cry.
She is an Angel, so is the young man who did the tracer and scan for my SNB, as is Steph, the radiographer who did the imaging for my Stereotactic Biopsy, and all my Mammos. My surgical team are Angels too, and there is a band of Angels in my little BC group, and so are all of you! I have met lots of Angels on this journey! M x
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ndGirl, I am excited for you, going on this trip. I love that you got designs on your toes.
It will be so good for you to get out and walk in the sand. The sea air will do you a world of good, and you'll have so many laughs with your friend. So glad you'llhave an iPad, so you can keep in touch, maybe send a picture?
otceb, thank you for the kind words..... Bien sur! The disability wasn't ever an issue for me. When I first started seeing Colin and I was telling the girls I worked with about him, I didn't even think about the wheelchair. They met him at a work outing and were, umm..... surprised, but they all loved him.
sgc, I am so sorry that your son hasn't been in touch. Who knows what they are thinking when they stay away. It is a burden of stress that you shouldn't have.
I was thinking about your Foob dilemma and wondered what size you were before, and if you want to be the same size again? You could investigate the Genie bra, or even see if the Berlei with the adjustable fluff is available where you are. It would do until you get fitted for Silicone, and then could always be used for more casual times. You could add some Beans for weight if you need it.
Well, I've had a big day in town shopping, so I think bed is the place for me right now...I'll catch you all later...I hope you all have a great day....M x
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Scg, so sorry to hear about some family members not being supportive of you. That is just so not right, I understand they are scared too but come on bite the bullet, put on their big boy/girl pants and be there for you!
As for early boobs, you wont be able to wear anything but the soft poofy ones, I had a cami after surgery that would hold just a poofy and after a few weeks, I also had a cami that was in my drawer from before bc, and it had just enough support to hold a poofy, I am a D cup, it didnt always stay where it should but it worked fine if I needed to go out for a short time, also the genie bra that you can buy at Walmart works good for early times too. I left my drains in longer than I really had to, just wanted the fluid to be eliminated as much as possible. The nurse actually told me I could remove it myself, but no way... that was more freaky to me than the surgery.. a long tube still in my body and sticking out draining fluid... had never had any surgery before so hated that part but dealt with it.
Hoping things go better for you soon, you are still pretty early out of surgery and have alot of things to deal with. Hang in there, you can and will do it.
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Susan, listen to ndgirl (and our A) and stick with the poofs that come with the mx camis. The post-surgical ones. If you do not have them, order them -- covered by insurance. I have three Amoena ones -- including one sent to me by our Z, which is identical to my other two! They come with those poofs. I do not use the poofs myself, but they will be appropriate for where you are in your healing.
Hollyboo, you are added! I am glad we are 'circling the wagons' for Gramwe. Perhaps DD had the baby early? Forgot exact due date: February?
A, I love the Colin 'update' (for the newbies) so much, I want to come to AUS and throw myself on Colin (**slightly inappropriate comment**)! And be his groupie! And you and I will fight for him in the parking lot! Like in West Side Story. Except I don't think I could win a fight at the moment. Let the record show that much of my swearing and bravura is somewhat put on and I would rather not go outside, in fact. Have the day off today; dreading the work week and school drop off and any activities that put me in front of people. I love that you made him sleep in his car. Even a Wonderman must be kept in line. Women are the civilizing influence.
Who was asking about F Femara? Hollyboo? The expert on Femara is our Granwe -- are you taking it? Boy, you need to read back some to get the full scope of Granwe's F report. Of course, that is just one woman's experience. But many is the time we've wanted her to pop an extra one as she was on her way to one of our appts to kick some a$s.
Ndgirl, I am so excited about your trip to CA and your pedicure: what color? Obviously you made the right decision with your mx in the circumstances, I feel the same way. I know there are sisters here who grapple with (and who have been 'given the choice' between) lx/ radiation and mx. Although it is ironic, since I went against the advice of my current clueless BS, America's Favorite (but went WITH the advice of award-winning BS in NJ who runs her own breast center), sometimes I think we shouldn't be given so many 'choices' in that way. I know I would catch flak for this on the big thread if I put it out there, and frankly, I don't wish to get in an argument about it. But say you had a diseased appendix. The doctors wouldn't say, Well, you could have treatment X, with correspondent therapy, or you could have treatment Y. Your choice.
Or say, with my recent infection. Well, I lost all control of choice at that point. The PS was in charge of how long to wait to remove the TE. I wanted it removed right away, didn't want to go septic. But I was told the 'standard of care' was to save the TE at any length, if possible, and so was given three days of iv antibiotics (that they told me were not touching the infection), and I could only suck on a sponge -- nothing by mouth -- for those days in case they wanted to operate, and I watched the TE breast get red and streaky, and vomited all the time and was incredibly sick and dehydrated, and they waited to grow the culture of the infection in a petri dish, and then they started me on new antibiotics and said they would work within six hours, but they didn't, and they waited another day (all this time I am not with my children), and then suddenly they declared it an Emergency and jerked me into the OR when DLLP was not even there to be with me, and they drained a Grande Starbucks cup of pus from the TE side. And then, during that whole time, I caught a flu (not treated by antibiotics) that 12 people in the hospital died from.
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I reply to myself. I just think it's interesting that I was not given the 'choice' to stop the very obviously life-threatening infection (almost died twice, not counting flu), given that it all resided with the elective surgery of the TEs, which is a choice. But then, when faced with the life-threatening situation of bc (even DCIS can have an impact on your life, despite the current line of dialogue about it), women are bombarded with 'choices.' I think it should be the reverse. I am not an expert at bc, and would like to be given the statistics and recommendations at diagnosis. But when it comes to elective situations, I WOULD like to be given a choice.
Speaking of novels. This isn't even a novel, really. It's more like I am on my soap-box. I am supposed to be planning for a meeting. Togetherness: you went out to dinner! Hooray! XX
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Bobo I just luv your insight we should be given statistics at time of BC diagnosis on these treatments. Why do PS wait so long to take out TE or implants. I finally put my foot down and said enough is enough. I told my PS I don't care what you think either take them out or I am finding another Dr. In the middle of the chemo and TE episode I developed and infection and PS kept saying these antibiotics will work and they did not. I said I am going to another PS. He didn't think I would and I did go to another PS and was given another antibiotic and cleared it up. The worst of two evils. I went back to the one who knew my history and we sat down and had a long talk. He has done a 360 and could not be nicer or more attentative. He know I am not going to yt up with his shit!! Everyone is different and when we are not text book like every other patient these drs don't know how to act. These PS are weird Dr. During chemo I had every SE possible and was told we can do a case study just on you! They were bringing in doctors to see! Most all were visible SE on my body. Except for the migraine i had for three months!! Well better get off hear heading to the ass hole PS now!!
I am of the ones who is suppose to be starting FEMARA. I haven't yet just trying to recover from this surgery of implant removal. I will read back what granwe has to say about it. I am nervous about taking it cause I hear it comes with its own issues. Just what I need!!
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I have tears running down my face reading Colin's story.. M, thank you for sharing your very special relationship with us. You've shared most of that in bits and pieces, but to read it all in one sitting is just awe inspiring. Clapping my hands in glee.. it's like a romance novel
Speaking of sharing.. grande cup full of puss... gagging. Thank you for that Bobogirl. Did you know that they have silicone nipples? I forget where I saw them, maybe Ebay.. but thought of you right away.. maybe your dream of 24/7 highbeams can still be realized.
Ndgirl, have a blast with your fancy toes in the sand!
Sgc, I hope your DS comes around, if ever there was a time for family to stick together it is now. As far as shopping... you are part of a forum of shopaholics! Tell us what you need and we will go shopping with you!
I love how we all think the same.. I too was thinking of sending Granwe snail mail... Bobo thinks Feb.. I think March for the baby?
Oh boy, I think we may all be in trouble when Togetherness begin the F femara. If you do a search for keyword "Femara" and Member name "granwe" you should get the posts where she is sharing her experience!
Ok that is all I can take of this keyboard.. not trying to exclude or ignore anybody, but I have little to no patience and this pisses me off and I cant afford another laptop should I lose it and throw this thing up against the g'damn wall
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oh.. and I'm so glad the Patriots lost (shhhhh!) now the football nonsense is done for the year.. woo hoo
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Spookiesmom, sorry I made you cry.. you're right, I did ask for it.. I guess I just couldn't handle it!
We are heading into frigid and more f'ing snow tomorrow. Did I mention frigid?0 -
Granwe hasn't posted for a long time. I sent her a PM, but no answer. I'm worried.
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Morning from Downunder, much cooler than it has been, but pleasant.
Bobo, I love to read your stuff, and I am so thrilled that feisty girl is is coming back. I know it is going to be a process, but you sound fantastic.
All I can say is Fuck that standard of care bull crap!. I have been fighting the "Standard" of care in Hospitals at different times, all my life. When Bec would end up in Hospital with her chronic Asthma, the standard of care was a drug that she could not tolerate, but in order to have her treated that was the drug of choice. I tried everything to dissuade them, always telling them that 6 hrs of torture to a sick child is criminal. I finally found a Respiratory specialist who wrote me a letter that stated she was never to have it again. I had copies of that letter everywhere, so that drug would never be administered to her again. A few years later it was removed from "Standard " of care, guesss why? Yep, because too many people were sensitive to it.
The worst example ever, was when my Mother came home with the beginning of an infection after her Radical Mx. It continued to brew, but the Hospital refused to re admit her unless she went through the ER. I refused to make her sit there, so we had a stand off. Our Doctor arranged for the District Nursing service to come and every day they expressed the stuff out of this disgusting wound. The antibiotics weren't working in her case either, I was beside myself. My Father had passed just 4 months before and I was sure my Mother was going to die as well.
On about day 4, I had had enough. I gathered together the plastic garbage bag full of the remnants of the bandages and gunk the Nurses had removed. I know TMI! I put on a business suit, got my brief case and fronted at the Hospital reception. I asked for the name of the Hospital CEO, got that and then took the elevator to the Management suite. I told the receptionist I had an appointment with the CEO, by name. She couldn't find my name in the diary, so as she turned and walked to the office door, I followed her. As soon as that Bitch looked up from her desk I was in there, and leaning over the desk with the garbage bag opened, for her to see what was inside. I told her exactly what I thought of her Hospital and their stupid policy for re-admittance, and my next stop was going to be the office of "A Current Affair" which is the most watched current affairs program on television here, and they just love a story like this.
The CEO, I'll give her, her due, apologized and said she would organize for my Mother to be re-admitted, buy the time I drove the 5 minutes to the house, there was an Ambulance outside. Just 3 days on iv antibiotics and there was a total turnaround. I think it was likely, really due to the wonderful care of the District Nurses, but whatever it was had finally worked.
I've done the dance of the "Humpy Back Spider" in the Spinal Unit where Colin has to be treated for just about everything, more times than I can count because of similar situations. I have seen the staff visibly cringe when they see me coming, I love it! Once they left Colin waiting for surgery, which was scheduled for 8am, till 9pm in a room without air con no iv, and no liquids. Quads can't get dehydrated because they are predisposed to UTI's. I did a wonderful example of Shirley MacLaine in that Movie, at the Nurses station!
I just can't take the fact that these usually stupid rules, in certain situations are adhered to when common sense, should be taken into account.
Another thing I have learned is if you feel something isn't right with you or someone close, but the Doctor tries to blow you off, saying it's nothing. I always eyeball them and say "How will you feel, if I am right about this?" It has worked for me on numerous occasions.
Ok, ok, I know another novel, or is it a soapbox? but you get me started on something and I can't stop! Can you understand why it was so hard for me to sit on my hands, while you were suffering, Bobo?
Togetherness, you're another feisty one too! You went through such a terrible time too. I think there is an awful lot of covering up of stats about the failure rate of these procedures. We know the dhead that did Bobo's surgery can manipulate the failure rate to a "2 strikes and it's a statistic!" I am still shaking my head about that little gem.
All the best for your appointment today! M x
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Fu¢k!!! I've lost two long posts!!! I had to go do something and the second one had gone just like the first one. Don't know if I can do this yet again!!
Susan, I learned everything about bras/foobs/camis here before and then again after sx. Some hospitals apparently send patients home with a soft bra or cami. Mine sent me home with 2 extra large safety pins to pin the drains to my shirt. Fortunately I had picked up two Amoena post surgical camis before sx. They are soft an comfy and the pockets for the drains really made things easier.
Sorry about the family issues. You really don't need any stresses right now, one would have thought they would be helping as much as possible. (((susan)))
ndgirl, colored polish, how fun!! And you'll get to show it off in San Diego!! Sounds like you are going to have a wonderful trip!!
Waving hi to otc!
Posting before it disappears yet again!
Hugs!
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