new and future flat sister, with questions
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O2 the message I received was about your dogs, that was the only one! Sounds like you are having fun with shopping. I go to the oncologist next week, will find out onco results and what drugs I will need to be on. And also I go to the fitter next week as well. So much to take in with regards to all the choices of foobs, bras, and insurance coverage on those things. I was told on the phone by one shop that they have an up charge of $27 for the Mona, and that the Amoena sports bras have about a $12 charge over what insurance covers, I'm going to a different boutique so will be interesting.
xoxo to everyone.
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My shop told me that too. It seems insurance pays for a "basic" bra, and anything "nicer" there is an upcharge.0 -
We don't get anything other than 1 prosthesis every 2 years and I can claim the $50-$75 out of pocket with my private health insurance, but that is it!
If you do enough searching, you might find you can get the bras you want cheaper than your out of pocket from the fitter.
I don't get how it all works. The prices over here are over the top, for the exact same item in the US, even with the exchange rate and freight, it is cheaper for me to purchase from the US. Go figure!
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whew what a day. Had to take the ACLS/BLS course for work the last 2days! It was very hard but I passed thank goodness. But what worries me is the extreme fatigue I felt both days. Ever since surgery and since I started Arimidex I have felt very tired. Got a day off yo marrow so gonna rest. My life has really been changed. Just not going as fast.
Why can't we walk into a store and buy this mastectomy stuff? It is like we are in a closet . Well I am coming out! Talked to the lady this evening at Dillards( a department store here) and told them they need mast bras and swimsuits. Getting this foob stuff together has been difficult. I gotta get it together to work. Otherwise I wouldn't care so much. I just don't want to go flat.
Well I am still alive........tired but alive!!!
Love y'all
O2
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sorry for the earlier post. Just had to vent. Yea my insurance co pays one prosthesis very 2 years. That is why I don't want to swim in it. So ordered semi boob online. Helenna. Metromedicalonline has Mona bras on sale. Get what you can at the fitter then look online once you get the size you need. Keep us posted on your treatment plan k?
Glennieare you having hysterectomy?
Wren. How did appt go today?
Jsj. You ok??????
Hey bobo
Nite now.
O2
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Hey 02, I think it is because of the specialist fitting, that they aren't available everywhere. Here in Aus, they are in Lingerie shops, mainly. The one I go to doesn't have a big range, but I live in the country, so I guess that's why. They do, however, have expert fitters for forms, which is important and they seem to always get the bras right for me.
Sorry you are feeling fatigued, but look at your surgery date, I was still napping on the couch that far out from my surgery! LOL I was told that it takes a month for every hour you were under anesthetic, just to recover from that! Add to that, the healing that is still going on and I think you're doing very well.
I know we push ourselves as women to get stuff done and get back to where we were, but whoa there, you still need your rest, to completely recover. It is very early days.
Take it easy! M x
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It's crazy, Ariom. We have so many different insurance companies over here and they are all different as to what they will cover and how much they will pay. But it's really crazy that it is cheaper for you to buy here than at home.O2,, it would be helpful! We don't seem to have Nordstorms here in the South, but I think you can do just that at those stores, as they have fitters.
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O2,, I'll see what the GYN says when I see her for the ultrasound next Friday. But I'm betting that is what she will say to do. And I think I'm actually starting to lean that way. I'm tired of all this worrying over my estrogen levels,, and that will certainly get rid of the fear of getting ovarian cancer in the future. I had just hoped to do menopause naturally! And the thought of surgery,,, is just not exciting either.You take care and get some rest.
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My appt was totally uneventful. All she does is talk and do a manual exam. My blood pressure was sky high again there. I think it's their machine. I'll have to take it at home and see what I get.
The kittens went to another foster parent tonight. It was sad to give them up. The medium hair girl was especially cuddly and sweet. I am looking forward to sleeping as long as possible tonight.
Next week I see orthopedics about my ankle tendon. I'm still in that boot. I found a great pair of black dressy sandals in the spring and I really want to wear them at least once.
Ariom, Do you think I would wear the same size in the weighted leisure foob that I have in the Amoena silicone? I'm wearing a 6 in that one.
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Hi Wren, I am just about to leave for Melbourne, but wanted to say I won't be around for a few days so don't be concerned if I don't post.
It would be best to talk to someone about the sizing of the TruLife. I wear a 9 even though the chart says a 10 for my 38 C/D. I bought a 10 and it is too big, I like the 9, but I think they do err on the large side.
My lift is here, love to all! M x
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Wren, I think they size on the larger size. The chart said I needed an 8, and when it came,, holey moley! It was big.
My silicon is a 5! So I sent it back and got a 6, which I think is still a tad big,,,, I should have gone with my first instinct and ordered the same as my silicon. My bra size is 34D.
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Thanks. I thought I'd heard that they run larger than expected.
Empty nest syndrome here. We transferred the kittens to another foster parent with more room for them and our last baby robin was finally talked into trying his wings yesterday. DH watched. He thinks the Daddy told the baby there would be no more food in the nest and he needed to fly like his sibling who took the big step 2 days ago.
JSJ & Sailman, Sending hugs and healing wishes.
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Awwwww,,,, How sweet about the robin. Will you get more foster kitties?0 -
Probably. We still have our adult foster, Goldie. She's sitting on my lap as I type. She also sits on DH's lap while he practices his flute.
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Sweet. My dog Ava sleeps next to me while I work. She can snore really loudly!
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Hi ladies, just thought I would check in. on Bec's computer.
I am cozy and warm in Bec's tiny apartment, it has been freezing and wet all day. We have been out for a meal and now we are back watching old movies.
I hope everyone is well and you have a great weekend..M x
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Have a great time, Ariom!0 -
Ariom that sounds wonderful!! I love cold days and cuddle up with blankets!
Had a bad night with side effects with the Arimidex. I am going to change companies to Arimidex direct where they mail it to me and keep up with the prescription. I think that will be better. Had some tears last night as I felt awful and was wondering how I could eat this little pill for the next 5-10years!! It all overwhelmed me. I am out from work today because of it trying to regroup. I hate hate hate missing work and I am a dedicated employee and do truly love my work. So I am upset I missed today but I think I need the rest. That class I had to take was grueling and I didn't feel good there either. That little Arimidex is something else. But SE's mean that it is working so no more cancer!!!! So I will quit complaining. Cannot wait for my new stuff to come in the mail. I am especially excited about swimming boob and suit!
Have a great weekend and thanks for listening. My dog is snoring so loud it makes me sleepy. So gonna nap now!
Love y'all bunches!!!
O2
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wren that is cute about your dog on your lap. They really are mans best friend!!!!
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Sorry I have been off the grid for a while, I just got overwhelmed and shut down for bit. I have been writing on a caring bridge journal if any of you would like to follow it. It is under my name... pm me if you would like to find me there. This whole dx has really thrown me for a loop. I keep looking at the research and it scares me... the odds are 50/50 really? I firmly believe that I will beat this and I will be a survivor, but at the same time, I think of my cousin, Becca, who at 28, died 3 days before Christmas from the se's of her chemo. But then again, that was an oddity. I have done some research and it appears that quite a few people have an allergic reaction to the taxol. My GO said he would monitor me for it when it is first given. I am not worried about losing my hair, I have always believed it isn't the body that defines us, but our heart, spirit and mind. Hence, why I chose no recon. Sailman, JB and my niece are all going to shave their heads with me when it is time. I am really angry at times, sad at others, and overall, just ready to get this fight on. My MD and SIL have kept me busy the last few weeks and I am finally unsupervised again, trying to catch my breath. Sailman has been a rock for me. He has gotten a bit miffed at me a few times because I can't seem to let him take care of things. I guess it is the caretaker's heart I have always had. He finally told me that I had taken care of him for 25 years and it was about time he took care of me for a while and didn't back down. He has taken over the cooking and cleaning for the most part and is just amazing. Our JB is getting so excited about college, less than a month and he will be gone. I think my dad is probably taking it the hardest, I am his baby girl, even at 44. I worry and pray for you all each day and have tried to catch up where I fell behind. I didn't get a chance to wish Zills a happy birthday, so please, accept it late with my love.and hugz. Thank you all for your love and support. You mean the world to me and I promise I will try not to shut down again, it feels so much better when I am here with y'all.
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I have to tell you, my reaction to Taxotere started before I left the office that day. Stupid me didn't realize it, just thought I was thirsty. So if ANY thing doesn't seem, feel right, SAY something to the nearest person!!!!!!
You sure are lucky with Sailman.
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So sorry. JSJ. Don't look at the odds. Someone has to beat the bell curve. The stats are usually several years, up to 10 behind. They don't take into account each individual. Each day is another day closer to a cure. You could be hit by a bus tomorrow.
That's how I look at it. Yes you will have some down times. Find stuff that's makes you laugh. I had friends send videos and pix my third day after chemo. I played candy crush. And these boards are wonderful in the middle of the night. We're here whenever you need us.
M. Sounds like fun. The weather has been fantastic here so everyone making the most of it. Wouldn't mind a rainy day to watch movies but the baby doesn't.
DH arrives on Thursday then home the following Thursday. It's flown by!
O2. Take it easy girl! Yes you have to pick and choose which SEs are doable. Some come and go and some are too wicked to tolerate. Don't be afraid to talk to your pharmacist. They know drugs!
Hey ND. How did it go a week without your pill?
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Hello everyone! Quasimodo here!
I got back last night at about 10.30pm. We left Melbourne at about 6.30pm, had dinner on the way at Hungry Jacks on the highway...mmm, I love HJ's, but restrict myself to a couple of times per year.
I have been walking like Quasimodo, since last week, the soft tissue in my incision line, in between my ribs is so painful a simple cough or God forbid a sneeze, has me doubled over. The pain from that, has started a Rheumatoid flare as well, so I am miserable. I see my Surgeon tomorrow, I hope he has some idea of what's going on. Not looking forward to another drive, sitting in the car isn't comfortable at all. Anyhoo, whinge over!
I had a lovely time with Bec, always do, thankfully it wasn't good weather, so staying inside wasn't difficult, the one time we went out for a meal was freezing, with the umbrella blowing inside out, so that decided for us, that we'd stay warm! M x
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Glad you had a good time with Bec, but sorry to hear about this pain! UGH!! Hope you get a fix on that quickly!glennie
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JS, you haven't been far from my mind I am so terribly sorry for what you are going through now, the whole thing is so damn unfair and I understand your fears. Our Zills is wise to say not to read the individual stats. I know it is hard, but they are just stats and we all know people who have defied all that and done well.
I remembered when reading your Dx about another member here who has a similar Dx, have you seen any posts from MelissaDallas? She has spoken of her omentum, may not be same, but perhaps worth looking. My friend, who drove me to Melbourne this weekend, is having her 11 year check up after Ovarian ca next week.
I am so pleased Sailman is your Rock, I never had any doubt, but you have to accept the help now, for a while!
I would be glad to follow your journey on Caring Bridge, I have another, I read there too.
I am so pleased to see you back here, just know we love you and you can come here and say anything to us, don't ever feel you have to bottle anything up. Let us be the punching bag, so to speak!
Zills, your wonderful holiday is coming to the part you have been waiting for. I hope you have a great time when your man arrives. Take lots of pics and enjoy it all. I hope you can have some going out alone time, with the babysitters looking after the kids. Enjoy!
I saw the heatwave in Scotland Hahaha, I always joke with other Scots that they haven't seen a heatwave till they've done an Aussie Summer with days on end at over 40c, when it only cools to the low 30's overnight.
I am so glad you've had such good weather and plenty for the kids to do.
02, so sorry you're having a rough time with the meds. I don't so well with lots of drugs, some of my Rheumatoid drugs made me so ill. I hope changing the brand helps you. I have seen many reports that the change to or from the generic makes a huge difference to many women. So much for alll the nonsense about the generics being exactly the same, I have had some different se's from the same drug made by different labs.
I am pleased to hear thta you're looking forward to getting back in the water, that will do you good too!
Hi Spookiesmom and Glennie, Dexter was so excited to see me last night I thought he would wag his bottom right off! LOL Colin said he was looking for me all weekend. He would look out at my car and Colin said it was like he was saying "Her car is there, where's my Moira?" "It's dark, where's my Moira?" "She doesn't go walking for this long without me, where's my Moira?" "You're feeding me! What's happened to my Moira?" LOL
He's fine now, but asleep at me feet!
Take it easy everyone...M x
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love the "dog-think". I'm sure that was totally accurate in Dexter's mind!0 -
M. Dex wants to know why he couldn't go too. Spookie has a car seat, and goes quite a bit. Can't ever leave her in the car alone, it's too hot, against the law, and she could be stolen. Drive thrus are our friends.
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Ava loves car rides too. We drive to the dog food store so she can visit with the people who work there and she helps out by "vaccuming" the floor! They have a lovely dog bakery with fancy iced cookies and they give her the broken ones. She is spoiled by all,, not just me.
Gotta blas the AC though,, cuz it is HOT right now.
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Ok, so I lost my post and I figure it was for a reason. I am tired of whining and refuse to do so in this post! LOL.... Do you think maybe the emotional upheaval could also have something to do with the surgical menopause? I have been near tears all day and just can't seem to shake the melancholy. But then, I get on here, and I feel love and support and I have been able to pull the big girl panties out of the bunch and just gonna say crap on a chapstick and get over it!
Zills you are so right...It is the small things that I need to take pleasure in and I have been. I am so thankful... you just don't know... Dr. F told me that three months from now, we would have been doing the same surgery with a totally different outcome. So, the small things do mean alot and I try to find one thing a day to do that makes me smile. Whether it be read a short story, or watch a silly show, or just find an inspirational post on facebook. You are my hero and the grace you show is inspiring.
M~ I am so glad you had a great time with Bec. And the Dexter speak? Well I so get it! Timmy, Betsy and Shadow talk to me every day and I on occasion, must admit I answer them! LOL... Our fur babies are just that aren't they? Ours actually pout when we are gone and the Rottie, TImmy refuses to eat. He just gets in a right snit over it.
We will be going to my inlaws 50th this next weekend and I so look forward to the love and support that just oozes from this side of the family. My inlaws and outlaws are all just amazing and I love each of them as if they were blood. My niece, Jess, texted me last night and wants to shave her head with me as a show of love and support. Wow.... awe inspiring is the love that is for sure. My mom's sister is also getting as many of my cousins together as she can for a quick lunch on Saturday. They are even coming in from out of town, just to see me and give me loves. I am truly truly blessed!
I hope you all have an amazing and blessed week and know that I keep you close to my heart and in my prayers. I love you all!
For those who wish to follow me, you can find me at caringbridge.org under Stacey Herman.
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JSJ. Thanks for those kind words. Not sure I deserve them. What choice do we have? One minute, one foot, one day at a time OR hide under the covers?
I do have days I want to hide but they become less and less unless I overdo and get too tired.
If you are experiencing menopause then you shouldn't worry too much about the cancer growing as it's fuel has been eliminated. Just concentrate on getting strong for chemo so it can kill any nasty buggers that haven't dried up and shriveled away.
There's a new study about nausea meds during chemo on the main page. Not everyone gets sick. Not every round is the same either.
My reaction was better after the first time and they will change meds around to help. Be honest with them.
I did have nausea but I lobbied for two additional rounds and I'd do it again if necessary.
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