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new and future flat sister, with questions

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  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    ldesim! No crying please, not the intention, at all, just trying to let the girls know that it's hard not to be positive, when you're around someone like this, all the time. 

    Clapping your hands with glee? Oh my, I am impressed! LOL

    I am sorry, I can hear you gagging from here! another post sharing TMI about "Pus collection!" Seriously though, you should have seen that CEO's face, it was priceless. It took me all my time to remain business like and calm. I wanted to heave, just knowing what was in the bag! LOL

    I have seen the silicone nipples! They are amazing and very realistic. They come in 3 colors and Amoena make them. They are the finest soft, thin silicone and are just a little "Headlights ON". Definitely worth a look. I was going to buy them to add to the collection in the FoobMoire, but my prosthesis have a little bit of projection on so not really necessary.

    I haven't a clue about your football over there, tried to watch it a couple of times, but couldn't "get" it at all. A bit like rugby, lots of grunting and posturing by big men trying to shove a small ball up someone else's ass!

    I too, am very concerned for gramwe, this is the longest she has stayed away, I think.

    Wren, I sent a PM too and didn't get an answer, which is unusual, unless the technology has failed again, which is what I am hoping for. 

    Off to do the Rites, and have a shower...check back later....M x

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    hollyboo, so sorry you've had to deal with the c twice so close together.   So cute that your kitty follows you to the park like Zills' kitties follow her!

    Ariom, how sweet of that nurse not wanting you to cry alone.  I would have loved to shower the next morning, but I was bound tight and the bs had written on the wrap "Do not remove until Aug 16".  (I had sx on Aug 13.)  Boy that first shower felt good!!

    ndgirl, so agree with you, no way could I have removed my own drains!!!  I had had a couple surgeries before, but nothing that required a drain, so they were pretty creepy to me too.

    bobo, you are so right, there are just way too many choices thrown at us when we are still reeling from the initial dx itself!!  And I call bu11sheet on that "save the te at any length"!!  It was your life being threatened by the infection, that was just wrong.

    The problem I see, from your experience, is that asking for statistics may not give a real picture of the problems possible anyway.  They appear to manipulate the data to make things look less risky.

    OMG, the grande cup of pus!!  I am so sorry you had to go through that!!

    Togetherness, good on you for standing up to you ps!!  Sometimes these drs need a reality check and to remember it is our body and our wishes should be followed.

    Posting 

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    Wow Ariom!  Way to go to take care of your Mom and Bec and Colin.  All the stupid rules and yet no common sense applied!  You wonder sometimes where the "Do no harm" part of the drs oath went to...

    Still worried about gramwe too.  I think you are right Ariom, this is the longest she has been away.  Praying its tech issues and nothing else.

    Phew!  Caught up and nothing lost this time!

    Hugs for all!

  • LindaKR
    LindaKR Member Posts: 1,304
    edited January 2014

    Ariom - there is no where close that sells Jillianna forms, I think I'd like to try them.  I found a pattern for making them at home, but.... I also found a mastectomy solutions that makes micro bead forms - http://mastectomysolutions.com/items-for-sale.php  Do you know anyone that's bought her micro bead forms before?  

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Linda, I have. I thought they ran a bit large, but I bought them before surgery. I ended up making a smaller one and using the beads from the one I bought to fill it. I keep shrinking, so I'm going to need to do that again. Or just order a smaller size. She is very reliable and a poster on here. The forms are well made and sturdy.

    Ariom, I love the picture I have in my mind of you being the humpy back spider. There certainly are times when only that will do.

    Guest kitty is sweet but nervous. Perhaps mistreated in the past? She is white with dark gold spots from the top of her head to her tail. Goldie is a good name. Her dental appt. is tomorrow am. About the time I usually wake up. I'm going to pull on clothes, put a hat over my hair, and just get her there. Then come back home for coffee, breakfast and shower.

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited January 2014

    Idesim

    Does this help?  I know it's not frigid........

    image

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Hi Linda, I bought my Jilianna's, I have 2 in 2 different sizes, from ebay. I have no idea why a man who was selling automotive equipment was selling new in box Jiiannas. I got the size info from the Jillianna website. I found the first one ran a little small, but is still usable in different bras.

    I have had a lot of contact with Mary from Mastectomy solutions. She is  wonderful lady who has put together a great website full of tips and ideas. I ordered a pair of her micro bead foobs. She makes them for just the cost of materials and sends them out to you, or if you are a sewer, she has the pattern on the website to make them yourself. I used mine almost exclusively in the early days, and have now put them in 2 swimsuits, so they are ready to go, anytime!

    The difference between the Jilliannas, and Mary's foobs is the size of the outer cover. The Jillianna is loose like a beanbag, but Mary's is tight and perky in comparison.LOL The Jilliana has several different types of beads, one type is for weight, so there is more weight to the Jillianna, than the very light one that Mary makes. Both are excellent, in their own right, but different.  

    Wren, I hear you about the "Humpy Back Spider". I am not at all aggressive by nature, but I can't deal with that sort of  crap, especially when it is happening to someone too sick to do it themselves.

    Fortunately, for me, Colin has the "Humpy Back" gene, and a wonderful vocabulary! He's intolerant of the same things I am.

    I am hoping that I can do a bit of "shrinking" too Wren, not too much in the remaining "puppy" though. I have too many foobs at stake!  M x

  • LindaKR
    LindaKR Member Posts: 1,304
    edited January 2014

    a

  • LindaKR
    LindaKR Member Posts: 1,304
    edited January 2014

    Thank you wren and ariom! I ordered from Mary this evening, she had great ideas. Since I'm a uni she's sending me two slightly different foobs, one heavier, one lighter,  and she's leaving a place open, with a fill tube so that I can let some beads out if I want to better match the Dolly Parton side. ThumbsUp

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    That's great news Linda!

    May is a fantastic lady, who can't do enough for you.

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    image

    Hi everyone, bed time for me, thought I'd introduce Colin! So as you know who I am talking about!

    This was taken at a sailing competition a few years ago.

    Catch you in the morning...Mx

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited January 2014

    Nice looking eye candy!

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    I can see why you fell for him. You two make a handsome couple.

  • bobogirl
    bobogirl Member Posts: 2,083
    edited January 2014

    I have already seen photos of Colin, but just want to say Oooh!  He is so handsome!

    Wren, thank you for new kitty update.  Shy kitty!  I wonder if she will sleep on your bed.  Little sweetie.

    I have three kitties, do you know?  The female, Jane Golden, is nine.  She was the mother of Charlotte -- waited on her changing table for her to be born, was there when she came home from the hospital, and walked immediately over to give her hair a bath -- and she has become increasingly bossy as our family has gotten bigger (with Miguel, our rescue kitty).  She is really vocal.  If she wants wet instead of dry, if she wants to get on your lap. If she doesn't want you to move when she is settled.  Recently I went to lift her up to go to the bathroom and she 'bit' me -- she took her teeth and clamped lightly on my little finger -- and  just held it there, lightly, to let me know I should not get up!  She has had a good checkup -- no reason for her crotchetiness except bossiness!  She shares her things all day, takes care of the children, and then in the evening, she wants what she wants.  :)

    I have been thinking of looking up Granwe's phone number!  I PMed her too.  I don't know if I can wait for a snail mail response.

  • Vivtwins
    Vivtwins Member Posts: 53
    edited January 2014

    Hi everyone,

    Been catching up on all the news.

    Ariom - What a story you and Colin have and a beautiful one at that! You are a very beautiful couple who deserve only happiness after everything you've been through! Wow! Makes me feel very humble.

    Bobo - You are sounding very positive. I hope work is going okay and people are being supportive. When I had my infection they were so reluctant to take my implant out even though that would have cured the infection. They stuffed me full of 1000mg's of antibiotics 4 times a day intrevenously and my veins were so fucked, I had needles hanging out of my feet! A total nightmare and I am still getting flashbacks to this day!

    Togetherness – So glad you got to go out and you enjoyed yourself. It’s scary going out the first few times but I have been foob free for about 6 weeks now and I’m loving it!!! Never thought I’d hear myself say that. Glad you are okay.

    Otceb - Well done with your son. It’s so hard for the kids and they are very very young to have to process information. Mine were a bit older but even so my honesty has helped them so much and they just got a great set of exam results. I’m so proud of them (I have 15 year old twin boys).

    It's really interesting how we are all dealt with differently depending on where we are in the world.  There really has only been 2 options explained to me about post mx stuff!  Mainly having fittings for foobs or having recon.  It was never even discussed that I could go boob free!  It's funny though because when I was having a bit of a crisis in confidence, the breast nurse told me to get my foobs in and live my life.  So random.  I stopped seeing her after that because I thought, if that's all you think it's going to take then bog off and you really don't get it at all.

    I now have some great clothes and I'm trying to lose my fat belly a bit so I hope I won't ever feel too self conscious again.

    I hope everyone else is okay and I'm sending some hugs over the sea!!!!!!!

    Viv xxxxxx

  • ldesim
    ldesim Member Posts: 1,193
    edited January 2014

    oooo a Colin pic.. very handsome. .you two make a stunning couple!  M, we should have all pitched in and send you to FL to deal with Bobogirl's situation!  I bet she wouldn't have had even a smidgen of the problems had you been there! M, only you with the business suit and briefcase... i was scared just hearing it.. I can't imagine what they were like seeing you in person :)   I always cry over happy or sentimental things.. never cry over sad.. I'm a bit backwards haha.

    Removing ones own drains??? Ugh!  There is no way in HELL I could ever do that!  

    Loving GammaB's new swear word.. by my keyboard doesn't have the "cents" key.. wtf is up with that??  

    Wren, were you able to get the kitty to the vet in time... and do you get her back now or how does that work.  Poor thing.. they are creatures of habit it must be horrible for them to be shuttled around.

    Viv, isn't it strange that they don't discuss living life boob free, you would think they would do more to make ppl comfortable and spare them the recon surgeries.

    lol, not much stops you does it Bobo... "Hi Granwe, it's me Bobo.. where the HELL have you been?" :)  Better yet, get Jane Golden to call.. I bet she could get to the bottom of it all! :)  

    Actually, I bet Granwe has seen that she has like 106 PM's and ran for the hills.

    Spookiesmom, I appreciate the gesture lol.. just next time hide all those 60's and 70's :)  That sounds a bit like heaven now.

    I pullled a prima donna at work..  or as M would put it.. I did the dance of the humpy back spider... (I die laughing every time I read that.. and I picture somebody moving around like an inchworm, only faster with their arms out at their sides) They started painting on my floor.. we weren't supposed to move our floor for 2 more weeks so I started up a bitch storm to be moved immediately No damn way I am sucking in the paint fumes and they are sanding as well... there's a fine coating of sh1t all over everything.  Been shut up on my office today, but come tomorrow I am wearing jeans & Tshirt to pack my office up and anybody that doesn't like it can you know what!

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    I did get kitty to the vet on time, only to be told that the vet called in sick. I left her there to board overnight and they'll do the dental tomorrow. I'll pick her up tomorrow afternoon and keep her until she's off pain medication. She's a nice cat and should get adopted right away. We're really short of cats at the shelter.

  • grammaB
    grammaB Member Posts: 1,118
    edited January 2014

    Hello dear friends!

    Sunny and clear here with no predictions of rain or snow in the 7 day forecast.  I am so sorry you peeps back east are getting slammed again with the polar vortex.  We here are used to that type of weather, where it is a rarity for you.

    Linda, thanks for posting that link.  I know I've looked at it before, bookmarked it even, but it sort of fell out of my brain.  I just might order a pair smaller than the prostheses I already have.  Will have to think on it a bit, they certainly are reasonably priced.  

    Wren, awww a shy kitty, Goldie.  And poor thing having to have dental work.  That is probably going to make her even shyer tonight.  It is so sad to see animals that may have been abused.  I can't wrap my mind around how someone could hurt/mistreat another living thing.

    Ariom, Yum, he is a hunk!! Thanks for sharing.

    Viv, there really wasn't much talk of what happens next after the BMX here either.  Not even any push to do recon.  Maybe I was vocal enough before hand that I didn't want it, they actually believed me and just didn't bother.   My bs gave me an rx for the foobs and bras and at about 8 weeks post I got fitted, by a poor fitter, and so far not happy with them.  I was surprised at how quickly I adjusted and accepted flat and going out flat didn't bother me a bit after the first couple of times.  Yeah, the Buddha belly is a bit of an issue, but I find if I stand up straight, it does lessen the "belly".

    Hugs for everyone!

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Morning! thanks ladies, I think he's pretty cute!

    Bobo, I feel the same about the snail mail, especially mine, it will take weeks for me to get any answer. I would love to try to call her, but wouldn't want to intrude. Do they list cells over there, could you could find that number and text her?

    How are you doing today? Feeling any better? I made some ice cream last night that you may like. 1 frozen banana, handful of frozen berries, 1 teaspoon of coconut oil, can of cold coconut cream, just the thick part, 1 small handful of raw cashews. Throw it all in the Vitamix, and 1 minute later..ice cream!

    Hi Viv! I can't believe that you too, had the same kind of experience as Bobo, But even more incredible is this "Save the Fucking TE" bull crap! What on earth is that nonsense about? What about save the patient and do no fucking harm? Absurd priority here. I read on another thread last night that someone had seen new data somewhere that stated 40% of recon with TE's failed after the 2nd attempt. So would I be right to assume that the collective fail rate is much higher because of all the people who pull the plug, like you two after the first fail? It just boggles my mind.

    I know people say that we have an unrealistic picture here, of how many of these surgeries actually fail, but now I am beginning to wonder if it is actually fairly accurate.  Is this type of surgery, with its fail rate, actually another medical horror that is being kept under wraps because the surgeons stand to lose too much money, if the real stats are freely available? I am not usually a conspiracy theorist....just thinking! 

    I will get off the soapbox now! M x

      

  • gramwe
    gramwe Member Posts: 238
    edited January 2014

    Hello my ladies! Uncircle the wagons I am alive and mostly well. First Thank you all for your concern, it warms my heart. Wren I loved loved loved the beautiful water color card you sent me Thank You.

    Whew what a long hard trip its been. Finally was able to read part of thethread last night right up to the point where Bobo was in the ER, then I lost internet connection to say I was livid would be an understatement.  Poor OG had to listen to my rants for hours. Bobo sweetie, damn and double damn , what hell you have been through . I'm so sorry and sorry I wasn't here to hold your hand. Please forgive me for being a lousy friend. You know I love you, more than my luggage.

    A fast life update : No baby yet, she is now considered full term even though the due date is Feb 18, so anytime now, I'm so excited. We are together most everyday, either here or at her house working on the nursery. Most times plotting the demise of the Weasel,  there is not enough time or energy to go into his latest antics.

    OG is well, still out of work for at least another month, but his hand looks fantastic unless you count you wouldn't know that the finger is missing. Back into therapy and will be for a long while.

    Add my therapy in too. A bit of lymphadema led me into therapy, and therapy led to a nutrition counselor, a message therapist,  a yoga class. All time consuming,  but I guess worth it in the end. A few other health crap has also kept me busy, but it will all be okay, not life altering or ending I hope. 

    I promise I will be back soon. My computer is still mia, Internet has been out more than a hooker on a Saturday night, hopefully its okay now. Love you all and I have missed you all so much

  • bobogirl
    bobogirl Member Posts: 2,083
    edited January 2014

    Ha ha!  Guess what?  I just looked up granwe's phone number, screwed up my courage (I didn't want to bother her), called and left a message, and.... at the VERY SAME TIME she was writing on our thread!  I am magic!  Granwe we have missed you so much!  Idesim, look!  I was right!  Our baby is due in February.  I think we should name her Bobo, don't you?

    M, your ice cream sounds yummy.  I am definitely going to make it.  I can just picture you curled up in a long cashmere robe on your divan, eating your ice cream out of a lovely dish!  I will not put berries in mine.

    Viv, I had tubes in my feet too.  Sounds like we had similar situations.  Just got the bill for the failed sx: it would have been 29,000 without insurance.  My part will be something like 500.  M, I can't help but think that you're right.  It's a crap shoot, really.  I guess some people do get fake boobies, they just get through it fine.  But I know lots who do not.  Especially in the bc group near me.

    Idesim, you are right.  I did definitely need M and her 'Dance of the Humpy-back Spider.' Actually I needed it for the BMX itself.  I think I may not have told you.  It was a horror of catheters.  They kept giving me catheters over and over again!  And then there were mistakes, and nurses standing over me saying, If you don't urinate we're going to give you a catheter.  And then they put in a long-term catheter, but then they took it out and treated it like a short-term catheter.  Meantime I was just out of sx and my body was just not able to pee at that moment.  Eleven times.  It's a good thing I had taken care of my 'lola,' because hundreds of people saw it while they were giving me catheters.  Oh.  Just writing that takes a lot out of me.

    Soooo glad that Granwe is back!  Can't wait to hear about the baby.  And love to hear of her ranting to the OG!  How is your LE?  So glad you are taking care of yourself with those therapies.  That's excellent news, and good news about OG's therapy too.  Can't wait to hear more about the nursery and about the Weasel. XXXX

  • ldesim
    ldesim Member Posts: 1,193
    edited January 2014

    Yay Granwe!!! Oh sh!t so sorry to hear you got lymphadema! What a major pain in the @ss and so not what you needed in addition to all the other crap going on.  Glad to hear the OG is doing good!  Oh boy so she can pop at any time now.. so exciting.

    You MUST update us on the weasel, that way we can cuss him out and vent all our frustrations in his general direction!

    M, I was thinking the same thing, I have no idea what the PS make on these surgeries, but you can bet they make quite a bit of money on these procedures.. it would not surprise me in the least if the numbers weren't fudged quite a bit.  Just look how they were with Bobo, she wanted no part of it and they fed her BS after BS to lull her into accepting surgery... it's disgusting is what it is.

    So happy to have heard from Granwe :)

  • fiaranch1
    fiaranch1 Member Posts: 259
    edited January 2014

    Hello All ,

    OMG M you did not tell us you were married to the Aussie version of George Clooney !!!!   The DH ordered a vitamix today so will try your ice cream !!  I have a bit to say today so hope this keyboard cooperates !!

    Bobo so glad your back .  About this failure rate statistics Fing lie, it just infuriates me !!!  This time around with BC I had a radiologist that I credit with saving my life.  We he told me it was cancer I told him I wanted a double mastectomy with no recon and it is not up for debate. He said with my results he was glad that was my decision.  He also said he wished his wife would have made the same choice .  He said against his advice she was adamant to have recon.  9 surgeries and over 2 1/2 half years to do it right .  He said he was worried the whole time due to infections and rejections and that the failure rate was high (he did not quote a percentage).

    Ok now the dentist update.  I wrote last week that tamox can cause gum line cavities and that I would be getting fluoride and doing nightly treatments.  That will start as soon as the script arrives in the mail. So I ask the dentist about  Femera (spelling) which I believe I will be switched to as soon as I finish going through this GD change.  He says the rest of the estrogen inhibitors casue bone loss which can significantly negatively impact the jaw and teeth.  So I will be on this fluoride for the next 5-10 years . Fing cancer the gift that just keeps on giving !!  So my plea to all of you is just check with your dentist . I know chemo resulted in me getting 3 crowns with the 1st round of cancer.  As I told my dentist I have already lost my real T*Ts I want to keep my real teeth as long as I can . 

    GrammaB I think I am going to start my own website . Called the people of EBAY (like the people of Wallmart). This woman returns a Saks Fifth Avenue gorgeous cashmere sweater and states .  This sweater just does not show off my best asset which is my chest . I am sure you can appreciate my concern.  I wanted to write back , I think brains are more important than boobs and since my boobs are gone go outside and play hide and go F yourself !!! .  I used to think I wanted to open a quilt shop when I arrived at this age of my life .  Now I am so glad to learn I really don't like people and my customer service skills suck !!!

    Made Pad Thai for lunch, was on the phone and the chocolate lab bellied up to the sink and was eating the noodles.  I should have listened when the calico cat was screaming at me to get off the phone . She is the one that always tells on the other 2 animals.  Wren this is why I like animals better than people !!

    DH leaves again in the am, and I have managed to avoid the flu thus far.  He says I am trying to kill him with Lysol spray.  I told him if I was going to kill him I would not do it slowly .  His next trip home will be ripping out drywall to fix the bathroom leak (last attempt failed).

    DS states the other day . I don't know if I will ever get married . I say why he says I don't know how you could wake up next to the same person every day for the rest of your life . I say well  that tells me you are still thinking with your little head and not your big head ................oh well time will tell

    I still have extreme guilt over the financial burden this BC and lymphoma cancer and the impact on the family .  But I am still above ground and will remain grateful for that !!


    Ok I have written a novel and not even acknowledged most of you, so HELLO AGAIN ALL  happy to have this thread !!!   

    Ok off now  for more sweating, swearing and swinging my bitch bat............................


  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Golly girls, you snuck in while I was ranting, I tried to stand up to go for a shower and saw the posts, so I am still here!

    ldesim, you make me laugh, I am always amazed at how people see me as intimidating, Bec calls it my "Pointy Eyes", if I am mad about something.LOL

    I would have loved to "put a rocket up"  that BS or PS of Bobo's. There was a time when I was intimidated by Surgeons or specialists, but had a light globe moment when one mentioned in passing, that they worked for me!

    The one thing that has changed about me from this experience, is the ability to cry. I have never been one to cry, but now, especially something sentimental, I am away. Colin is amazed, he was always the one to have a sniffle at a sad movie.

    I am with you ldesim, I can take a lot, even had multiple surgeries where I have stayed awake to avoid anesthesia, but pulling my own drains, no way. The Nurse who removed mine after this surgery, seriously, put her foot on the bed to get enough leverage to get it out. I thought Bec was going to burst, she and Colin just had to be there, to watch the drain's exit. I just had one great big stonking drain that seemed to snake around inside my chest. When she started to pull it after snipping the stitches, it wouldn't budge.  Finally, two hands and her foot on the bed it started to come out. It seemed like forever, and would you believe the internal section of it was a long piece of square spongy stuff with pinhead size holes all over it. A new type, the surgeon told me. I told him that a big square tube doesn't exit a small round hole very well!

    I find it strange too, that there is such a difference in different countries regarding recon. The first surgeon I saw told me lumpectomy and rads were the way I should go, but when I found my surgeon, he suggested a lift on my good side and lumpectomy, but asked if I wanted to do rads. When I told him I was terrified of rads he said I should choose either lumpectomy with rads, or mx, most likely without, but no promises. I knew I wanted the Mx and said, Mx, no rads and no recon.

    I expected some kind of reaction about my no recon, he asked if I realized that I may have emotional issues, if I didn't reconstruct. I told him I thought I would have heaps more emotional issues, if I did reconstruct and ended up looking like most of the recon pictures I had seen. He got a bit of a kick out of that, and laughed. He explained that there are several types of recon, using the analogy of Motel, 3 star Hotel, all the way up to the 5 star Hotel, using your own tissue. He then said, you'd have a mound, not a breast, and the door is still open if you change your mind. I liked that the option was still there, because I don't like to be told I can't have something, even if, I know, I don't want it.LOL

    I think you may be right about gramwe, but who is Jane Golden?

    I am laughing at you doing the "HumpyBack" in your office. I wouldn't be breathing those fumes or dust either. I still haven't let the painters back in, to finish the painting here. The paint is all allergy free, but the stain coat for the timber has an awful smell that I can't take. Maybe I should organize a trip to Melbourne when they are here. Colin doesn't care about those smells.

    Wren, I love how you take such wonderful care of the kitties, only to pass them on to new homes.

    Thanks gB, Colin was very pleased to hear your "Hunk" description! LOL

    You crack me up! I don't think you left any room for negotiation on the recon front, wasn't it you who said "If I had three of them, I'd want them all taken off!" when that surgeon was telling you that you could only have the Umx. It was a victory when we discovered that new ruling on symmetry! You didn't leave any room for them to force recon on you either!

    I am off to get my day started...chat later...M x

  • Ariom
    Ariom Member Posts: 4,027
    edited January 2014

    Will you stop it! every time I try to stand up there is someone else posting!

    gramwe! OMG, you're here. We have missed you so much! Boobo, you are magic! 

    I too, just received the most wonderful watercolor card from Wren! Thank you so much, I will treasure it!

    I want to answer you all, but I am about to fade away with hunger. It is 11am, and I sat down at 8am....be back soon....M x

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Flaranch, I don't think it's an accident that I started volunteering at the shelter when I was a mental health counselor. When I was a travel agent, I did pottery. No talking and entirely tactile.

    Granwe, So glad to hear from you. What color is the nursery? Rats about LE, but all the therapy and exercise will make you feel better.

    I'm so happy with my BS. She said she would make an appt with a PS. I said, I'm not interested in recon. She said OK and the topic never came up again. I have an onc appt on Thurs and a mammo in Feb. I am thinking positively.

  • ndgirl
    ndgirl Member Posts: 950
    edited January 2014

    Oh so glad to see Granwe here again! Hate to hear about the le, but sounds like you have a jump on it.

    Ariom, Colin is a hunk! Now we are all in love with him!! Thanks for sharing.

    Agreed that wren is very talented! loved the card.

    We drove in some nasty weather to get to Fargo, I catch plane in morn, oh how I hate snowy winters drives, I was a nervous wreck, snow fog from all the trucks on the roads, stupid drivers.   Etc. but here safe and sound but beat to my socks!

    We'll better sign off, hugs to all,

  • Togetherness
    Togetherness Member Posts: 89
    edited January 2014

    Oh no I had a novel written and I went back to look at something and lost it!!! Crap. 

    Just a quick update went to PS yesterday and got the drains taken out whooooo  hooooooo!  So happy to be able to take a shower!! He did not have the culture results back yet.  I am curious if anything comes out of the results.  Would like to know if there is an underlying problem.  Other than I am one that goes in the statistics of failed implants.

    Ariom you were so right I have to wait three more weeks before I can get fitted for a prosthesis.  He said to wear a cami against my skin for know.  So went out today and bought some silk ones and they feel really good against my skin.  I am having a weird stretching sensation against my chest but he said that was normal until I heal.  I just don't feel comfortable in my skin there is a tightness.  I hope it goes away or I get use to  it. My rib cage really hurts as well.

    I meet some friends for lunch today.  It was so good to get out.  I am using the scarves that I used on my head now to distract from my chest!!  Just moved the scarves down a little....lol I have 12 wigs so as you can see I was freaked out about loosing my hair as I was about loosing my implants.  I was all faked out today wig, nails, eyelashes and soon to be foobs.  I think I should move to Hollywood!!!

    I am enjoying feeling better and accepting the new me.  Head back to work on Monday pt.  I haven't worked in six months so a bit anxious.  As Bobo said no one really said anything to her, so I hope I have the same experience.  Not gona stress about it this week!

    Gramwe I hear you have some thoughts on Femara.  I would like to hear your story.  I tried searching but there is so much info on this forum I couldn't find it.  I haven't started taking it yet, but need to give it a try.  I hope I don't have a ton of side effects.  I am liking living without infections and being sick.

    Sorry if I didn't address everyone, but I appreciate all the support and suggestions that have been given!!

    Gonna live life and luv it!!

  • wren44
    wren44 Member Posts: 7,928
    edited January 2014

    Togetherness, We all react to medications differently. I've been taking Arimidex for 2 years with minimal SE's. They're annoying, but not painful or interfering in my life. Look back on this thread for Gramwe's take on Femara. I believe she refers to it as F-femara.

  • Togetherness
    Togetherness Member Posts: 89
    edited January 2014

    Wholly crap!!  I just found the posts from gramwes and her experience with Femara it was not good to say the least.  I know everyone is different, but really I have to try this crap to see what is gonna happen!  Nothing with the BC has been pleasant other than to say I got rid of it!!  I will try it, but just want a few more days of feeling like myself.  I think if I try it now with everything else I have been through it just might put me over the edge if I have a bunch of SE!!! I have to remind myself to breathe and take one day at a time!!!